CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Good Morning Ladies........have been missing lately............reading but not saying much..........3 more days till the shore house is history..............I never did get back down after the big move..............thought about going this week, but it ended up just a thought................my son said "Mom it will make you sad, and I don't think that is good".........it was his wife that offered to take me........she asked me again Sunday if I wanted to go........................the weather is going to be horrible tomorrow, and that is the only day left to take the ride............if I was going, should have done it yesterday since it was gorgeous ........but missed the boat on that one, so my "Goodbye" will be from a distance.......................still can't wrap my head around it, but it is truly "time to let it go"..............now if I can convince my "heart" that I did the right thing..........0
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I'm so sorry (((Ducky)))
It's nice that your DIL was sensitive to your loss. I hope the pain eases with time.
We missed you.
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Awww ducky such a big loss and change in your life. I am sending hugs. Cubbie, glad you are okay. What a scare that must have been. Katy sorry you are still in the dark place. 7of9, thinking of you. Hugs everyone.
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Katy, I am so happy you were able to chuckle!
Ducky - gentle hugs to you!
Cubbie - Are you still taking zoladex? Peripheral neuropathy is an uncommon side effect, but a side effect nonetheless.
I just learned yesterday that chemobrain can last up to 4 years. That is just from the chemo alone. Now add tamoxifen and ugh...just ugh. My brain is broken...
Anyway...if chemobrain, which is basically peripheral neuropathy of the brain, can last/come and go, for 4 years, why not our hands and feet? It is all about the myelin sheath being affected.
Now the myelin sheath is like a fatty substance that protects our nerves. Why couldn't all the fat I have collected on this journey gone there?!? Just sayin'
Sula, I hope you are getting better from your fall.
Love you all
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Robin, actually I do not take Zoladex, I take Lupron. There isn't a checkbox for Lupron, so I marked Zoladex, since they do the same thing, for the same purpose. I see the same side effect applies to Lupron, as well. I would think if it were that, it wouldn't clear up so quickly, or just happen on one side.
I will see my MO's nurse practitioner this morning, we'll see what she says.
((Ducky)) It's so hard to let go of places we've loved.
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(((((Cubbie))))...in your pocket for the follow up today....glad you are ok. and hugs for you too (((Ducky)))) I know it is hard. Thinking of you. You too Robin.
Hugs to all of you.
Octogirl
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Thank you all for being in my pocket yesterday. Katy, no crumbs, but I did find some sprinkles!
I'm sending hugs, prayers, and love to all who need them today. That seems to be everyone!!!!
Molly, thanks for the thread shout out for Arimidex. I'm still on the fence about taking any of the hormonal drugs. I just don't have peace about it, and that's huge for me... We'll see what the Integrative Onc says next Monday. Meanwhile, just getting through my radiation boosts that start tomorrow through next Tuesday....
Anyone inclined to pray over the Arimidex issue, I'd appreciate it. I'm usually the fighter! The go-to person! The one who says, just try it, you can always stop! Right now, I'm feeling weak and tired from this whole journey and the thought of taking the hormonal drugs is making it all worse.
To all of you crazies... I pray peace and comfort over you, this journey, your families and friends, my comfort cover you like a cozy quilt and wrap you in is warmth and joy today!
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Katy- the dark thing is at bay today too. I never know. The sun is out and the feeling like I got ran over by a truck is better. Jackie, please know I understand these feelings. I love to bake and I finally felt like it today. Small loaves of banana bread. It's been 2 months. I am sick and tired of being sick and tired.
I am glad my watermelon and Cheetos combo was a hit. It just sounded good. Today I am leaving cancer at home locked up in the drawer. Going for a walk and going to see my grandkids. I will try to cover up my big fat drains so as not to scare them. Jackie I wish I lived by you! I would come get you and we could both leave cancer at home for the day.
Cubbie- what the heck? Did they draw labs for cardiac check? What about a basic metabolic panel? I am a nurse so I ask weird questions. Maybe ice it and ibuprofen for swelling. I hope it resolves. I had that that after chemo, but I didn't think you had chemo?
Robin- I love your picture! At least we are all peaking out together!
Penny- gentle hugs- crying is cleansing. Our lives have been put in a damn blender! I tried to look at your post but it wasn't available.
Octogirl- The Redwoods are breathtaking. So tranquil. I am going on a trip in March and looking forward to Nature!! It is soup for my soul.
Love and hugs!
Patty
Ps JerseyGirl- thank you for reaching out to me. We are on the same Armidex Fence!!
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Hi all, we'll for me I think my monthly visit by cleaning gal always picks me up, i highly recommend the splurge as it was something I started while in treatment and keep in my budget
Cubbie, boo on such a scare and do feel better
Jersey, i finished my al a few years ago, mine was aromasin but never felt any bad side effects
We'll having a problem deciding if to continue my pt, insurance only covers a certain number of visits and may take a breather for now, script is up but feeling so much better now so my guy will give me homework and we will see if I can do on my own and take a break. Of course I will stress over this but can go back if it does not work. Would hate to be in the pain I was in last year. He warned me that muscle strength will need on going work
Rainy day here
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hey there fellow crazies!!
Thanks for all the good thoughts and healing vibes. I have been out of it mainly because I'm in this splint that goes from my elbow to the tip of my thumb. I'm supposed to wear it all the time but of course have to take it off to dress, bathe, cook or wash. It still hurts a lot but when wearing the brace everything is cool, I've got scabs all over my knees from the last fall and abrasions on my feet and ankles and right hand. I have been falling my entire life as I tend to walk at high speeds and not look where I am going so.....I am on a "careful" plan right now to really look where I'm going and not get distracted. If I don't start being more careful now I'm really going to have problems if I make it to old age...I may very well be the one who beats cancer because I've been hit by a bus ... Trying to avoid that. Anyway going to be catching up on all of you now , I'm in the Vets waiting room as Patsy is getting her shots
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Jerseygirl, I am praying about your decision. I understand about being on the fence. I sat and looked at that bottle for a month before starting and sometimes I "accidentally" forget to take my pill. I think I told you I have concerns about taking it but my BS told me I am high risk so I will be a good girl and continue on. Sula, sorry about the falls. I too am very clumsy and distracted. I have just been very lucky that I haven't had a fall in a while. The last time was flat on my back on a lawn full of manure.
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Ducky,
saying goodbye to a place packed with memories is always difficult, hope you're feeling better soon. It;s good you have all the family around you. I haven't dropped back into the thread far enough to see, how are all the grands doing? Are the grandsons feeling better, hope your granddaughter is doing better...dropping back to read more
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I saw the MO's nurse practitioner this afternoon. She and I discussed my weird symptoms, and she says they aren't what they see in people who have had cancer spread. She's thinking that it's more likely that I'm having migraine auras - I have a history of the kind of migraines where you get the aura, but don't ever get the headache, particularly when I'm under a lot of stress. I usually see lights. I've never had it be smells before, but I know that can happen. We discussed my stress levels (high!) and she prescribed some short term anxiety medication. I'm going to get on a longer term medication as soon as I hear back from my PCP's office. We'll continue to monitor the situation, but she said she didn't think it made sense to send me for scans that would create even more stress when she was sure that they would be clear.
PMR, no they didn't do any of those things. I don't think those are weird questions, I think those are good questions! They listened to my heart and lungs, but that was it. Maybe they weren't too worried since the tingling resolved before they even called me back to the room? I have had a basic metabolic panel done in the last couple of weeks for my MO, and it was fine. No, I didn't have chemo, but I am taking Lupron, which apparently can cause tingling. Or it could have just been a panic attack.
Sula, good to see you again! We have missed hearing about your life. Yes, please watch out for those buses!
JerseyGirl, I sort of know what you are going through - I am definitely taking hormonal treatment, but have gotten different opinions as to which drug I should take. And they both have side effects to consider. I picked one, but have been encouraged to change by my second opinion MO. Ugh, I am so through with thinking about it. Pass the watermelon and Cheetos!
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Cubbie, happy to hear it is an aura. Those are scary. The fact that they have to rule out so many other things first. Mine changed from twinkling lights to left side numbness just prior to my hyst in '99. Had to postpone surgery for a month to meet with a neurologist.
Ladies, at times I have such an infantile sense of humor. I have to share this with you. Too much wind in the sails
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sula, suggest you should join me at my pt place, they love to set up obstical courses for me but feel better and good to hear from you
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SULA... so sorry your so banged up.....I hope you come around soon......I am just like you clumsy, and always tripping, and if I catch myself good, if I don't Ipay the price ............I tell my kids.a fall is what is going to kill me, not cancer.....................thanks so much for thinking about me and my family......no matter what your problems, or how long you are gone, you never forget to ask about us.......you are so kind........Phil is not doing too good.....sober, but incarcerated but is ok.....he broke parole.........my grandson who was hit by the car is hurting but still carrying on..........Lisa the one who just found out she has diabetes is learning how to eat, and do her blood things, and insulin and watching her food.........Bob'by is doing super.........what a sweetheart..............my little love..........now you take care of yourself, and come back full throttle soon....hugs.0
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Sula, so glad to hear from you! Hope you heal up quickly...we've missed you.
Cubby, auras sound scary but I am glad it isn't anything darker. Hope the new medication does the trick!
JerseyGirl, I hope you to figure out the Arimidex issue. Let us know what the MO says Monday.I really do know how you feel.
Especially today. My arm has been hurting like crazy all day. On the cancer side, of course. No other symptoms or other signs of LE, and my thumb hurts too...could well be the Arimidex. Or Arm Cancer? It really is making me feel crazy. Like PMR, I am sick and tired of being sick and tired....
Hugs and waves to the quiet Crazies, and to all of you.
Octogirl
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Octogirl that happens to me too and my husband has to talk me off the ledge. Flying right now I've been basically flying with my arm straight in the air.
I get random aches and soreness. My doc said can take like two years for surgery pain to
resolve.Thumb on surgical arm hurts off and on right where thumb connects to hand, a sore spot I can press on.
No words of wisdom, just letting you know you aren't alone
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Hello Crazies! I LOVE this thread! This is my first post but feel like I found long lost friends:) I haven't started treatment yet, in a couple weeks, currently recovering from BMX and ALND. I had my first ever PET/CT (def drank at dinner tonight..not gonna lie) scan today. I popped into Crazy Town as I waited and through reading all of the support each of you have for another, I stole some for myself:) I needed all the help I could get to get me through this day. It worked! Im lucky to have already received the results and everything turned out good. Please accept my thank you hug and wishes of healing light to each of you. I look forward to hanging out in Crazy Town regularly. Night!
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Fowlertree- so glad you found us. That's exactly what it's been like for all of us. Long lost friends. And there is plenty of love for you here. Welcome.
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Fowlertee..Welcome to Crazy Town .. Sorry you have to be here, but you will find lots of support here, and a laugh or two along the way.
Cubbie.. What an awful experience.! (( Hugs))
Slow.. Thinking of you and sending prayers for my Twinnie. Xx
Sula.. Great to have you back.! Hope you feel better soon!
JerseyGirl.. I understand how you feel.. (( Hugs))
Ducky.. sending love and hugs to you and your family !
Molly.. Ugh.!! Not the best place to fall 😱 ( not that there IS a GOOD place !!
PTS.. I would just LOVE to have a cleaning lady.!! I'm envious.!
Love to all xx
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Fowlertree, welcome! You can be as crazy as you like here.
Sula, so glad to see you!
Crazies, what is with the thumb stuff? It's not the hormonals in my case, because I'm ER-. Seems like it's endemic in Crazytown!
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So..my dear sweet Hubby always spoils me and brings me my cereal and coffee and tamaxifen to have in bed of a morning.. Bless him.. This morning I said to him that he'd forgotten my pill..???? Turns out he absent mildly took it himself with his own 2 pills..😱 HaHaHa.. Just as well my pill wasnt a laxative :-)
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Katy and Rainny.. Hi.. We were all posting at the same time :-)
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Lucy, we were indeed! Too funny about your DH. Let us know if he gets SEs.
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Lucy-🙋 Yikes in the pill mixup!
I wanted to share with everybody a little treasure from my garden today:
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Even the Rhodies are fooled!
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Fowlertee welcome to CrazyTown from the ViceMayor (in addition to the welcome from all the other lovely members of CrazyTown who were online already. And hopefully eventually from the Mayor Herself)
We do hereby present you with a key to your own room/treehouse in CrazyTown, a glass of coffee with ativan sprinkles with a tray of watercress and cucumber sandwiches, a rocking chair, in addition to the Mayor's official welcome basket......
and sympathy!
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Katy, your photos made me smile. thanks. we are thinking alike today...here is the pic I took this morning in my back yard. This is my overly prolific plum tree. The one that gives me literally hundreds of plums each year. Even though I am not a plum fan. I do make a really nice plum liquor out of some of the harvest, however...
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Katy.. Those flowers are just perfect.!
Octo.. What an amazing tree..! I must say I'm not a huge fan of plum either ( but a peach is a different story! ) ..
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