CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Sorry ladies I lost the topic.
The doc did scrunch his nose last week when I went to see him. I did cut him off when he mentioned revision, but I emailed him and have been chatting with him. DH and I dedided to give it another try. My scars are just inflamed and growing. PS explained that he will do one scar to see if it works. After excising the scar, he is going to inject a steroid called Kenalog into the scar. This should slow the overgrowth and inflammation. I guess a month after he will inject it again. I haven't heard from him since I pasted him with more questions but also the go ahead to set it up. So....I am now waiting for the final response of when he wants to schedule it. I am a bit out of it today - just still real bummed...
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Sorry GmaFoley. That just sucks. I hope it works out for you.
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good luck, steroid injections can do lots of good stuff so hinge yours works as good as my recent shot
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I just love this forum. Very caring.
Thank you for my hugs.0 -
Hi all....sending hugs....trying to keep up, but it is tough with such full days. I think I've walked more in the past three days than in the past month!
Today was a work day for me, at a conference all day, then walked to a very good Oaxacan dinner at a small, rather elegant restaurant about four blocks from the hotel. Crossing the streets is an adventure, but it was otherwise a nice walk. Very pleasant weather in the evenings..meanwhile, we've heard that back home in California they have had rain and high winds with a flood advisory today. I was not expecting that! Hopefully our patio furniture didn't blow away....
Here is a pic of the Fountain of Diana the Huntress, on the Ave. Reforma in front of our hotel, taken on our walk home after dinner.
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and here is my margarita from dinner. Made with hoja santa, a Mexican herb, which gives it a strange tint but tastes great. It went right to my head! Cheers to all the crazies!
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OK thats it Im jumping into Octo's suitcase. Pockets are good to but hmmm.
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🐙🐙🐙💁💁🐙🐙- you know I love a good Maggie !!!
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oh by the way: Gabe totally approves of the color scheme in our hotel room
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Awww, Hi Gabe!!!
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Beautiful flower arranging Katy - I love that relaxed tangled garden look. Great news on results too. I went to that same pyramid in my mid twenties Octo -- thanks for the memory! Oh, and I am tempted to put a straw up to the computer screen and finish that green elixir!! Queenmomcat - I've known Gordo [the wonderful 90 year old] since I was 2 -- like a second father. Glad you have a kindred spirit neighbour.
So very sad about the loss of your friend icm.0 -
Living vicariously through your Mexico trip, Octo! If I still had to work, what a place to be on the job, albeit temporarily!
I just got a shocking e-mail, and am still trying to process it: Carol, the kind, knowledgeable and generous oncology nurse who led our breast cancer support group at Evanston Hospital, passed away last week. Few (if any) of us knew she was sick. May her memory be for a blessing, as was her life.
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Oh Sandy, how sad!
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Oh Sandy - hugs for all that knew her.. that is so so sad.
Octo - please enjoy your trip and its nice to know that Gabe approves. I have a little Monkey named Little Bo Pink that goes everywhere with me since my first BC Surgery.
Well here is a good morning picture for you all - Mr. Squirrel says good morning - been playing with my camera.
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Sandy- how sad and shocking about your friend, nurse and group leader. I imagine that isvery hard to process indeed. I often wonder if it is easier not to know, or better to know so people have a chance to say goodbye. I suppose there is no correct answer. We all make our way the best we can, and the truth is it is always hard. My thoughts are with you and her family. 🙏🏼
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🐙🐙🐙🐙🐙- Gabe is living the good life!!!! He looks very stylish in your room, very color coordinated!
I also visited those pyramids 30 years ago. Never saw any tacos ormargaritas like THAT! So glad you are enjoying, moving, taking it all in.
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Here is my CRAZY arrangement of the day.
The vase is not right, but it was all I had in this size. Maybe time for some second hand shop slumming. Except that my car has now been in the shop since Tuesday, and no sign of it being done. More problems found. I'm trying not to stress. It's a Subaru with a lot of miles, but my mechanic is good and knows the car inside and out (he has the same car). My brother may have to bail me out this time. 😢
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katy, love the flowers but yeah a trip to get new vase is in order
Sort of did a veggie day yesterday, i just needed it i think as today at the gym, i felt great. I so love my gym and all the folks there
A pal of mine belongs to a sons of Norway lodge and they have their spring tea tommorrow so need to dig for directions. It is a nice event but the lodge is aging and not too many new norweigian in new jersey. It will be nice
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Beppy...I would love to get together when you come to the east coast. I'm in Philly. We are having a convention for Jehovah's Witnesses the last weekend in July...other than that, I am available and would love to meet you ladies.
Hi Katy...Proud...Ducky...Sula...Tomboy...Molly...Valstim...Cubbie...and all you other ladies. Have a fantastic weekend
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Do you ever get the feeling like something just isn't right with your body? Like all the testing is good so far but you can't shake the feeling that something is lurking and will surface soon? That's how I feel right now.
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Rleepac, I did many a time and it overwhelmed me.. I am now 5 years cancer free, so I spent that 5 years in worry mode when I could have been enjoying my family.. Of course now, that I am at that 5 year mark... enough said... It is a normal cycle we all go through I think.
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rleepac, I feel the same way.
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Bekah Yes, I know that feeling. I'm in perfect health on paper. Yet, I hurt here and there, and sometimes everywhere.
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Bekah Yes, I know that feeling. I'm in perfect health on paper. Yet, I hurt here and there, and sometimes everywhere.
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sitting by the side of the road......
I see the CRAZY TOWN, USA exit and YES.... I am about to take THIS exit.......
here I GOooooooo!
I am an oldster soon to be older.....Hubby and I have been married 47 1/2 years...we decided to take a trip to Tahiti before we were too old to do such a thing. We were in Papeete, Tahiti for 4 days, then boarded a cruise ship for a 16 day cruise from there, beautiful...the colors of the water was breath taking, visited Moorea and BoraBora (my Favorite) too.....our cruise ship headed north to Hawaii and that is when hubby and I got sick with chills and fever and a hacking cough....we only left our beds and our cabin to eat our 3 meals and 1 snack each day......we missed crossing the Equator ceremony because we were sleeping....5 days at sea and then the big island of Hawaii....saw the volcano and walked through the lava tubes. Honolulu raining torrent of rain and it is Thanksgiving( everything is closed).....road a tour bus around the island......then Lahina, Maui the next day......it was very hot and humid ....then 5 days crossing the Pacific before reaching San Pedro, CA......I remember nothing about those 5 days.....so so sick.... our large balcony at the aft of the ship went unused!
Flew home first class and slept the entire time.....gave hubby my lunch.Next day hospital for a reclast infusion.....I have osteoporosis...my nurse said I should go the the ER to have my cough checked out. I went the next day and was treated for bronchitis....I was sick until mid January and this cough started about the 20th of Nov.
Finally able to start to feel normal again, but weak and dizzy....kept telling hubby "my boat is rocking"
Feb 3 got diarrhea all night....all day on the 4th and by the 5th I was very weak and told my husband I was going to die....he took me to URGENT Care and they said I need fluid and wanted me transferred to a hospital.(the hospital I wanted to go to was on DIVERT, they were full)...took an ambulance ride to nearest hospital....test of all kinds, ct scan....at this "HOSPITAL" is only an ER....as the rest of the hospital was being built........another ambulance ride and a pre-admit to this hospital......they were waiting when I arrrived....there were I believe 3-4 doctors and about 5 nurses around my bed.....one doctor told me I was critical.....I had severe sepsis, c-diff, colitis, Acute Kidney Injury......12 days later I was discharged......I am still weak and dizzy....I walk funny, and many of my brain cells must have died..or they gave me STUPID pills.....sever sepsis keeps giving and giving. I lost my indepedence and hubby has become my uber driver.
My liver was 20CM more than twice the size of normal woman.....I am worried about that.....I am worried about my my left kidney as I have pain, and I am worrried about my andrenal gland as it showed thickening....I am worried about mets, I am worried about getting sepsis again as my odds of dying are higher.
enuff....do I qualify for CRAZY TOWN?
Hugs to all,
Di
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Good Evening Crazies,
JAN, How did the US on the tummy go today? You've been in my thoughts all day. Please update us when you get a chance. I'm keeping fingers and toes crossed for GOOD news!!
Sandy, glad to hear your friend is doing well. I hope her path report turns out as expected. Very sad and shocking news about Carol the oncology nurse. Gentle hugs to you.
Katy, the white flowers look like whipped cream in a cup without my glasses on. Leave it to me to come up with that one. It always goes back to food or snacks. Beautiful flowers. Call me crazy, but I really like the vase in the second arrangement!! Are those Japanese maple leaves I see??
GMA, my goodness you've been through so much. I know how hard these decisions can be. I hope all goes well for you. Please let us know when you'll have your revision. We will all be in your pocket. Such a great squirrel picture. Thanks for sharing it with us!
Funthing, I'm so glad you are here with us!!
Octo, Thanks for the pictures. The margarita looks so good!! My mouth is watering. I haven't had one in so long!! So nice to see Gabe again. I'm a bit jealous that he travels more than me.
Iris, I hope you enjoyed the tea today!
Shorfi, YAY! It will be so much fun to meet you!!
rleepac, Gentle hugs to you. Sadly, that seems to be a feeling many of us share here in Crazy Town. It's good to talk about those feelings with others that have similar feelings. I'm glad you're here with us.
Update from my surgery:
I do have triple negative MBC - mets to lungs. They found a small nodule growing on the main nodule. I was really hoping it was HER2 instead of TN, so I'd have more treatment options. I see my oncologist on May 12th and I also have a second opinion with another oncologist on May 11th. My MO wants me to have another petscan and he wants me to do chemo again. I'm not making any decisions about chemo until I have the petscan. If all is clear, I'm leaning towards waiting to see if anything else pops up. I DON'T want to miss out on my trip in July. My DH and I haven't been on a vacation since my first diagnosis. Today, I went to the PCP because I've developed cellulitis around the chest tube incision. I've been put on 500 MG of Keflex 4x a day. I have no way of knowing whether I was stage 4 from the beginning because I didn't have a SNB. Knowing wouldn't have changed my treatment plan and honestly, I didn't really want to know. I'm feeling really good after the surgery. Other than the cellulitis and the cough I've developed, I feel strong. My RA seems to be on vacation at the moment!! Wooohooo!!
I've been so reluctant to share this news with you all because I don't want to scare anyone. I know it's our biggest fear - the reason Crazy Town exists. One of our wise sisters here in CT pointed out that sometimes it's worse to withhold information rather than share. It just keeps everyone wondering.
I find it sad that my DH and I didn't plan a cross country trip until we got this news. Why did we put off our trip for so long? Why do we wait for news like this to START LIVING? Since my flesh eating bacteria diagnosis, I've been so grateful for each new day I've gotten, and I'll continue to enjoy my family, my friends and the wonderful women here in Crazy Town. Thank you for all of your support throughout this whole process. I'm not sure what I'd so without my crazies!!
BTW.....it's friday!!!!!
Love to all....quiet crazies to
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Di2012, I was typing away when you posted. Sorry I missed it. I'd like to welcome you to our Crazy Town!!
You've picked a great place for support. The women here are all so wonderful. Please pull up a chair and make yourself comfortable. I know QM will be along soon to give you her very special welcome basket. It sounds like you've been through so much. I can really relate to that fear you described. I know from personal experience how difficult it is to live each day after something so traumatic happens. Please know you are not alone. You can share all those fears here. We are all around to help lift you up. Gentle hugs to you!!
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Di, welcome. You more than qualify for CrazyTown, you might even get the key to the city.
Beppy, so sorry to hear your dx. Hope you can treat these mets and be NED for many years to come.
Anyone else here using a mobile device and finding it takes twice as long because of AutoCorrect? So tired of typing Herceptin and getting ""perception," dx "Dix," bmx "Box," Beppy "beep,"mets "Mets" (as in N.Y.), etc. A few posts back, this meme said it best: "AutoCorrect is my worst enema." (Was that you, Beppy?)
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Katy, Beautiful, natural arrangements. Such an artistic touch you have. I do love the colorful vase. Does it have a story?
Di, Oh my what scary series of events. I hope you continue to heal and gain strength. And welcome to Crazytown. We'll do our best to help you get thru the crazy times.
Beppy, So glad you are feeling well. I think of you many times during the day. Please feel free to share your DX and TX; we all want to support you as you get into treatment and recovery. Hugs and chocolate chip cookies on the way.
My US today was uneventful. We drove around the city afterwards with stops at a plant nursery and a sinful bakery (this is our excitement..we live in an isolated area in the mountains). I see the oncologist Wednesday afternoon for results of US. By Tuesday afternoon I'll be a basket case. My poor DH. He takes such good care of me and I know he is getting tired of it. We've been talking about "getting our affairs in order." He's 80 and has a chronic leukemia that is progressing.
Sending out greetings to all citizens of Beppy's Crazytown. Jan
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not sure but it seems to me that chocolate chip cookies and a good hug will help with all ills, even stage 4 junk
Just hanging for now and heading out soon
Just got message from my sis, she is fixing up for yard sale, it includes many Tonka trucks...my nephews are both approaching 30, this from the woman who tells me I am a pack rat..?..
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