CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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ok, first the headline...
My heart function actually went up from 60 to 63 on the MUGA.. Everyone impressed. Hemoglobin great no longer anemic..so everything seems to be A ok. Seated on my throne waiting for the Herceptin to start flowing. End of Dec = End of Herceptin!! Now to go read everybody's stuff.
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Sula:
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Yay Sula! Hi gaia! ok here's what i'm working on today. I just stamped it on sterling, now I cut it out, and make the chain attachment, polish. Think I should do a crazytown one next?
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Also Yes Slow should be the mayor and a big top mansion is in order
Lucy55 I like the coffee and tamox idea- I will get my man on that- oh except we have opposite sleep cycles- so maybe it's a bedtime ritual
Slow I can post a few links ( meant to do that yesterday) but mostly it really is the most humane way to deal with any knod of surgery of this nature. I basically did the usual prep for surgery - pre surgical tests, stopping herbs, no eating after midnight. Went to doctors office ( I was scheduled at 1pm), was out of surgery by 2;30 ish. The had me up and walking of the table into the 'recovery room' by 3pm. My boyfriend and BS came in, they all made sure I was coming out of twilight well. BS asked if I wanted to see the tumor- which under other circumstances, like if it wasn't my boob, I would have said hell yeah; but I declined. We walked out of office by 4 pm and drove back to NYC. No pain meds, just tylenol. 2 drains out 2 days later. doc insisted I walk everyday, even right after surgery. Had 3 follow ups and will visit him again in October. This is Dr Ansanelli's website: http://laserbreastcancersurgery.com/. happy to answer more specific questions if/as you have them.
For now I'm distracting myself with making lists of dishes to play with/ create/ post/offer to clients for Autumn- my favorite season.
Love to all you Crazies
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great news from Sula, hip hip hooray and of course do love the artwork
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Tomboy I would take one of each!
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Tomboy.. I love it.. HaHa :-).. You really are very artistic :-)
Sula.. Yay.. Great news.. Happy for you.!
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hahahaha PTS!! Are you insinuating I'm the craziest here??? hahahahaha
Did the OCD tip me over the edge??? Or, is it the flashlight and magnifying glass I carry in my purse??? I bet there are MANY here that can throw their hat in the ring!! I only want to be mayor if I can live in the mayors mansion.Katy, hahahahahahahahahahaha.....After chemo I live a post-it note, spreadsheet kinda life!! Who can remember anything??? OOOOOOO......special online tent skills!!! Impressive! How did you do that Miss Katy?? Cut and paste?? Or some special tent key?
Rose, I could have been a tent girl in my younger years!! Now it would take a crane to get me up off the floor.
M0mmy, hope you had fun at the fair. Did you eat your way through like our family does??
Lucy, Your DH sounds like a great guy - a real keeper!! Does he serve you your Tamoxifen on a silver platter?? You like the dancing?? See?? I have skills. Next I'll post the limping stick person after all that dancing!! haha
Sula, I think I may give you a wonder woman cape. I'm making a rock star cape for Italy....so, I'll knock one out for you too! Great news!! Go DECEMBER!!
Tomboy, Love it!!!!!!!!!! Better make you a creativity cape!!! haha....Man, I'm going to be busy this weekend making capes.
gaia, That laser stuff amazes me. Have they done studies on laser mastectomies??? I'm sure they must have. I live in a bubble here and I'm not up on the latest and greatest.0 -
Sula, congratulations!
Tomboy, you should post that piece in the Pinktober thread--bet you'd get some takers.
Gaia, definitely. Once I'm back and school starts and I have a surgery date, we'll make a date for coffee and pastries in Greenpoint!
Katy, hope your appointments went well.
Off early tomorrow morning for an open house at my CSA farmer in NY State, then a couple of days camping in Vermont. Hope to come back laden with cheese and maple products. Taking a tote bag of books in case DH and DS get all athletic on me! But who knows, maybe I'll do some hiking myself! No matter what, hope to leave C-town very far behind!
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Slow, crazy? nah you sure have added fun to life around here! love checking for the latest stuff and you created the fun
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Slow-sorry to be frank-but F the 'studies' on this one. Meet /talk to the real life people that went through it as opposed to the other way- and I am not a dilettante with surgery- I had a myomectomy under the knife 11 years ago. That WAS HELL. hospital. morphine, I practically had to plan a jail break. The mastectomy was much more serious surgery and my system was more compromised going in but I was home with no meds that day. and anyone I speak with it's that same thing/experience.
I think is a $ thing- meaning the hospitals don't benefit from it. No hospital stay/ much less potential for complication. and I feel terrible to say this here because I see many are suffering with lymphodema, but Ansanelli has not had one case of it in 25 years....
Sorry I get fired up about this because I am determined to get more info and understanding about laser surgery out there once I get some better footing for my own treatment and progress.
Ugh taking a chill pill for the moment
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Slow: we insinuate nothing, I admit nothing. Only that i'd like to run for vice-mayor. Does it come with lodging in the mansion?
Gaia: my sympathy and attention/interest.
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Sorry That post went a little agro. apologies. Just fired up and probably fueled by some fear as I plan to start the tamoxifen tomorrow.
I definitely don't want to be booted out of crazy town.
Rain have a great trip and stay open to being up for hiking! Reach out when you are back and settled.
Sula yay for an end in sight for treatment.
This crazy is going to try to make some dinner.
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PTS, that is kind of you to say, but I think it's all of YOU that make the fun. Without ALL of us, there would be NO fun. If we have to all go through all of this BC non-sense, we may as well have some fun doing it.
gaia, I think an open mind is a good thing. One of my treatment choices I am sure is controversial for some - I chose not to have a SNB, but with my past history, that was the best option for ME. It wasn't a popular decision with a few of my doctors, but, they did support me and understood my other health issues that contributed to that decision. They also couldn't say they wouldn't have made the same choice if they were in my shoes. Quality of life is huge for me. I already had so much of that taken away with a past illness, and ongoing disease. In the end, we all have to make our own choices and live with those decisions. I'm comfortable with my choices.
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Quality of life: sweet deity, yes. This. This with the power of an imploding galaxy of suns. Whatever that means for you. Or you. Or you. Death is not the only metric....but the chance to avoid getting even a sentinel node biopsy was one of the reasons I was so aggressive about mine. And I don't have any comorbidities that would affect that decision, that I'm aware of.
It's all CrazyTown.
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It's all Crazy Town. Well said queen.
I don't make judgements on anyone's treatment choices. I don't live in their bodies
However, I am interested to hear about everyone's choice. I never know when I'll have to make that same choice, and I like hearing about the options.
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I too am interested in hearing what others have done, because I never know when I may be in that position myself, and am willing to listen sympathetically, because...well, we all need sympathy at a horrendously trying point in our lives. I can't judge what 'quality of life' means for others. Get my treatment over with? See my children grow up? Not have to explain to an employer what, precisely, I'm getting treatment for? IDK.
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Slow I get it. I was radiated as a child so I didn't do Rads after lumpectomy. rO said it had probably been long enough to be okay but I said I wasn't willing to chance it I only have one body to live with for however long that is. Then he came back and said with my stats he was okay with me not doing radiation, go figure!
My breast surgeon, who I dearly love, said she looks at her patient as a person and not something to plug into a database. When I said I had no rads and why she didn't even bat an eye. She will be doing all my scans and follow up and I am very happy about that because she is focusing on not bombarding my system with too much all at once. Said trust her and be diligent with follow up and she will get anything when it is small if itcomes back
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Tomboy- beautiful work
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I am sooin crazy town tonight ladies. I went for my first echo today since I went on herceptin. I went on my patient portal, and the results have not been released for viewing. They only do that when it's bad news. (My baseline echo report was up before I even got home from the hospital). While on the portal I scroll down to the "my care team" part which lists my doctors. I see a name I don't recognize. I click on the link and its a cardiologist. Why has a cardiologist Been added to my care team.? Must...worry..til..Monday..
Gonna go take an Ativan....
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nominating Queenmomcat for vice-mayor without a ballot. Just need some "ayes".
And we need a treasurer. Not me. I am totally sick of debits and credits after a nigh used career as s CPA. I WOULD SUCK AT THAT.
But we need one so we can have a budget. So we can allocate funds to build a private vice-mayor's cottage on the grounds, but not underfoot, as my mom used to say. Walking distance to the big top mansion.
And funding? How about if we take all the money that going to duplicate studies and money squandered by Komen in fat salaries, false advertising, and spurious lawsuits against Planned Parenthood!
That should hold us for awhile Hahahaha.
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gaia, no one gets booted from Crazy Town - we are non bootable! We are all here to learn and support each other and hopefully laugh A LOT. I hope that means we can always say what is on our minds with love and respect of each other. Where else can we do this other than Crazy Town???
queen, of course!! I think we should all live in the mansion!! What fun we would have!!
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BTW, my LE and PT appts went well, and my shrink appt last night even better. I am not in a "mental state" well, not counting CTown.
My shrink is a very well rounded man who took time off in school for things like meditation and the peace corp. he loves music. He personally taught me to meditate viaSkype once. He shares poetry with me when I need that more than meds. And he has always known when.
Last night I was trying to explain how bc has brought life into sharper relief and sometimes made things so incredibly beautiful to me. I worried that I couldn't distinguish what might be normal under these circumstances vs an impending bipolar mania episode. (I am bipolar. Bad)
He totally got me. He talked to me about how to deal with myself. He used an analogy of the ancient Buddhists "meditating in the graveyard". Death makes life more poignant. It makes a perfect paragraph or piece of music stand out like bas-relief.
I'm in Crazytown all right. And just about now realizing just how lucky I am.
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Tresjoli, Welcome to our thread!! Pull up a chair and get comfy. Most likely a cardiologist was added to your team because you are HER2+ which means you will most likely have Herceptin as part of your treatment. They checked my heart before treatment as well. I hope this makes you feel a bit better and keeps you out of Crazy Town for the weekend. It's standard for them to monitor your heart function all through your treatment. I got a MUGA scan every three months while on Herceptin.
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Tomboy- Director of all Art and everything beautiful. In a place like Crazytown that's on a par with controlling the fucking pentagon.
Because we fight out war with love, humor, respect, beauty, music, and art.
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I'm about ten doses into herceptin...my baseline was totally normal. Thanks for letting me in :-)
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Well duh!! I should have read your profile. They don't call me slow for nothing!! hahaha....So happy you joined us Tesjoli!! Sorry....diminished brain function here....I blame it ALL on chemo!!!
Ok crazies....my DH is hungry. I guess we need to figure out something for dinner because I'm sure not cooking tonight. It's too stinking hot here!! Love to all!!
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Katy, shoot.....we must have cross posted!! Great news!! I'm glad you like your shrink. I've gotta get me one of those!!! I can relate to the beautiful part....at least as it pertains to the BCO gals!!
Ok....now I'm really logging off!!
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Tresjoli2, my EF dropped to 53 with five Herceptin only treatments left. My MO wouldn't let me get my treatment and sent me to a cardiologist. I wasn't having any symptoms of heart failure and she didn't want to take any chances. The cardiologist put me on daily aspirin and two heart Meds. My EF has increased on the last two Echos. My last Herceptin is in about two weeks. Don't panic yet. Your MO might be being cautious.
Edited to add that a drop in EF can be normal for Herceptin patients. You are at about the same place I was when I saw my drop.
Tomboy, that looks great. I sure wish I was creative.
I have noticed a lot of women have hip issues. Mine has never been painful which added to the mystery. I'm just hoping my break from running does the trick. Next stop is PT or an MRI.
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thanks mommato3 that actually helps a lot. My initial EF was 59 to begin with....
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