CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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Comments

  • proudtospin
    proudtospin Member Posts: 4,671
    edited October 2018

    fun thing, well guess my suggestion is to decide which facility and doc you feel most comfortable trusting. I am at sloan in nj.and feel good with them

  • funthing42
    funthing42 Member Posts: 236
    edited October 2018

    Thank you both proudtospin and queenmomcat,

    Beside trying to find the most comfortable descions.

    I always do the panic and then run for second opinions.

    I wish I can get the confidence back this one railroaded me...

    Hugs.........

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited October 2018

    Funthing: I can't address the chemo issues--I came in at a blessedly early stage to this [expletive deleted], though I well understand the maelstrom into which we get sucked. That said, I see you've gotten 'second opinions' from some quite reputable institutions. Have you gotten responses from them? Have you two or three trusted someones to whom you may vent, blubber, disintegrate and do all the things that we DO do....because that's the entirely reasonable reaction to this bleep? (I'd found that more than one is necessary; my husband is a sweet gentle supportive person but didn't know how to deal with my rampages.)

  • funthing42
    funthing42 Member Posts: 236
    edited October 2018

    Hi

    Yes, unfortunately I do not freak out as much as I should.

    The Second opinions where pretty much the same.

    Thank you again for listening.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited October 2018

    if all pretty mu h said same, then pick one and do treatment, i would recomend somewhere reasonably close to home in case you neec chemo

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2018

    Funthing ...Sorry you are going through all this ..I think Iris is right ...Pick the facility that is close to home , with a doctor you feel you can trust to make the right decisions for you .That's so important. Hugs

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited October 2018

    Had routine CT Scan today.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2018

    Mommy ...Hoping you get great results from the scan !

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited October 2018

    Me too

  • Julesm59
    Julesm59 Member Posts: 18
    edited October 2018

    Lucy55, absolutely get a team that communicates well. You want you questions answered even if they don't know, but will find out or direct you to the right team member who has the answer. Experienced teams will work with you toward the goal to get you healthy and you need peace of mind to get healthy.

    Mommy- Praying for good results on your CT scan. I haven't had one, probably didn't need one yet or ever. But that reminded me to ask the question next Monday as my post-op appt.

  • jo6359
    jo6359 Member Posts: 1,993
    edited October 2018

    funthing- choose the facility nearest to your home. Most importantly find a doctor you can trust and one who listens to you. Your second opinions have come from highly reputable facilities. I went through chemo. Chemo is doable. Hugs and positive energy

  • proudtospin
    proudtospin Member Posts: 4,671
    edited October 2018

    yeah my original doc was near office, fine till i retired but lucky sloan opened new place 15 miles away, nice if i need help, lots of drivers! And really fine place with lots of extras,

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited October 2018

    Hello, everyone! I have been busy with the beginning of the school year, and haven't had time to read or post. Just catching up.

    Molly, I am so sad to hear about Wyatt. I'm sure you miss him every minute of every day.

    Funthing, I am sorry to hear you are going through this. I agree, if all the opinions are about the same, pick a team that you have the most confidence it.

    M0mmy, praying for good results on your CT scan.

    I am having another skin biopsy done. I have had more skin problems since I had radiation. This time I had a little bump on the skin just inside the radiation zone, on my left side, sort of under my arm, but well below my armpit. MO's nurse practitioner said it wasn't concerning, sent me off to dermatologist, nurse practitioner at dermatologist took it off and said it might be a skin tag or a sebborheic keratosis. She was OK with leaving it and just keeping an eye on it, but I wasn't. I'm not a resident of Crazy Town for no reason!

    On top of that, I've had terrible itchy eczema on the back of my shoulder on the same side as the radiation for the last year or so. I have to use a prescription steroid ointment to settle it down when it really gets going. I really wonder if the radiation is related to it, since it's not far from where I had the "exit" burns on top of my shoulder.

  • TaRenee
    TaRenee Member Posts: 406
    edited October 2018

    When you get tumor marker numbers in, what is good? I’m at 16. I have no idea what that even means. It was at 10 about 6 months ago. Should I be freaking out? Because I am

  • funthing42
    funthing42 Member Posts: 236
    edited October 2018

    Thank you all.....I know it sounds silly to ask with google and all but...

    I was wondering how bad is a liver Biopsy. Was anyone afraid of cancer cells transferring to healthy tissue during the Biopsy.


  • proudtospin
    proudtospin Member Posts: 4,671
    edited October 2018

    i had a liver biopsy, my experience was not painful, but wierd! Worst part was you had to stay for 6 hours till they were sure there was no bleeding. I had a pal with me, he sells aflac on the side and can talk to anyone! He kept me company!

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2018

    TaReene..ugh ..My doctor does the Ca15 3 tumour markers ..I hate it ...I'm always so nervous over it ..So I asked him if it went up, but still within normal levels would he be worried ..and he said no ..

    Cubbie ..Sorry you have skin issues ..hope all goes well with your biospy. I'd much prefer the biopsy versus " keep an eye on it "..The anxiety it causes me just isn't worth it .

    Iris ..sounds like you have good friends !!!


  • proudtospin
    proudtospin Member Posts: 4,671
    edited October 2018

    lucy, i do have great neighbors and awesome gym pals. I feel very blessed. When i needed brain surgery a few years back and surgery was in nyc, i had a list of folks who offered to help me. Still have the list of phone numbers .Guess that is just how new jersey folks are

  • jo6359
    jo6359 Member Posts: 1,993
    edited October 2018

    funthing- when I was first diagnosed I drove myself nuts with Doctor Google. I was very fortunate because Iris as well as several other ladies on these threads told me do not use dr. Google. Take a deep breath get advice from people who've been there and judiciously use Google. It was the best advice I've ever received. For myself, staying away from Doctor Google saved some of my sanity during that time period.

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited October 2018

    CT Scan results are in. Everything is stable.


  • gmafoley
    gmafoley Member Posts: 5,978
    edited October 2018

    YAY Good to hear Mommy!

  • chisandy
    chisandy Member Posts: 11,408
    edited October 2018

    Woo-hoo, Mommy! Happy dance!

  • jo6359
    jo6359 Member Posts: 1,993
    edited October 2018

    Mommy- I am so happy for you. What a relief.

  • TaRenee
    TaRenee Member Posts: 406
    edited October 2018

    Crazy Town stage as designed by one of my students. (For a play, but I found it hysterical that it was called Crazy Town)

    image

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited October 2018

    Thanks all! Was so relieved about the results, even though from what I could understand from the report from the hospital's patient portal that everything was all good! Just gave me confirmation that everything was okay.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2018

    Mommy .. great news !!!!

    TaReene..Too funny :-)

  • proudtospin
    proudtospin Member Posts: 4,671
    edited October 2018

    morning gang, do love the picture of crazytown!

    Well friday here, got chemo this afternoon, will be talking to nursepractioner today, i think they will be giving me a port as my arm doesnot like this med, arm is looking burned, spect it to be long day

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2018

    Iris ..thinking of you ..hope the port makes things easier for you in the long run ((hugs))

  • jo6359
    jo6359 Member Posts: 1,993
    edited October 2018

    iris- I cannot even imagine getting chemo drugs without a port. Hope everything works out for you with the port.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited October 2018

    well, i got chemo i.my left arm, doc said veins in. Right arm have collapsed or basically not usable anymore. She convinced me that left arm should be good for this one time. Sooooooo, got info on the port to read up and will have a call with date for the insertion. So i trusted her, it has been 10 years since the original surgery and wnile trunmk showed some swelling at first, nothing has ever happened, So will be working on the plan for port i.coming week

    Ok. Beat now, tired