CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    hey ducky, good to hear from you, hope the family is wel


  • chisandy
    chisandy Member Posts: 11,408
    edited August 2019

    Welcome back, ducky!

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    well made it to my gym yesterday, first time in months! My neighbof is a member of the same gym and she said folks were asking about me so.... i went for a short visit, till i rea.ized i was having a small diareaha issue! Managed to clean up in rest room but not pleasant.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2019

    No sh.... (uh, poor choice of words).

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2019

    Iris ..so sorry that happened to you ..not pleasant at all !

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    My tummy is sensitive and it needs time to accomodate food....even my basic breakfast, i guess i rushed too mu h, but gonna try again, maybe next week

    I am actually trying to eat more since i have lost about 25 pounds but find i really need to time my eating,

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2019

    Iris..that's a lot of weight to loose ! Hope you enjoy your outing next week !

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    lucy, gonna try go to hit the gym again monday morn, little steps!

    Just had lunch, sausages with zucchini anc tomatoes, tummy is fine so far! I just need to be home when i test foods like that

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2019

    Iris, I've been wearing bladder pads ever since the last months of pregnancy 35 yrs ago. (My fave is Always Discreet--moderate regular for day, moderate or heavy long for sleep). I've gotten into the habit of keeping a couple of panty liners in my purse just in case. (Super-thin, foldable).

    Not quite ready for the gym again (especially personal training) due to my quirky back, so just going to walk, use my treadmill, and lift hand weights. Fatigue is lifting now that I've started taking B12 pills.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    sandy, gee thought i was the only person wearing pads! It is nasty. I have an appointment witn a ufologist the end of tne month, my onc wanted me to do. I confess i am anxious to talk to someone as it has gotten worse i. Recent months.


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2019

    Iris..hope the urologist can come up with some answers for you .

    We had some awful news yesterday . My son-in-law's sister who got breast cancer at 30 found out she is stage 4..She's still only 38 with 2 little kids. :-(

    Hugs to all xx


  • snaffle53
    snaffle53 Member Posts: 107
    edited August 2019

    New here. Have read quite a few posts in this thread. Seems anything goes. I’ve got 9 days to wait until my consult at Dana Farber. I’ve managed the waiting from test to test ok. Now, it’s just waiting on a particular day to roll around. I’m getting closer and closer to Crazy Town with each passing day.

    I don’t have enough personal experience to be helpful to anyone here. Just kind of feeling in limbo. I’ve got this cancer in me. But we’re not doing anything about it yet! I’m afraid my silent scream might become audible soon.my friends think everything is great because cancer ONLY spread to my lymph nodes not further. Meanwhile, this doesn’t feel so great to me. Could we please start doing something about this?? SOON?????!!!!!

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2019

    I hear you, Snaffle. Life for us is waiting for the other shoe to drop from now on. But take comfort in the knowledge that it took years for that tumor to become detectable, and it's not a ticking time bomb with a short fuse like oncologists used to think. In 1975, my MIL noticed her nipple was inverted and then found a lump. She went to the gyne, who had her transferred to the hospital for a biopsy...as an inpatient. Back then, knowledge about breast cancer was so primitive that doctors thought it spread like wildfire--and it was unheard of to have an outpatient biopsy, go home, and wait for results. You had to sign consent to have an excisional biopsy under general anesthesia, with immediate modified radical mastectomy (all nodes, plus part of chest wall) if a frozen section came back malignant. Yup--she went in for a biopsy, and woke up missing her breast and much of its surroundings.

    We know SO much more today: staging, grading (Nottingham score), mammograms, ultrasounds, MRI, hormone receptors, HER2, OncotypeDX, etc. These days surgeons go in knowing what they'll find, where to find it (even if there's no lump to be felt), how big and how any stray cells are likely to behave, I got my "uh-oh" routine mammo report 8/18/15--a day after the mammogram; additional imaging 8/24, biopsy 9/8 (had a non-refundable business trip 8/25-9/7), path results 9/9; and surgery 9/23.

    So I understand the frustration of wanting this thing out of you ASAP. But you will be okay--our personal anxiety is not as justified by the state-of-the-science as it used to be.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    lucy, thanks, i sure hope so as well.

    Hit the coast for lunch today, ran into neighbors when i came home, they said i lookec good, i feel better so figure salt air is good for me must go next week!,,

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2019

    Iris, I think salt air is good for us all! Hope you get back to the coast again soon! I was on the east coast mostly for work last week, but did get a chance to have lunch by the sea on Sunday with my son and his gf near Providence. The weather was perfect! Of course I ate lobster :-)

    Lucy, I am so sorry to hear about you SIL's sister; hope she gets a great treatment plan in place very soon.

    Great to hear from you Ducky!

    Snaffle, welcome and pull up a chair on the Crazytown porch. We've got hot chocolate with ativan sprinkles, or a nice glass of ice tea, or even an ice cold margarita, and will sit and wait with you. We've all been there.

    Hugs to all!

    Octogirl

  • di2012
    di2012 Member Posts: 871
    edited August 2019

    I am breathing salt air now..... I am making my annual cruise to Alaska will be in Victoria,BC in a few hour.....celebrating our 51st Anniversary at a specialty restaurant on board our ship tonight.....mmmm....

    Hope all is well....

    I am still worried about my RECALLED implants....since they affect lymph nodes....and I have 3 Lymph nodes over 1cc, 1 under 1cc on left axillary, and 1 cc node ....behind my rib cage on right, which cannot be biopsied.

    Hugs to all!

    this BC journey.....makes me live in ÇRAZY TOWN!


  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    yeah, i sort of think i live here as well

    Had chemo yesterday, late day appt which is not my fav. But did have, long talk with the np wno is new, it was good

    Next pet scan is next month but yesterdays blood test was pretty good

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2019

    Iris ..great news your blood test was good !

    I had my 5 year check up this week..mammo, ultrasound and blood work is all good ..am booking in to have a prophylactic mastectomy...I've been thinking about it for a long time !

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited August 2019

    Stuck in CT again. This time it has nothing to do with me. Got news over the weekend that my 91 yr step-grandad isn’t doing so well. They suspect congestive heart failure and he may end up in hospice. On top of this, my 12 yr old Sheltie looks like he is reaching the end of his life slowly. So between these two things, I have been very stressed out.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    oh mommy, sorry for the family issues

    Home from weekly chemo, nurse told me i need to drink more, will mu glass of wine count ? I have been having pain in my vaginal area and nurse said to drink lots more than i have been so......drink up!

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2019

    Iris..yes...wine counts 🍷🤣

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited August 2019

    No new news on my step-grandad. But my Sheltie is holding on, of which I am grateful for. He seems to be doing a bit better than he was the last few days

    Yesterday I went to my routine check-up at the cancer center. Go back in November, four days before my birthday and a routine CT Scan next month.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2019

    Mommy ..glad to hear your fur-baby seems to be a bit better ..And hope your grandad recovers as well .

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2019

    yay for good tests results Lucy, and Mommy, hope things take a turn for the better! oh, and Iris, drink up!

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2019

    octo, yeah drinking but also got tne depends on today

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited August 2019

    Jackson is still improving bit by bit, but my step grandad looks like he is not getting better. Praying that if it’s his time to go, that I get to see him before it happens.

  • readytorock
    readytorock Member Posts: 51
    edited August 2019

    Hi, ladies -

    I haven't visited this site in a while, but I have a MRI scheduled for tomorrow and I'm looking for a little support. I haven't told anyone (actually finally told hubby today) as I'm just hoping to share good news once it is all over. If all is well, my 5 year cancerversary is on Labor Day. I have waited so long to hit the five-year mark - if tomorrow doesn't give me an all clear, I'll kind of be devastated. Hoping for the best.

  • beaverntx
    beaverntx Member Posts: 2,962
    edited August 2019

    ready, in your pocket tomorrow!

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757
    edited August 2019

    Ready,

    Good Luck!

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2019

    In your pocket, Ready!