CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Hi to all, I am living in crazy town after having some pancreatic uptake on a PET scan. My dr said nothing to worry about (probably inflammation), but lets get a CT to check. CT showed minimal dilation of the pancreatic duct (no inflammation) and they recommended EUS with biopsies. Scheduled for next Tuesday. Seems like there is a possibility of this being pancreatic cancer. Maybe a small possibility, but my mind is running crazy. Anyone else ever have something like this?
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KelQ..so sorry you are going through this ..hope you get your results back soon , and everything is good ..sending hugs
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I had my mastectomy last Monday ..still in hospital ..going home tomorrow with a drain still in ..get it out next week..already have pathology back and it was all benign ...I can't tell you how happy I am to have had it done ..I always wished I'd had BMX from the beginning...
Hugs to all
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Good to hear Lucy
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Wishing you a speedy recovery Lucy55!
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Great news Lucy!...hope your recovery is smooth.....4 days in the hospital....wow! Get well soon!
My breast surgeon asked me if I wanted "the drive thru" when I had my BMX, I ask her what the "drive thru" was....she said, when fully awake, you go home. My surgery was at 4pm, it was 7pm when awake....I ask to stay overnight in the hospital since I have sleep apnea....sure enough, I stop breathing several times during the night, but went home in the morning.
Di
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Di..Gosh a " drive thru " would be pretty hard ..but have to say I can't wait to go home now though ..Then ..low and behold the nurse came and took my temp an hour ago ..7am here ..and I have a fever !!! I'm a worry wart ..I wish that hadn't happened ...
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Yikes!
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lucy, hope you get your temp down soon and can continue your recovery at home
Wow, i had my chemo this morning at 8 am! Home and ready for my nap!
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Dropping in on CrazyTown, hopefully temporarily.
I'm learning again bc--even Stage IA--is the gift that keeps on giving. Was osteopenic before even starting rads, much less an AI; once I went on letrozole my MO (Dr. L) insisted I take bone-strengthening drugs. Fosamax was out, thanks to GERD. Zometa infusion was a disaster. Once Medicare covered Prolia, I leapt at the chance. (I see my dentist for cleanings 4x/yr, got a clean bill of dental health, and have had no invasive dental work done). Then last summer I got a sore on my palate behind two incisors that made chewing a painful challenge. Went to the dentist, asking if it was ONJ; he took an X-ray and said it was most likely leakage from an abscessed tooth, and sent me to the periodontist that day. Perio took panorex X-rays, said definitely not ONJ but an abscessed tooth and sent me up the street to the endodontist, who also said not ONJ and I ended up getting two root canals. The sore went away until I started my second Invisalign tray in May--perio re-X-rayed and said it was likely irritation from the inner edge of the tray, and just to file it, which I did and the sore went away. Trimmed every tray since then, no problem. Got my retainer last month--still no problem (no sharp edges, and the edges don't touch the palate). Thought I was home free.
Then early this week I thought I felt the sore returning. By Mon. night it felt more like a tiny painless blister with something hard beneath. Wed. night I ran my tongue over it--and I felt a sharp protrusion. Using two mirrors, I could definitely see a tiny white spot of bone poking through. Freaked out and called the dentist again, who had me make a perio appt. for Sat. He said it was a torus palatinus (a bony bump on the palate about 30% of people get by late middle age). I've had one on the outside of the bone by an upper molar for 30 yrs. now.
As the day went on, I could swear I felt that little pointy piece of bone start to wiggle. As I was trying to get a video chat started with my voice teacher (playing the internet version of phone-tag) I felt the fragment fall onto my tongue. I immediately retrieved it and put it in a baggie. It's about 1-2mm, with a very sharp tiny white barb that looks like the tip of a (fetal) kitten's claw, but attached to a chip of tan bone with a (uh-oh) brown spot. Everything I read points to ONJ. My dentist talked me down off the ledge after seeing the photos I sent him & the perio--he is more intrigued than worried, so I'm seeing him tomorrow morning after dropping my kitty off at the vet for bloodwork & liver ultrasound. (And just an aside--heard two deep booms, like cherry bombs, about a block away. Ah, city life).
So there's no such thing as dodging every bullet aging throws at you.
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oh sandy, sorry for all the dental junk, visits to dentist are never fun, hope you get it resolved,
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Sandy, sorry to hear about your dental blues! Wishing you a speedy and uneventful recovery from whatever it turns out to be.
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Thanks, Rae & Jackie! I have officially decamped from CrazyTown—dentist said the fragment was tooth, probably from the one that was abscessed in July 2018, burrowed into my palate, caused a sore, which then also got abscessed before root canal cured them. Perio said no, it’s necrotic bone, probably from a torus—but that he sees them all the time in older patients who have torii (he has two himself). Both say—especially after normal CT scan results—it’s NOT ONJ! I’m free to worry about femoral neuropathy—will probably have to go to Art Van, Value City or Macy’s to try out recliners—the one I saw online at Bob’s Discount Furniture is not of the highest quality, and it’s one of very few that are not “power.” We are maxed out as far as unoccupied outlets are concerned. I have no quarrel with pulling on a lever to raise & lower the footrest, and can “power” my own butt off the seat.
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Lucy...how are you doing? Please check in!
Hugs;
Octo
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I have only four or five more infusions of Herceptin to go. I have been noticing some cardiac symptoms, and my onco ordered an echocardiogram. Which I had done. I notice in the patient portal that they lined up all four echoes, so that they could compare results and determine how severe the trajectory is. I have onco and infusion appointments on Thursday, and will find out if he recommends discontinuing. Given my family history, if there are any significant changes, I would prefer discontinuing. I want to get back to going to the gym, but really worried about the orthostatic hypotension. He told me to drink more water, and I have a bottle at hand all the time, got up three times last night to pee.
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Thought today was going to be a good one, not so as of about an hour ago. Found out a dear friend of mine who has a different form of cancer is facing the end. My heart is totally shattered over this news and I am having a hard time processing why it feels like this crappy disease picks and choose who it takes and who is spared!
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I am so sorry to hear this, Mommy. Hugs!
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Mommy I am so sorry.....it is so hard to loose a
dear friend (I know!)......sending hugs
Di
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Thanks everyone. It’s so hard to think about losing someone you have known and been friends with since high school.
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Mommy ..so sorry to hear about your friend ..it is an awful , stupid , unfair disease !!!!
Octo ..Hi..hope all is well for you !!
Iris ..How are you ?
MCBaker ..hope all goes well for you at your appointments , and you can continue your treatment .Let us know how you go .
I'm recovering well from my mastectomy ...just not fast enough for my liking !
Hugs to all
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Lucy....just one day at a time...hugs
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i can’t sleep tonight. Surgery coming up next week. Can’t stop thinking about it.
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Eigna ...of course you're nervous ..the "before the surgery " is the worst part ..Are you having a lumpectomy or mastectomy ? I just had my second mastectomy..five years after the first ...so I could even things up ..I was very nervous beforehand, but came through the operation just fine .You will too..Pull up a chair , and come here to chat whenever you want . Everyone here knows exactly what you're going though .Hugs
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Lucy is right. Someone is always around to chat.
On the news front about my friend, his wife got the hospice care plan for him in place. They are doing hospice in home for him.
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Iris ..you're so quiet ! ..what are you up too ?
Mommy ..hope you're friend I'd comfortable at home .
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He is.
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Has anyone else dealt with dry itchy skin well after chemo is over? Mine got really bad this summer and I still have it. Dumping lotion on it three times a day.
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Hi everyone! M0mmy my dry skin seems to be lack of hormones. I am very sorry about your friend. That is so sad. Lucy, glad you are recovering well. I found my second mx was an easy surgery until that ruptured hematoma happened! Sandy, yikes! I would be totally panicked over that tooth/jaw issue! I still refuse to use the bone building drugs. Hi ducky where ever you are. I am surviving and that is about it. Grief is not my best companion. But I soldier on because what else can you do? I am 4 years out from starting radiation. So weird to think it has been 4 years. Big hugs and love to all you.
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Found some lotion that is helping with the dry skin. Yay!
My friend Joe is still with us but getting worse. His mobility getting worse and he’s in a lot of pain.
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Having my own little CrazyTown sojourn this weekend. Couple of nights ago while getting ready for bed I felt a lump-iike "ridge" (feels like >1" long and 1/2" wide) in my R breast adjacent to the incision scars and in the area of the "tumor bed" (where the mammary seroma was for 2 yrs., going from 9 to 20 to 14 and back down to <10cm as of my June mammogram). I saw my MO at the beginning of Sept., and as always she did a breast exam and declared everything was fine. Of course, I'm down nearly 10 lbs. since then, so it could be that it's just scar tissue /suture granuloma/fat necrosis that had been "masked" by the fat. (My R breast is now nearly 2 cup sizes smaller than the L). How fast can a big lump appear and grow from "nothing" to "palpable" in the space of <6 weeks? I wrote my MO about it Fri. morning on the message area of my hospital patient portal; perhaps the fact I haven't heard back is a good sign.
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