CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Now that warmer weather is coming, today my hubby replaced one clothesline that was close to snapping. This week it will be pull all our warm weather clothes down and change out with the winter ones. Finally going to take the comforter off the bed too.
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hey all, sorry for so many folks in crazytown now! Well after full days of testing on Wed and Thurs, wow i had lots of blood tests as well as plenty of urine tests. Currently working on filling out a ton of forms about family history like age, which ones had cancer and what kind. Dang a pain but, part of the package.
So how many here can remember the date of your last period? The older you are the more impressive it is to be able to answer the question. I faked it!
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Iris, I faked it too and guessed a year. Couldn't come closer than that for something which had been a nonevent for more than two decades.
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Iris..I don't know the actual date ...but I do know the month and the year ...only because I had a period days before my breast surgery ( I was so pleased it wasn't at the same time !!! ) and that was the last one ..yay !!!!
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I remember mid November 2015. I had my first chemo and it was the last one period.
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Mine ended in Jan. 2005--it was a six-week gusher. One progesterone shot stopped it in its tracks.
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lol what a question hehehe
mine was march 2019, the week before my hysterectomy.... memorable moment still, but will i remember that in 10 years probably not.
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Some Covid restrictions have been lifted here this weekend .Shops and restaurants re-opening ..but with restricted numbers , park playgrounds opened ..can travel further for day trips etc ..school will be open for all kids ( not just children of "essential workers " ) in a week's time ..We are lucky at the moment ..now have only 12 active cases in my state ...and 587 active cases in Australia ...but everyone is very worried these numbers could blow out if the second wave happens .
Hugs
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Hi crazies,
Nice to see so many people here. Berries, praying for you. Iris, I want you to know how much I admire your strength and good attitude. Sandy, I will pray for your doctor and that Bob will retire soon.
So, my onc surgeon referred me to another surgeon who is a general surgeon but did a fellowship at Sloan-Kettering. I see him on the 27th. I told the woman who set up the appointment that I have a lump. I'm still having my teleheath call with my current surgeon but will be out of pocket for me. I just wanted to talk to her one more time.
I'm pretty worried about the lump. My entire left foob is swollen and changing. Hopefully I will be sent right away for imaging.
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Oh, Molly, honey, I'm praying for you too, that all you have is mastitis. Are elective visits & procedures up & running yet in CA? IL just reinstituted them last week.
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Thank you everyone. Continue your prayers for me, please.<3
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I posted this in another thread, but wanted to update you ladies who have supported and prayed for me as well
I received my bone scan results and they are somewhat inconclusive, but I have breathed such a sigh of relief.
My MO called and said that there was no correlation on the CT last Monday to the Bone Scan on Friday except for MAYBE one small area on my 3rd rib, but they will probably not biopsy it. I follow up with a scan in 3 months, but continue Xeloda round 2 (my idea as added "insurance" before this roulette of scans).
I am 35, so seeing arthritis is odd, however, makes sense because I used to be a runner/marathoner. Now I just run 3-4 miles a day, which I probably will cut out.
Here is the full report if you are interested... I don't even know what to think!?
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Findings: Compared to the most recent prior study of 10/8/2019, whole-body images of the skeleton again demonstrate prominent periarticular uptake, which could be age-related or could reflect early arthritic changes. These findings are somewhat more striking on the current study. Also again noted is mild scoliosis of the thoracolumbar spine. There is a new focus of mildly prominent uptake in the upper thoracic spine at the approximate level T5 on the right, evident primarily on the posterior whole-body image, and not corresponding to any findings on CT, and of doubtful significance, possibly arthritic in nature. There is a subtle focal area of minimally prominent uptake noted in the lateral aspect of the left 3rd rib, evident primarily on an anterior spot image of the chest, which corresponds to one of the sites of new focal sclerotic change demonstrated on the CT study (series 2, image 12). However, the additional multiple new focal sclerotic foci demonstrated on the recent CT study of 5/11/2020 involving the left 5th lateral rib, left femoral head, sternum and upper sacrum are not associated with any suspicious focal findings on the current examination, making skeletal metastases in these sites less likely (see below). Persistent mildly prominent uptake at the lumbosacral junction posteriorly may merely represent a normal variant.
IMPRESSION: Whole-body bone scintigraphy demonstrates only one subtle focal finding corresponding to the several new sclerotic foci demonstrated in the left ribs, left femoral head, sternum and upper sacrum on recent CT imaging when compared to the prior study of 10/8/2019, as described above. While these findings make skeletal metastatic disease in these sites less likely, given the presence of mild uptake in one of these sites, follow-up repeat bone scintigraphy in 3-6 months is recommended for further evaluation. This solitary rib finding could represent either a site of previous trauma or conceivably a focal metastasis in this location, although the latter is statistically less likely. Radiographic correlation or other further imaging is also recommended for any clinically relevant sites. See above.
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Molly, prayers for you and hoping this is mastitis.
Berries, glad you received reassuring onformation.
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Molly, sending good thoughts
Berries, glad the information from your report provided some answers.
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Molly ...Thinking of you and sending prayers Nothing worse than waiting for tests and answers .
Berrie ...your scan sounds very encouraging !
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Berries, just a shot in the dark, but as a runner have you ever experienced "side-stitch?" A severe episode (hurts like a bear) can even partially strain the intercostal ligaments (that connect to the ribs), which could explain the differential diagnosis of "previous trauma." Continued prayers, though.
And 35 isn't necessarily too young for early-stage osteoarthritis. X-rays when I threw out my back for the first time at 29 showed "early degenerative disk disease."
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Hi Sandy! Thank you! yes, i get side stitches quite often.
When I was in my early 20s, I went to the ER for chostocondritis (inflammation of the rib cartilage). I find myself getting side stitches when I don't eat for an extended period of time because of anxiety. P.S. I am also in Chicago and am being treated at Northwestern. What about you?
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berries, dang but those reports are tough to understand! At least for me, I have reread some from past years and now they make more sense to me.
Well, this bit about partipating in a trial, it takes a lot of work and planning. Smokes but everything needs to be done per the protical. I will have a corona test on Wed, precaution that sloan now has before any ptoceedure. The current plan is I need to have a liver biopsy on Friday at the nyc office. Liver biopsy from 4 years ago at dif hospital has not been found! So got a driver set to take me into nyc. Goodie as last liver biopsy was 6 hours!
Then current plan is to start treatment next Wed the 27, deep breath!
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OH Molly,
Hope all is okay....with the lump....do you have the recalled Natrelle textured implants?
The reason I ask, is I had textured Natrelles and had itchy, swelling in one breast (doubled in size) and then in the other....this happened on and off, not sleeping for days, to avoid scratching.....I also had a lymph nodes enlargement on one side under the implant on one side....I had them removed last Nov. with a temp rebuild, and then a big surgery the end of Feb.....the doc created new foobs WITHOUT implants, with fat from my inner thighs......my thigh fat are my foobs!
Hugs,
Di
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Molly, in your pocket and thinking of you...and you too berries! and hope all of the prep stuff goes smoothly and you get into the trial with no problems, Iris. Hugs to all!
Octogirl
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Berries, I'm on the N. Side (Edgewater Glen) and get my treatment at Evanston (bc and GI) and Skokie (orthopedic & wgt. mgmt.) Hospitals. My primary, who is in the prof. bldg. across from St. Joseph, is still ailing with COVID in the ICU, and I haven't heard back from his P.A. whether she too has it. So I've connected with his former practice partner (when they both were at Weiss) who's affiliated with Northwestern. The two of them were residents at UIC with Bob back in the day (40+ yrs ago)! If she's not taking on new patients, my GYN (at N.Shore's Lincolnwood outpatient center) gave me the names of two female GPs in her bldg. Bob is mostly at Advocate Christ in Oak Lawn, and Little Co. of Mary (where I wish he didn't have to go) in Evergreen Park; he reads stress test results at Holy Cross (Marquette Park), where (mercifully) he no longer sees patients.
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Berries, I go to Evanston Hospital, living in Evanston, that is, before our last Friday’s move to Glencoe to get out of our Independent Living Retirement Place for 6 months. Hopefully,we won’t be as imprisoned when we get back. For a second opinion, I saw Kevin Bethke at Northwestern. I thought he was great.He agreed with, said he was good friends with and collaborated with my surgeon and oncologist at Evanston. He also said, “Less is More,” no radiation, no chemo and I should just stop the hormone blocker when I started it if I didn’t like it. I’m sure this was because of my age. What I regret is that I went to him tooearly, before the pathology report from the lumpectomy was in. There was some LVI, and, after a re-excision to widen the margins, though they were clear the first time, didn’t touch ink, 3mm of residual idc was found, so I did have 16 rounds of hypofractionated radiation. I wonder what he would have advised with all the info. Bethke was obviously Tops and very kind.
Sandy, you don’t have to, but wearing long sleeves in summer is not so bad. I do have to, because of a rare sun allergy on just certain parts of my arms, so wear Coolibar brand tops. They’re colorful and cute, but not cool like a sleeveless tee.
CindyNY, You gave me the solution to my Roku struggles. I managed to click on Cable and got regular channels. Thank you. It’s iffy, sometimes though, because I can’t always get there. Last night I got sidetracked to Netflix and Ozark, which, first session, at least, takes place in Chicago..
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Sandy, I wear bermuda shorts even when my weight is really up and then I've had it go really down. I can't recommend Lands End cotton bermuda shorts enough and I always buy the 10" and they do have a 12 inch. I have them in about 4 colors and just love them.
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I just bought the Lee "relaxed fit" 10" cargos in size 10. I wore Bermudas even at my fattest--the cellulite didn't bother me.
Judy, I'll look into the Coolibar tops. One of my Bar Show castmates (her DH replaced my knees--one at Northwestern, the other at Skokie) used Bethke for her lumpectomy for ADH about a year before my IDC. She and her DH both say that Bethke speaks glowingly of the Winchester-Yao partnership.
Hope you're comfortably settling into the (relatively) bucolic life up north! (I used to drive the ravines when I first arrived here from Seattle 42 years ago--I missed hills, and using a gear on my little '72 Datsun other than "D")! Do any good restaurants up there deliver? You're still a bit too far south for Froggy's in Highwood to deliver, though they may do curbside pickup. There's a place on Green Bay Rd. in Winnetka I loved--blanking on the name (Michael's Bistro? Chez Michel)? I recall a wonderful French bistro in "downtown" Ravinia. When Gordy was in Lower School at Roycemore, I enrolled him in "The Children's Spoon" afterschool etiquette program. "Graduation" was at that bistro. The class was full of entitled "baby jocks" (future hedge fund manager "bros") from North Shore Country Day who were nice to grownups but brutal bullies to him. (Sort of like Eddie Haskell in "Leave it to Beaver," played to the hilt by the--recently departed--Ken Osmond, RIP). One of the things I'll miss about Ravinia's cancelled season was its fantastic pre-show Treetop seasonal farm-to-table buffet restaurant.
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Had a Holy Cow moment yesterday. Was doing some ancestry research on my stepdad's side of the family and I came across some information about his maternal grandfather that made me go HUH? Apparently the information I came across for some reason made me think of my best friend from high school who is also like a sister to me because of one of the names. So I sent off a rapid fire text to her to ask about if she was familiar with the information I had come across. Turns out she was. So yesterday I called my stepdad to ask him about if he was familiar with the information. He confirmed it. I about fell out of my chair over this. So off went another rapid fire text to my best friend. She was shocked too. So she calls her Dad and tells him about this whole thing. Turns out he not only remembered my step great-grandad, but he had also met him when he was real young! Out of this whole crazy thing it seems that my best friend of 30 years and I maybe distantly related! Told my best friend that it didn’t matter if we are distantly related or not, she is still my sister!
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hey mommy, that is cool. One of my cousins did an ancestry.com search of our family, she was able to follow tbe family back to 1600, solid Mennonites and amish! We are distantly related General Custer, not so great but interesting.
Cowgirl, love the lands end shorts! Actually think i have the 12 inch ones and about 4 pairs, so comfie, was thinking about maybe getting 1 or 2 new ones although I surely do not need them.
Tommorrow is my liver biopsy, not thrilled but will do. Trial I am on requires me to do it at sloans main building in Manhattan so glad my limo friend is agreeable to drive me. He is no longer accepting airport clients so he is not at all busy. Hate to see that but at least he will have a good billing from me
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Yeah it is. The funny thing is we always felt some sort of connection when we first met in our Freshman year of high school. We did lose touch for a while but we reconnected through another old friend and Bam! the connection came back like we had never been apart! We are still as nuts as we were back then!
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M0mmy, how cool is that? Ancestry turned up some surprises for me too (not in terms of DNA relatives--for that I have 23&Me), in conjunction with the research the French genealogist did for the estate of the cousin in Paris I didn't know I had till last year! (A few little micro-scandals as well). My cousin-in-law in Westchester County and I put two & two together and ascertained that my (and her late husband's) paternal grandfather had died in the 1918 flu pandemic in NYC. The census data matched the family "lore."
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hello
Hope everyone is doing well and managing w this ongoing pandemic-
So here goes my long update since I've posted last - I was able to get my double mastectomy May 12, and my recovery from that is going well - I felt well bothentally and physically until today.
This where it spirals :
I met via teleconference w an oncologist and this is what they found on the surgical path:
Four tumors - 3 are er+pr+her2-
But the fourth smallest tumor at .8cm is triple -
Sentinel node biopsy came back positive so they removed 12 - and only 2 in total tested positive
They are still waiting on the biomarkers of the lymph nodes.
With this said she strongly recommends DDACT chemo, radiation and hormone, I'm getting the gold package -
This literally broke my heart and soul today -
While she broke this info down for me she wasn't able to give me recurrence rates and just comparison of treatments etc but Straight yo told me that this was my treatment plan -
I have come to terms that I will need chemo in some way but I guess I didn't like her approach of this - I had many questions for her and she couldn't answer them - I will be seeking other opinions before I commit to anyone -
My staging is unknown too - I have been told late one or early two -
My path report did say T1N1M0 she didn't go over that or anything - and I guess I wanted more clasificaron on all -
so here I am - I should be sleeping to recover from my surgery - I still have two drains and next week they come off - I hope to regain my spirit once again —Thanks for reading this -
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Sandy, it's amazing what ancestry searches turn up. It's helped me find a maternal third cousin, one of my paternal great-great grandfathers and a brother of my one of my maternal great-great grandmothers fighting in the Civil War and now this new shocker. When I started helping my late older sis with this project, I never imagined all of this!
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