CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Have to be up early, gotta get hubby off to work!
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Hi.. It's been so busy here!! My goodness! Going to pick up my grand-kids today.. They are going to spend
a few days with us.
Will catch up later here..
Gaia.. Yay.!! I just love a wedding :-)
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Gaia, congratulations!!! Can't believe that was 3 pages ago.
I have been reading, just too busy at work to post.
I hear you about the restless legs. All my thrashing had even the mattress pad untucked. I think it's the full moon and going to bed on an empty stomach after viewing all three foodporn.
So I have been taking my Arimidex at night so thinking about transitioning to morning to help with the leg kicking. Only been taking it a week. Will let you know.
This is my first week in the past 20+ that I don't have an appt with MO, BS, PCP, GYN, RO, labs or scans
I will take it. Keep looking at the calendar to make sure that I'm not forgetting something.
Treatment center has been out of bottled water for past month. Feeling compelled to do something about that. We have a local company so I will stop by and see if they can't deliver a few cases a month. The snacks are only offered at lunch time and will continue to bring those with me.
Thinking of all you CT sistas. Hugs to all!!
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Slow...I see my MO on October 9th. Maybe subconsciously I am trying to get some of this weight off this fluffy body, and I am thinking the cutting down will help. Who knows.
Going through it twice did something to me mentally. But I am feeling okkkkkk...but afraid of feeling ok. Now that is insane.
Oh well, ladies, you all try to have a good night.
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Wow, you guys are busy! Wesphal, I'm 1 week out from bmx. Good to hear you are doing well with pain control. Me, I'm staggering around but more or less upright. First real outing will be back to BS on Friday when I will, I hope, be getting rid of these drains.
Beppy, loved your scar pix--sort of marks of honor, eh?
Gaia, it's not that I though you hadn't answered the proposal, but I thought it was funny that you'd mentioned the proposal but not what you said in response. Anyway, what wonderful news--is it any wonder that your pain has been kicked to the side of the road?
DH is off on an overnight business trip. He'd been really uncertain about accepting the job, and I had to kick him out the door. Friend is bringing dinner, and DS is here. And the fact is, DH needs a break. Don't we all at times?
No word yet on my insurance, and not likely to be for a while. Felt better after I got a call back from the insurance department at the hospital. They were (or claim to be) blindsided by the decision to shutter the insurer, and it is going to take a while to sort out. I think they are alive to the possibility that it might not be good to shut out a substantial portion of the workforce entirely (i.e. the self-employed). So we'll see. It's still infuriating.
Meanwhile, I'm reading and enjoying all the (must we be so) pink threads. Still somewhat low energy, but feel as if I'm coming back to life. Enjoy your various evenings....off to crawl my hands up the wall, sew a button back on the other shirt that fits me and my drains, get DS the $$ he needs for school tomorrow (lab manual for physics). Stuff.
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Shorfi........................Are you from Philly?????????????
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Rain, It was difficult to share those scars. It's taken me 12-years. Each scar tells a different story of my life. You all share so much of yourselves here, I felt compelled to share a part of me. I know the scars are ugly on the outside, but those same scars have changed so much about me on the inside. The scars have given me a greater appreciation for life, and more insight into the daily struggles of people that suffer disease and injury. I'd like to think they've given me more compassion. I may not have taken the time to listen without them, living life in a bubble, oblivious to the pain of others. They're still ugly as hell.....but now I look at them as a reminder to listen, and be more aware. Now I'm babbling. Sorry....one of those days. Pass the wine. haha
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shorfi, Even when we are feeling good, I think it takes us awhile to trust our own bodies again. Especially in your case when it's happened twice. You're not insane. That's the very best part of Crazy Town. We get to be insane without actually being insane. haha
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Slow, I bet it was difficult to share. But I still say they are badges of honor, and testimony to the strengths you've gathered as you've lived through the events that gave you the scars.
And I still feel sad when I look down at the incision where my breasts were. I think I will for a long time. Or always. 1 week...
Well, someone just brought over a pasta dish, garlic bread, and salad. Also dessert. More magic food coming to us from friends! Tomorrow night is the last. DH will cook Thursday, and then I should be able to handle some of it going forward. Crazies, it is growing on me that I should do something for all these lovely people. Yes, they're doing it freely and generously, but I'd still like to do something for them when it's all over--not a huge gift, but a gesture. Ideas??
Enjoy your evening....
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Slow- it is to me one of the modern wonders if the world that you have gone through all you've gone through- and still going through- with physically and emotionally painful scars- that your heart is so big. YOU are the one who says all the right things. Who keeps track of everyone's crazy stuff, who does a roll call just to make sure we all know we are not forgotten in those dark days.
That you took on this thread and the mantle of Mayorship in this CRAZY place is a selfless, and so very beneficent act. I feel part of something very special. And it starts and ends with you (and Tomboy whispering in your ear). I know, I know... you won't take the credit. But the credit is due and i know my debits and credits. I was a CPA in a long ago life. (Speaking of which, if anyone's so much as hints at me being Crazytown treasurer, I will shoot myself- I was miserable my entire career). ((I'm doing flowers and dream interpretations now and that's final.))
So I am raising my 🍸To Beppy, Cheif SlowDeep Breaths, medicine woman of extraordinary heart.
Hear hear!!!!!
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To Beppy, hear hear!!!!
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Rainny I am so impressed by how well you are doing. You are one strong, funny, smart, brave woman. To be thinking about how to thank people at this juncture speaks to your character.
Here's what I would like to receive from you: a lovely handwritten note thanking me and telling me what it really, honestly meant to you, to have this show of love and support. Nobody does this anymore. Not everyone even thanks people anymore, but when they do, it is often a text, an email or a phone call. A handwritten note is a gesture that shows you understand what their time and love meant. And you are giving back in kind. It takes time and thought to write a proper note. I suspect you already know all of this and do all of this. And it is enough. It is perfect. Etsy has lovely handmade cards that you could customize with your initial, or just find a set of thank yous that strike the right cord for you.
JMHO.
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and here is today's bath remodel update for The Bepster:
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Ducky.....yes
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Beautiful tile, Katy!
Slow is awesome! She is extremely kind and generous, too! I feel so lucky because I have met her in person. I've met Tomboy, too. She is also extraordinary! Amazing women!
Slow, Thanks for showing your scars. I haven't been through anywhere near the things you have! We do have many similarities though. After a thorough examination, my doc listed off 4 or 5 things that might be causing the pain. None of them cancer and none of them life-threatening. (Is it crazy that, since it's neither one of those things, that I don't care too much why I'm in pain?) Not a hernia. Perhaps an ovarian cyst that ruptured, or diverticulitis, and 2 other things I can't remember (Thanks chemobrain!) She's running some tests and reassured me that whatever the tests show, I'll be okay without surgery!
Rain, When I was feeling better, I invited the people who brought my family meals over for a pool party and dinner. Everyone had someone that they knew to visit with, the kids were entertained and I could visit with each of them and let them know how much I appreciated them taking care of my family.
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Poppy- jealous you got to meet those great ladies in person. I'm only in Oregon. Maybe someday I'll pop down to meet you all, and Octo too
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I I am busy training the dragonfly for your wedding.0 -
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Whew - I had things I wanted to contribute, but as usual by the time I read all the posts & pages, I'd forgotten. I'm not enamored by the term 'reader', but I'll bow to ya'all's wishes. So random things that I can remember -
Slow - I have always had several red spots like that. My derm doc isn't worried. It's a hell of a way to learn compassion, but I agree - I''m usually more patient w/people now.
Rain - I agree with Katy - the thing I would like most is a handwritten note - even a note written on a commercial thank you card.
Octo - I wore a soft sleep cap at night & around the house once my hair started departing & kept on until hair re-grew. Perfect to keep my head warm & catch the hair.
Giants - I was a Willie Mays fan growing up. Even met his wife on the "elite" floor of I.Magnin in San Francisco one day. But boy was Candlestick Park COLD.
For those who agree about the pink problems, check out the Divine Ms M's thread - Awareness.
I want to go to the next CA gathering. I've been visiting w/a couple of you on different threads for several years and if I could get there from Texas, it would be exciting. I was raised in No. Calif and my son is there now so maybe I could combine a trip. Not to mention that I feel Carmel calling all the time. And my bucket list includes a trip to San Diego since I've never been - go figure.
Tonight I'm going CRAZY trying to get ready for my first trip in 3 years - since recurrence, chemo, 2nd surgery, more chemo, rads, LE, neuropathy, PT, "etc, etc, and so forth". (extra points for whoever identifies that quote). I'm flying to Boston w/a friend for a couple of days and then we're taking a "leaf cruise" up to Maine, Nova Scotia & New Brunswick. I keep trying to 2nd guess how much energy I'll have, how far I can walk, can I do some of the excursions, will I be able to sleep, if my LE will flare, if I will trip over my 'dead' feet, will I get constipated - and on & on & on. Eeek. None if that will matter if I can't calm down enough to figure out what need to take & get my suitcase out of the attic & pack. Anyway, this is a trial trip with my BFF to see how I can manage with the "new me". Except BFF just called and said we should have perfectly horrid weather. What else next???
The best news is I'll see a couple of BCO sisters for dinner. Really looking forward to that.
Great thread. Sorry not to mention everyone.
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Not to worry, Katy, I am always looking for excuses to head to Oregon. Will be there sooner than later, and can't wait! :-) But in the meantime, I vote we do a California Crazies thing. And MinusTwo, by all means come from Houston. The only issue is: can we talk Sula into cooking for us? :-)
I LOVE the Dragonfly Tomboy!
Hugs to all
Octogirl
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I'll take Obscure References for $500 Alex
I love bonus points, Minus! Hope you gave a great trip and your energy holds up. I have a good feeling.
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Hint - Musical. Originally from the 50s. All of us who have had Taxotere have had something in common with one of the stars.
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Lucy, Those puppies are so cute. Enjoy your time with your grand kids!! You must be so excited to have them for a few days!!
rose, Celebrating your test free, appointment free week!! I think ice cream may be in order!!
Ducky, rain, gaia, and all east coast crazies....be safe....saw on the news that a storm is coming your way.
Rain, hope you enjoyed your pasta dish!! My niece was the person that brought me food when I was doing chemo. I got her a gift card to her favorite restaurant to thank her. My DD was living in Nor Cal when I started treatment. Her workplace allowed her to work from my home so she could be here with me. Between my DD and DH, we didn't really need food.
Katy, Such lovely, kind words....thank you. I just love you to pieces. I hope you do make it down here to Southern CA. It would be so awesome to meet you!! Pick up Sula and Octo on the way!!! I wish all the crazies here could get together. Oh what fun we would have!!!! Your tub enclosure is taking shape and looking good! I can't wait to see it all finished!! I promise we won't make you CT treasurer. Any takers out there for treasurer???????
I'm raising my glass to ALL the crazies. I can't wait to log on everyday to see what's going on with you all!!
Poppy, I'm so relieved to know it's not BC related!! YAY to no surgery!!!
Tomboy, Beautiful dragon fly. Gaia, you picked the very best person for the job. So creative this Tomboy of ours!!
Minus, Hmmmmmmmm. We can think of a better word. I know!! How about quiet contributors????? I say that because we feel your comforting presence even though you don't always post. Obviously I'm bad at this!! hahaha....Any ideas????
We would LOVE to have you for the next CA gathering!I live about an hour from San Diego. I live in the one hour town. Most places take an hour to get to. I don't think the exercise ladies are coming back again next summer. We were fortunate to enjoy their company for two summers in a row. I think they are planning an east coast visit next summer. I guess it's only fair we share them with others. I secretly hope they will change their minds and come back!! I hope you have a wonderful trip!!You're fellow crazies would LOVE to see pictures of your adventure.
Oh yeah....The King and I??????????
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And SLOW is the fastest - and the winner. I'll have to think of a prize.
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Katy, great idea about the handwritten notes. I love doing that--how'd you know?
Funny thing tonight: Went on Facebook, which I rarely do, and saw that everything was pink. Prepared to be annoyed. Oh, wait, nothing to do with BC. Love all the Planned Parenthood support! And the disruptive timing that reminds everyone, at the beginning of October (more or less), of some of the larger health issues facing women in our country.
Tomboy, love the dragonfly.
MinusTwo, it has been many years since I've been to Maine, but I do remember how beautiful it is no matter what the weather is like. Have fun!
Well, started the day by dropping a cast-iron piggy bank on my foot. Fortunately, the day got better. Good night!
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Yea Slow, we're gettig something.................
Saturday the family was suppose to walk for Grayson.......its a Walkathon for Shriner's Hospital who has done so much for her.........they have supplied her with so many things she needs, and all verym, very, expensive, although my son would have paid for anything for his grandaugher.
Would have been great to have a ;nice day, but this is suppose to be brutal.......actually it is goig to rain tonight, through till Sunday................
We all should be ok.............hopefully.......its mostly wind and rain..........0 -
Hi CT friends-
I'm so glad I found crazy town. Everyone gets it. How awesome is that-
SlowDeep- Thanks for the understanding about the scans. For me it's always something out of left field. Like for this breast MRI I was sure if they saw a problem they'd see something on my liver. And then it turns out there's something on the right pectoralis- I'd never have dreamed it up. I pray it turns out B9 like the others and is some how related to my fibroadenoma biopsy or breast lift. I find that every time I go through this process I'm a little less resilient when I'd think I'd be be moreso. And I'm supposed to wait 3 months before the next MRI to look into it. It seems if it were something we should look right away, and if it's nothing then why have the MRI at all. It sucks all around. Crazy town is helpful because I have generally low blood pressure but I can tell it shoots up when I get to crazy town- and suddenly aches and pains- don't want to wait 3 months- I may have to check into the crazy town mental health ward- but I will try to use your mantras that probably nothing is wrong
And thanks for the shoutout- I feel the love!
Sula- I'm so impressed with your cooking abilities! Looking forward to your menu additions in Crazy Town! And tasting the wedding cake as well.
Octo- I was bad at bald. I thought I wouldn't mind, because I never really loved my fine limp hair. But I just don't look good bald like some women- and didn't feel good- so I wore a wig all the time. I'm not proud. I wish I could have nonchalantly done the bald/scarf thing. I just didn't want to look sick to myself or to others. And only those I told knew anything was wrong with me. And I had nice thick blond long hair that I always wore in a pony tail. People thought I had highlighted the heck out of my hair. Hugs to you. It's not easy any way it goes. And it will come back. Mine's completely how it was and now I'm embracing the fine-limp.
J-bird- love the tub....so relaxing. And Slowdeep- love the bath pillow - may have to get one
Good night and hugs to all
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Rainny- haha about the pinked out for PP. I was wondering how my peeps could be so insensitive after all the pinktober memes I've posted. Duh. I looked it up. s'ok.
Slow, you know I'm your homey, right? Born in Hoag Hospital. Went to Point Loma High School in SD. Graduated from Long Beach State. I am CONNECTED down that way!
How about "ghosts" instead if lurkers or readers?Friendly ones of course.
And it was just dawning on me that many if us have the Yul Brynner look during tx but you beat me to it! Nice little brain stretch there Minus!
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Momwriter- there is NO PSYCH WARD IN CRAZYTOWN!!!! Got that? Haha. Octo is under strict instructions to apprehend people who say stupid things. They get bounced or work it off in the cafe.
If there was a psych ward in Crazytown, the head matron would be Mary Poppins and the only ones treated there would be those who repress so much they can't admit they are afraid. Denial is a dangerous force.
Then Dick Van Dyke would don his umbrella and teach them all its ok to be crazy....you get the idea... You gotta....YOU GOTTA ...Let. It. Out.
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Momwriter, My new mantra is "whatever." !! I still haven't heard any news about my US, and I don't even care!!! I have no urge to call, or any desire to know. W H A T E V E R!!!!!! I'm liking this A LOT. It feels freeing.
I think I may make up some Crazy Town T-shirts and have this put on the back!! haha But yes....as Katy says....let your crazy out!!! I really am working on a design for a t-shirt. Complete with a map of CT.
Katy, In my chemo brain, damaged mind, I do sort of remember that you said you had ties to So.Cal. All the more reason for you to come visit!!! Mary Poppins was my all time favorite movie when I was a kid!!
Ghosts.....hmmmmm. I loved Casper the friendly ghost!!
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