CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
Comments
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oh man...I bet I wouldn't lose the lime if I had one of those cups to remind me, Katy (and Sula)! I want it!
Sula, hope dentist goes well.
You are beautiful before and after, Katy!
and Tomboy, of course he can help bounce! (sorry you have to share Poppy...but then some people want me to share Gabe the Teddy, so there you go...). and THANKS for the link!
I really miss my Mom too and wish she was here. She is the one I thank for the good hair genes. Died too young of lung cancer. Never smoked a day in her life and was in fabulous health, otherwise :-(
Lime update: looked under the couch, not there. Looked under the couch pillows, not there. Stomach is just fine on this, day three post chemo. I think the lime had it with me and went to that alternative universe of CT.
Giants update: We'll get them next year. After all, this is an odd year (in SOOO many ways) and we know the Giants only win the series in even years.
I don't live alone but I still don't know what I would do without you all.
LOVE and HUGS to all!
Octo
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Octo, I so get it on the lime but my advise that works for me is to stop looking, tomorrow it will show up or maybe only when it gets dry and such!
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Keeping an eye on that storm that is lingering out there in the Atlantic. Kind of hoping that it gets taken out to sea.
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Octo- above is a link to buy the coffee cup. You don't have to gave it in pink. I'm thinking maybe in black....
Slow- I bought a bath pillow!
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Katie (if I may presume to call you by your first name): I do quite like the photographs of you with your post-treatment pixie do, though I"m sure you would just as soon return to "before diagnosis" normality. I like the twinkle in your eye, and am reminded of (Dame) Judy Dench.
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QMC- you may (presume).
Thank you!
Katy
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Katy: Madam, I am honored.
On a completely different note: Proudtospin, I wouldn't worry TOO much about what happened to the lime, though that is, I'll admit, the very essence of CrazyTown! I'm absent-minded as whoa, but I think even I'd have noticed even a quarter of a lime landing in my mouth unexpectedly. I'd bet you fished it out and put it down someplace that isn't obvious. Yet.
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Hi Crazies!!! I will catch up later....just popping on real quick. Katy....beautiful picture!!! I love the short hair on you!!!!
BBL!!!
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Bwhahahahaaaa!
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Beppy- you are the best!
Here's the final on the bath:
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and...on to the countertops. The 1970s called and they wanted this one back:
Going for something a little quieter
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Jack,
looking good. You have a Judy Dench thing going on there with your hair. Very cute. just finished work and trying to get feeling back in my mouth after novacaine!
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Sula- Second Dame Judy comparison in one day! I'm thinking if keeping the look!
Glad you survived the dentist.
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CAVEAT: what I wrote below was written at 4 pmish... I know much has probably transpired but wanted to just get this hello posted! Our service has been topsy turvy all day with the storms. So more later my crazies!
Wow My Crazies
I don't think I can attempt to acknowledge all of the buzzing activity here today! If I've said it once I've said it a million times. You gals are prolific!
Slow- that was a very brave thing to post your picture. Nit because of what it looks like but because I do think shining a light in dark places helps to lessen the grip they might have. I also suspect you have always been compassionate and thoughtful, just all the slowing down and change in life affords you more time to exercise it.
Poppy you are lucky to have met Slow and our artist in residence Tom Boy. Maybe a West coast CT conference is in order.
Tom Boy I LOVE the dragonfly and the fact that I'm flying in on it! Magical.
Katy you are again on fire today and right on point with pink things and the advice to Rain for the hand written cards and well everything. The tub is shaping up. How long before it is complete? I also love your hair short! like TB said your face is wide open and it suits your bold nature.
Sula the dentist, ugh. I hate too. how is the recipe testing for the new consulting gig going?
Octo I have a feeling the lime dissolved somewhere on it's own.....and the co-worker thing I mean WTF and I say that not because of chemo and BC but because I have never understood people offering unsolicited observations like that. It's just obnoxious. Sorry you had to experience it.Rain- def the hand written cards and glad to hear that you feel like you will be up and ready to cook more for yourself this weekend. When you mentioned getting used to looking at the scar I was was like WAIT it's just been a week. It will take time and being gentle. The 'inside' healing takes the longest.
Minus Two that is quite a trip you have planned and I hope u can find a pace that allows you to 'do and see' but have some good boundaries for your limits. AND HAVE FUN!Rose yay for an 'appointment free' week.
Yes the EC storm is rearing it's head rain all day here and likely for the rest of the week. Hopefully it will die down way before it becomes "sandy- like'
We've had a very quiet day and I haven't been motivated to read or write or draw. At a certain point I realized I just need to be absolutely quiet. The last 3 months have been such a whirlwind going from life as I've known it to a crazy and incomprehensible diagnosis.
I am so thankful for all of you here, listening and for laughter and food and love.0 -
Dear Crazies...oh, thanks so much for the milk box, the cup link, and all the laughs and support....I had a VERY long work day so I guess wherever the lime went it isn't killing my stomach. Off to bed with more anti-steroid medicine. I am alternating between mj and ativan to see which makes me feel less groggy in the am.
Now that the govt is not shutting down, I am heading to DC (and NYC) next week. Let's hope there is no hurricane now that we've weathered that storm, but more on the trip later. Yes, going in middle of chemo. With MO's blessing. More on that when I have time to breathe. But also tons to do before I go. and speaking of time to breathe, I am SO GLAD you are getting that Gaia.
Blessings to all of you
Octogirl
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Good Morning Crazies!!
Sula, WOW!! Did I read that right??? One of your friends is asking for your coat in your will??? UNBELIEAVABLE!! The nerve of some people. I think you should request Octo's bouncing service. Hope all went well with the dentist.
Octo, Hope you're doing good today. I think I found your lime!!
Great to hear you've had no tummy aches. I just can't imagine you not realizing that you swallowed the lime. I think you would have felt it going down!!
Katy, I miss my mom too. I also miss my dad. I often wish she could have been around for all of my diseases. She was here when I was diagnosed with RA, and it was really hard on her. I think the other things would have done her in. So as much as I'd like to have her here now, I know how difficult it would have been for her. Great big hugs to you. Back to the hair....I think a spiky hair cut would look great on you!! Not everyone can pull it off. I got a spiky wig when I was going through chemo and I looked ridiculous. Love that cup!! I need one of those. So, so happy to hear you got a bath pillow!! You're going to LOVE it. Your tub enclosure looks great - very inviting!!!! Thanks for sharing the pictures. Are you going to keep the white cabinets in the kitchen??? I know so many are going with white all over....I see that a lot in magazines. It's such a clean, pretty look. My niece had counters like yours, and she bought paint that makes it look like a granite counter top. I was amazed how nice it looked. So many choices!!!
PTS, Thinking about you and all the east coast gals. I agree, learn to use that emergency radio!!! We take all kinds of crazy here!! haha I started dying my hair in my 40's. Having darker hair, the gray really stood out. I didn't have much gray at that time, but after BC treatment, it was coming back salt and pepper color.
What's all this talk about deep voices and shiny men???? Tomboy and Poppy....sharing your supply of bouncing men??? hahaha
shorfi, I so agree! There is nothing as comforting as our moms. I remember how my mom would put her cool hand on my forehead whenever I wasn't feeling well. She always made me a pot of homemade chicken soup.
Gaia, Thank you for the kind words. You've been through so much these past few months. Breathe in the quiet and peacefulness. I hope the pain stays far away.
Lucy, Hope you're enjoying the time with your grands!!! Take pictures!!!
Ducky, Thinking of you!
I've got much going on with my family. We found out last week that my other niece is moving to Georgia. It's been really hard on my sister having both of her daughters move out of state. She has had a lot of change over the past five years. Losing her DH, losing her two dogs, losing some longtime friends, my diagnosis, and her DD's moving away. I worry about her.
Still no news on my US. I'm thinking no news has got to be good news. Hope you all have a peaceful, pain free morning.
Love to all - quiet crazies too!!!
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Thanks Slow- today is my mom's birthday. The anniversary of her death is in 6 days. Thinking about her so much. A friend remembered and called me today. We talked about what it would have been like for me and for her, (we thought very difficult indeed) ifshe had been around for this shit show.
My father is also gone, but not before he had to watch his oldest son, my younger brother, die of metastatic melanoma. I'm almost grateful he's not here to have had to go through this. I miss them both terribly.
And Pinktober. I resent so much sharing her day with what has become a show not worthy of Crazytown. I am just sick. And angry. Everything it has become. A joke. An opportunity to make money. To rehabilitate your image. To distract. To continue to objectify and demean women (mostly women, and to ignore the men completely). It's days like this I'm ashamed to be part of the human race.
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Hi all, the whole pink thing just serves to remind me that the cure is yet to be found. I refuse to wear my pink Ts during this time. I think there are good BC groups to support but buying a pink thing a ma gig just will not get us there.
Yeap not sure where the dang storm is now, this morning they were talking about 3 possible routes and only one would hit the coast so, well I did fill the gas tank this morning just in case. During Sandy, gas became a hot commodity so least I can get out of town, course not sure where I would go but whatever!
Katy, I do love your bathroom, I did mine a couple of years ago and do remember all the stuff, so many choices! Thinking about pricing out a redo of my down stairs powder room, only thinking for now
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Waiting
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the dear gov says we have a state of emergency in advance of the dang storm and the mayor (who sends updates on stuff by facebook) is saying he will update all later in the PM,
got pasta. got beans, got canned fishies and tons of food so will hope for good things
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and the school shooting. Now at 15 dead. One hour from my house. So horrible.
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Katy, Anniversaries are bitter sweet, aren't they?? Sending you extra hugs today. I know how difficult these days can be. My mom passed away on Easter, so that's an in-your-face reminder for me yearly. Her birthday was last month.
I'm with you on the pinktober. I find myself getting more annoyed with each year that passes. We have a local BC center that does so much for the community. They offer sympathy, wigs, lympedema fittings, support meetings, BC screening, yoga classes and they even offer something called Reiki. I went to them when I was first diagnosed and they actually referred me to my second opinion doctor. My niece recently convinced her place of employment to donate to them instead of SGK this year.
Ducky, I hope you all are able to stay safe. I can't believe you ALL have to face this again. I hope so much that it weakens before it gets to you.
PTS, I'm glad you're so prepared. Good thinking about the gas.
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Katy.....I just saw that on the news. Truly awful.
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I love that your niece was able to get her employer to donate to a local group rather than a big national group. I always like that method.
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Afternoon Crazies
We are camped out in our little perch on MV. The wind has been HOWLING for the last 24 hours. I actually love this kind of weather, but definitely having some anxiety about getting off the island, coupled with NOT wanting to leave this island.
Many of you posting about your Mom's and them not being here. I know how lucky I am to have my mom and that she is so vibrant and able to do things and support me. It is however, in this moment a weird mix for me of being young (er) and angry that my 73 yr old mom is better able to handle some stuff than me. especially because health and vitalty and physical stamina have basically 'defined' how I move in the world. I know I am capable of shifting, but that part has been humbling for sure.
Sula, I'm just tracking back to that comment from your 'friend' re your coat. Do people have any sense of decency anymore? Hope the novocaine subsided quickly and you enjoyed some dinner.
Katy the tub/tile and the kitchen tile look great. The shooting at the school is terrible and with that, your mom's birthday and the anniversary of her passing and pink-BS I'm shining a big ray of light your way.
Slow where did you get the cat with the lime head? you crack me up. It is SO great that your niece got her place of employment to donate locally. so much better.
PTS good that you got supplies, did you figure out the radio?
Ducky are you in the line of fire with Joaquin?
Octo hope you figure out which 'aid' gives you the best rest and happy you are able to make the trip to the EC
Rain how are you fairing today? Is BK doomed to be underwater in the coming days?
Getting afternoon sleepy.
More later my fair, crazy ladies
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Hello my Crazies: asking for your moral support on a project I've been working on. In honor of my mom, and commemorating my war against October, I am reposting my own post, which is self-explanatory:
4 minutes ago Jackbirdie wrote:
I got the below back in response to my letter to bca (SpecialK led me to them). I have already contacted the hospital and am trying to hold a free public screening of Pink Ribbons, Inc. I have also asked my MOs office, recently connected with the same hospital who hosted Look Good Feel Better, for their support.
It feels good to be doing something, on this first day of Pinktober, in honor of my mother, whose birthday is today. I miss her so. I know she would support me on this. Please wish me luck in convincing the hospital to allow a screening on their premises
Hi Katy,
Thank you so much for your email and your interest in organizing a screening of Pink Ribbons, Inc. in your community. It is quite a coincidence that you mentioned the Look Good Feel Better program because today we launched a campaign targeting the Personal Care Products Council and the American Cancer Society specifically about the chemical laden cosmetic products that they give free to cancer patients as part of the Look Good Feel Better program. Your words were really powerful and deepen our commitment to this issue.
For screening Pink Ribbons, Inc., we have a special agreement with the US distributor to allow our members to screen the film for free. The only requirement is that there is no fundraising component and the event is free. If you choose to organize a screening, I can help you by providing the DVD along with an educational packet (see below) that includes materials and supplies for your screening as well as speaking points to help you facilitate a discussion or just be an informed member of the conversation. We would also be happy to publicize the screening on our website's events page. I am also here to answer any questions you have along the way as you plan your screening. You would need to secure a location, do your own local advertising and coordinate any other things you may want to have at the screening (food, etc.).
If you are interested, please let me know:
1.When and where you plan to have the screening: ______________________________________________________________________________________________________
2.Where to send the materials to: _____________________________________________________________________________________________________________________
3.If your event is open to the public and you would like us to advertise the event on our events page: ________________________________________________________
Thank you again for your enthusiasm and your efforts to offer your community an alternative to Pinktober!
Sahru Keiser
Program Manager
*Educational Packet includes:
Pink Ribbons, Inc. DVD
Pink Ribbons, Inc. speaking points
10 Think Before You Pink toolkits (which can also be downloaded from our website here)
10 Questions for Conscious Consumer wallet cards
10 TB4UP stickers
10 Cancer Sucks stickers
10 BCAction 25th Anniversary one-pagers
10 2015 TB4UP Poison Isn't Pretty Campaign Briefs
10 Cancer Sucks buttons
10 Think Before You Pink buttons
5 Should I Have a Mammogram brochures
2 BCAction sign in sheets
1 copy of each factsheet (also available on our website here)
oWhat to Do When Someone You Know Has Been Diagnosed with Breast Cancer
oBreast Cancer Risks: Facts & Myths
oThe Facts and Nothing But the Facts
oWhat You Should Know About Breast Cancer and the Environment
oDuctal Carcinoma In Situ (DCIS)
oHealth is Not Just Healthcare: Inequities in Breast Cancer
oDisparities in Breast Cancer: Through the Breast Cancer Continuum
oBreast Cancer and Fracking
:: Sahru Keiser, MPH ::
Program Manager
Don't miss our 25th Anniversary Event—hope you can join us!
Oct. 8, 2015, 6-9:30pm, Julia Morgan Ballroom, San Francisco
For information, tickets and sponsorships, click here.
Breast Cancer Action
Challenging assumptions. Inspiring change.
657 Mission Street, Suite 302,
415-243-9301 Ext. 14
Toll free 877.STOPBC
Katy, age 58. Oncotype dx 30Dx 12/15/2014, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)Surgery 12/18/2014 Lymph node removal: Sentinel, RightSurgery 12/18/2014 Mastectomy: Right; Prophylactic mastectomy: LeftChemotherapy 3/4/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)Hormonal Therapy 8/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Slow and Katy...this may sound weird but I am glad my mom was not here when I was diagnosed the second time. She was a very strong woman, but I think that would had been too much to handle. She would never show me her feelings, but she would grieve for me. She passed from Alzheimer's Disease...such an ugly disease. She was the sweetest woman EVER, but she suffered so much from that disease. Boy, do I miss her
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Proud to Spin
You should not smoke coconut oil - it is not healthy and it may cause cancer!
Is it not so obvious - I don't cook...............well
I heat up!
someday I will
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Kathy, the coconut oil has a higher smoking point and that is why I have been using it for some cooking, my dang house has annoyingly placed smoke detectors
not planning on smoking it~~
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Hi crazies, I am lying low, conserving energy and trying to heal. Still rather tired and achy and taking Extra Strength Tylenol if not quite at the max dosage, then pretty close. Big expedition tomorrow to see the surgeon, and I'm hoping to get rid of at least two of the three drains. I'm dubious about the third one: it was trending down but then climbed back up. I am certain that the weather has something to do with it--this pre-hurricane stuff is playing havoc with all sorts of things!
Which is probably TMI. But you guys know what I'm talking about!
Yesterday was the last night of our Brooklyn meal extravaganza. We have leftovers from a huge pasta dish that should be more than enough to feed us tonight, and then we'll go back to making our own dinners. I have a huge stack of tupperware from various people and figure I will return it at some point with baked goods. All of the friends who've stepped up are people I've known since DS's elementary school days and so have teenagers (a.k.a. gastronomic black holes), and I feel a batch of brownies/cookies/chocolate-dipped dried fruit will not go unappreciated. And yes, a handwritten card. So there's my project: thanks everyone for your ideas!
Katy, you are fired up on so many cylinders, between the beautiful bathroom and your memories of your mother and your activism. I've been reading the various Pinktober threads and thinking the whole thing over. Perspective: one of my nieces has been living with childhood brain cancer--dormant, thank goodness--and the various fundraising and activism my family has been involved with over the years are so much more straightforward, without the coy tone that sets all of our teeth on edge. I know a couple of men with testicular cancer and have never heard a whisper of the sexualization that affects BC like some sort of secondary disease. I will rent the film from Amazon Prime one of these days, but I think I might need to wait until I'm a little more physically healed before doing so.
Gaia, let me know when you're back in town, and we'll have that Brooklyn meeting; Octo, you're invited if you're here. Latest weather reports seem to indicate no east coast landfall but several more days of ugly weather. Ugh! Proud, are you in NJ? Philly?
I get to have Herceptin on Saturday, but DS gets to take the SAT. Fun times for all....
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