CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Cenri-Welcome. Sorry you are here, but this is a good place to hang out while you are waiting...
Christine and Octo- I have found a way to be in both your pockets today, and you will find me there.
It's raining here so no walk, but we need the rain and it is soft and lovely.
Tang- thinking of you for a smooth scan and clean results.
Sula- indeed a lovely table.
Ducky- thank you for sharing that. I was raised Catholic and have had mixed feelings all of my life. Mostly bad feelings.Haven't been to a mass in years. Once in the last 40 years. I thought I might return, but I didn't. I think this pope seems different. I just can't wrap my brain around one god, one church, etc. but I am very glad it brings you solace.
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Cenri, sorry for the crazies, lots of folks here to keep you semi sane during this time! me 7 years out but dealing with a dang dumb back lately. In the midst of trying to get rid of the achie back I discovered acupuncture, it is a sort of mind body experience and I do believe it could be helpful in your current situation.
Well just had my first chiro visit, stood up and was a tad woozie but thinking all this stuff is helping. I do think I am on the road out of the back pain division of Crazy town!
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I've come to an important conclusion. When you're in chemo, doctors say, "Yep. It's probably the chemo." When you're in radiation, doctors say, "Nope. It can't be the rads." They must go to different schools. lol
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Jackie..........As a kid my entire family was not catholic.....my father (who I do not know) took me to church and had me baptized Catholic.....that is as far as it got, until I got very serious with my future husband, and made communion and confirmation........at age 19............I think the Protestant churches have lovely services, and what is more uplifting then watching the Black religions singing and praising the Lord.............I know nothing about the Jewish faith, so I can't comment on that one..........for me its like my music choices..
I love Country, but could listen to classical for hours............nothing nicer too then listening to Kenny G. play the saxophone...............but put on some 50's Rock and Jitterbug, and I can't sit still..............so I am a person who "loves it all".................then again, give me some JOsh Groban I will melt into the chair...............................
Its great being whatever you want to be at the time....................
I'm just glad I gave my faith another chance...................hugs.0 -
Keys, I agree! All of the docs want to blame everything on the chemo... LOL
Father Speedy! LMAO.... Half an hour for mass is very fast! I like the new Pope, too. Very fresh perspective and new focus for the Church.
It was homecoming weekend for the high school kids. Busy, busy! Had a lot of fun, too. Youngest son with some friends and my DH for an overnight laser tag lock-in. They came home happy and tired.
My DH has ripped out part of our kitchen ceiling, some old lights. It's a huge mess. I think the ceiling is now less than 10% drywall. Right now he is putting in more can lights and installing the electrical box for a new chandelier. Drywalling will start tomorrow. My living room ceiling will be repaired, too. Huge, noisy mess! But I'm so glad it is getting done! Oh, and then we will have to paint. I would love to redo our kitchen, but it doesn't seem to be a good financial decision. No cooking for a few days.... unless it can be microwaved!
My oldest was awarded his high school diploma today! DH and I are so happy for him; it was a long difficult time. We wanted to take him to lunch to celebrate, but he wanted to go back home to his room. He says he is really depressed and doesn't want to do anything. I was hoping he would see today in terms of what he has accomplished; a day to put past struggles behind him and to move forward. Poo. His school counselor was very positive with him and explained his college opportunities. Don't know what he is going to do next. His friends went to Knott's Scary Farm together last week and he didn't want to go. Hope his isolating depression doesn't last too long.
Welcome Cenri! Sorry you are in Crazy Town, but also so glad you have found us. Patience is over rated in my book! I think it's the most difficult part of this cancer cr@p!
Katy, Good to see you! Hope you are feeling much, much better!
Ooops! I'm late for carpool! Check in later!
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Poppy, sorry for your sons problems, seems one of my nephews has similar problems, he is 28 and even though bright he can not seem to stay with any job as it is too stressful for him. Hoping my Ben and your son both find a way to be strong and come out of their holes
Gee thinking for tonight at least that all this acupuncture and PT and chiro may be the way for a happier back. Back is comfie now, chiro person commented that a lot of stuff in my back. Dang but 3 lumpies, 5 or 6 biopsies and my trunk is stupid full of scar tissue!
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Hi all:
Hugs to all of you! Thinking of you....
Trip to Macy's on the way to chemo was successful: dangly earrings and a cute new hat for me (maybe one of these days I will get brave and even post a pic) and new Dockers and some shirts for hubby...on sale. Then we went to lunch at a favorite restaurant, and then to chemo. I like the idea of doing things in the 'big city' other than just visiting MO.
And the best part is: ROUND THREE IS IN THE BOOKS!!! I am 3/4 done!!! Let's get this party started! (gee, can you tell that I am on steroids :-))
xoxo
Octogirl
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75%!!!!!!🎉🎉🎉🎉🎉🎈🎈🎈🎈🎈🎉🎉🎉
Yay Octo!
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Glad the spa day went well Octo. Sounds like a lovely was to start the day.
Been with all of you through the weekend.
Mine was a do nothing kick back lazy day(s).
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Gaia,
Good luck in herceptin land.. I should have added this earlier but I always do a 90 min infusion as I've been told it causes less SEs. That is one gorgeous bird!!! Can't wait til it's cold enough around here to want to roast a chicken!!
Octo,
I envy your portlessness!!! I didn't have one 25 yrs ago ... But this time since I have herceptin for a yr...port. I'm done in Dec.
Ducky,
Msgr Fahey at my parents parish up in Santa Rosa was always the best as far as being able to get out of there quickly, growing up at our old parish in San Francisco if we got out of Mass in an hour we were lucky. Of course everyone then would rush the local donut shop in a hurry to bring breakfast home. Ducky I came of age after Vatican 2 so I grew up in a world of guitar masses and liberation theology. Kumbayah!!!!!
Rainn,
They convinced me to go with the port this time as my veins are so teeny and hard to work with, also they want me to have a "good arm" after this, since the other one was pretty well shot for blood draws.
Proud,
My taste buds were gone during chemo from Jan to April and so not much cooking was done and certainly not much eating since Incouldn't taste anything...all the cooking right now is making up for a lot of lost time.
Thinking of everyone having tests , chemistry etc going on this week.
And now for some food porn:
This was a Kerala lunch in that all the dishes were from that particular region of South India
Pickled sweet and sour shrimp
Butternut squash and black eyed peas curry all home grown
Green bean and peanut/ coconut salad
Radish, peanut and turmeric salad
Homemade mango chutney... There were other dishes but we didn't manage to get any snaps. Dessert was orange blossom ice cream w/ pistachios.
Well....still cleaning up... I'll be checking in later
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Thanks for the food porn, Sula! Since my kitchen is a construction zone, I can't cook anything. Now I'm hungry. :-) Green bean salad... Yummmm!
Octo, 3 down! Almost done! Nice that you make your infusion day about more than the chemo.
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Sula- Absolutely AMAZING FOOD!!!!!
I could just sneak any one of those plates and a spoon and go offand eat it all by myself!
Particularly loved the look and sound of the black eyed peas dish. So unusual, but somehow comforting at the same time!
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Good morning, crazies!
Welcome, Cenri. (My grumpy spell check doesn't like your screen name, but it's not the boss of me. Welcome, anyway.)
Proud, glad your back is propelling you away from the crazy!
Sula, any chance you'd be wiling to stuff that food down the pneumatic tubes? It looks spectacular.
Octo, the size of my hat collection is testimony both to the need to combine retail with chemo therapy and the fact that my hospital's breast center has a pretty good (and sometimes affordable) boutique. Congratulations on being 3/4 done!
Gaia, have you been to this bookstore/cafe yet? I think it's in your nabe. http://www.archestrat.us Possibly a spot for a Brooklyn Crazies meeting?
Poppy, good luck with the kitchen renovation and hope it's done soon. We were on the point of embarking on same when I was diagnosed. As DH said, "First we need to renovate you. Then the kitchen."
Katy, hope the weather improves and you're walking again. In retrospect, I think that was one of the things that kept me sane (ok, relatively sane) during chemo, that I walked nearly every day. Even when I felt terrible, just getting outside and putting one foot in front of the other seemed to make a difference. (It was also the first summer I can remember that putting one foot in front of the other didn't lead to an automatic detour in front of the gourmet ice cream stand. Because chemo.)
Ducky, you're home now? Drinking your coffee?
And a happy day to all!
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morning crazies, wow sun is shining and the weather geeks are predicting warmth later today!
I think combining a bit of retail therapy with a nasty infusion is o so practical and certainly a good upper! Used to work in retail, buying office of old Monkey Wards, so retail itself is near and dear to my old heart. Course things have hugely changed since those days.
Sula, oh my goodness, wish I could find the courage to try to make some of those dishes but looking at them is dandy. My brand new chiropractor was suggesting ginger and turmeric to me as natural anti inflametories and I confess I was taking those spices in pill form till I ran out of them. Thinking I should get them again.
Goodness this chiro thing......last night I felt divine, this morning, I was ready to hit that chiro on the head as my back was so bad. BUT then I did my stretching things with the big ball, dang but feel better now, course the old heating pad is on my butt. Got an acupuncture apt this morning. Think that this is working! course it is expensive so need to space these things out some more else I will be in the poor house! Then again, it is like I have more control in my treatment then if I had gone the surgery or shots in the spine. Neither of which are permanent or even always work.
Enjoy the day all
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Morning Crazies!
Cenri, welcome. You will find lots of support, laughs and food porn here in CT.
Octo sounds like you found the perfect mix of treats and treatment. Yay to being 3/4 done. Happy for you. Slow will be by with a happy dance I'm sure.
Slow how is the sore throat? Warm water and honey and of course gargle with salt water. Hope it eases up soon; if not already passed.
Sula, gorgeous food. I was always attracted to the cuisine of Kerala. Home of Ayurveda! I get my infusions over 45 minutes. I really have had no SE's with H. I do have some aches from the Tamox, in the hip areas where it 'progressed'. But even with that no hot flashes or mood changes. So I feel fortunate about that. Really don't want a port- it's so important for me to feel as 'normal' as possible, since as far as we can tell this is a long haul project. MO happy to work with me on that. Anyway.
The remains of the bird has become stock and some will be used for chicken and root vegetable soup; some stock will go into cream of mushroom soup! I have NO idea where some of these cravings are coming from, but I am normally not a big user of cream in my cooking. And yesterday after treatment, we came home and napped and then I declared I was going to make grilled cheese. I have never made grilled cheese in my adult life. I don't even like sandwiches; too much bread all at once. Anyway we had grilled cheese made with Gruyere, pears and sage and a salad with arugula and radishes from our CSA.
Rain- Yes let's check out that bookstore/cafe. Looks perfect for our Brooklyn Chapter meeting. Friday may work for me this week.
Katy how is the morning opening up before you? A walk today? I'm there with you.
PTS glad you are finding new avenues with the acupuncture and the chiro. My work with the acupuncture is what is supporting me during treatment and probably keeping SE's to a minimum. For my 2 cents re the turmeric and ginger- try to consume them in your food rather than pills. the dosages in pills are unreliable and not to mention processed. plus they taste good and the taste is what supports stimulating the particular effects they have!
Poppy I sorry to hear your son seems blue and that it has been such a struggle for him. I'm thinking of you and him. Hope things shift for the better soon.
Tang hope scan was easy and you don't have to wait too long for results.
Tomboy, what's happening in your corner?
Morning Ducky, rosex, lucy LBF and everyone.
More later beloved crazies
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gala, I think I am in agreement with you on the ginger and turmeric in cooking better than in pill, trying to use the spices in as much as I can. A gym pal who is Indian said she has no arthritis or joint pain and has always used a ton of both those spices. I like the sound of your soups, I try to puree part of the veggies to make the soup creamie like or at times I add reg old milk, never cream
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PTS I have it in my head to make the 'cream of mushroom ' soup with buttermilk. That's where my senses are taking me!
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Good morning crazies!
gaia, my cravings also continue: in my case it is beef: i had beef for dinner three days in a row PLUS meatloaf for lunch. I guess it is coming from my body wanting to keep up the blood counts? Anyway, I broke the pattern with lemon/rosemary chicken last night. I have noticed that the first night post each chemo swallowing is a bit of a challenge, especially for starches. I drink lots of water and chew slowly....so then don't eat as much (which is not a bad thing, I am definitely NOT losing any weight during all of this, though MO says don't worry about the weight until you are done with chemo and rads). All fine in the eating/chewing category this am, however.
I have had heartburn the past three days or so, which is a new SE. I am wondering if it is my digestive system protesting about too much beef? Or is it the heartburn cancer?
and last night the buds didn't help as much as they usually do, because maybe..umm...I was feeling in a party mood after realizing I was more than half done and overdid the dose. Went to sleep at nine, woke up at midnight, and realized "Wow...I haven't been this stoned since 1975"... :-) It was a good feeling for about five minutes, but I was glad to sleep it off and won't be doing that anytime soon again.
pts: glad the PT and acupuncture seems to be working!
for Poppy: hang in there with your son. I'd consider getting him on going counseling from a psychologist if he doesn't have it already, but I hope my sons' story encourages you not to worry as much about his future: I think what you describe is more common than we think (among boys at least). My son (who has learning disabilities btw, as well as suffered from at times rather severe depression) also struggled incredibly in high school, isolated himself a lot, and while he did walk with his class, they made him go to summer school to retake one class for his diploma. Which never happened, and he ended up getting a GED instead...
And he sort of dabbled (and I mean dabbled) in community college and low paying part time jobs until he was 25. At one point I cut him off financially but that didn't stop him: he just went to live with his Dad (my ex), who was happy to support him for reasons that made no sense to me. Then something happened. He decided he wanted to get serious about going back to school. He told me that the reason was that he wasn't meeting girls any other way. He asked if he could live with me for a year if he did get serious about community college: he had chosen the cc near me apparently because he liked the M/F ratio and the fact that the students were closer to his age than at others where there were a lot of women in their forties going back to school. :-) Ok fine, whatever motivates, and at least he had done some research on why that school, right? We compromised and I gave him ten months to get his act together.
Bottom line: he realized he loved school and took off and never looked back. After two years he transferred to University. Graduated University of California with High Honors another three years after that. And he is now a third year PhD student on a full five year ride (no more loans, yay), including summer funding, at an Ivy League University! Could Mom be any prouder? (and yeah, girls turned out to be no problem. The one he is dating now is the keeper, I suspect. We may get an engagement announcement at the holidays. One can only hope.)
(oh, and notice how I got out of paying almost anything for his schooling? by the time he transferred to the four year school he could declare independence and got significant financial aid including several scholarships for transfer students, thanks to his A average at the cc....)
Hang in there. I never thought I'd see my son in the Ivies. Hell, I was pretty sure he'd never graduate college. He just needed to realize that the alternative life he was heading for wasn't where he wanted to be. And get treatment for the depression. And seriously, I can tell you, since I work in a related profession, his age and maturity has been a big benefit to him as a student, and particularly as a graduate student. It took a while, it make take your son a while. but all good. I hope this helps you.
Best;
Octogirl
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Great story about your son Octo. Thank you for sharing. Inspiring on many levels.
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Octo, thank you very much for sharing your son's story. We are going through the same right now with my stepson, and your story give me hope!
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Octo - such an inspiring story! So happy to hear how things turned around.
Poppy and Pennsy- as a lifetime sufferer (at first we all thought it was just depression and when I became "manic" after an episode I was just super happy not to feel so bad any more...um no...that's bipolar) I echo how important the combination of meds and talk therapy is. The most difficult thing is the compliance with the meds. It sometimes takes a long time to find the right combo.
Having the patience to stick with treatment when you don't see results is very difficult. Please tell your boys that it is brave to stick with treatment, not weak, as many people, perhaps males moreso, seem to believe. Isolation is so very damaging as well, and especially so with young people, since the changes they are going through can magnify this instinct.
Christine, I must have been in your pocket last night. I had to fight off the desire several times to make a grilled cheese. (Which I have made many times in my adult life, but not lately) Around midnight. How heavenly your fully realized meal (Gruyere, oh yum.. Like fondue between your gorgeous slices of bread) sounded. I have some nice arugula in my garden. An apple. Maybe I can knock off a b-grade version for lunch today.
Iris, I'm glad you were able to stretch things out.
Thinking of all of my Crazies... Sending Mommy a hug. (((💗)))
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Many here have donated . Thank you !........Wandering around and cheerleading again
Donate today, make a difference directly in all our lives. By supporting BCO, we support each other. Thanks and Hugs
https://community.breastcancer.org/forum/110/topic/834331?page=1
Link to the mainboard donation page
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Gala, buttermilk sounds good to me, maybe I should start buying some?
Octo, your son's journey sounds a lot like a couple of my nephews. The oldest one went to the West coast to work at parks and met the mother of his kids, she has him in the right place and they have 2 adorable boys and he has finally gotten real work, he is an ER nurse. But my other two nephews are still struggling and do hope they find their place
Back from acupuncture and sort of resting now while stuffing some soup down my throat, may go to the pool later
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Good Morning Beautiful Crazies!!
cenri76, Welcome to our crazy thread! So glad you joined us!!
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Big gentle hugs to you!! I hate when they find new things in us. Best wishes to you for a B9 result. Please pull up a chair and hang with the crazies. Please let us know how it goes.
Keys-Plez, Welcome to this thread!!
In my eyes you are already part of our family here because I know you from a different thread. Please pull up a chair and join us. So true about the chemo. The doctors can't blame my unexplained pain on chemo anymore (two years out),so now they call it Fibromyalgia. If that diagnosis is true, I'm SURE it was caused by the CHEMO.
Keys-Plez and centri, Here is your Crazy Town starter kits. A flashlight so you can see all the new lumps and bumps in the dark. A magnifying glass so you can get a better look. And a mirror for those hard to see places. We also throw in some coconut oil for whatever else ails you. Apparently it can be used on all parts of your body from what I've read (Italychick!!).
Katy, No, that was not a politically correct question. We should add duct tape to our Crazy Town kit for the dumb questions and comments that are made.
shorfi, hahahaha.....you gave me a good laugh. I still get embarrassed if I have accidental gas in front of my DH. He is the same way. We've been married for 15 years.
Katy, Thinking of you!! Hope you're in a better place today. Gentle hugs to you!! Anxiety girl cracked me up!!!! So very perfect for Crazy Town!!!! The Oregon pictures are so pretty. There is a thread here called Retreat for Peaceful Contemplation. I loved that thread (still do) when I was going through chemo. The woman that hosts the thread lives in Oregon, and she and others post such beautiful pictures. It was one of the few threads I could keep up with while going through chemo. It was very slow, no conversations....just beautiful pics. Very peaceful.
Tomboy, Loved your brother story!! I must get back on track once this sore throat has vacated. We should all take pictures on our walks and share them here. It would give us the opportunity to see all the beautiful places around the country. Wouldn't that be fun????
Rain, Happy dance for being finished with chemo!!
Excellent news!! Welcome home from your NJ trip. I'm glad you were able to see your mother.
Italy, I'm trying to get a visual of that kissing technique - hahaha. Loved both of your stories. Hope you enjoyed your trip up to Big Bear. I agree.....getting BC is all a big crap shoot. My answer to what causes BC - BREATHING.
Gaia, The Stone Fox bridal site really is wonderful.You will be such a beautiful bride. Your Mothership stories always give me a good laugh!! hahahaha Thanks for sharing your first marriage story. I always wonder why they just can't keep it in their pants. You deserved better. I am also in the second marriage club. I don't regret my first marriage. Without it, I wouldn't have my two wonderful children. Plus, it was a huge learning experience. I have some crazy stories to tell, but I don't out of respect to my two children. I didn't have a port and had to be stuck with each Herceptin infusion. As Octo said, I used to drink a ton of water right before my infusion and my nurse always warmed up my vein. Also, they used a very small needle for my stick. You may ask about a smaller needle. Also, I found some nurses do better than others with finding a good vein. I had a few of my favorites that I always requested.
Ducky, I LOVE seeing your pictures. You've done a wonderful job with all of your children and I enjoy seeing them through different stages. My DD has decided to get married in a courthouse and go on a honeymoon to Japan. A small part of me feels sad that she won't be having a beautiful wedding, but the bigger part of me admires that she is doing it HER way. It gives me comfort knowing she will get by very well once I leave this earth. Love the picture of Genna and Bobby!!
Lucy, That sweatshirt is just too funny!!! I wish I had thought of that when my mother was alive!!! hahaha....She would have laughed so hard at that.
Jewel, When you go to that dark place, I hope you're able to draw some strength from the women here. That's what Crazy Town is all about.
Queen, Happy to hear you're feeling better!
Sula, I've come to rely on the daily food porn. Food always brightens my day! The gas kitty is hysterical.
PTS, Hope you continue to feel better. We are going to have a big party once your back is feeling good!!
Poppy, I remember those days well. Busy, busy, busy. I bet you can't wait for your kitchen to be done. Great news about your oldest getting his diploma! I hope he starts feeling better soon.
Octo, 3/4 behind you! YAY!! All my chemo's were centered around food. We stopped at a restaurant after each one - I ate my way through chemo. I also had heartburn and my MO prescribed Prilosec. The story you told about your son is very inspiring. You must be so relieved he is doing so well now. I do think boys take longer to find their way.
Tang, How are you doing?? Did you do the MRI yesterday?? Thinking of you.
Sore throat is still giving me fits (thanks for asking Gaia). I can't recall having a sore throat in awhile. Although, my memory isn't the greatest, so maybe I had one last month and just don't remember!! haha
It was so wonderful to log on and read all your posts from the weekend. Such a wonderful group of women. I'm so thankful for all of you and also thankful for the quiet crazies too. Even though you don't post, I still feel your presence here. We've built a wonderful family here and I just adore you all!!
EFT
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Definitely better! now visiting my in-laws.
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Here's another for you Slow............since you are my adopted daughter, that' makes you a Great Aunt to Bobby..........Our Eagles won last night...they beat the Giants...........
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OK WTF is this about............has the American Cancer Society lost their mind.............................
Now they are saying a woman doesn't need a mammogram till the age of 45..............and after that ever at the age of 55......every 2 years..........................Are they in bed with the insurance companies..............or just plain "NUTS".....................maybe they need to become members of the BCO WEbsite and see how many of our women are younger they 40, and some at 55 are on their 2nd recurrence of BC.................
It had to be a committee of "men" who came up with that friggin Idea.......................it just came across on the news on CNN........................crazy bastards...........0 -
Hi Gals! Slow, I know I know you from somewhere, but I can't remember WHERE from! See, I'm almost as old as Ducky.... But NO-ONE is as old as Ducky, so that makes me just a kid.... Hah!
And Queenly! Good to see you here too! ProudtoSpin..... I KNOW I have heard of you also.... maybe I'll get used to you gals...ya think?
SulaD.... do I have to stick with the proper names here? But those dishes look great! I'll have to read about you gals a little more.... You don't sound too crazy to me.... but I'm no example.... neither is Ducky....
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I enjoyed a virtual walk with you ladies. Keeping me in the outskirts of CT.
Came home and picked these:
Wailing for Gaia-bread and Gruyere.
🎪🎪
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Chevy: of course I'm here! (it's the sciatica cancer)
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