CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Oh, Katy. You are brilliant. I'm so impressed, so humbled by this.
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Katy: good for you.
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Slow.. Yes.. Been busy with grand - babies.. Have had the 3 year old twin girls staying for a few days because their little sister has been sick.. They are such fun.. But a handful..yesterday I walked in as one was getting off the loo , and I said I'd help her get back into her undies.. No wonder I couldn't find them.. she told me she'd flushed them down the loo.!!!! 😱 Then she was sad that her Dora the Explorer undies were gone.!! How is your throat going? Nothing worse.. Do you use a difflam spray to try and sooth it.?? Some lemon and honey.?? Some wine.??
Elisheba... I was diagnosed August last year, with very similar stats as you.. I know how you feel.. Other people just don't get it.. I have suffered from anxiety for years too. I'm the family worry -wart. This time last year I felt totally disinterested in things too.. People would come over, and while I was talking to them I would really be thinking about the breast cancer... and wondering how they could care less about the house renovations , what they were wearing to a party..presents they were buying for Christmas etc..I could hardly be bothered to cook, clean, everything was a terrible chore.. But the year has made a big difference to how I feel.. Breast cancer definitely is a chit.. and changes things.. It's at the BACK of my mind all the time now.. Not always right at the FRONT of it every minute.. stealing my joy of every day life.. Take heart.. Your old life and interest in things will come back.. Be gentle on yourself and give it time. !
Ducky .. Hmm..ducky likes to pretend she hates flying.. but really I think it's her favourite thing. Just look at that sparkle she gets in her eye whenever she's with her pilot.!! 😃
Poppy.. Glad things are working out for your son.. I'm sure he'll feel so much better knowing he'll still be with his peers.
PTS. Glad you are feeling a bit better.!!
Chevy.. Hi.!! Welcome to Crazy Town !
Hi to everyone else..!
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My 3 year old twin grand - daughters 😃
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Katy
What an amazing achievement.
An inspiration!
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Katy, Awesome!
Lucy, Kids are so amazing and funny. Those girlies are beautiful!
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Lucy- How absolutely precious they are! I'm guessing those two little apples didn't fall very far from the tree.
Chevy- welcome! Any friend of Ducky's.....and I love how you get your crazy on!
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Lucy.........LMAO............about the undies.......my kind of girl.............LOL..........
T'hey are adorable............twins are a blast.....my twin grandaughters are 33 years old today, and one of them has 4 year old identical twins..........so we have been blesssed with 2 sets of twins.............
See Chevy........everyone loves you................your in the right spot............you crazy lady...........
Oh and I hate flying, but I love my Pilot..................LOL
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Katy,
Your the Woman! thanks for being tought and looking out for all of us!
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Elisheba, I think we all must feel that way as we assimilate the diagnosis. We really do leave part of our old self behind, or maybe it's that we remake ourself to some extent. Everyone around us is waiting for things to get back to normal--and by everyone I mean those closest to us and sometimes the most supportive family and friends--and it feels odd that our new normal doesn't always jive with their old version of normal.
Which is why this site and other support groups can be so helpful. There is a limit to how much our loved ones want to hear, and they're having to deal with it in their own way. Good luck finding your new normal, anyway.
Octo, I've done that chemo pole dance. Because, okay, they want us well-hydrated so they can find our veins. That's fine. But the corollary is that ultra hydrations translates into--you got it--pole dancing! Really. It's a medical fact.
Lucy, they're adorable. Truly. As of course you know.
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Rain.......so true what you said............this is my home away from home.................things never go back to "normal"......................anyone who says it does is wishful thinking...................how can it........cancer changes life.............I have been through it way to many times to ever say differently.
Mother, Father, Husband........then me...............it changes you........not always in a bad way, but it does................
When everything is over......the shock, the surgery, the treatments......everyone thinks..........Phew she's fine now.......................and they want us back to the way we were................and so we go on to another place where everyone understands............
THIS IS THAT PLACE.............OUR HOME AWAY FROM HOME..........and thank God for it
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My goodness you've ALL been busy little crazy typers!!
Elisheba, I believe you are new to Crazy Town. Welcome to our thread!!! So glad you found us!!
Here is your Crazy Town kit - flashlight, magnifying glass, mirror and coconut oil. Use at your own risk!! I'm happy the link was helpful. I'm glad they are finally starting to realize that BC patients do suffer from PTSD. Please pull up a chair and share your crazy!! The ladies here are awesome and are very good therapy. Rain said it so well about the expectations of us returning to "normal."
Poppy, Bobby makes my ovaries hurt too!! I sure wish I could have just ONE more. Unfortunately, those days are long gone. Sorry you're depressed Poppy. I don't do well when my house is torn apart either. I got depressed when I realized my kids were all going to be out of the house soon. Not that I don't love time with my DH, but I just loved a full, busy house. I wrote down the time for my appointment, but for the life of me, I can't remember where I put the paper. I will log on tonight, find out and let you know. Enjoy the band event!! They are SO much fun!!
Katy, You're welcome!! The name Brownie is perfect. I'm guessing it was the brownies sitting right in front of him that was the name inspiration?? I think it's pretty cool that Crazy Town has their very own famous advocate!! GREAT job Katy!! You look BEAUTIFUL in your photo. We are SO proud of you!!!!!!! I LOVE the red heart earrings.
Gaia, I LOVE to nest too!! In fact, I love it so much, I barely leave the house anymore. It's funny to listen to all of the east coast ladies talk about nesting when the weather gets cold. Here in CA, we nest when the weather is too hot - which has been a LONG time this summer. I didn't know about slippery elm, but I did write it down and I will check it out. My temp was normal this morning and my throat doesn't hurt as much as it did. Thanks for the suggestions. I will also check out the Mountain Rose website!! I hope you post the picture if you find it! I LOVE looking at old pictures.
M0mmy, I hope you're doing well. We miss you!
Tang, How are you today? Did you get any answers? Thinking of you!!
Chevy, Remember....you're in Crazy Town!! Most of us are here to get a grip on our worries of progression, learning to live each day in the moment. We've found it helps to lean on each other....we don't GET or FEEL as crazy when we are all together! We do this by trying to laugh our way through it all. The mirror, magnifying glass and flashlight is to check out our new lumps and bumps. hahaha...The coconut oil was added to the kit because it can be used on EVERYTHING. I haven't tried it on EVERYTHING yet, so I have no evidence that it works EVERYWHERE. Ducky IS awesome. She keeps me laughing daily. I didn't know we had a MARY in Crazy Town, but if she's going crackers, she's in the right place!! PTS told me to drink brandy when I'm under the weather. Now you're suggesting whiskey. I'm sensing an addiction here. I guess I could mix the two together with a slippery elm chaser. I'm curious who creepy Vick is and why is he living in a dark room? IS HE A PHOTOGRAPHER?? This pretty much sums up my pole dancing experience.
HECK....Who am I kidding?? I can't even do THAT. I do remember Cami....she used to post on the Stupid Thread. I haven't seen her in so long. How is she doing??
Ducky, I think Chevy may be insinuating that you have something going with your pilot??? And here I thought he was just giving you RELAXATION techniques to SOOTHE your fear of flying. I thought the Mile High club meant once you hit the mile mark in the plane, you GOT HIGH. I can see I've got a lot to learn.
Rain, I've found that my taste has changed too. Yes! I also craved more protein. Also, for whatever reason, I've been craving sweets since my diagnosis. Maybe it's a mental thing, but I never liked chocolate too much. But now, it just sounds so good. So I've got this constant battle going on in my head. I even convinced myself that I need marshmallow chocolate cookies to help with my constipation problems. hahaha....and, about the dog, he got to stay outside until my DH got home. There is no way I could have bathed him alone. When he finally did get back in the house, he was on his best behavior!! hahaha
Octo, I was wondering if you would notice the resemblance. Brownie could be Gabe's long lost twin brother. Separated at factory. haha.....Funny you mentioned the I.V. pole....that's the first thing that came to mind when Chevy said pole dancing. I think maybe that belongs on the you know you're a cancer patient when....thread.
Sula, How is the cooking and script writing coming?? Excuse my ignorance, but what do you call the little round plate servers?
PTS, You and I can learn to pole dance together! haha.....I'm lucky I can lift my leg to get in the shower!! Maybe pole dancing will help with my range of motion???
Lucy, WOW.....double trouble!! SO funny that one of them flushed their panties down the loo!!! That gave me a chuckle. Why are kids so fascinated with flushing things??? Yes!! WINE!! I'll add that to the whiskey and brandy. I'll call it a winskeybrand!!! Woooohoooooo!! Something tells me I won't be waking up if I drink a WINESKEYBRAND. I guess then it won't matter if my throat hurts!! hahaha What adorable twins you have!!! Just too cute for words!!! Just beautiful Lucy.
Met one of my childhood friends for lunch today. Love that woman. We have been friends for 40 years. I'm a bit late for her birthday, but she didn't mind. It was nice to get dressed in big girl clothes and get out of the house. I disclosed my sore throat....she still wanted to get together...... if I was up to it. It was a PERFECT day.
Crazy Town is growing by leaps and bounds. I think I'll do a shout-out tomorrow. There are some here I know where waiting for test results and they never posted back.EFT
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Hello crazies!!
Katy, you go girl, nice blog and write up.
Chevy, welcome, I follow you gals on the insomniacs thread.
Elisheba, shout out to you as well. PTSD and more, it's gotten to be continuous TSD with ongoing scans, tests and appointments. I ran out of gas (give a chit) last year 4 yrs post round 1. My therapist doesn't get it at times.
So much for eating clean this week for my lipid profile and thyroid panel this Friday. BWW called my name along with a cold pint to was down the chicken buffalito.
Pole dancing.. only with the IV pole on spa day.
Creepy Vick in a pitch black room. Getting close to Halloween.
I meant to pick up some vodka today, use it under the arms instead of deodorantdeodorant, strictly topical but it would work on a sore throat as well.
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hey Crazies....
Welcome Elisheba and Chevy.... Now that you guys have your crazy town kits... I have to say I've been using coconut oil for years in my Indian cooking... But only for cooking you guys!!!
Either way, I'd love to present you with your own virtual vat of coconut oil.
Just remember.... What happens on BCO stays on BCO... Just don't tell me what you're doing with it.
Here's some Healthy Living Food Porn.... All organic and healthy , it's what I eat... Of course, I've still had cancer TWICE.
Okra with peanuts
Nettle soup
Hay smoked carrots, fingerlings, and chanterelles, with seaweed pesto
Stuffed baked Indian cauliflower
Homemade vegetarian momo
And for dessert vegan chocolate ice cream.
Stuffing it all in your pneumatic tubes right now... Open wide!!
Anyway.... Glad you are all doing good... Stuffs been crazy around here... Working hard on the script..doing the restaurant consult and there is a new food related project that I'm not going to mention yet... But soon... That's keeping us busy.
Ducky and Lucy your grandkids are just adorable.
And Jack those veggies are picture perfect... Something is chomping on my cauliflower so I laid down a little organic "discouragement" today.... Before it works its way over to my broccolini.
Sorry to be so scattered , it's been a long day. Love to Slow, Gaia, Proud, Rainn, Octo, Tom... Hope I haven't forgotten anyone.
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Morning Crazies
Ducky and Chevy you guys have me cracking up; well ok I was already CRACKED up, that's why I'm a member /resident of CT. But Really- those are some moves Chevy, or was that Ducky- I know Ducky has the moves for the pilot.
Beppy, your whole post had me laughing too, everyone is a comedian here recently. So good to laugh. MARY and creepy Vick should be right at home here. and after your Wineskeybrand, Vick might not even seem so creepy.
Rose Vodka under your arms? even I haven't heard that one! Personally I haven;t used deodorant in probably 30 plus years ( don't worry you can't smell me from a mile away, well the patchouli maybe) and well whatever- I still got BC
Here's to coconut oil! Sula the pics are awesome, especially the hay smoked carrot dish. I am really in that slack off mode with that side of my work. Creating food and recipes and writing on it- guess that's my version/slump since starting this 'adventure' . I know it will roll back in.
On that note Elisheba welcome and one of the CT motto's is 'be gentle' with yourself. No one can fully grok what this experience brings in to our life and it is hard on the loved ones in our lives too. But take care of yourself first- CT is great wonderful inspiring place for support. Stay connected.
Rain, still waiting on confirmation about that work lunch with my man. I really should know something later today or tomorrow on the outside. I'll keep you posted. Really looking forward to getting the brooklyn chapter going.
Tomboy where have you been?
Lucy, funny story about the loo and the girls are adorable.
Octo how are you 4 days post round 3? Almost there! Are you still considering coming east around the holidays?
Katy, beautiful Katy, walking with you again this morning- I love these morning walks. What's next on your celebrity advocate docket- again just a wonderful accomplishment.
Ok I have to focus on a few things before heading to the city. another short trip in. Will be back later once I'm properly nesting back home.
hugs
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OK trying this. Here's creepy Vick after he got into the Wineskeybrand stash.
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Morning crazies....well, last day on steroids for Round Three of Four, which means here I am, wide awake and breakfast done, at 5 in the am. Sigh. At least I got five hours of sleep last night, thanks to the stash. I am struggling a bit more with nausea and heartburn this round than previously, but this am the heartburn hasn't shown up. Knock on wood it won't.
Sula, momos and vegan chocolate ice cream for me please. Starches and (not really in this case I guess) dairy are the only two food groups that appeal right now. and I NEVER turn down a good dumpling. I bet yours are beyond fabulous. I am over the beef thing. Maybe it will come back later in the Round. and that nettle soup looks pretty damn good please. Should I grease the tube with coconot oil? :-) Thank you!.
Gaia and Rain: East Coast trip in the works for sometime this winter or spring (but not the Holidays, no. I may still be in rads then. Have an apt with RO on 11/4 to finalize the schedule.) There is a meeting in DC I am supposed to be at mid-January, but I'd prefer to come a bit later. As soon as I know, I will let the two of you know and really hope I can be an honorary Brooklyn chapter member! BTW, I come by it legitimately: my mother was born in Brooklyn and spent the first seven or so years of childhood there (they later moved to Los Angeles, my grandfather was in the 'business' as Sula would call it), and I probably still have a few second or third cousins floating around there. It has been years since I visited. Last time I was there (Brooklyn, to see some cousins I've since lost contact with :-( ; I've been to NYC more recently) it was in winter in about 1980 (?) and there was a HUGE snowstorm, so bad the above ground subways shut down, as did much of the city. I took the subway to where the subway/below ground ended and my cousin met me there with two pairs of cross country skis and we skied to his place for Shabbat dinner. (and of course I spent the night). Good memories. Sorry I've lost touch. Maybe the Brooklyn Chapter will give me the push I need to reconnect....But in any case, yes, coming out at some point before Dear Son's girlfriend moves back to the Boston area from the UWS. She finishes her Masters at Columbia in June and is contemplating either work or a PhD program at one of the finer Boston institutions: which is of course good news for DS since he lives in Providence. One reason I am hoping that proposal might be in the works is that they can go back to more than a weekend relationship. But regardless, I need that excuse to spend time with them in NYC before she moves.
Ok, I am rambling. Blame the drugs. Blame the craziness. Off to prevent the heartburn cancer from flaring up too badly.
Yeah, and Keep Walking Katy!!!
Ducky, you always make me smile and laugh.
And HUGS and LOVE to all of you!!!
Octogirl
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Good morning, crazies!
Sula, never mind the pneumatic tubes. I'll be out on the next plane.
Slow, glad you had a good day with your friend. And you're feeling better?
Gaia, let me know! Since we're both--I gather--freelancers, we can suit ourselves regarding time of day.
Octo, sorry you're up this early, but nice to see you. Whenever you're ready to come east, we will welcome you with open arms, whether in Brooklyn or Manhattan! Where in Brooklyn did your mother live? And it sounds as if we'll be doing radiation more or less together; I see the RO on Monday. Another adventure!
Crazytown: I still can't figure out if there is an insurance plan that will let me stay at MSK. Waiting for November 1 when all plans will be posted. Insurance specialist at the hospital swears a particular plan has coverage, but then the hospital list doesn't seem to include it. Crazy. And no ACA plans available for MSK. Grr--so I'll be paying much more. Hoping that DH/DS will be able to stay on an ACA plan, so we can still get a subsidy. There must be a better way!
A sad story: My DH has a friend whose wife has stage IV BC. She was diagnosed some time ago, and they decided to go with alternative treatments all the way: nutrition, vitamin C infusions, therapy of various sorts which have cost every cent they have, since of course none of it is covered. They live far away from us, and while DH has seen his friend from time to time, I have not. Now she is very ill and in tremendous pain, but still determined not to go the conventional medicine route, apparently even for palliative care. So DH and I are desperately sad for them, both for their choices and for what is to come, hoping they will change their minds at least for pain relief. Their daughter is my son's age.
And a hopeful story: Joe Biden apparently means to devote his time to finding a cancer cure, per this article: http://www.bostonglobe.com/2015/10/21/biden-calls-...
I've always been a fan of his, think he's one of the few national figures who actually could shift the conversation and build bipartisan support. From his mouth to the NIH's ear....
Have a lovely fall day!
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Hi crazies,
I've been lurking for a while trying to figure out what you guys are all about, and then I just realized that I am a silent member of the crazy club, and apparently have been for a while. I evidently got my CrazyCard pass shortly after my diagnosis and lumpectomy. I noticed a bump on my wrist - acckkk! - and immediately scheduled an appointment to get it checked out. It turned out to be some kind of perfectly benign cyst thing that comes and goes as far as the swelling. But as we all know, wrist-cyst cancer is prevalent in crazytown. So hi, nicetomeetcha, and all that!
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As the Official Crazy Town Lurker, I'm checking in to let you all know I'm reading daily. I suffer from couch-potatoitis and memory cancer which limit my skills to respond to all the fun that runs rampant here. So during this moment of clarity I want to welcome the newbies, thank the creators of the food porn, love the family stories and photos, and glad Chevy and Ducky will banter here in CT.
Just a mention about ACS and the new guidelines for mammos, at age 68 I had my routine squish, negative results. 6 weeks later I found a lump which turned out to be stage 3. New ACS says mammos only every other year. I'd be dead by now. Go figure.
Holding you all in my heart. J
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Wildflower! So did you take a book, and have someone smack your wrist with it? That takes care of it!
Jan...I thought I was "too old" to even go for another Mammogram..... I was 72, and had been getting them every year since I was 40! But my Mom had BC, so I thought I had to do it... I think women should get them starting at 35... Or if they feel or see something wrong, go get one!
That little radiation hasn't hurt me yet.... So even waiting until you "feel" a lump is sometimes too late...to catch it in the early stages... I feel so bad for the women who have been diagnosed so YOUNG!
One gal I know, didn't know a thing.... her HUSBAND felt a mass in her breast.... she had a very hard time.... but is doing alright now...... I don't like going for those diagnostic mammograms either, but thinking about what some of these women are going through, an annual mammogram is nothing.
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Welcome to newbies and lurkers! Pull up a chair on the CT porch and stick around!
Quick run by to answer Rain: Mom moved around a bit, but most of the time they lived right off Sheepshead Bay: right between the Bay and the SB subway stop. My cousin thinks he has it narrowed down to the block, but the building is no longer there. May have been torn down to make way for the two expressways that run through there?.....
That's all I know, but hoping to find out more one of these days...
Hugs to allOctogirl
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Hey there, CT is growing my leaps and bounds! Let me throw my Brooklyn time in the pot. Lived on State Street in Borumn Hill section for a few years until the brownstone where I lived had a fire. No big loss for me as a renter but I did learn how great the NYC fire guys were and this was way before 9/11. Fire station was across the street from my place and the guys really saved the building as they were there so fast, So I may not have native roots but certainly remember so real good times.
OK so I am tired, did a good bit of stuff at the gym this morning so nap time
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Oh what a beautiful busy morning! First, I got these for all of you (and me, and my baby brother is coming for a visit Sunday! Yay!)
Of course I have seen ornamental veg before, but the white ones really had me fooled! I am thinking they will hold on longer. So beautiful, and there is some lovely eucalyptus in among the greens, so wonderful scent.
Octo- hope you have a gentle landing from the steroids. Thinking of you. Just one more round to go!
Rainny- so sad about your DHs friend. It is so difficult and scary to hear about this kind of outcome and suffering. I especially feel bad about declining palliative care. It is a very personal choice and we can never know if the pain, and deciding about it, is the one thing she has left under her control. That the not doing something is a decision. I had not seem the Biden article, and was glad to see it. Politics aside, I met him once when I lived in Delaware, at the Wilmington train station. I was traveling to DC with a friend who knew him slightly. He was coming home for the weekend, as he always did during his many years in Washington. He certainly has been touched by a lot of personal tragedy. A nice man.Maybe he can do some good.
Christine- love drunken Vick! I want to be an honorary member of the Brooklyn chapter but I have no ancient claim. Just sincere love of NYC. Could we maybe have a Skype session sometime when you are together? I would love that.
Jan- great to see you, and for standing up for all of the quiet ones.
Wildflower-and Elisheba- Welcome! Our mayor, SDB (Beppy) will be along with the official welcome soon and your survival kit. I hope you find some relief from getting your crazy on around here.
Sula- I have given my pneumatic tube a once over with coconut oil to ensure I miss no food from you! You have done it once again! Spectacular menu and presentation, with my salivary glands voting for dumplings and momo. I think they (my salivary glands) were highly influenced by my recent reading of the Lost Ravioli Recipes of Hoboken! Yet another food culture in that grand "stuffing of one good thing inside another" club.
Thinking of all of you and thanks again for sharing and supporting my special day yesterday, when I felt less like a victim than I have in about a year! Hugs to all!
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I also met Joe Biden.....of course he is just one state over form us Pennsy gals, but did not meet him that way......
My son graduated from St. Joseph's Prep High School in Philly.......great school, with Jesuit priests.................Joe Biden was the speaker at his graduation..............he is a very compassionate person, and a real family man who has has so much sorrow in his life...............the last hting he needs is the problems of the country to add to what he is already going throgh...........even though I thought he would have made a good President....I'm glad he decided not to run.......
Ok Ladies you all have a great weekend...........I had my Bobby Fix today........his Mom had to clean out her desk for a move from one town to the big City (Phila.) so I had him for 1/2 a day...............he is crawling, fighing to hold his own bottle.....has a lot to say...........pulls my hair, squeezes my fat, and if he pulls my nose anymore it is going to be down over my lips..............all this while he is drinking his bottle..................I"m holding it, so how the hell do I stop him........my hands are busy, and his are busier...........and if I say "Ouch"............he pulls harder..............but love mu little man.......
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Good Morning Beautiful Crazies!!
First things first....
Eggroll, Sending you best wishes today at your SNB. We will all be right there in your pocket!!
Sending love and our collective good juju. Please let us know how you're doing when you can.
Wildflower, Welcome to our thread!!
I'm so happy you posted!! I know there are many quiet crazies out there, and it's always nice to see the quiet ones post. I know it can be difficult to post to a new thread. Please pull up a comfy chair and share your crazy with us!! UGGG....wrist-cyst cancer is awful. Very happy to hear it was B9!! Here is your Crazy Town kit consisting of a mirror, magnifying glass, flashlight and coconut oil. As you've read, the coconut oil can be put on ANYTHING. I haven't tried it on toast yet.
Tomboy, Thinking of you!! Come out to play when you can!!!
Lucy, Hi!!
Sula, I've come to really enjoy the morning food porn. You're our late night poster, and I really look forward to your posts in the morning!! Everything looks so delicious but the vegetarian momo really speaks to me!!!! The pneumatic tubes have been busy this morning!!
Rose, I also went to a therapist as part of the pain management program. She asked me to tell her about myself, Being a therapist, I assumed she wanted to hear about my traumatic health events. When I was finished she asked, "You do realize you've mentioned flesh eating bacteria THREE times?" Well, DUH....it was the MOST traumatic thing that has happened to me with BC right behind, isn't it your job to hear about those things?? What else would I talk about with a therapist? Cool vacation spots?? How often I have a daily bowel movement? I knew right away she wasn't the therapist for me. Never knew about vodka under the arm. I must try that!!
Gaia, Safe travels to the city!! hahahahahaha.....love creppy Vick!!!
Katy, Such beautiful flowers!! Thank you for always being here to brighten our day! YAY for brothers visit!!
PTS, I have no roots to Brooklyn, but I was born in Rockaway Beach, and lived there for 13 years. My sister's dearly departed husband was born in Brooklyn - does that count?
Shorfi, How are you doing today??
Octo, Rain & Gaia, I hope you take lots of pictures at your get together!! I'd love to see it in pictures!! Wouldn't it be cool if we could do a group Skype??
Ducky, hahahahahahahaha!!! Ummmm.....duct tape?????
Rain, I'm so sorry to hear about your DH's friends wife. When I was originally diagnosed I was so against chemo. I really DID want to try to treat it with alternative treatments. I soon realized having both TN and a HER2 tumor, I probably should have the stinkin' chemo. It was really a tough decision for me. Not because I was really into alternative therapies, but I had always been so careful on what medications I took for my RA. So sad to hear about any woman not doing well. I hope they are able to make her comfortable.
Yes, I am feeling better but my sore throat is still hanging around. Thanks so much for asking!! I've got this weird swelling in my cheek area and neck. I hate pictures of myself, but I thought I would post this so you all know what I'm talking about.
This is an exaggerated smile (creepy smile) so you can all see the swelling. The CT scan results said I had a bilateral parotid prominence. It looks like I have cotton balls in my cheeks and a few in my neck. The doctors said it's caused by my RA which I find very hard to believe - 35 years of having RA, I've never had this before. I seem to be one big ball of inflammation. Just curious if anyone else has ever experienced this type of swelling??
JAN, Always so nice to see you when you check in!!! I always picture you there reading and hopefully smiling at our crazy antics. hahahahahahahaha!! I love the couch-potatoitis and memory cancer!!!! hahahahaha
Mysunshine, As one of our quiet crazies that I know reads but doesn't post much, a big wave to you!!
Chloesmom, HI!! I know your hands are hurting. Sending hugs to another one of our quiet crazies!!!
To the rest of the quiet crazies I didn't mention above.....
ItalyChick, TangandChris, SusanHG123, PoppyK, dsgirl, sewingnut, rleepac, M0mmyof2, Kathy7, Beatmom, queenmomcat, 2TA, AmyQ, IamNancy, pennsygal, littleblueflowers, Booklady, Alyson, SuzyBlue, Rosesrx, Huronite74, clarrn, ErenTo, Colleenmck, Sapphire_15, MinusTwo, ells37, Tresjoli, staynsane, Wendy3, koshka1, Luvmygoats, mommato3, zjrosenthal, Mulligan, HomeMom, yogamama, Westphal107, Positive_spirit, momwriter, Maggie57, Coloradogal, mariasnow, Keys-Plez, cenri76, Chevyboy, ElishebaJoy........
Some of you post often, some of you just read. Either way, you are always in our thoughts.If I've missed anyone, please let me know. I'm not always the sharpest tool in the shed!!
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Love this thread... It always brings a smile to my face.... even though I can't keep up.
Slow, sorry you have this swelling to deal with. Haven't had anything like that... yet. You are beautiful.
Sula, Nettle soup! I love soups; so many layers of flavors, all in a welcoming bowl!
Still haven't scheduled my first colonoscopy. I think I just don't want to give any more days over to doctor appts and procedures.
Jackie, lovely bouquet! I bet your visit with your baby brother will be fantastic.
((Hugs)) everyone!
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Beppy you look really lovely in this photo. Your kindiness comes through! The swelling you are referring to is due to the paratoid prominence? I am assuming it's not related to your ongoing sore throat! Regarding that therapy session. Um yea you clearly made the right call to bail on that situation. Your telling of it did make me chuckle though. You weave a really good yarn.
My family was Brooklyn and Mott and mulberry streets so we got some territory covered. Everybody landed in jersey eventually though and that's where I was born and raised with the cows and a milkman delivering our milk.
I actually was looking for a photo of my parents that I cherish. And to my dismay can't put my fingeron it at the moment. The Gogo boot photo I'll have to unearth over thanksgiving when I'm at my moms
I did however find these two photos of mini me. I think I keep them because I smile and laugh to see the little devil that was always there behind my eyes. Gotta call on that energy to support me.
I don't think any harm came to the cat. Wow I was a chunky monkey!
Here I'm like 'bring it snow' show me what you got. Yes those are white boots but not the Gogo boots
I have to dig for my parents photo. There will be stories to go with that
More later crazies
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Poppy, You're WAY too kind!! haha I hear you on the colonoscopy. It's not like scheduling a massage or pedicure. If your DH isn't available and you need or want someone to go with you, let me know. The offer is on the table.
Gaia!! You're adorable!!! Oh my gosh......I bet you were a little handful!!! hahahaha....You got that right......call on that feisty little girl!! Thanks for sharing those pictures. We had a baby contest on one of the threads awhile back. Everyone sent me their baby photo and I posted them all at once. Everyone had to guess who they thought belonged to the picture. It really was a lot of fun. I'd like to think I would have nailed YOUR picture. I see that determined spirit you have in your little Christine photos.
I was referred to an ENT doctor and he checked my salivary glands. He thinks it's caused by my RA. I've had a lot of fluid drained off my knees before, but I can't imagine a cheek or neck drain!! haha....As you can see, it looks like a perfectly round circle on each side of my face. The CT scan also advised to query infection, but I don't think the ENT doctor even considered an infection. If he did, he didn't mention it to me, or suggest an antibiotic. I guess there could be some advantages. If I took a swim my face could substitute for a nifty floating device.
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