CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Beppy- you ARE beautiful!
And Christine, she's right. You look like a ball of fire, even then.
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Thank you Katy. You're so sweet!!
I was hoping when I posted someone would come along and say, "Hey, I've got that too!" Thought maybe it could be some weird SE from chemo. I even wondered if you could get lymphedema in your neck and face. I think that may be a stretch though. There are so many women here that I'm sure read and never post. Maybe someone will see it and it will look familiar.
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Slow.. What a gorgeous photo.. You are beautiful inside and out.. Through and through..Sorry about the swelling..and I don't have any suggestions for you.. My plan of action is always to turn to Dr Google, and as we all know that is a big No-No!! Is your throat still sore.? I know too many antibiotics aren't good and won't work when we need them.. But I feel so much happier leaving my appointment with a script to fill.for them.!
Gaia.. I love your photos.. and I love going through all my old albums.. Trouble is once I start one hour rolls into the next , and a whole day is wasted.!
Katy.. I love the flowers ! So nice for you to have your brother coming for a visit.!!
Sula.. Your food and it's presentation is amazing !!
Eggroll...In your pocket today !
Ducky.. I know what you mean about pulling you nose, finger in your eye, trying to pluck the mole of my neck.. all while sacking a bottle.!! They are so strong and so darn busy.. My grandson is nearly 7 months old.. So about Bobby's age.!
Busy weekend coming up.. My sister's husbands 60th birthday party Saturday night.. We will have an over 2 hour trip each way.. and we want to cone home rather than book somewhere to stay for the night because we have the baby chickens here. ! I feel exhausted even thinking about it.!
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Slow! Anything is possible! I had surgery.... 3 nodes removed.... But then I fell and broke my hip... So all the needles and rods & screws were on the same side I had the lump removed... I got Lymphedema right after my hip surgery! My left leg and ankle swell something awful... But I wear compression stockings, and that really helps... Besides I use heat, and a "gentle massage" rubbing my leg from the ankle to my knee.... and the swelling is a lot better.... Maybe try massaging your neck & cheek? Do it softly, because the lymphatic system is right below the skin....
I may sound smart, but I'm really not.... It's worth a try.... I watched a video about lymphatic massage on You Tube... See if it helps....
I didn't have chemo.... but when they mess with your lymph nodes, crazy things can happen.......
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Slow..................Chevy is right...................I have LE too, which you know about..............love your picture............sorry about your neck.....did you try removing the cotton balls............OK, MAKING A FUNNY..............
Gaia.....you were friggin adorable.......I'm sure you still are, and if I remember your picture, yes you are...........love chubby babies..........
I am hoping and praying my graceful fall out of my daughter's car is why my hip is hurting........I swear its always something.......I go to the MO on Tuesday........she is not going to be happy with the pain I'm having..........especially since I went off the Letrozole..........0 -
Ducky, I know I am slow and miss a lot, but when did you fall out of your daughters car? sorry for your pain
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Lucy, Awwww....Thank you. I sure do love you and the rest of the ladies here. I agree about the Anti B's. My DD ended up with CDiff from too many. That was really nasty.
Chevy, I will Google lymphatic massage and see what I can find on You Tube. Thanks for the suggestion. That lymphedema in your leg and ankle sounds so painful. I'm glad you're able to get some relief from compression stockings. I have a mild case of lymphedema in my left leg as well, from previous surgeries. Mild in comparison to what most go through though. And....I'm sure you're plenty smart being around BCO for so long. I'm bet there isn't much you haven't seen!!
It's a bit frustrating when they tell you, "Yep it's swollen" but offer no suggestions or solutions other than to blame it on a preexisting disease. I see my RA doc at the end of the month....she'll probably blame it on chemo!! haha
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Ducky, I'm hoping so too!! Having your hip out is so painful!!! I wrote it down so we can all be in your pocket on Tuesday!!
I can't even imagine what it was like for Chevy to break her hip!! We are some tough women, aren't we?
Lucy, I want to come to Australia!! You all seem to have a lot of parties!!! I hope the four hour round trip drive is gentle on you. Can you take one of those little white pills when you travel??? I forget what they call it. I have some upstairs and I can't think of the name!!
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Slow - instead of google, here's the site most BCO women recommend. The first place I start my massage is just below my chin & above my collar gone. You might want to post the question on one of the BCO sites for LE, like the "Grrrrrr..." thread. Hope you find an easy answer.
Geez - forgot to put the link
http://www.stepup-speakout.org/
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Minus- welcome back! I missed you! Were you traveling or just sane for the last several weeks?
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Slow, the reason Chevy suggested UTube is they have actual video's of women doing the LE massage....there are a couple ways of doing it............there are also LE sits that you can Google and they wi ll come up........but I found Utube to be the best.........
Oh the car.......I went for a walk for my Great-grandaughter that is disabled for Shriners's ;hospital....most of you know Grayson................did the 1 mile ( big deal), and when we were leaving I had to get into my SIL's Jeep Liberty......well he has those f/n big tires so the car is high off the ground......his had this Mickey Mouse running board, and I had to step on it to get in........did good on the way to the walk.......no clue what the hell happened after the walk and getting in the car to go home..........(a cross between the 1 mile walk, bad knees, and my big fat ass....................so I digress
I put my foot on the running board, and my helpful daughter knowing I was struggling took both her hands, put them under my ass, and shoved me head first into my SIL's Jeep..........as I catapolted across the front seat hitting the steering wheel with my head, my foot slipped off the running board, and me and my "fat ass" slipped back down, almost dislocating my friggin right knee, and my left leg got in this ungodly position that I have never seen...........while I am yelling "holy shit my 'knee".....and hanging on for dear life.
In the meatime my grandaughter in the back seat yells "MOM WHAT DID YOU DO TO NAN".................My daughter in return yells at the top of her lungs.......I DIDN'T DO SHIT TO HER.....BUT FORGET THAT SHE JUST JAMMED MY HAND BETWEEN THE CAR DOOR AND THE CAR NEXT TO US.!!!!!!!!!!!!!!!!!
OHHHHH, while my SIL.......sat there looking at me, and rolling his eyes...........while I thought........Go ahead..........say ARE YOU OK......................and you will not see the light of day tomorrow...............................now aren't you glad you asked.............
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oh Ducky... You do have a gift for making me laugh and cry at the same time.
Ouch! I bet you have a pretty good left hook, too. They were all lucky someone didn't get bopped
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Jackbirdie - Never sane!!! I actually took my first vacation 4 years, post all the treatments. I was fortunate to meet & have dinner in Boston w/two lovely BCO sisters from another thread. Then took a "leaf" cruise North for a week. I don't think I had time to get any new cancers, but I did find out what fatigue means. I slept 12-18 hours for 3 full days after I got home and then tapered off to 10-12 hours. Usually I could qualify for the insomniac thread so it's quite an ordeal.
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Well welcome back. You were missed. Pics? Leaves? Fall color?
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Leaves medium done. No pictures. I won't try to keep up with this fast thread, but will check in.
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MinusTwo, Welcome back!!
Thank you so much for taking the time to post that thread. I will read it tonight when I do my reading!! I will also post to that thread and ask some questions. It seems my search function isn't working...anyone else having problems?? Hopefully they will fix it tonight so I can find the thread. So happy to hear you had such a great vacation! If vacations make you sleep, you'll just have to take many more!!
Ducky, Thanks to you as well. Such great information from everyone. At the beginning I didn't think it was possible that it could be lymphedema, but the more I read.....maybe there's a possibility that's what it is. I think I will mention this to my MO. Hopefully that won't trigger a bunch of tests.
HAHAHAHAHA....that story cracked me up Ducky. I can just picture that whole scene. That is just too funny!!
Hmmmmm.......comparing this to my picture. Close match!! hahaha....I trimmed my wiskers though.
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I wasn't paying attention, and I didn't see the rock, and I stumbled and fell like a Mac Truck! The rock may have been smaller, but this one was close....
And this old guy was standing at the end of the alley, just watching me flail around there, trying to drag myself up on my Husbands pant-legs! He finally helped me get up on one leg... THEN our neighbor came by, and in his SUV was a wheel-chair! Like a guardian angel. So we got home, into my car... and off to the hospital! That was almost 2 years ago... So now I am back to normal... well, whatever that means....
Slow....Yes... you must pay attention to your elders.... I mean like Ducky, and sometimes me.... Lymphatic massage is very helpful.... And if you decide to do compression stockings, you need a "donner"... That is the only way I can get mine ON! Getting them off is another thing... but we need all the help we can get... My leg doesn't hurt now... or get sore.... Everything else does, but not my leg!
So Ducky is still learning how to get into a car? I thought we learned that when we were like 16? She must be prone to stuff like that....
Oh wait, NO! NO Slow... don't mention it to your MO, or anybody else! They will say "Oh, it is just Edema... or your age", or some crap like that... Just try it, and you will see... Also a heating pad... then slowly, with your fingers, softly rub your what-ever's that are swollen... rub towards your heart.... Then sit there and drink a Hot Dr. Pepper with lemon.... makes everything better....
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Chevy.............LMAO....I still remember you telling us the story of your falling and breaking your hip.........I had a vision of you laying in the alley and "Mr. Wonderful" doing exactly what most men do.....when I fell down the entire set of "Steel plate steps at my home (never missing one, arms outstretched grabbing for anyhting I could latch onto to slow down my decent)....................my husband standing at the side of his truck door looking at me sitting at the bottom of the steps soak and wet (i sucked up every puddle on the steps on the way down (it had rained during the night)..................said to me "I guess your going to have to change your clothes...Right.....you realize we're going to be late for my Dr. appt...............WTF did you just say..!!!!!!!!!!!!!!!!!!!!!!!!!!!!!.............MEN.......
Just one thing Slow.......everything Chevy said about the LE was on target...........just double check the "heating pad thing".......I thought they said "no heat" for LE.............google the question......I know I was told no hot showers, or jacuzzi's.......and I have one of those....only used it 2 times cause I got cancer right after moving into the new house where the jacuzzi tub was........
So Chevy thanks for the walk down memory lane, and the belly laugh about your "broken hip adventure"............glad to have you back.....................and yes........"listen to your Elders"...........we are suppose to be smarter...................QUIET.......isn't that what Jesus said...............0 -
These are my two grandbabies...I love them soooooo much. Feeling great today. Thinking about doing surgery with Laser Spine Institute. I'm so desperate. I can hardly walk anymore.
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Morning crazies
I love waking up to the hilarious posts. Thank you Chevy and Queen Ducky. Luckily the Lymphadema is one thing I've been spared but that type of 'massage' is great for everyone. Definitely give it a go ( go) Slow.
Important to keep the lymph moving for health in general.
Wasn't able to find my parents picture; I must have packed it up with things that I store at my mom's. Thanksgiving this year will involve a treasure hunt!
Rain, Tuesday looks good! So let's message regarding time/place. And at some point I do think a group skype would be so much fun. I am also hoping to get some kind of West Coast trip in this spring....but that's a ways away.
PTS how is your back? are you seeing/feeling steady improvement with the acu/chiro?Lucy 2 hours each way and party sounds like a lot under any circumstances. Wouldn't be my preference! but have fun!
Katy hope you had a splendid evening, were garden vegetables part of your dinner?
OK crazies I'm going to actually try to focus on some work for part of today, so more later.
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oh Shorti, I am sorry to hear that you are needing the back surgery, some days I am sure I will end up that way as well but working very hard on the PT exercises that I got from docs. I recently did acupuncture and then a chiro....then the acupuncture again, not sure if it helped or I just want to believe it did, I will think very positive thoughts for you
now what is all this about busting hips? I have not fallen getting into those dang high SUVS but would sure never buy one as too hard to jump up! let me stay with my little lo level Prius
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Morning Crazies!
I've got a work retreat starting tonight in Pacific Grove, so not much time for much except to drop by and say hello! I am feeling a bit better than this time last chemo round, but that may just be that work is distracting me....was struggling with heartburn and a bit of nausea but none of that today, knock on wood. I may crash tonight, but for now I have to go pack, drop by work, have hubby drive me to the coast...(that's the good part). And some old friends will be at the retreat that I don't see often (folks coming from all parts of the country).
I took a big step last night: it is still so darn warm here and I couldn't stand staying covered at home all the time any more, so I finally went bald in front of hubby! I cried, he just kissed me multiple times and hugged me and told me he thought it was much harder for me than it was for him and that, while he knew I married him for his looks (hahahaha) he thought I was beautiful inside and out all the time and under any circumstances. Sigh....anyway, it did feel freeing once I did it.
Gorgeous Grandbabies shorfi! Aren't grandkids just the best! Ok, I am thinking it might be time for me to start posting pics...If Ducy and shorfi can do it so can I!
Sorry the back isn't better, shorfi; A real drag. (((HUGS))) to you and to all the crazies.
Octogirl
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Octo, have a great time at the retreat, sounds like that is helping in all ways and remember the party at the end of chemo~
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Shorfi, the little ones are adorable................Love our Eagles, and that little guy is already for our next win...............Go Eagles
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gala, I definitely saw improvement following my first chiro visit. NOt sure how often to go, it is not covered under my medicare but definitely worth the money so I am planning on giving it another week or so and do it again. Not clear how often folks do the chiro thing, one of my pals goes monthly so thinking that may work for me
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Iris...this is something I am doing on my own. I will be seeing my pain management doctor soon and I will ask his opinion. I'm just so tired of not being able to do much. But if you look at me, it doesn't look as if I am having problems. My quality of life sucks because of not being mobile. Oh I can walk and stand up but only for a limited amount of time. I'm tired of taking the pain pills, so I am willing to take a chance with the spine institute. I hope they can help me.
Octogirl...so happy you took the step. And I love the way hubby assured you of his love for YOU and not your hair. It feels wonderful and freeing I bet. So proud of you. Thanks about my babies. I think they are adorable too.
Ducky...my grandson and his pop-pop are going to the game. He is a big Eagles fan.
Gaia...group skype sounds like a lot of fun. Let's start planning...
MinusTwo...welcome back. Good "seeing" you again!!
Slow...you are a beautiful looking woman. I was diagnosed about 4 months ago with a mild version of LE. I rarely wear the sleeve and glove because it is constantly rolling down, I've had several measurements and it continues to do the same. I am so numb under my armpit on the right side since the mastectomy back in 2013. I'm not complaining, but I never have to shave because hair doesn't grow. It's that numbness that drives me absolutely NUTS!!!
Katy...how are you feeling today? Hope all is well.
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shorfi, I think you are the only one who knows when to go the surgical route so my best wishes for you. I believe you said you have had the spine issues for a very long time so to me, makes sense to go to the next level
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Shorfi- those babies are beautiful! I can see why you are crazy for them! Those eyes! So sorry for your pain. To have all this chit going on and suffering QOL from another part of your body...betrayal.. I hope the new place can help. Sending mojo your way. It's addictive though. It's love based- and studies have shown once on this drip you can never get away! Thanks for asking after me. I am feeling a lot better. I can deal with the blues, but when I get dropped down the elevator shaft it hurts!
Octo- so happy for you getting away, seeing old friends, the coast, and please give your DH a hug from me!
Chevy and Ducky- you guys are a two woman show keeping me laughing! Beppy, I Ditto these two ladies on the lymph massage. I have truncal LE and still have pain and swelling every day. But the MLD (manual lymph drainage) is easy to learn like Ducky says and it helps a lot. The motions are not deep massage, mind. It's just to stimulate the lymph, which is just below the skin. If you are massaging muscle, that is too deep for this purpose. I do soak with Epsom salts, and I sometimes thinks that draws fluids out. I use a big towel to gently move the latissimus where I cannot reach. It's just like drying, but gently moving the towel back and forth under my arms 12 times on each side. In addition to the other moves, done outside the bathroom.
Christine- it was a bit chilly last night, so after the bird Tutti chased into the house (I wanted a MOUSER not a birder- but it escaped unharmed and I took it as a good omen) was gone I heated up some chicken chili verde soup with white beans. Put some extra heat in it, and a panini roll from my favorite artisan bakery. That's the place that gave me free baked goods when I stumbled in crying one day, remember? That's an addictive mojo drip too. Hugs and bread and chocolates!
Rainny- I am so excited to tell you. I sent in a review to Powell's online book review. Do you know it? It's a huge bookstore in Portland. Like a little brother to the Strand. Covers almost a city block. Anyway they have a huge used book store, and a separate new one. I sent a review in on the Lost Ravioli Recipes and won $60 store credit! I can buy many used books from them. Please send more recommendations down the pneumatic tube! This must be my lucky week!
Iris- hope you have a relatively pain-free day.
Love to all the Crazies today, those who appear, and those just reading along.
🎪🎪🎪
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Katy, wow a new career! I need to look for that book also
congrats on the prize
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Thanks Iris- it's the most I've ever been paid per word, haha! Very short. This is all I wrote, then they add the original publisher's comments and some official reviews after mine. They gave an email that goes out every night. It's where I get a lot of my ideas in what to read next. (at least I did before I met Rainny!)You can sign up for the daily email book review @ Powell's.com
""What a wonderful journey into one woman's search for something authentic to celebrate her family's past. As she digs deep, both she and reader learn how food translates across boundaries of time, culture, and love. In fact, this is a love story, really. A love story that will make you want to get out your mother's old recipes and a few pots and pans."
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