Starting Chemo in February 2016?
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MLP3- I totally identify with what you said. I try to do normal things with my husband as well but the truth is nothing is normal right now. No one in my house can really identify with what's going on with me which can be really frustrating at times. Am I the only "born again virgin" in this group?
My daughter brought home a pink bag of goodies from her teacher for me which was a really nice jesture. Out of curiosity I asked if anyone else in the class received a pink bag and sure enough another mom in the class just started chemo this month. Sometimes its hard to be positive when you look around and so many people are dealing with this.
I try to keep a positive attitude because that's just me and my personality and I have to continue to be me regardless of this situation.
Hugs ladies tomorrow is a new day
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ScotBird - Glad the nutrition tips helped! Here's another one: DO NOT make ginger jello! Not good at all! Blech!
Piper - We're all thinking of you and your husband. Hope you both can get some rest.
Myraknits - I couldn't find a wig I really liked, but settled on 2. Definitely more hair than my own.
NolaGirl - I'm glad you and your sister are so close so that you can support each other.
Suzted - My only supplements are vitamin D and magnesium. The MO, RO, and pharmacist have been OK with them. Everything else is through food.
MLP3 - I'm sorry you're alone, but we're here for you. I work from home, but sometimes my daughter or my husband will be home at the same time. Still, we have our own zones. I don't see them until they need to go to the kitchen.
Chemo #2 was done on Monday, but it wasn't smooth sailing. There was a long delay to get by blood drawn, and then they lost my blood sample. Apparently, the tube delivery system was down. They drew another blood sample after the blood lab admitted they couldn't find the original. We got there at noon and didn't leave until almost 6. At least my neutrophil count passed, but it was still at the bottom of the normal range.
Now I have to inject myself with Neupogen once a day for a week. Hope this is the only time I have to do this. My husband comes with me for my appointments, but he's having a hard time as well. I couldn't ask him to cut my hair or handle my injections.
Slept on Tuesday and able to work since, but extremely exhausted. Otherwise, no side effects. My appetite is OK, and my stomache hardly makes any noises. I took Emend the day after chemo and no steroids at home. I'm now taking Reactine because I started sneezing and in case of bone pain from the Neupogen.
By the way, coconut water rocks! I should put it in a cocktail glass with an umbrella to make it more of an event.
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Kinda blurry but here are pix of the extensions attached to the wigcap under a baseball cap.
pretty convincing in a pinch.
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Myra- that looks great! Where did you get the extensions? I still haven't added low lights to my wig yet, so I'm always wearing a hat over my wig because it looks like my real hair. And I get compliments! But heading into spring and summer, I'd much rather wear a cap with extensions!
Imani- my personality is to stay strong and positive too. Just having a tough week. I'm allowed to... Right? And I'm cracking up about the virgin comment!! I'm right there with you... Nothing since 1/22. Really makes a girl feel special😤
Serenity- I have the same zones going on here too! Part of me wants everyone to have their normal lives. But part of me also needs a little more tlc too! My dd who's in grad school bought me some handmade Easter chocolates today;
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Spoiler AIert--not a happy camper. I am going to confess. I am down. Really down and in a dark place. My kids are young ( not as young as some of yours but still young) but ds 26 just got sober a year ago and working and getting his life together after 10 years of hell (his and ours), and dd 15 and just beginning to blossom like crazy but also kind of crazy all over the place really really smart and creative, and not going to thrive in a normal school environment, and really needing guidance for more years, right? I need to be here. You know what I mean? (I'm crying now, I never cry, unless I'm angry, but I'm sad and mad and scared.) And I'm sorry I said it b/c I don't want to bust the + thing going on but it is scary. Hugs to you all. I'll go clean my room now.
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Been back from Round 3 since around 3.. My appt. was for 10 and I should of been done by 1230. Well....there were only 2 nurses and every one of the chairs were full so I didn't get my taxotere until almost 12. I got all of 2 hours of sleep because my RLS (restless leg syndrome) was super bad last night! It was terrible. Plus... I stay up late anyway (night owl) but now it's even harder for me to fall asleep. Have a bit of insomnia. Great. All compounded. Anyway...my stomach is already gurgling a little so here we go.....blech...😷😷😷
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MLP3 I go them at the Beauty supply store that carries a small selection of wigs too. Also got the wig cap there. It was a lot easier to attach them by sewing them onto the cap over a styrofoam head so I could pin and place them. Then spaced each track an inch apart from bottom to top and stitched them along the top edge. There's a sewn edge that you can easily stitch through. I put the first one about an inch above the bottom edge of the cap.
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Suzted, I have RLS too and Benadryl works wonders! Also, take something now for the gurgles before they get worse. I'm on day 1 after chemo #3 and as soon as I felt nausea and acid reflux I took something. Feels much better!!
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piper, relax and keep yourself well hydrated.
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Wow Myra the hat + extensions look great on you - gorgeous gorgeous.
Suzted take it easy my love and take meds - another one done yay!
MLP I know how you feel with DH complaining about work thing. I just want to shout "Don't even speak to me about your irrelevant petty trivial issues, I HAVE CANCER, THAT TRUMPS EVERYTHING!". So far I have managed to just say it in my head, ha ha.
I was looking at another thread on here the other day I think it's called STFU or something similar. It made me laugh a lot! Hanley you are v funny on there, I identify with all of it.
Lots of love. XX
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Myra....I've been taking Benadryl for forever for my allergy-induced asthma I got after quitting smoking cold turkey ten years ago. It does nothing for my RLS...lol. I just recently learned that if/when I'm put on Tamoxifen for my hormone therapy...I can no longer take my Cymbalta or Benadryl because they interfere with the inhibitors or whatever they're called. So...it means I have to slowly wean myself off it (with my doc) and take either Lexapro or Celexa, my only two options as I can't take Effexor because I tried it once already and it was horrible. I guess ill switch to Claritan for my allergies. Aaarghhh...all these PILLS!!!! Ive NEVER taken this many in my life...it's annoying as hell!!!😠 I am getting ready to take my colace and zofram or zofran whatever they're called. They gave me enough anti nausea in my IV and in pill form....emend is one. Gotta get ahead of it!
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Wow! Sleep for a couple days and there sure is a lot to catch up on!
Piper, we're all thinking of you! Hang in there!
Scotbird, I hope it works as well for you as it does for me! I've tried cherry and tangerine vodka (just enough to swish around my mouth and trickle down my throat), and both not only keep the thrush away, but clear up the icky chemo flavor too!! Temporarily.
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love the photos, love the posts all of you.
Reflect- I saved yours on my email last night to reply when I woke. I am hugging you so tight. I cried when I read your spoiler alert. All of my support to you!
Piper
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My dear dear Piper, I deleted that, because I just needed to say it, then felt I really didn't need to share it, especially when so many lovely women, like you, are coping with so much more than I am, but now I'm crying again, oh boy. We all have a lot to carry now. One of my favorite crazy poets, William Blake, is ringing in my ears tonight:
God tempers the wind to the shorn head.
Here's hopin', because we sure are shorn.
Big, warm, hopeful hug to you.
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oh reflect I didn't realize you deleted. I have done that too. I feel like we can share all, then I rethink sometimes it's a "let me get it out" moment. I listened to the song Lady by Kenny Rogers and cried. Thinking of my husband being so strong. We have had our past issues but are so strong in this and in love. Our baby girl had a day of fear today, seeing her Mummy like this. It hurts me.
I am up alone now just feeling better and thinking of my blessings.
Xox
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I'm glad you are feeling better, and thinking of your blessings--good advice for me! I asked my daughter today where in the world would she like to go if anywhere and she said...Scotland! So I am researching Scotland and will get a trip planned by hook or by crook. It is so amazingly beautiful, rough and wild and glorious. We have also heard of some program for entertainers (my husband, son and daughter are all musician/singers--I play the tamborine haha just kidding, I guess I'm the bookie) where you can travel from gig to gig and are hosted at B&Bs. Doesn't that sound fabulous? We could string out quite a trip that way perhaps.I'm going to go to sleep with that idea rolling around in my mind, hmmm. Sleep well.
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Myra. Looks so fab! There were two hanging by the mirror, one long, one shorter at the wig boutique I went to. They were on sale for $111.00 and I was so tempted. You know, the sporty soccer mom look😎
reflect- Scotland is beautiful! Excellent choice. Maybe one day we can all meet in NYC and do a Broadway show. That would be amazing! Could you imagine?
MLP sorry not responding so much my Liz. I've been so out of it.
Imani, asher, Hanley, Fran, Praline, Suzted, LTF, ALL of you... Holding you close.
Piper 💕👩❤️💋👩
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Thanks Myra! Did you hand sew them on? I'm not big into sewing but I'll try it!
Piper- you just relax my friend xoxo Liz:)
DH apologized last night. He just doesn't know what to do or say. Ugh... Men are really brutal. I told him that I may be bald and got out of shape, but I'm still human and need to feel like a woman... At least plan a lovely dinner out and make me feel like the most beautiful woman in the room with a wig and baseball cap on😜
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Myra, I just love the look! Was going to buy the halo wig to try that style. I find the full wig on my head is much too hot for me! Thanks for the tips on how to make it!
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I just used a regular old hem stitch at the top edge of each track to connect it to the cap. Fairly tiny stitches all the way round. I don't have much hair normally so a wig wasn't fooling anybody. The tracks I got were one yard long piece I cut to size and on sale for $55! With the wig cap it was under 60 and I've got lots of ball caps for top coverage. The real key to getting it to look real was the layering. The last, top round is way up on the crown so it almost touches at the top of my scalp. There are some good YouTube vids on sewing in a weave. I did it pretty much the same way, just onto the cap. Oh, also wanted to mention, they are real human hair, not synthetic. I think it made a big difference.
One more thing, I sewed them from temple to temple so that they started next to my face and just push them aside. It's basically where my natural hairline falls rather than just in the back
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Myra, I just have to say that you look amazing with and without the locks. Straight up. Love your avatar.
(I, on the other hand, look like my grandfather without. And not too far from grandma with the wig. Oy.
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Piper, gals, I would absolutely do Broadway with a gang of us, what fun. We would have to choose a very special show! Laurel Turk from around here (Western Mass) wrote a play called "Breastless" about her bilateral mx and investigation into recon. Although not a comedy per se---
To the tune from Chorus Line "Tits--from abs! Buy yourself a fancy pair! We can use your derriere"
I thought it was hilarious.
Or we could do Lion King. Whatever
A big celebration.0 -
reflect, thanks! I've been having a day of extreme bloat and nothing fits anymore so that was really sweet to hear.
So this is weird... I had round 3 on Wed and I'm barely having any SEs. All the talk about chemo being cumulative and getting worse has me worried it's not working. Hey, I gotta have something to worry about. I'm not even tired and I've been taking the ondansetron every 8 hours to keep the nausea at bay. It's just weird since I got sick the last 2 times.
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Welly Welly well! I have a beautiful private room with a view in ISOLATION at the hospital this Easter weekend. Xo
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oh no piper, what happened? Thinking of you.
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so sick last few days. White cell count elevated very high. Checking infection..
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Piper - thinking of you. Hope they can get you the right meds so you can get home soon
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Piper! So sorry to hear! Thinking of you xox
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Piper, so sorry, please rest so you can fight this infection. We are all here with you.
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Hang in there Piper! Praying for you.
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