January 2017 Surgery Group
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Good morning everyone!
chemo sisters...I came across this list...I don't have chemo orientation until Monday. This is way more intense than preparing for surgery, that's for sure! Getting my haircut soon!
http://www.breastcancer.org/cms_files/90/chemo_che...Lisabekind: If I remember correctly (remembering, what's that? Lol) if it's consistently under 30cc, it can come out. It's a great milestone getting rid of those drains
Count me in for Disney!!0 -
Pugsmama, your right, and I'm still pulling 50cc. I'm not sure what will happen today.
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Annoyingboob - so funny hearing someone else who had to wash dishes every night. My sister and I had to rotate who would clear the table and wash and who would dry and put away. We had music too! And Blondie! OMG I still listen to her! The original rapper!
Always get my spirits lifted when I visit this group!
Off to echo and chemo class today.
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elem: The BEATLES! Whoo! We might be of the same age too, didn't you refer to rolling your drain like rolling a joint? Lol.
Hair: this afternoon I am going to a diva curl specialist for shaping, hightlights (to compliment my own sparkly ✨ hairs) and advice for managing wavy hair without much arm use for a while. It hasn't been this long since hs/college and I'm thinking I want to enjoy the novelty because the hair may be leaving if I, too board the chemo train, too after surg.
6 days to go and about all I can do at this point is think of ways to make anything more enjoyable, i.e. hair appt
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Bevmomduck, that was me referencing the rolling a joint. Thinking about all the concerts yesterday brought me right back to those days! Lol I used to blame my terrible memory on the 70s, now I can blame chemo! Lololol.
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First concert was .38 Special/Foreigner/Reo Speedwagon-it was great! Hubby and I are big fans of KISS -have seen them 3 times, it's a great show but prob wouldn't want to see them without makeup. Also love Def Leppard and Journey-they don't music like that anymore! I was born in 1970 also. My son is 20 and I have a grandog-a Beagledor named Hope.
Fightingirl-so happy chemo is not in your future!
You chemo girls are so strong! I realize how much more intense my treatment could have been and feel so fortunate to have avoided chemo but a little guilty at the same time. Will be cheering you all on while you kick some cancer butt!
DCISin AZ-Did you have direct implant placement at time of BMX? I had mine 2 weeks after.
Happy Friday to all!
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Haha Bevmom ,
I didn't mention the joint rolling because I don't have a drain , but I have rolled a few back in the day . Lol carefree days without a worry! Wow what would that be like? Yes we were glued to out tv sets watching Ed Sullivan when The Beatles came out and then we actually got to see them live ! Too bad we have no pics . We bought memorabilia merch . ie: sweatshirts with their images , but we don't have those anymore either! Wish we did. Hope everyone has a great day followed by a fabulous weekend .You all deserve it!
❤🌸🤘
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ok guys, here I am in my pre-chemo hairdo! I haven't worn it like this since the Reagan administration!
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Pugsmama, that is a fantastic list! I too have been researching this and found this post with a lot of great info: https://community.breastcancer.org/forum/69/topics/839070?page=2#idx_36 but your list has it nicely gathered and presented. THANK YOU!
(I hit submit before I saw your recent post. I LOVE the hair cut! it looks great on you!)
I have also inquired on a free box of queasy pops. Sent them an email and they responded the same day saying "the box is on it's way, wishing you all the best!). Excellent company! (email the company at info@preggiepop.com and tell them you're undergoing chemo for BC they will send you a free box)
I found an amazing blog "Breast Cancer? But Doctor...I hate pink!" she lists out some free stuff for breast cancer patients. I ordered a free scarf from France Luxe. (might take a while to get here, but that's ok). http://www.butdoctorihatepink.com/2010/02/free-stuff.html
Shelly, let us know how the chemo class goes! mine is scheduled for Feb 23 but I think I might bump it to next week. (and my echo is Monday)
Docmama, thanks for the insight on the nails. (I had no idea about that one). BTW, have I mentioned that I love your profile name? One of my furbabies is named Doc.
so technically, I too am a Docmama.
and my other little baby is Brody.
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love love love the look! 💗🌸
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pugsmama you look beautiful!!
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PugsMama, you are gorgeous with that style!
My first concert was Donnie Marie and the Osmonds. I was 7 it was in Asheville NC at the civic center. Wow..taking it way back!
Kids- daughter 29 and AFL daughter 27 and daughter that passed away in 2013 at 26. I have grandchildren 11,10,7,4, almost 2 and baby girl due any day.
Drain talk: I have one and I got 25 mls and average maybe 7 mls day 2. How long will in keep this? ???
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Awshucks, thanks guys....appreciate the compliments on the new doo! Pleasantly surprised that not too much of the gray is showing!
Vargadoll: I bet your drain comes out at your next appt!
Dani: thx for the resources & your fur babies are so precious!!
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Pugsmama, you look fantastic!!!
Varadoll, I'm a little bit country, your a little bit rock n roll. I had purple socks, I loved Donnie.
Well.....still have my drain, and an open wound on my right breast(I don't have a breast). Will be on an antibiotic. My husband and I have been to Aldies, Walmart, Sams and now eating. This has been my biggest outing. I can feel it too, I'm a bit tired.
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first and foremost -- YEAH FIGHTINGIRL!! So glad you had good news Yesterday! What a day... glad all,good.
Second, Aboob, I was a huge deadhead/CSNY/Janis/Hendrix fan in college.... love the image you you and your dad dancing around to fire o the mountainor scarlet begonias!... wishmImcould remember my first concert, but might have been Glen Campbell at a county fair (does that count?) Met Sting once after his first solo tour.. and Branford Marsalis (he was playing in the band for Sting's Nothing but thmSun tour)... Branford was awesome, Sting kinda a jerk, although who can blame them being cranky having to meet & great after putt9ng on a big show....
I'm amazed at how much you are all getting around! Maybe it's because I was among the later surgeries, but still have two drains, pain from the TEs, and tire so easily. How do you all manage. My previous life included 4;30 wake up for a 90 m9nute row on the Potomac before a full day of work, so it's hard for me to feel so incapacitated... I keep telling myself the crankiness and impatience means I'm getting stronger... but hate feeling weak. Whoever said it feels bad to complain about such things among those on a longer/more difficult journey, I'm with you... so thankful for all of you and the judgement free zone! HOw long before you were out of drains and could walk more than a block or three after surgery? Wonder if two surgeries and the strep w/in one month iaccounts for I... but ready for it to be over!
Re: children, I have a 19 yo daughter (sophmore at USC in LA) and a 15 yo son here in D.C., a sophomore in HS.
Love to my ladies!! hope everyone is having a wonderful day!
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ok I must have serious cancer brain today... the amount of time it took for me to post that saw about a dozen new posts! PugsMama you look amazing.... love the do. Gorgeous! Vargadoll, I think once you get that low daily they take the drains out... I've still got two that draw 40cc daily... seeing ps on Monday, and worried neither of them will go.... which will mean starting week 4 with them... anyone else hear of someone that took that long?
Congrats lisabkind on the outing! Feels so good to get out!!!
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PugsMama - cute new Pixie cut!!
It will be interesting to see how all of you on the chemo train will have their hair grow back in. I wonder if it will be like pregnancy? My hair was always stick straight and got progressively more curly with each subsequent pregnancy. You all should definitely have some before/after photos taken if you haven't already taken some.
Another tip I just figured out that I wanted to share is online grocery shopping. Hello!! Where have you been my whole life? We have a Fry's (Kroger I think in some other parts of the country) and I just go online, pick the items I want (even shows what is on sale and what items I have bought in the past), then choose a pick up time, drive up, call them to let them know I am there, they load the groceries, run my card, and off I go. I am sure some other grocery chains have it, too. I think it was a 4.95 service charge, so I wouldn't do it if you're only getting a few items, but it was a huge help if you're not feeling up for roaming the aisles.
dcbc - my husband went to medical school at USC. He's going to take our daughter out there next month to check it out (she's a junior). How does your daughter like it?
Alli - yes; I had mine done direct to implant on the mastectomy side (I only had a unilateral mastectomy) and then a lift/implant on the non-mastectomy side. Still have weird twinges and one area that has a soft spot on it (fluid maybe?) that I am going to be asking about at my meeting on Monday.
Hope everyone has a restful weekend!! My daughter has winter formal tonight and my son is skiing for the weekend with Boy Scouts, so my husband and I will have a pre-Valentine's day date night
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DCIS inAZ.. she loves it....really what's not to like? Wish I could go! She wanted an urban campus, and is studying screenwriting, so it was a no-brainer when she got her letter. What a nice father daughter trip! My hubby wanted her to go to his alma mater, and she went to visit and even applied to make him happy... but it wasn't in the cards... small liberal arts rural school with no film program.... but they had. A wonderful trip visiting
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Pugsmama-Love the hairdo-You're so pretty!
As for drains...My BS rule was less than 30 cc/day for 2 days in a row. I developed seromas after each drain removal but never really drained much while they were in. Drains are the pits.
I just got home from Lowe's Foods. Wish I had thought about the online grocery shopping. $4.95 is a bargain. My foobs feel so tight after pushing that full cart around. First real groceries I've bought in over a month! My PS has me on a 5# weight restriction for a month. I know I overdid it shopping.
DCISinAZ- How is your implant side doing? Did you have nipple sparing? I sort of wishing I had taken it a little slower and gone the TE route. My implants are small and my radiation side is so tight. I think I will end up losing about half of the nipple on that side. I too had a soft spot and when I pushed on it I could hear sloshing up above it. The sloshing is gone but the area remains softer than the rest. Never in the world did I think I would be discussing my nipples with so many people!
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Hi, I'm new to this site. I have just been diagnosed with stage 2 breast cancer. I'm here to share my story and I'm looking for support and knowledge as I prepare for this road ahead of me. I am 46 a mother of 2. I went for a mammo on 11/28/16 and by 12/15/16 my biopsy came back that I indeed had cancer. Invasive lobular. I went in for surgery on 1/9/17 I had a lumpectomy and 3 lymphnodes removed. All margins were cleared and 2/3 lymphnodes came back postive. I met with my oncologist on the 1/26 and he sent me for a CT of abdominal, pelvis and chest and also a bone scan and blood work. A sample was also sent to Oconotype DX. So my next scheduled appt is 2/16 to discuss my result. I have been able to read my scan results. (Today's technology they upload to an account) the downside my doctor is on vacation so no help for me through the medical reading. So anyway it seems that all my organs are good no metastasis. The bone scan also came back with no metastasis but they are asking for an MRI because their are multiple sclerotic lesions seen in visuals skeleton on CT scan. I've googled but that seems like a bad thing sometimes. All comments are welcome! I hope I entered the right group!!! Thank you!
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MGNewYork- I'm 46, Stage IIA w/ 3 involved lymph nodes, and 2 children. I wish we were meeting with a different set of circumstances, because this sucks!! You came to a place were you will feel like you fit in, and ask anything. Wonderful news on the organs scan! I wish I had some info on the bone, but i don't. Words of encouragement, it did say no metastasis.
I meet with my oncologist Monday and those scans are coming my way, and I'm scared shit less.
Please keep us posted....you'll be in my prayers.
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Alli - I did not have nipple sparing. So, I guess I will be the one person in my family that has a tattoo. Never thought that if/when I got a tattoo that it would be a nipple ;(
I get a lot of tightness on both sides (even just the implant/lift side) and I can definitely tell when I have overdone it. I probably should be taking some motrin or something but I am such not a medicine taker. I am three weeks post surgery as of yesterday. Actually, I just talked with my husband about switching cars with me for a while because I drive a big expedition and cranking the wheel getting in and out of parking spaces is brutal!!!
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MGNewYork - welcome! I echo what Lisabekind said; focus on the fact they said no evidence of metastasis. Some of those reports really seem to be in another language so best not to try to read too much into it.
You will find lots of love and support here. I too am 46 and have two kids!
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I didn't get to read all the posts but will this evening when crazy appt day is over so just one thing....pugsmama, you gotta change that to HOTmama!! Xox
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MGNewYork - also; if you go in and update your profile with your diagnosis, previous and expected treatment it is super helpful. That way we know exactly what is going on with you anytime you post
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pk call the Hope Center with my drainage details and they said come on over.. let's gets that drain out. So it's out and Im ready for my first nap today. I wasn't sure what to expect so I took a pain pull before DH drove me over
Welcome to the new ladies! This group is amazing. Support in every step we make!
Whoot whoot! Figthingirl!
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MGNewYork, indeed, welcome, though we wish you hadn't needed to join. Agree, focus on the positives!
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Yay Vargadoll! Being drain free is awesome! Celebrate each positive thing along the way
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So, do the moderators just kind of pop in here and there to see how the different boards are going? I think we are the model of awesome board. Some of the others I have seen get kind of snarky.
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Welcome MGNewYork to the group no one wants to be a part of but now that you're here, you'll find the most supportive amazing people ever!!! Some of us are also on the February radiation board or February chemo board depending on what treatment we're getting....once you find out, we can point you in the right direction. The treatment boards get into a little more of the nitty gritty details re:, side effects etc., but I agree with DCISinAZ, though, this board will end up being your favorite!
Another tip: once you fill in your information in your profile, I think for diagnosis & treatment the default setting is "private" - (go to settings for that) you have to click to change it to "public." BTW, google is great but sometimes it can scare you to death! If you start to freak out, stop googling!
Vargadoll: Drain free is for me! What a quality of life improvement for you!!!
OMG, was online shopping for head coverings all day. I think I'm going to be too hot in wigs so they have these neat hair pieces to wear under baseball caps, bangs to attach etc. My shopping cart is WAY TOO FULL, so I need to sleep on it and remove some stuff tomorrow! (that's my online shopping M.O.) I wish I picked up one of those rastaman caps with the dredlocks attached the last time I was in the Caribbean...what a hoot that would be!
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