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January 2017 Surgery Group

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Comments

  • Elem
    Elem Member Posts: 246

    Welcome MGNewYork

    Sorry it is here we meet, but you will find a wealth of information and friendship and a sense if belonging in this group . Lots to share . Some strong people going through exactly the same 🌸💪🏻


  • Bevmomduck
    Bevmomduck Member Posts: 91

    Does anyone have thoughts about how soon after bmx it's possible to drive a stick shift? Both our cars are straight drive....

  • Cowboy-Up
    Cowboy-Up Member Posts: 161

    Welcome MGNewYork. No one wants to be here but we are sure glad that we found each other to take this journey. Many are starting their treatments and many of us are still playing the waiting game.

  • 3bears
    3bears Member Posts: 161
    My internet wasn't working for 2 days, boy can you get behind on here!
    PugsMama-- your hair is beautiful! Will you get a wig to match your longer hair or the shirt one?
    Now they want me to get my first chemo Monday right after my chemo ed class. I guess that will work out better . Maybe I'll feel ok by the weekend .
    I have a 16 year old daughter and a 14 year old son. I am having a terrible time with my daughter right now. I expect her to be really nice to me, loving and sympathetic . Instead she is 16. Rude, selfish , and a brat. Totally self absorbed. I guess that's kinda normal but it hurts me so much! I cry over this crap. I'm stressed as it is. I'm sure I'm part of the problem. No mom should have to go through BC and have a 16 yr old daughter at the same time.😀
    First concert? Not sure. But I have seen Boston, Styx, Kansas, Meatloaf, Cheap Trick, Kiss, .
  • 3bears
    3bears Member Posts: 161
    My internet wasn't working for 2 days, boy can you get behind on here!
    PugsMama-- your hair is beautiful! Will you get a wig to match your longer hair or the short one?
    Now they want me to get my first chemo Monday right after my chemo ed class. I guess that will work out better . Maybe I'll feel ok by the weekend .
    I have a 16 year old daughter and a 14 year old son. I am having a terrible time with my daughter right now. I expect her to be really nice to me, loving and sympathetic . Instead she is 16. Rude, selfish , and a brat. Totally self absorbed. I guess that's kinda normal but it hurts me so much! I cry over this crap. I'm stressed as it is. I'm sure I'm part of the problem. No mom should have to go through BC and have a 16 yr old daughter at the same time.😀
    First concert? Not sure. But I have seen Boston, Styx, Kansas, Meatloaf, Cheap Trick, Kiss, .
  • 3bears
    3bears Member Posts: 161
    Fightingirl----so happy you don't need chemo. !!💃🏼👭
  • DCISinAZ
    DCISinAZ Member Posts: 135

    3bears - my 16-year-old daughter is exactly the same! I thought she would be super helpful, but she's at that age where she only thinks about herself and how it affects her. She hasn't been mean, and I know she was really worried about me, but she was virtually no help to me at all right after my surgery. Just went in her room and texted her boyfriend and FaceTimed him. Actually, I have to admit that I was disappointed in the entire family and how much they helped me with cleaning up after themselves. Thankfully, I felt better very quickly. But, it was very disheartening to see how little they did to pick up the slack. My friend would constantly ask how the kids were doing and where they really worried about me. I felt embarrassed to say that it seemed like they could care less.

  • Cowboy-Up
    Cowboy-Up Member Posts: 161

    I made the mistake of going to. A Tamoxifen board. Shouldn't have done that.

  • win-chimed
    win-chimed Member Posts: 23

    Hello Sisters in Battle,

    A recent update: I went to CTCA in Tulsa, OK and I must say...they are AWESOME. But unfortunately I cant squeeze them into my budget and work schedule. They pay for your flight but you are responsible for paying for your room(45-50 bucks a night) and me being a single parent won't work. But they were willing to offer me the same treatment as my Onco in my hometown, so its just best that I just go with my treatment closer to home. I've been reading everyones posts and to say I am PROUD OF EACH AND EVERY SISTER ON HERE! Continue on, and preservere. Before we all know it...time will have flown by!

    Giving shuga!

  • vargadoll
    vargadoll Member Posts: 1,942

    My now 29 year old was HELL frpom 13-18...then ok 18-24 then double HELL from 24-27. Girls are so hard on their momma sometimes. Now that she is having her first daughter she is so worried because of how nasty she was to me for all those years. Now thr I'm"sick" she is siper sweet. I havent told her it was/is cancer either.

    I am baking the Shepherds pie tonight. So funny I saw other are having that tonight to. Hugs to all the girls. Its about time for a dose of winchimed Shuga!

    Smile

  • docmama
    docmama Member Posts: 126

    Pugsmama, I love headcoverings.com They have really cute little beanies and the prices aren't that bad. I've gotten the soft bamboo or cotton slouchy caps; they're really nice for work (I work in a research clinic and wear scrubs everyday) and wash well. Also the package is so sweet when you open it - pink ribbons and they always include an inspirational magnet.

  • annoyingboob
    annoyingboob Member Posts: 459

    hi girls, I can't find it now, but there is a really beautiful woman who has a thread all about her hair growth post chemo with pics taken every week so you can get some knowledge of timeline for regrowth.

    Good luck to those embarking on this journey this week! Happy prevalentines day! Hope all of you get quality time with your significant other. My SO these days is my dog, and I think we might buy heaps of Girl Scout cookies and randomly give them out to the homeless in SF. Its been raining horrendously all week, and miserable sleeping inside a nice warm house, so I can't imagine living in the streets. They deserve love too on Valentine's Day.

    Xx


  • Bevmomduck
    Bevmomduck Member Posts: 91

    3bears, DCIS, and anyone else with teenage girls. They can really get on your last nerve and i know you're own emotions are hardly ideal right now. My 3 girls are grown with children and I can tell you- it WILL get better. They will prob apologize later on. Try hard as you can to not take it personally. And try to find some way to laugh about it cause you know it's just the age. Much love to you

  • Fightingirl
    Fightingirl Member Posts: 328

    cowboy-up, thanks.,, I think that was a warning not to go to the tomoxifen board. That is my next step of research but maybe I want to stay away from there!

    DCISinAZ, yes we have a good group and I have totally seen and felt the "snarky" you mentioned. I felt a little ganged up on once so I pretty much stick with this board mainly!

    I feel so behind these days...I'm working harder with all these appointments than I do at work and I'm wiped so forgive me for not referencing some of the earlier posts.

    Got 4 radiation treatments down and 6 to go. Thankfully today was very uneventful except a nice little victory in physical therapy. They measure your range of motion every 5th appointment and were amazed at how my numbers have increased! My actual arm measurements for lymphadema have not changed so I'm still "on watch" but at least it's not worse.

    I will be so happy to get these catheters out...I don't know how it compares to the drains so many of you endured but these suckers gotta go!

    Teenagers...mine are now 25 and 27 but I will never forget the pain! Self absorbed brats for sure! BUT, I will tell you all who are suffering now, it gets better. It takes a long time but slowly you will recognize the real child you raised. They become unrecognizable little monsters and it seems they are gone for good but don't lose hope! I sit in wonder at some of the amazing adult conversations I have with my children now and the transformation will blow you away! My son was the hardest believe it or not...girls are usually harder most people say. I had to "tough love" him and kick him out of the house at 19. Amazingly, he did have working wings much to my surprise and he has never moved back home and is just the most incredible, funny, hard working kid! My step-daughter is older and still a little flighty with what she wants to do in life. She is very close to having her RN but then she decided she wanted to teach yoga and who knows what it will be tomorrow. She is more of the artsy, gypsy soul type where my son is very grounded. All that to say...those little shits will grow up and they will be so sorry for how they are treating you now. My son tells me all the time that he can't believe he was such a jerk to me! Hang in there mommas!

    Happy Friday! I plan to get more relax time in as it seems that is all I've wanted for the last few weeks so I'm going to roll with that!

  • DCISinAZ
    DCISinAZ Member Posts: 135

    Cowboy-up - I am scared to ask what you heard on the tamoxifen board? :(

    I haven't ventured over there even though I am almost certain I will be on tamoxifen. I have one friend who told me she NEVER read anything about any of the potential side effects for anything. She basically just said "I have to have this so it will be what it will be". And she ended up having almost no side effects that even her doctors were shocked. So, maybe she is on to something???

  • Cowboy-Up
    Cowboy-Up Member Posts: 161

    Yes, there is a lot of arguing and horror stories. 70% of people have little to no side effects. I'm going to just keep that in my mind and stay away from it.

  • Elem
    Elem Member Posts: 246

    aww3bears ,

    Teenagers and especially girls can be so insensitive . Plus their aloofness does hurt when we are faced with something so devastating . It would seem like they would pull together and realize how much we really mean to them and be there for us like they never have before . After all , we have done everything in hopes of them becoming good , happy and successful adults. But this behavior unfortunately is very much normal and everyone deals with their own pain differently ! Hopefully, you can find some strength in it and keep leading by the strong example of a woman that you are .

    This is by far one of the toughest trials of my life and I am so glad I have you girls . Big hugs for you my Dear.. and I am sure a giant group hug from the girls! ❤

  • BeachBabyK
    BeachBabyK Member Posts: 148

    It must be a gender thing. My 16 yr old son has been great. I also have a 24 & 22 year old and I wouldn't have made it through chemo without them. They really helped keep me distracted and occupied, went walking with me, and just sat with me and watched Netflix when that's all I felt like doing. They were a God-send. If they could clean up a bit more after themselves, I'd be set!

    I found some cool links on that "butdoctorIhatepink" and I am one of those BC patients that hates pink...my boys tease me that I will forever be connected to my least favorite color. As long as the shirt says "survivor" though I won't care about what color it is!

    PugsMama, you look wonderful! MGNewYork-Welcome!

    Cowboy-Up...I actually told my MO not to tell me about the side effect of Tamoxifen. I'm too afraid that I will have them if I know.

    Have a great weekend Ladies!

  • MGNewYork
    MGNewYork Member Posts: 3

    Lisabekind: it sure does suck. I wish you the best on your upcoming scans. You are in my prayers.

    DCISinAZ: Thanks for the tip. I updated my profile Diagnoses.

    PUgsmama: thank you, I love the hair!

    Thank you all for the welcoming!

  • PugsMama
    PugsMama Member Posts: 337

    My mom was a nurse for years, and later in her career, she transitioned to a sales position with a pharmaceutical company. So when the moms with teenage daughters would complain about them, my mom would sit them down & say, "you think you've got it bad, let me share some of the horror stories about my daughter" (yes, yours truly!) & they would instantly feel better bc no matter what they were going through, I was worse! Well, I grew up & she never gave up on me and today we're very close. So hang in there! It does get better, I'm living proof!

  • dcbc
    dcbc Member Posts: 122

    ok ladies... feeling down today, and inspired by PugsMama to post one of my pre-surgery pics (pg!) of the 36Fs... taken two nights before surgery,on the night of my 23rd anniversary (part of my goodbye boobs celebratioN... will look forward to posting a pic in this dress once I've got my perma-foobs... will never have to lug those around again!

    image

  • vargadoll
    vargadoll Member Posts: 1,942

    Dcbc-smoking hot! So many gorgeous girls in this thread!

  • dcbc
    dcbc Member Posts: 122

    Thanks! PS hate pink!

    And hold tight teenaged parents... it will end! My 19 yo can still be a pain, but is mostly wonderful...

    finally, welcome MGNewYork! I'm an ILC girl too... feel so,lucky it was found ... did u have a 3D mammo, or was it detected another scan?

  • Elem
    Elem Member Posts: 246

    DCBc ..wow Mama .. you look great . 💗

  • Fightingirl
    Fightingirl Member Posts: 328

    pugsmama, you bring to mind the saying "I hope you have kids just like you someday" my mom did tell me that many times as a teenager and I'm sure they were karma! I also think though she was a great ear while my teens were acting up there was a small part of her that was having a little chuckle!


  • DCISinAZ
    DCISinAZ Member Posts: 135

    dcbc - SMOKIN'!!!! Wowie we have some hot mamas on this board. I feel like frump-orama. But here is my pain in-the-butt-but-I-still-love-her daughter and her "special friend" all dressed up for winter (I use winter loosely since it was 80 today) formal

    image

  • dcbc
    dcbc Member Posts: 122

    also, PPS... do not plan on visiting the tamoxifen board after hearing this... have not had my oncologist appt yet, and since I'm er and pr+, wondering it I will end up on tamoxifen or something else... but to all,interested, one of my closest friends just finished her 5 years with tamoxifen, and sailed through without problems... she actually had a couple of months of menopausal issues after going off and asked her dr if she could go back on it! The answermwas no, and the symptoms,resolved after a few months). For those with ILC, I also,was skimming the PowerPoint presentations from a fall,symposium on ILC (there is a board here on it if you are interested), and based on my very limited knowledge, it appears that there may be other hormone treatments that yield better results for ILC patients in particula... I plan to ask th MOmabout it,and prob will,seek,a,second opinion as well... anyway, just putting it out there...

  • dcbc
    dcbc Member Posts: 122

    dcisInAZ...what a beauty!!! Hope she has fun

  • PugsMama
    PugsMama Member Posts: 337

    dcbc, you look gorgeous in that dress! Can't wait to see your "after" picture!

    Cowboy Up: It looks like Arimidex is in my future, had the same reaction when I went to that board, I'm just going to trust that those with no problems don't post! Ignorance is bliss sometimes!

    Docmama: my overflowing shopping cart is at headcovers.com! Great site!!

    DCISinAZ: what a sweet picture! She looks like she's having the best time!

    Win-chimed...lovin the shuga!

  • Fightingirl
    Fightingirl Member Posts: 328

    loving the pics!!!

    Dcbc, hot damn! DCISinAZ is right...so many beauties inside and out! Don't forget those sun salutations for me tomorrow morning! Since my PT is starting to free up my arm some I have that eye of the tiger thing so I can get back to yoga!

    DCISinAZ, what a cutie your girl is...hope she has a blast! Now for this weather here in AZ... I hope you ladies know us AZ girls are not bragging about this 80 degrees! It's a reminder that summer will be here all too soon! I think it's supposed to cool down and maybe some rain so that is really good. I think I mentioned yesterday that the only button up shirts I have are long sleeve and flannel so I was not a happy camper running around in that all day in the heat and I looked stupid when everyone I see is in tank tops!

    I forgot to welcome MGnewyork! I'm sure you've already seen what a great group we have her so in the crappiest of circumstances we are lucky to have eachother!

    And win-chimed, good to hear from you and that you've gotten your treatment set for close to home! Did you look into seeing if they have any type of places in Tulsa like Hope Lodge or something like that? I know there are places that house cancer patients across the states for free. If you really want to be treated there, it might be worth a google search if you haven't already. There are also types of financial assistance programs. Not trying to make your head spin if you've already gotten comfortable with the idea of being close to home but just thought I'd throw it out there. Much love and thanks for always givingv us the shuga!