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January 2017 Surgery Group

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Comments

  • lisabekind
    lisabekind Member Posts: 55

    Westhebest....the smell, when my mom was in the hospital after her tumor was removed (colon cancer). I took my son to see her, we were getting off the elevator, and my son said- What is that smell?? And then he says, smells like old people. He was 5 or 6 at the time, I about fell over. Shocked

  • RoseRN1
    RoseRN1 Member Posts: 44

    Stay safe all you Cali girls!!!

  • DaniCalifornia
    DaniCalifornia Member Posts: 45

    Aboob, no issues where we are. Oroville is a couple hours to the north. Stay dry and safe!

  • annoyingboob
    annoyingboob Member Posts: 459

    for those who have to wait awhile until their reconstruction - what about one of these? lol...

    image

  • dcbc
    dcbc Member Posts: 122

    Aboob you crack me up! You think my wine with dinner is draining into these things?! That would explain a lot!

    X

  • DaniCalifornia
    DaniCalifornia Member Posts: 45

    that's hysterical

  • 3bears
    3bears Member Posts: 161

    Order me one A Boob! By the time I get done with chemo and get my TE, then implants, it'll be July I bet

  • 3bears
    3bears Member Posts: 161

    Docmama-- You do look beautiful! Thank you for sharing. It gives me a timeline for what I might look like by July 4th. My hair hasn't even started falling out yet but I always like to know what to expect. Just think how much hair you will have in another 8 weeks!!

    Leftcoastie-- You have all my positive vibes and thoughts and prayers. It's so hard to have to reroute our plans and not finish in the timing we had planned. It may take longer but I know you'll have success and joy at the end of this reconstruction journey.

    DCISin AZ-- congratulations on being cancer free and cured!! Those are the words we all want to hear.

    Annoyingboob-- your pictures always make me laugh. I love it!

    PugsMama-- Here to another SE mild week for the two of us!

    BeachBabyK-- My BS also told me to use a non aluminum deodorant. She said Toms of Maine. I'll look for Native though. I think the "problem" though is in order for something to be antiperspirant , it hasto have aluminum. Deodorant is nice but let's face it, the warmer it gets outside the more we are going to neeed to control armpit sweat. (I'm just waiting for the hair to fall out of my left armpit since I can't get a razor in there still.) lol!!

  • Cowboy-Up
    Cowboy-Up Member Posts: 161

    A-boob, you always have the best pics.

    Laying here in bed this morning, I realized I finally have some peace that I haven't had since November. Yes I still have treatment to go but the waiting and the gotta just get through this week is gone. I was able to have fun yesterday without 'cancer' being the focus on my mind. I have a plan and a time frame. I am so hoping that you ladies are finding this peace. I know some of you on the chemo train may have a few more stops but know that the peace is coming. I am aware that some fear,anxiety and depression may set in at the end of treatment because I am not watched by doctors every week. I'll cross that bridge if and when it comes.

    Today I am going to go out and groom my wonderful horses and then have a birthday dinner with my whole family for my mom, a survivor of breast cancer as well.

  • 3bears
    3bears Member Posts: 161

    cowboy--so glad you don't need chemo!! Did you have an oncotype test? What was your score

  • PugsMama
    PugsMama Member Posts: 337

    Leftcoastie! My Jan. 4 sister! So great to hear from you...it's alway a ray of sunshine when you check in!!

    3Bears: I hear you about the armpits! I haven't shaved either one since the surgery. At this point, might as well let the chemo take care of it!

    Cowboy-Up: great to hear you're finding peace & serenity at this point in your journey! Have a great day!!

    A-Boob: I have TEs & I want one lol!

  • Bevmomduck
    Bevmomduck Member Posts: 91

    docmama- looks like you are going to become one of those people with fabulous white hair!

    Annoyingb - yes, please. The scarf 😂😂

    My radiated nipple that ps saved is actually looking good. This morning there is more pink, so it just might work! Hooray for working capillaries.

    Now for the really, really crappy news. My brother has ALS, it's been heartbreaking to say the least but yesterday, the day I came home from the hospital- he was rushed to the hospital and may have pneumonia which Is devastating to someone with ALS. I don't even know how I can try to stay positive for my own healing while this is happening to my brother. I think I may actually request some official " I don't care" meds to try and stay stable ( and avoid more opiate induced you know what) because I am crushed to not be there with him (although he has a wonderful wife and kids but I always said he would be there for the hard things) dang this is so hard.

  • Cowboy-Up
    Cowboy-Up Member Posts: 161

    3Bears, yes I had the oncotype. It was a 17. Top # in the low range.

    Bevmomduck, I'm so sorry to hear aboutyour brother. I will add him to my prayers.

  • Bevmomduck - so sorry to hear about your brother - will keep him in my prayers..

    Exciting for me has been getting my permanent prosthetic! I got an almost perfect size match with my existing boob, and can even keep a few of my pre-existing bras. Once I get my oncotype test back, I can finalize my treatment plan. Of course my insurance doesn't want to pay for it, but we won't even go there...

    So happy for you Docmama - you look fabulous!!

    Glad to hear many sharing stories outside of cancer - it means we're moving on to a life without cancer!!

  • Cowboy-Up
    Cowboy-Up Member Posts: 161

    Didnotseethingcoming, check with the oncotype lab. I think it is called Genomics. We are middle class maybe slightly above and they said we qualified for a free test. They have a fabulous financial aid help. Give them a call tomorrow

  • PugsMama
    PugsMama Member Posts: 337

    Bevmomduck: so sorry you can't be with your brother right now, you're all in my prayers....

  • Cowboy-up - I'll do that. When it makes a difference whether or not I get chemo, you bet I'm doing the test!!

  • Leftcoastie
    Leftcoastie Member Posts: 77

    bevmomduck - sorry you cannot be with your brother. You are both in my prayers.

    I hope everyone has a relaxing Sunday.

    Cowboyup enjoy your horses!

    Xoxo

  • Fightingirl
    Fightingirl Member Posts: 328

    docmama, hot stuff!!! You are gorgeous lady!

    So good to read some posts this morning! Cowboy-up, lovely to hear you found some peace this morning and enjoy those horses!

    Bevmomduck, I'm so sorry to hear of your brother and I too know what a horrible disease ALS is. My grandma also had ALS. You and all of your family are in my prayers. ❤️❤️

    Doing my best to find a balance of not being "consumed" by all things cancer and trying to get on with things but you all are never far from my mind. It was a rainy day in AZ yesterday...thank you Cali girls for sending our way! I woke up with an energy I know I haven't felt since diagnosis and tackled some long overdue housework and then finally had my first shower since Feb 7th!! I came out singing "I feel good....na na na na, so good, so good"!! We took a little drive in the jeep to get out of the house for a little while and that was nice.

    I don't say anything to brag....just so you know that someday you will all find a semblance of your old life but with a better perspective. My happiness yesterday was out of control! Annoyingboob, you nailed it with the quote you posted and I love...about fighting to become who you are.

    I still have a little bit to go by hopefully warding off lymphadema...gotta get this cording gone and would love if that seroma in my arm pit would absorb already! I have a follow up appt with the RO to check after the catheters being removed and see how I'm healing this week. I finished my last antibiotic this morning so hopefully no more signs of infection.

    Love you all and hope all is well this. Sunday

  • annoyingboob
    annoyingboob Member Posts: 459

    bev mom, sorry about your brother. Don't feel any guilt for not being there, you are there in spirit for sure! I hope they can get his pneumonia under control and get him back home to recover. Focus on your recovery so you can be strong when you see him!! Xxoo

    Cowboy, hope your mom has a great bd celebration!

    Fightingirl, I like hearing your real life out and about stories - gives me more motivation to join you on the other side!

    I think I mentioned I was reading Carrie fishers book 'postcards from the edge' which is all about time in drug rehab and the funny cast of characters that goes with it. Then last night I had the craziest dreams which were a combo of breast cancer treatments and drug rehab - hilariously terrifying!! Anyway, we should write a book or screenplay about all of us - heck, 73 of the pages are already written!!! What famous actress would you like to play your role???!

  • annoyingboob
    annoyingboob Member Posts: 459

    3bears, what was your onc score? Seems like you and cowboy are not far off in terms of tumor stats. Maybe it was your mom having bc that bought your ticket to chemo train?

  • Shoregirl
    Shoregirl Member Posts: 338

    Bevmom, so sorry to hear of your brother's ALS. I know it must be so hard for you to not be able to be there physically on top of all you are going through. I pray for your peace, that you can be there with him in spirit and he can come back from the pneumonia. I am happy to hear your nipple looks like it will be ok!! Docmama, you ROCK the new hair!! You look absolutely LOVELY and if it were me I would def let it all come in natural, no more haircolor just out of curiosity. Plus, now you have truly virgin hair, it will be super healthy. It does complement your skin tone but if in the future you decide to color, you can look into the organic, herbal non toxic colors. In addition to red henna, there are others, Indigo is one, that can be mixed with henna and other herbs to created dark blonde and brown tones (if red isn't your thing). Hennaforhair.com is a great resource with a forum and all kinds of recipes.

    Cowboy-up, have fun with those horses, I believe they are very spiritual animals, and have excellent energy to be around when healing!

    I hadn't posted here in a while, but I am happy to report my pathology came back PURE DCIS, 2 areas. 1 grade 2 the other grade 3 even though my MRI and stereotactic biopsy had indicated microinvasion. So NO invasive cancer, my hormone receptors are both negative, so NO chemo, and my nodes were clear so NO radiation!! My nurse navigator told me I will just be seeing my ps for the next several months, and follow up with my bs in 6 months. I confess I have a little guilt because so many of my sisters here are still dealing with chemo and rads. I know its silly but just being honest. I know that you all are strong GODDESS WARRIORS though, and I will continue to follow your stories.

    Even though I am "in the clear" this TE crap sucks!! One of my little dogs, a Jack Russell was laying on my lap and decided to get up to run and bark at something out the window. In doing so, she pushed off hard on my left boob with her feet and I have had a lot of pain ever since. It feels really hard in the area and my pain which had gone down to a 3 is now up to an 8. I go see my ps Tues, I hope it is alright!!

  • WGraf
    WGraf Member Posts: 17

    Shoregirl - Awesome to read your news about no chemo or radiation. This disease creates a bond that makes us all rally behind one another. We just never know what this journey will throw at us. But I knoweveryone here is so happy for you and we know you are cheering us all on too.

    I didn't see your HER2 status listed in your bio. Did they give you that info? I'm curious bc you state that you were ER-/PR-.

  • Pyrrh
    Pyrrh Member Posts: 89

    Fightingirl, I know what you mean - I'm having more good days than bad. Had a long talk with a friend that I just found out had breast cancer over 10 years ago, and that was very reassuring. Hers was stage 3, too. She lives a very normal, active life - and I fully plan to as well.

    I even worked out in TKD class (lightly) twice last week! Went out for dinner, and basically am starting to just do normal life stuff. So relieving.

    Look forward to it ladies, you will get there.

    Right now I am assuming I will hear the news I expect to hear on Wednesday, and walk out with a prescription for my bin of Tamoxifen. Even if I hear that I get a ticket for chemotherapy train, you all (plus the ladies I've met at other groups) have me convinced I could totally handle it. Just one day at a time, yes?

  • Cowboy-Up
    Cowboy-Up Member Posts: 161

    A-boob, my momhad breast cancer as well. The difference between 3bears and me is that she is a grade 3 and I am a grade 2. It would be interesting to see what that does to an oncotype score.

  • Shoregirl
    Shoregirl Member Posts: 338

    WGraf, my nurse nav told me that HER2 status is irrelevant since I don't have any invasive cancer. I guess it is only tested when there is invasive or infiltrating cancer. Although I am pretty sure I saw one of the ladies here with pure DCIS that DID have HER2 status listed. Hmmm.....

  • lisabekind
    lisabekind Member Posts: 55

    Bevmomduck- I'm sorry about your brother. Sending prayers for a quick recovery, and strength for him and his family. Hang in there.

  • 3bears
    3bears Member Posts: 161

    My oncotype score was 32. High range. Plus my tumor was grade 3 and my ki-67 was 70%. That's how I ended up on the chemo train.

    I think I'll read Carrie Fischer' book too. I always lover her. We learned of her mother dying as we came out of the Star Wars movie. So beautiful.

  • PugsMama
    PugsMama Member Posts: 337

    Pyrrh: I'd be stunned if you end up on the chemo train. Cribriform is one of the slowest growing cancers & is usually low grade. of course I didn't expect to end up on the train either but I think your chances of avoiding it are pretty high! But you're right, we're getting through it & so will you if it comes to that!

  • Elem
    Elem Member Posts: 246

    Hi Ladies ,

    Just want to wish you all a good day . No rads for me today, it's closed for the holiday. So I get a break .

    Bevmom , sorry about your brother , hope he is stabilized with the pneumonia and that you are recovering nicely. He knows you are. With him in soirit . You mustvregain your strength . Prayers to you and him🙏

    Aboob, will you need hormone therapy in addition to xrt? I am so conflicted about it with those terrible rusks from the drug/s over such a long time period.

    So happy for all the girls who do not need chemo . I know that is a huge weight off the shoulders.

    Those powering thru it, continue to amaze me and inspire everyone here on this board. I am so grateful for my many friendships here . I love having you all as a part of my life .

    Prryh Glad you got to participate in a one of your classes at the dojo . That must have felt great . Normalizing is such a good feeling after months of nothing but bc on the brain 24/7.

    Cowboyup , how wonderful to groom your horses again ! Bliss

    Anyway ladies I Love You

    Take care 🌸❤