Stage IV MBC Fitness

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  • Wiegp22
    Wiegp22 Member Posts: 167
    edited May 2017

    going to see daughter in Utah, at Minneapolis airport, lots of walking yeah

    Paula.

  • Wiegp22
    Wiegp22 Member Posts: 167
    edited May 2017

    at airport in Minneapolis, off to see daughter in Utah💕💕💕Lots of walking, yeah


    Paula.

  • illimae
    illimae Member Posts: 5,745
    edited May 2017

    Ugh, chemo has caused the nails of my big toes to lift up so much that they touch the roof of my shoes, making walking very uncomfortable. For now I'm trying to get my steps done in flip flops but it's not amounting to much. Don't get me wrong, I am grateful for every step I can take but these things are just annoying. Hope everyone else is well.

  • micmel
    micmel Member Posts: 10,060
    edited May 2017

    Mae~ I am sorry honey. I know exactly what you mean, that happened To my finger nails and I'm still trying to recover from it. It is very uncomfortable. Hugs ~M~

  • zarovka
    zarovka Member Posts: 2,959
    edited May 2017

    Way to do Paris!

    I walk/jogged 40 minutes to get my cardio and did an hour of yoga in the sauna. Felt almost normal ... instead of shakey ... afterwards.

    >Z<

  • micmel
    micmel Member Posts: 10,060
    edited May 2017
    I was weeding on the side of my house today, ugh 40 minutes later. I was done. Those weeds were as tall as I was. It was quite the work out ,I will say. Those back mets were a screaming when I was done. Carrying them to the trash can was another work out. But I'm glad I did it. I pushed on and now it's done, along with cleaning a bathroom, two loads of laundry, pooper scooping, grocery shopping, I am tyyeerrdd!! Zzzzzzzzz soon for me. Happy Memorial Day everyone. Keep moving. ~M~
  • mara51506
    mara51506 Member Posts: 6,563
    edited May 2017

    Did two twenty minute walks around the neighbourhood today. Was a nice day so will hit the gym tomorrow. Still feeling good myself.

    Micmel, I am tired reading what you accomplished. I will send my sleep your way. Happy Memorial Day to the members of BCO from the U.S.

  • Ronnie3001
    Ronnie3001 Member Posts: 155
    edited May 2017

    Got in a 60 Minute Yoga class and 60 minutes water aerobics.. I spent a few hours weeding and still have many hours to go.. It's 90 degrees here so getting a little done in the morning and then the evening.. I have been able to get my 8000 plus steps in also this week...Happy Memorial Day I hope everyone is spending time with family!

    Ronnie

  • micmel
    micmel Member Posts: 10,060
    edited May 2017

    way to go guys!!! Summer is kicking in and so are the garden activities,we have had so much rain the weeds never stop. But I'll admit I haven't been tending to it like I used to, and that makes me sad, so I'm trying to change that little by little. Ronnie, sounds like you kicked butt. Mara~. I need all the sleep I can get. I wake up all night on and off, because of heat flashes, sometimes I even have to change my clothing it's so bad. Yucky feeling, because then two mins later, you're shivering cold. Ugh! Enjoy the holiday weekend. ~M~

  • zarovka
    zarovka Member Posts: 2,959
    edited May 2017

    Way to go ladies.

    Working on a condo we just bought ... expensive bugger. Need to get it rented quickly so my exercise is running to the stores for materials for the workmen. One day it was 8000 steps by 11am just from going to home depot and a mattress store.

    >Z<

  • micmel
    micmel Member Posts: 10,060
    edited May 2017

    That is quite a lot of stepping. Hope it works out the way you want it to, and have it rented quickly!! Happy Memorial Day everyone. Enjoy the day off and let's honor our fallen heroes that keep our freedoms safe and our families safe in this crazy world we live in. ~M~

  • zarovka
    zarovka Member Posts: 2,959
    edited May 2017

    Micmel - thank you for bringing our attention to our veterans. Let's honor our veterans today.

    >Z<

  • Wiegp22
    Wiegp22 Member Posts: 167
    edited May 2017

    Hey Ladies,

    Last day with my daughter in Utah! Happy Memorial Day and yes let's remember our Veterans. Walked yesterday, to hot today, relaxing

    Paula

  • ShetlandPony
    ShetlandPony Member Posts: 3,063
    edited May 2017

    I have managed some more days with two fitness activities. Yesterday I danced and did yoga. Also I have made dinner several times this week.

    Micmel, I can see why you just wanted to defy cancer and get at those weeds. I'm a little worried about the back pain it caused you. Activity is good, but please pace yourself and work smart. My dream is to get someone to come and remove the invasive plants entirely so they don't keep making more weeds, and then I will have a place to garden. Right now DH and I can never get beyond weeding before we are tuckered out.

  • micmel
    micmel Member Posts: 10,060
    edited May 2017

    Shetland~ I know I am stubborn, back pain is something I know I am going to live with. The next day it was obvious I hadn't used some muscles in quite a while and my shoulder was a little angry. But overall i kicked some weed pulling rear end. Yes I had to stick my middle finger up at mr cancer. I hate him, got a registered work out from it and that made me happy. All I want to do is sleep, my bones are tired of resting, but also tired of being in pain, I used to be so active and it's like an alien has commandeered my body and all of a sudden, I have cancer and I'm gaining weight. I don't eat more, no way. Less if anything. But there I am like a balloon swelling daily and I feel helpless to stop it. Before diagnosis I had an injury and they thought it was my spine , when it was determined it wasn't, I went to work on my body, and lost nearly 90 pounds. Best shape of my life, now what do I do ? Gain weight and become unhealthy?(ok I have cancer ; more unhealthy)My onc doesn't want me to loose weight he says don't lose weight, you're maintaining, well doc gaining 4 lbs in one month isn't maintaining, it's gaining. And I hate that along with every thing else, somedays I don't even know how us ladies have the strength to even get out of bed. Such a vicious circle or loop. Gonna try for some movement today. Got all 12 hours in for 250 steps but had to push myself. I wanted to sleep!! Hugs everyone ~M~

    Jogged for a half hour today felt pretty good. Was misty raining so I cut it short, but good enough for me can't wait to go to bed already. Have a good evening everyone!!

    I will just edit. Lol. I'm trying to pick up my pace with my jogging. So today I ran for 36 mins. I just feel like I run out of gas!! Annoying. Happy hump day! ~M~

  • ShetlandPony
    ShetlandPony Member Posts: 3,063
    edited June 2017

    In the big picture you are much better off doing the garden work than not doing it, for sure. Makes me smad that it hurts you. A half-hour jog is great! Good for you.

    I have allowed myself to be a total slug today, after yesterday's bad news that I am moving to chemo. But I will get back to better things after a day or two of processing. Actually, I did make a meal. Trying to work up what it takes to go walk now.

  • micmel
    micmel Member Posts: 10,060
    edited June 2017

    Shetland~ I had just read on the other thread about having to switch. Ugh! I am hopeful that you will be tolerant of the new change, and will Put the beat back in your step, I try to do something to move each day so I can sleep well. Sleep is so important!! I will be keeping you close in prayer. Try to relax. I know it is sonerve wracking. Just please know we are all here! And ....understand. ~M~

  • ShetlandPony
    ShetlandPony Member Posts: 3,063
    edited June 2017

    HeartMicmel.

  • mara51506
    mara51506 Member Posts: 6,563
    edited June 2017

    Micmel, I am sorry to hear about your pain as well but totally understand the need to work through it. You are right, cancer takes so much and resting will not help it. I totally sympathize and send my thoughts your way.

    Shetland, I am so sorry you are having to move on to chemo. I can imagine that feeling and I know receiving news like that can move us back to how we felt being told we were metastatic. I will picture the chemo attacking your cancer and also send thoughts your way. I have no doubt that your exercise will keep you strong and may it keep SE at bay, but sometimes we just gotta sit with things too.

    Paula, glad you had a good visit with your daughter.

    I just wanted to report that my CT scans show I am still NED everywhere. Nothing showing in my brain or anywhere else in my body. So thankful for this reprieve and pray the H&P continue working as long as possible. I was not worried about my scans since there was nothing bothering me healthwise. I am so paranoid, had there been anything brewing I would have likely found it quickly. I feel bad reporting this after reading about Shetland, but I know good news can be helpful to all of us.

    I did manage to be active today. Did 1 mile of Leslie Sansone, walked 20 mins around the block and 20 mins bike. Wanted to get that in before my tooth got pulled. Have had some pain in my mouth and we found a cracked tooth. Nothing wrong with my teeth otherwise which was surprising as my oral care did fall by the wayside while treating my brain met from july to sept of last year. I did cry while he was having to try to work the tooth out but it is not bad now. I even did a walk around the block again and another with Mom after supper just to prove it was no big deal. Not painful now.


  • illimae
    illimae Member Posts: 5,745
    edited June 2017

    good news Mara, thanks for sharing :)

  • Wiegp22
    Wiegp22 Member Posts: 167
    edited June 2017

    Great news Mara, sometimes it helps to know that there is hope and that we may have to go through some bad times to get to the good times! Keep up the good work, glad you are doing well.

    Paula.

  • zarovka
    zarovka Member Posts: 2,959
    edited June 2017

    Well, we are having little stretch of positive news with Mara and Wendy and others doing well. I optimistic about Shetlands move to Xeloda as well... as I think we'll see SP's TM's dive, conclusively. Not a bad week ladies.

    We're doing quite well ... so no excuse not to keep moving.

    >Z<

  • ShetlandPony
    ShetlandPony Member Posts: 3,063
    edited June 2017

    Mara, are you kidding, I love to hear good news from my friends here! I share in your happiness and relief. And gain hope.

    High fives to all for whatever exercise you've done so far this week.

  • illimae
    illimae Member Posts: 5,745
    edited June 2017

    It's a down week for me. Monday was my last chemo and Tuesday was 10 hours of scans and waiting rooms, ugh. I've only managed 1/2 my step goal this week but plan for some steady improvement.

  • jackboo09
    jackboo09 Member Posts: 780
    edited June 2017

    Hi

    I've been quiet. Trying to keep moving and did 7.5K steps this afternoon.

    Then I came home to a scan appointment letter and I swing back down again.

    Why have I been given this appointment so soon? It will be day 4 post treatment for me.

    Got to get a grip but just the letter had freaked me out. It also says abdom on it. I have a mild concentric thickening on upper GI which they think is a hiatus hernia. The PET scan on April 13 DID NOT light up and my onco actually called me to say I had one area of concern. So does anyone know if abdom is routine?

    Yikes!!!

    Liz x

  • micmel
    micmel Member Posts: 10,060
    edited June 2017

    Jackboo~ usually that abbreviation means abdominal area, a CT order does have that lingo on the order for the technician to focus on. If they sent you an Order through the mail,and didn't make you run off that second, then maybe they are just being careful. A PET scan is usually for the entrie body, from what I have learned. Usually the CT scan speaks for soft tissue in the abdominal area. And limits what they are able to see. Hopefully they are just being extra careful. We all know it's nothing to play around with. I know it's hard to even think about it. I'm sorry that they just sent you something in the mail without calling you and specifically explaining, why and what they were sending. Maybe you should call, i would ask them not to do that again to you. You have enough stress to worry about. As we once again, all know and understand cancer is so shitty. I'm sorry for everyone that has to deal with this shit, I really hate it. More than words could ever lend explanation. Hugs ~M~ Maybe someone else will chime in with a different view. Hang in there. We have no choice

  • jackboo09
    jackboo09 Member Posts: 780
    edited June 2017

    Hi Micmel

    I am very touched by your support. My UK friend seems to think that a chest/abdom CT is fairly standard.

    I'm hoping that it still stands that the GI thickening didn't light up on that April PET and that this latest CT doesn't reveal anything more worrying.

    I will walk tomorrow morning as I did today and try yet again to put all this out of my head.

    So hard to just go with the flow isn't it and yes this is a truly crappy disease we are all dealing with.

    Liz x

  • micmel
    micmel Member Posts: 10,060
    edited June 2017

    Jackboo~ my onc always does the ct scan first. It is a very common scan to have. My onc told me, he would only scan PET, if I have additional new symptoms, that hadn't surfaced before present themselves.He said he does this because a lot of insurance carriers have limits on PET Scans per lifetime insured. So he doesn't want to see me get a 12$k bill when he believes the patient is the one who really knows your own body. I have realized with this last scan, that how I am feeling really does mimic what the scan says. At least for me, the body speaks volumes. Try to remember, you're not alone, stay strong and I will too! Hugs ~M~

  • jackboo09
    jackboo09 Member Posts: 780
    edited June 2017

    Hi Micmel

    I expected another PET scan to be honest because the onco wanted a PET as a baseline before I started chemo. Therefore I assumed I would have a follow up PET at the half way point.

    I don't know which is cheaper as we have the NHS system here in UK.

    It will mean another needle though and my veins are already poor. I also don't like the contrast.

    For me the whole thing about scans is scary. I will need to learn to get used to them.

    I will think of all the amazing people I have chatted to on here as I go through it and know that I've looked after myself as far as exercise and diet go. Having said that I did enjoy cake today!!!!!!!

  • zarovka
    zarovka Member Posts: 2,959
    edited June 2017

    Hang in there Jackboo - All I can say is that scans make me a wreck. I hate contrast. IV's make me pass out. Hang in there.

    I've been meaning to remind people to hydrate ... with an electrolyte drink. I work with a cancer consult and cancer patients are highly prone to dehydryation. Furthermore, she thinks dehydration promotes metastasis. This came up because it is her only concern about exercise. She like moderate and even regular vigorous exercise, but no marathons that really push your body to the brink. And, yes, drink ... but if you are actually getting dehydrated because of exercise or whatever ... go for some sugar free electrolyte replacement ... something developed by a doctor for sports. Not Gatorade.

    >Z<