Stage IV MBC Fitness
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Lulubee -
We have some viruses going around northern NM which would fell an ox. I hope you are feeling better and clocking steps while doing whatever. I sometimes use the back step of our house to do step class like routines. I clock 100's of steps going nowhere at all. It was a good way to get cardio when I couldn't bounce around too much due to port healing.
It's noon here. All I did this morning was go to a laundromat and wash the family laundry. 6K steps. They went off to lunch. I am resting a bit. Duomo in the afternoon. Should be good for another 6K.
It's a tough season with the festivities and weather but just keep moving. It doesn't take much ...
>Z<
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Whomever recommended watching The Marvelous Mrs Maisel series on Amazon Prime while I am on the treadmill...sorry, can't remember who suggested it....l.anyway, I absolutely love it and am about half way into the season.
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DivineMrsM. I did! I have one episode left and just can't watch it because it is then all over. I love this show!
Mary
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Haha, marylark, I do the same thing! And when I am reading a book I don't want to end, I read slower!
Thanks so much for the viewing recommendation!
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Hi Everyone!
Thanks for this post - I need it today! I seem to go in and out of slumps of motivation to exercise. I use a great free website called Fitness blender and try to do about a 30 minute cardio workout each day...but I have been slacking. I've been receiving Lupron 3.5mg since my diagnosis earlier this year and at the last onco visit, they said insurance wasn't covering Lupron anymore and I ended up receiving a 7.5mg of Eligard. I seemed to react strongly to the higher dose (and maybe something slightly different in the Eligard?) and was sick for about a week after shots and then caught a bug on top of that...so I have been down for the count for a couple weeks now and REALLY need to get motivated! It is freezing here in Philly and all I want to do is lay in bed...zzzzzzzzzzzz I am going to push myself right now to do something...even if its 10 minutes... Thank you again!
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Love - you have to adjust and respect what you can do. It's really about regularly creating space and time for exercise and let it fill with whatever you need that day. A brisk 20 minute walk has a huge impact. There will be times when we can't meet our expectations based on what we used to do or think we can or should do. None-the-less I can usually get a 20 minute walk in.
Carving out time for something physical is the key. That space will fill with an appropriate exercise given where you are ... sometimes cardio, sometimes a stretch, sometimes longer. Whatever. Just keep it regular and consistent.
I am not pleased that they changed your medication and it is having this effect. Please talk to your onc and insist on the lupron next time. Mostly it's laziness on the part of the onc when this happens. They need to complete a justification form ...
>Z<
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z, you are in my old stomping grounds. Spent several years in Vicenza. My daughter was born over there. I had no car and walked everywhere. When I returned home I was a size 2-4. Only time in my life and despite eating and drinking like an Italian! Have a lot of fun and sample lots of wines
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Yep, Went out to get a slice of pizza and a bottle of water ... 3K steps. The math favors weight loss.
It seems like we spent the day in the car but I got 14K steps so far. We're still thinking we might walk out for some New Year's Eve dessert wine.
>Z<
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HAPPY NEW YEAR.
I think we should all resolve to do as well in 2018 as we did in 2017.
Let's take a moment to be very pleased with ourselves. That was quite impressive for a bunch of ladies with MBC.
KEEP MOVING.
And please stop by and tell us how you are doing.
>Z<
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Happy New Year to everyone! Love to see everyone getting out and about and moving!
I just returned home from a week in Baja, Mexico on a beautiful three mile stretch of beach. It was super easy to get in the walking every day in that kind of environment and to do a little yoga each day looking out at the ocean. I returned home yesterday to sub-zero temperatures and with a terrible cold. I'm feeling like I might just sit on this chair all afternoon. Or maybe nap! Still, you all remind me that I will feel better if I do something. But maybe I'll just nap first.
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Happy New Year all! I love the spirit of this topic and appreciate you starting it, Z.
I mentioned before that I used to run and bike, etc., and now feel pretty proud of myself when I walk the dog. Have had time off from work this past week and have been continuing to walk as much as possible. There's an old orphanage, used to be run by the local diocese many moons ago, that's about a 15 minute walk - up hill - from our house. There's a statue of the Virgin Mary there and I make the pilgrimage to go up and chat with her as frequently as possible. I bring contraband - a tea light - and light it before I make the trip back home.
Works for now.
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A little uphill walk and quiet contemplation is all you need. Try to be as consistent as possible.
>Z<
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Good job azs40. I love walking myself, even in the cold weather. I can listen to my tunes and get some fresh air. Wakes everything up inside me too. Feels good.
Hope everyone else doing well.
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Question from a Newbie: has anyone with various bone mets to spine and calotte done skiing or roadbike cycling?
I have quite small lesions, no fracture risk, only one lesion which causes slight pain since top of th11 looks like a tooth with a hole. Sclerotic healing has started on the outer rim of the lesions, Zometa appears to help.
I am a bit afraid that a fall could cause severe injury, on the other side, I would really love to do both again. Unfortunately, I do not really have a qualified doc to discuss this topic, as the MO in the breast center is not an orthopedic expert. And since my lesions not are severe enough (thank god), I was not yet sent to see an orthopedist in the hospital.
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"Let's take a moment to be very pleased with ourselves. That was quite impressive for a bunch of ladies with MBC." Hear, hear, Zarovka! We rock.
Azs, what a lovely goal for your walk.
I just typed up a weekly winter 2018 plan for myself, to make sure I have designated times for important things like exercise and nature, in addition to the mundane paperwork and laundry, etc. Having a plan takes away one of the motivation/energy blocks to exercise; in other words, I just have to follow my plan and not get up the gumption to figure out what to do when.
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Hear, hear. We are truly amazing.
Azs, great combination activity. Shetland, hope the plan works for you. Might have to do one, too. DGhoff, take a rest. Vacations can be hard on our bodies
. I catch colds all the time on long-haul flights. Netta, if your MO can't give you an answer I would ask him for a referral directly. I skied while on chemo but only had one bone lesion and MO gave me his OK. I did just easy runs though. I have seen other women do cycling who had bone mets but from my experience it can be a lot more jarring, the landing harder. It might be a better idea to start with a stationary bike until you feel stronger.0 -
Netta - We are birds of a feather. I went over my handlebars mountain biking in July. September pet scan showed extensive new bone "mets", all miraculously resolved in a second PET scan in November. Some of them were clearly fractures, some of them were possibly fractures possibly not. I still have my doubts they weren't all fractures and there really was no progression in the bones.
This is one issue you have to consider. It becomes hard, should you fall, to figure out whether you progressed or whether you have a fracture. I am trying to be more careful and I have not ridden my mountain bike since the fall. If I am feeling well in the summer, however, it will be hard to keep me off my bike. I will probably stay of the runs where you have to jump.
>Z<
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Hit my step goal yesterday by cleaning and planning the same today. I’ll resume my walks when I go back to work tomorrow and I’m looking into a nearby place to swim once it warms up.
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go illimae!
i hit my step goals every day but one day despite a debilitating Italian CRUD. Not 15K step days,but 8K step days. so, not bad.
>Z<
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Yes! I kind of got a go from my MO wrt skiing. Of course, he told me that no doctor would ever advise any patient to go skiing due to the general risk of injury. However, he told me that I currently do not have an increased risk of fracture and that I might as well fall down the stairs, which would be worse than landing in softer snow. And he agreed that I should do what I enjoy as long as I am able to. I guess more Go cannot be expected.
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Excellent, Netta. (In public service announcement voice:) Ski responsibly.
That's right Z. Ride responsibly.
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Hello all! I was kind of sick last week with bronchitis so didn't get much activity in. Also it's been so darned cold here I didn't have any motivation to get outside. Finally, yesterday, I couldn't take it anymore and forced myself to get out for a walk in the cold even though I still felt kind of weak. And you know what, I felt sooo much better afterwards. It was plenty cold still, but this is what I dressed like, so I survived just fine!
Keep moving!
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Bravo DGHoff! The weather reports are scary. You look prepared.
I hadn’t been to yoga in about a month with holidays etc. today’s class exhausted me!
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Lol, DGHoff! Hope snow conditions are good, Netta! Am going to try following you on getting back to yoga, Nkb. I went yesterday to my first class of Zumba since the Holidays. We did a million squats with Latin music so today is an upper body day.
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DGHoff-Love the MPLS Walking Gear!
Illimae- saw your great scan news on another thread. Yay!!!!
Skiing- absolutely! BTW- Being responsible didn't prevent cancer...We need to have some adventures! If something breaks it's a better story than if it happens while changing sheets.
Did my kettle bell workout and walked the beach today...zip up fleece but NO complaints about 70 degrees in florida!
Got in about 3 beach miles yesterday. I love being alone at the beach for a few days. Currently stockpiling Zen to do the 2-3 day drive back to the Illinois permafrost next week and MO appts.
Z- Hope you feel better! Italy sounds lovely!
Have a good week
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Thanks iwrite! Stable bone and disappearing brain mets certainty make for a good start to 2018. Plus, just hit 10,000 steps
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Joining you ladies as I bought myself a Fitbit (Merry Christmas to me!). I really wanted the heart rate monitor and the sleep analysis but must admit the step counting has been fun. It was good to reaffirm that yes, I do get plenty of walking in thanks to my five year old collie. Have dog must walk in rain, snow, whatever.
It is also interesting how this disease undermines our efforts. I’m currently dealing with increased SOB (god I hate hills right now - HR goes off the charts) and both heels have very sore, deep blisters from the darn Xeloda. Fabulous.
Now I need to find a way to fit yoga into my routine. Working FT still but where there’s a will...
Thanks keeping folks motivated Z. I know from my first dance with BC that you really do feel better if you keep moving.
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Sadie - Maintaining a consistent exercise routine in the minefield of MBC requires constantly adapting to what have going on physically and logistically, weather-wise and in our lives. You also have to adjust your expectations to what you need rather than what you were doing pre-diagnosis ... this is medicine. We are good here at helping each other figure out how to keep a consistent and interesting and appropriately challenging routine. We look forward to having you with us this year. With an active dog who demands a good daily walk, you are starting in the strongest of positions... We like pictures of animals.
>Z<
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Hi ladies, I've been on the forum for 3 years, but am a newbie to this thread. After my first round of chemo that was very successful I was back into running and loving my 10km races. Now about 18 months of steady progression while we race through hormone treatment options have severely dented any form of exercise programme! To be fair, the treatments themselves have been easier to bear (I could hardly walk on tamoxifen) but I feel physically and mentally exhausted all the time now, so much so that I pat myself on the back for just getting through a day of work and parenting my 8 yr old dd.
A group of my friends have started a social running club, challenging each other to sign up for 5km and 10km races - of course I'm included because they're eternally positive and know how much I loved running before, but for now I'll be cheerleader rather than runner. A quick scan through your posts is inspiring me to keep on planning for getting those running shoes back on!
With reference to the skiing & biking discussion, I stopped horse riding after diagnosis of extensive bone mets - figured that with running I'm moving slowly and am closer to the ground, so less chance of injury. As a single mom working full time, I can't add being incapacitated with a full body cast to my list of treatments :-) Horse is now a much loved and cuddled lawn mower and I can't say she's complaining about it. But I miss it a lot so can understand the need to keep on as long as you can. Enjoy!
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So... this is the reason I have no issues getting in lots of steps each day. Although you would not know it from the picture, if she doesn't get enough exercise "bad" things happen!
Love her to bits but she can be a real stinker!
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