My Husband, My Life, My Love, My Family, My Cancer
Comments
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Magda~ I had a feeling something was off. Don't know how but I did. You get some rest sweetheart , you're under too much pressure. You're body must need the rest....I am glad that they are giving you what you need. One day at a time sweetie. Maybe soon, since my surgery is Friday I'll be in the bed next to you. I will be looking for updates on How youre doing. When you feel you can... I'll be waiting. Gentle loving hugs. Much love ~M~ Also glad closing is remote. That is a big deal in this case. I am worrying about you my friend. ❣️❣️💐
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Magda and Mae-with you all the way. Magda-rest and get well. Mae- Negative MRI needed STAT!
Best, MJH
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Mae, I am glad that you will have the MRI results so quickly. I am sending good vibes your way.
Mags, I am sorry to hear that you have been sick and are in the hospital. I hope you feel better and are able to go home soon.
Hugs and prayers to everyone, Lynne
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good morning all
Mae you’re on my mind this morning. I hate the iv too. Never had good veins. Thinking of getting a port before they’re all collapsed. I came out of surgery with an iv in my jugular vein bc a vein collapsed. Mae I pray you get the best results and are dancing around in your rainbow array of jeans celebrating.
Minnie I hope your hip is smooth sailing today.
I love the pics of grannax grandson.
Our families and friends are our tonic. The picture I posted was actually of two of my fathers old friends. Siblings aged 92 and the female 95. Their daughter is in the bright blue directly behind them. She is also my eldest daughters MIL. My friend in the middle drove me to Melbourne for a tea lunch and dinner.
Volunteering to help complete a grant today with whatever brain cells are available.
Hugs to all
Tanya
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Mae, keeping you in my prayers and I love that power stance in second picture! You go girl!!!
Mag, keeping you in prayer too, rest and let them take care of you and get well
Micmel, Love you too girlfriend!!!
Hugs to everybody!!!
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magda. I had no idea you were in the hospital. Fever is se of gemzar? So were they worried about an infection or sepsis ? Why were you in ICU? I guess your counts were very low to need a transfusion. I assume you're on antibiotics.
Closing on a house while in the hospital, that sounds challenging. But obviously you know how to make it happen. I can just see you on your phone making all these arrangements while in ICU. Ha I bet the nurses were trying to get you to put your phone away and rest. LOL
I wish there was someone to help you with all these details.💞
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Tanya~ wow imagine even being able to think about being in my nineties at all. That’s just amazing! I would love to know there secret. I guess that answer would be don’t get sick! Already messed that up! Ugh!
Gracie~ Hi darling. ❣️❣️🌺🌷 right back at you!
Grannax~ Magda is a very good multitasker apparently also amazingly strong and super hero like! Hope you’re welll today!
Mae~we are with you, that annoying noise in your pocket is me. Poke poke poke lol
Lynne(50’s)~always so thoughtful always so kind!
MJH~How is the Weather up there? . Hopefully no more snow. I heard birds this morning. I did really I did! Lol
Waving to Bigbhome~sending thoughts about DH and you. Hoping you won’t have unwanted company for long!
Robin~ haven’t seen you. Hope you’re ok!
Runor~ 😜😜😜😁
Love to everyone else as well! ~M~
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Best wishes Mae, hoping for the right results.
Magda, get well soon. Rest needed.
Micmel, had my infusion of trastuzomab and herceptin injection today. 5th session of radiotherapy and 5 more to go. Bloods were good. Pain a little better, whether it's due to cbd or radiotherapy, who knows??
Been up for 18 hours straight, so love to all. Night night
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Hi ladies~
Minnie~ you must be totally exhausted. I am hoping your hip quiets down. I was hoping you were feeling better. Sleep well beautiful..
Mae~ I am sure you're also exhausted, hoping the IV wasn't too bad also. we will be waiting here when you check in. I'm still in your pocket! Love you friend.
Chelle~. ❤️😘🌹 it's ok my girl. We have each other now. That's all that matters. Hugs and kisses! And love!
~M~
Ok NAN!!!!!???? 📣📣📣 📣 calling NAN. Worried! Officially! Even just one word so I know you're ok. 😞
Keetmom~ you doing ok? Haven’t seen you in a little while also. I know you’re starting new chemo? Thinking about you!
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Just wanted to share my excitement that they are bringing back Josh Harris back to the deadliest catch and the Cornelia Marie! I am thrilled beyond thrilled. I was so annoyed that he wasn't on the show last season. His father made that show what it was in the beginning, along with Sig.. but I am happy happy to see them coming back on the Cornelia Marie!! Honoring Phil after all these years. Come on Jake. Step up and help your brother tooo!!!!!!! Sorry just really obviously watch too much television! Lol 0 -
Today is the dreaded prep day for colonoscopy tomorrow. Only liquids all day! Pray I get through today without having a complete meltdown.😵 it's only 9AM and I'm already worried. I need to take a chill pill. I've done this before, I can do it again.
Micmel My son's house is a big mess. Boxes everywhere. They will get there, they are both so busy with jobs, kids, etc. There has been no time. I just found out last night that Grandparents day is tomorrow!!! Guess I don't get to go to that. Ha When my granddaughter called I told her why I couldn't come. Of course she wanted me to explain the procedure, then she was dying laughing. She is going to be in two choir performances, in one she got the best solo part....until she found out she has to sing with a boy as if she loves him. Now she's mortified. Ha oh to be in fifth grade again.
I better find more liquids to drink, I'm already getting hungry.😟
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Magda-So sorry to hear you have been in the hospital! I hope you are feeling better and the closing goes off without a hitch!
Minnie-Glad your hip is feeling a little better. I hope it gets even more better!
Tanya-They made me get a port when I was put on Doxil, because apparently, if it gets on your skin at all, your skin comes off. It was done outpatient, but I was not put out. They gave me morphine (which just spaces me out, does nothing for pain). I was awake for the entire procedure. I could feel all the numbing shots (about 10) of the areas, and when they made the incision, I could feel the blood running down my neck towards my back. They also asked me in the beginning if I was claustrophobic, I said no. Well I know why now. The put a sheet over your face. It is only inches from it. That drove me a little crazy too, and the nurse kept asking me how I was doing, and I'm the type of person that looks at people when I talk, so I had to look toward the back where the sheet was open. They wheel me into the curtained room afterwards, and I'm noticing a wetness on my pillow. A large spot of blood, and it's all over the back of my head in my hair. I got it cleaned up the best I could (the nurse changed the pillow) and was told I couldn't shower for a couple of days. As soon as I got home, I had my daughter wash that hair (the facecloth at the hospital, just didn't do it). If you do get a port, make sure the put you out, one way or another. It was worse than any previous surgeries I have had. I was awake for one (they gave me something through the iv), but did not feel what I felt through the port surgery! Oh and they don't consider it a surgery, it's interventional procedure (just like my kyphoplasties were, done by a radiologist, I was put out for those). It told them they were cutting me open, so it's a surgery! It is easier having my infusions through the port at the oncology office. I did have them try to use it at the hospital one time I had a fever, and he tried twice to get the needle in. I had numbed it up with the numbing cream, and I told him no more, just put it in my arm. I rarely feel it being put in for my infusions, and the needle he was using was not the same as what they use at the oncology office. I do use my arm for the blood work I have the week before my chemo, that vein is still going strong!
Mae-I hope you got good news today from your MRI!
I got roped into having Easter, for my side of the family yesterday. I was going to have our immediate family and my mother (that 11), and then yesterday I went to lunch with Mom and one of my 3 sisters. She asked me what I was doing for Easter. I told her I had invited my kids and grandkids over. She says that she was talking to our youngest sister (I'm the eldest) and they didn't know what they were doing. Well, I felt like I was being pushed into a corner, and said she and her son, could come if they wanted too. He's gone to the Boston Comicon for the weekend, so not sure if he's coming. Now I feel obligated to ask my other 2 sisters and their families. I called them both last night. The youngest can see both my house and our Mom's from her house (we bought houses in our old neighborhood), and I call her first. She said sure. So her husband, 3 kids (maybe one boyfriend), and she asked if her husband's sister could come too, since she split from her husband and has been staying with them for a month now. I said what's one more. I then talk to my other sister, and she said she's working (she's an RN) but she'll let her 2 kids know (and daughter-in-law and their baby). I said don't the usually go to her Mom's for a brunch. She said yes, usually, but I'll let them know if they want to see their cousins. She does this all the time. She works or is on call for the holidays and sends her kids. My mother offered to have it at her house. She moved her bedroom to the first floor, so there went one room for seating, and she's 80 years old. I told her no! The last time she had something there, we didn't go. My sisters do not help out at all, and my husband and I stay until last and he does most of the clean up, my mother told me she really missed him that Thanksgiving. We had Christmas at our house this year, now Easter too?! Our family Easter went from 10 (yes, I have the largest family), to 26, if everyone shows! UGH! I am not doing either holiday next year! It's always my house or the youngest's house. The other 2 have apartments (although, one sister's son has a house!). I get it, but we shouldn't have to do both in a year!! UGH! Thanks for letting me vent! I guess I'm too much of softy (my husband is even worse!). Oh, and this is happening 2 days after my chemo treatment on top of that. At least I'll still be on the steroids, so no running to the bathroom until Monday, but my mouth starts to get Thrush usually on Sunday. Lovely!
Hugs and prayers that everyone is having a good day!
Lynne
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Grannax~The concerts sound lovely. It brought an immediate smile of happiness to my heart. I am sorry you're prepping for this colonoscopy, what a shit deal that is. I amalso rounding the corner for my surgery. I have to report like 6:15 am. I don't even know a world exsists at that time. I dont know how I can even think at that time! This is all a lot !!!!! I'm thinking of you ! I dont think I remembered fifth grade. I know I was Lucy in Charlie Brown Christmas in first grade. I must have had a big mouth ! Such memories. Much love ~M~
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Grannax, prayers for good results and that you get through the day! Horrible to have to go through that!
Lynne(man) it’s scary what you went through! I was completely out for mine. Hope your Easter isn’t too stressful!
Micmel, you are going to do this! I know you are stronger than you think. Praying that you get a little sleep the night begore
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Lynne, I am so sorry you had such a horrible experience with the port surgery. When mine was done, I had "twilight" sedation, but apparently I got combative so they ended up tubing me. I don't remember a thing. My port is also not uncomfortable and I'm super glad to have it as I think it's probably better for my chemo. Hope things look up for you!
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Hey Lynne, I will be getting home on Saturday. What time should my DH and I stop in for dinner on Sunday? I must say that your family is really taking advantage of your kindness and generosity. I am sure you will enjoy seeing everyone, but wow, you need a break. It is nice that your family is so close, physically and emotionally. That is rare these days. Try not to overdo it on Sunday.
Grannax, That prep is awful isn't it? I was half way through the prep day a few months ago, but my MO's office called and said that my platelets were too low for the colonoscopy. I was so happy to get that call because all I had been thinking about was real food.
Gracie, My DS and DIL are KU fans, too. They earned their PhD's at KU, and the basketball team was always a big topic of conversation there.
Mae, I am hoping to hear from you about good MRI results today.
Tanya, You always post beautiful photos. Thank you.
Micmel, In just a few more days surgery will be behind you. We will all be there in spirit. Just close your eyes and you will feel our support.
MJH, How are you feeling now that you have begun a new treatment plan? I hope your SEs are slight or non-existent and the results are outstanding.
Well, it's official. I don't want to leave Florida on Saturday. The weather has been wonderful, of course, but this has also provided us with sort of a vacation from cancer - no scans, no blood tests, no shots, no IVs, no appointments. I wish it wouldn't end. Oh well, I really shouldn't complain. I have it much easier than many others. So, scan on Monday, all the other "stuff" on Wednesday. I am not at all nervous about scans. It's just not how I would like to spend Monday morning. Lol.
My DS and his family returned home to Massachusetts yesterday. We had lots of fun with them while they were here. My DIL's father ended up in the hospital while they were here, so DIL was glad to be near him. It turned out that his breathing problems were caused by all the smoke from the wildfires not too far from them. He only stayed in the hospital overnight. Luckily, the smoke has not reached this area of Naples, but we can see it in the distance every evening.
I hope you are all having a good day.
Hugs and prayers from, Lynne
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Well, I was prepared for the MRI to go either way and it did but I can’t tell the difference between paranoia and intuition. 4/5 original lesions are still gone and the remaining one continues to shrink, however, I now have 4 additional lesions. They are all subcentemeter and caught early, too small to cause any symptoms. One appears to be along a blood vessel very near the fluid surrounding the brain, I asked if it was lepo mets and while she doesn’t think it is, I’ll need a spine MRI to confirm. And the plan would be that’s horrible head cage again. 😠
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Good day all
In the infusion room. Two stick blood draw two stick infusion site. Two more sticks in the rear end and I’m outta here!
Thank you Lynne NH for the port story. I had one 14 years ago and it was the awake kind where I felt my own warm blood dripping etc. yuck. But I am such a hard stick with only one arm to choose from. So I’ll schedule my port surgery today. Holiday dinner with family such fun. Brings back memories. Some people just take advantage and don’t pull their weight. Some even complain. Since I don’t live near the full family our gatherings are smaller 12 of us. It’s usually very pleasant now. I hope you get to enjoy it after all is done.
50’s girl Lynne I hope you enjoyed Naples. My husband and I went there a few years ago for a weekend. I remember tiger tail beach. We also were able to take a small boat to restaurants in the evening.
Grannax colon prep is the worst. After all is said and done I hope you get great test results. Enjoy farting in recovery.
Micmel you’ll be asleep soon after your 6 a.m. arrival. I just hope to see you posing with your new girls soon!
Tanya
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💔 just F*c*. Mae honey. Un effing real. I love you sweet friend. Surgery for me soon. I’ll need this break. My mind needs a break from thinking. And my heart needs a break from breaking. ~M~. Stay strong Kid powers activate! ❤️ You !
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Mae, I am sorry that your MRI results were all good as we had all hoped for you. Do you know when you will have the MRI of the spine? Will you stay on your current treatment until you get those results? I am so sorry to ask you so many questions, but that's just how I am when I care about things. I wish I could give you a hug.
Tanya, Many people would consider 12 people a big group for a holiday. Right now it looks like my DH and I will only have 4 people, including us, for Easter dinner. It is the smallest holiday gathering ever for us. It is possible others will end up coming, but right now they think it would be hard for us to host a big crowd the day after we return. I am cookin anyway, and I would love to have all our children and grandchildren with us, but it is not to be.
Hugs and prayers from, Lynne
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lol micmel!
50’s, the tumor board meets Friday to discuss and review images and I should have an update on scheduled appts for the spine MRI and Gamma Knife on Monday.
For the body, my scans in January were stable and are scheduled again in late May. Because of the brain blood barrier, progression is handled differently in brain vs body. So in the body, Herceptin, Perjeta and Tamoxifen are still working and will not be changed unless I have progression below the neck.
It’s a real bummer but it’s still very treatable and I still feel normal and good, probably better than I should feel considering, lol
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Mae, sorry to hear your news. Yes mixed for sure! Hope they can zap that little one out off existence! Hugs!!
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cancer you big hairy a**hole leave my friends and myself alone. You screwed with the wrong bunch. We are sick of you and we hate you. You're messing with great people and families around here and we are sick of it. I am getting my body part fixed no thanks to you... and I never even saw it coming. Somehow someway, someone will beat you down. Like you have beaten down so many of our brothers and sisters, nieces or nephews, aunts and uncles, cousins, mothers and fathers, and husbands,and wives. Your name could cease to exist and not one person would go searching for you! You're hated , beyond mentionable words for fear of being banned. But as I prepare for this surgery I realize how mad I really still am!! Love you guys ~M~
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I wanted to welcome Hollie to our thread we are usually up beat and quite humorous. But we are sick of cancer again today so we are letting loose. You’re more than welcome here. Anytime you need good ladies ,good listeners and true friends. This is your place. We have a close group of wonderful ladies from all over the world ! Hope you'll join us sometime. 💐 welcome bouquet for you! Hugs ~M~
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Just so you know, the lesions are not growing where my sense of humor is located 😀
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Hello to each
Grannax-your grandson is beyond adorable and, obviously, quite a gymnast! The only good thing about a flipping colonoscopy is how perfectly delicious your meal tastes after it's over. May the force be with you.
Micmel- the weather is improving here, getting some temps in the 50's. The ugly snowbanks covered in mud and gravel are the thing i dislike the most this time of year. Been thinking of you as Friday nears-go off the radar, get through it, and heal! We'll be here rooting for you and waiting for your return.
Mae- Isn't this just a revolting development?-MBC-the gift that just keeps on giving.Thinking of you as you process the MRI results, and so thankful that the new lesions are small. As you said, very treatable. But still, MBC just sucks, plain and simple.
Lynne(50's)-Thanks for inquiring about my new regimen. Been taking the Xeloda for six days and haven't really noticed any side effects. I am prepared for some hand and foot issues as the drug accumulates, however. I need this to work, so hoping for the best. Consulting in the morning at Maine Med.Center about possible Y90 procedure. So pleased you have had such a peaceful time in Florida; it really is starting to hint of spring in NE
Lynne(Man) OMG, are you kidding? 26 people? I would be laying rubber to get the hell out of Dodge...I hope that everyone brings something, and not just some wimpy store bought rolls, but their very best dish... You deserve to have others do everything! You are a storm trooper! There will just be 4 of us, and I will do an indoor egg hunt for my grandson. Hannaford has those nice spiral hams on sale-so easy. I'll be thinking of you as you cope with the onslaught!
Gracie-you are sounding much more chipper! Love it. You have suffered tremendous loss, and been such a caregiver-no wonder you have felt so drained and despairing. Hope spring brings you many peaceful and happier days.
Tanya-big hugs! Loving the photos!
Minnie-thinking of you!
Magda-check in when you can
and to all of you other dear ones, may the force be with you..... Best, MJH
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lol. No Mae~~ you’re pretty damn awesome. I am down in the dumps and anxious about my surgery. Can’t lie to you , wouldn’t want you to deal with anything else. It makes me mad. You’re a great hearted funny, kind, sweet, stubborn, beautiful, positive, wonderful attitude and sense of humor. Amazing green eyes ! Ok so basically I want nothing but good for you! Lol atyour pic. You might scare them away with that pose lol. ❤️❤️ You!! ~M~
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omg I had a huge post and I lost it. Oh geeze. It was long. Holy Hannah. Jeepers creepers.
Here we go again.
Grannax ~ wanted to wear my sparkly shoes into the hospital. To click my heels and be home again lol sorry your sons house is a mess but it is a process!
Anyone seen lovely Divine around?? Just hoping she's ok. I get paranoid with people I care about.
I found out Lynnwood has the flu and has been sick for 5 days bad with it. We need to send her vibes to get well soon quickly. The flu is horrible this year for sure.
MJH~ thanks for the kind wishes for Friday I need all I can get. I also hate the crappie looking dirty ass snow. I need spring and fresh air! 🌷🌷🦋🦋
Lynne(50's)~Thank you for always having kind words to say, you truly are a sweet sweet person.
Lynne(Man) have you lost your mind sweetheart? I sincerely hope everyone is doing what MJH suggested and bringing you their best dish, massive desserts, a big ass bouquet of flowers, a lazy boy chair carried there on their backs for you to sit and relax while everyone does for you, special lady!
Tanya~ I am waiting to get to that point to where I am knocked out.. I figure once it's black, and something goes wrong, I'll never know and I really don't think that would be a bad way to go, then my family wouldn't have to watch me suffer when I someday face progression. That way it would be over and they could Move on with their lives. These things run through my mind when I think about going under anesthesia! I can't help it. I agree with whomever said you take lovely pictures. You also have natural beauty. Thank you for sharing !
Runor~ hi dear. Hope I see you before my surgery.
Bliss~ Waving hello
Keetmom~ Hello amazing lady and person. Hope You're ok. Thinking about you! Sending good vibes and strength! How are the kids ? Hope you're getting the needed rest !
Chicago~Been a while!
Minnie~Glad to bear only 5 left to go and hat your pain is a little better. A little goes a long way in the pain department!
Magda~hope you're doing ok and closing is in your rear view mirror, I think it's amazing what you have accomplished in such a short time. Now sit back and rest and get better.
Gracie~thank you honey. I love you too my sweet friend. So glad you're sounding better way to wrangle that ibrance into behaving! 🌻🌻
Robin~Hope you're doing ok! Please hug Willy for me and I hope to see you around soon! That little cutie pie! Hope the parents are also good!
Mae~ sleep well you scary zombie 🧟♂️ 😜💜!
Love to all I missed and if I missed someone I'll be back! Lol
Chelle~ where are ya girl. Love you too sweetheart! ❤️
Oh Nan~~~ worried officially
Has anyone seen Freya either. She's not been seen since October 2017.... didn't know if anyone “knew" her away from here. Just wanted her to know I was concerned. Everyone have a good night ! ~M~
Shout out to Dodger and GP and TarheelMichelle, Patty....mominator. Sorry for the loss of your mom. 🌹💔 and southern. Pop in sometime. 😃🌷
Goodnight ladies. Much love ~M~
DH is on his way here now so I may not be around as much tomorrow, everyone be safe!
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Thanks MJH and Micmel. I’m having a hard day today, it would have been my 32nd Anniversary. The hardest thing out of all of this has been not having Tom to lean on. He was my rock.
But yes, I think things are getting a little better overall.
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Micmel, I have been in Panama City, Fl for a week visiting my cousin and some of my other relatives.
I will be thinking of you on Friday and praying everything goes good. You will be just fine and happy when they wake you up...what seems like a minute...and a nurse tells you that you did great!!!
I missed my Willy boy while I was in FL so he is getting tons of kisses and hugs. He lets me kiss all over him and he loves it!! He needs a bath and a grooming!!!
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