My Husband, My Life, My Love, My Family, My Cancer
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Yes, the peanut butter and bean spread on an english muffin will be an easy meal. I no longer chop anything with the beans as I don't mind the texture with just the bean. I did wind up makeing 1/4 cup rice, beans and egg. Put all on a plate topped with cheese, covered with lid, microwaved 2.5 minutes on high. Brought out, seasoned with garlic seasoning, vegetable seasoning, steak seasoning and salt, added mayo and some crumbly chips, added mayo to bind and mixed together, was really really good and filling of course. Tonight will be doing the english muffin with butter, bean layer first, toast them up then let cool. Then grab the peanut butter to spread overtop. Will chop up the bean.
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Mara- I preferred the old days here in the US when it was illegal to advertise drugs on TV, in magazines,etc. I think it was much more ethical that way. Also don't understand why they advertise Ibrance so heavily here, as the market for that kind of drug is so very narrow. Can't imagine masses of people going to their doctors to ask if Ibrance "is right for them". Even though I don't think it's right, I can understand the mass marketing of something like a blood pressure drug, because tons of people have blood pressure issues, but a drug so specific that's tailored to a very select group of people, as Ibrance (and others) are, just doesn't make sense to me.
Tanya - Sounds like a lovely trip and time with family - enjoy!
Emac - Thanks so much for letting us all know how things went. Wishing you steady and quick improvement now! Must be such a relief.
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Hello lovely ladies. Emac good to know you’re home safely and resting. Nice deal with the u shaped pillow! Score. Any little thing can mean so much. Keep feeling well. I am planning my mother’s celebration of life dinner and have some things to do before the date. Ironing the linens for the tables. There are like 6 of them , I have them from my daughter’s wedding at this same venue. I have the plates napkins utensils bigger serving utensils wine glasses salad bowls appetizer plates. 3 centerpieces. I’m going to have whoever’s birthday at the table that is closest to my mother’s birthday will take home the centerpiece. They will last forever and are very pretty. I also got ribbons with her name on them. I have to pin them together. They wanted and additional $50 to assemble the pins. I think I can handle it. And if my neuropathy starts to get me. I’ll get my dd to do it. But I just want it to be nice for her. It’s the last thing I’ll be able to do for her. I want. To be perfect. I hope everyone sleeps well and yes we spring forward tonight and loose an hour of sleep which sucks. Hope everyone is well hugs
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Hello sweet ladies. Hope everyone is safe after the storm. I know there have been at least three tornadoes between Alabama and south Georgia. We had a bit of rain and lightning. Nothing drastic, thankfully. 86 here today. What happened to spring?
eleanora, I read that a number of gals are taking MSM for inflammation. So my DH sent for it thru I believe Amazon. The product is Glucosamine, Chondroitin, Turmeric and MSM. Serving is 3 capsules, but since I'm small I went with 2 to start. It doesn't list the mg. per capsule, but breaks down daily value. I have horrible inflammation from MS. My body feels like it's on fire. Gabapentin is suppose to help. Maybe it helps, maybe it doesn't. So thought I have nothing to lose trying this. I'll mention it to G.P. at my appt. Monday. emac, so glad you are more comfortable with those ports. Stay on top of the delivery of bottles. That was a problem for me, so I had to go to the hospital for bottles as the pharmacy did not deliver items. Mix up on who was to order them and I didn't know the problem existed at first. Mel, I know your family gathering to honor your Mother will be beautiful. What a wonderful tribute.
In pocket for all scans and life's needs.
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emac Happy to hear you are adjusting well and those pillows are fantastic!
sondraf Yes I agree you WILL be up and about socializing again. Sounds like your down in the valley right now but you have the desire to be back on the peak, so you will! May each day be better than the last. So yes it is for a new furbaby to join our family! We met a 1yr old Golden Retriever sweetie named Buster and loved him! He just arrived last week so needs to be neutered, life skill assessed and tested before we can officially adopt him. Fingers crossed.
Mel I love all the intimate details you are planning, it will be beautiful!
Yes and I too am sooo tired and annoyed by all the drug commercials!! When we do watch a little TV in the evening 80 percent of the commercials are for drugs. Anyone else turn the channel when the Jardiance commercial comes on lol…that song….yikes..can't stand it anymore!
Wishing everyone strength, hope and peace today.
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cookie, the mute button is my best friend on my TV remote.
DH got home from his skiing trip last night. Turns out he fell and cut his knee pretty badly. He didn't realize he was cut until he was on his way home and wend to take off his ski pants and thermals because he was getting too hot. Decided to drive to urgent care. They gave him 5 stitches. He says he's not in pain, but he's sleeping in this morning. I think he'll be OK.
I hope everyone has a good Sunday and can adjust to the time change.
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Glad he wasn’t hurt worse. Glad he’s safe and sound!
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Sunshine, I am sorry your DH got hurt but I am also glad he seems fine and not in pain.
Got to say, time change messing me up and I decided to have a haagen daz at 10 pm yesterday which kept me up as well. I also know there was a nap on the couch after the ice cream bar as what I was watching switched off. Then I got sucked into a VC Andrews series Dawn. Four parts to it. The ghost writer that writes under her name is pretty twisted in plots and family evil but pretty enjoyable to read and watch. Bought myself some cute over the shoulder or knapsack, you can use it as both, have been looking for. From Temu. I have purchased storage things in the past that worked. Got 4 bags for 25.00, only meant to hold water bottle and phone charger when go to the cancer clinic. Got 3 in different colours as well. I am looking at a knapsack use.
Breakfast is going to be garlic toasted english muffins, very garlicky. Will spread some bean and possibly beefless ground and topped with cheese, should be filling and good. Option 2 is to make a similar garlic, beans spread and a precooked battered fish cut in half topped with cheese. English muffin would also be cut in half as well to accomodate more than one meal. I do need to eat more at supper as well to quell any snacking desires.
Other than this, nothing happening today, taking it easy on myself due to the screwed up sleep. Did get Paratransit ordered which is good. We have snow falling but it is not really sticking on the ground which is fine with me. Next week is sunnier so planning more short walks as well.
Have a good day all and in pockets as needed.
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Sunshine99 - when I was in junior high, I took ski lessons through my school with some of my classmates, and we took a chartered bus to and from Snoqualmie Pass for our lessons. One time on the bus coming back home, one of the boys took an outer layer of pants off and then just totally freaked out, because he noticed all sorts of blood around his knee area and on his inner layer of pants. Caused lots of excitement and concern on the ride home of course. It turned out that somehow when he was skiing, the tip of a ski pole had gone into his knee and caused a very serious puncture wound with lots of bleeding. As with your husband he felt no pain whatsoever, and was only alerted to a problem when he saw all the blood. I had never heard of that phenomenon before and to this day it baffles me how that sort of thing can happen. My classmate did heal up just fine, and it looks like your husband will too. I'm sorry this happened to him (and you) and am glad to hear that it looks like all will be well.
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Just adding, made the breakast as above with cooked fish chopped up with beans, only half a stick, going to mix with egg and beans for dinner, might microwave in a mug too, we will see.
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Oh those drug commercials - I almost went into the complete song and dance for Celebrex in my British oncologists office because that damn ad had been burned into my brain in the US. Pretty sure I got the smallest of side eyes when I went 'oh, good, I can celebrate with celebrex!'
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You can’t even possibly hear or read all the fine print on those commercials, it’s impossible. But at the end of most of them it says or death. These are not all of the possible symptoms. Not to mention that it could cost you four mortgage payments to obtain it . It’s beyond annoying.
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Hello lovelies. Another quiet night here. Beautiful weather, but Orlando must have been hit hard as there were over 100 cancellations to the airport. Pool deck received second coat courtesy of Son in law. He starts his job tomorrow. Just part-time but hoping they move him to full-time quickly.
I wrapped tightly today around my truncal area. Sure need that referral for lymphadema specialist. I follow one gal on You tube and it helps somewhat, but I need alot of help for the pain. New G.P. appt. tomorrow at new location, 5 minutes from our home. Love that. Tues. is Pet/Ct scan. Hoping the appt. with RO convinces him to zap base of spine and femurs. It would help me (hopefully) with the uncontrolled pain and to walk better.
In pockets for all your needs and may those with scans find improvement.
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Irish - So glad you can see Dr closer to home now. One thing I've been very grateful for through all of this is that all of my treatment is available within a 5-10 minute drive "up the hill". Even proton radiation. A real blessing for sure.
I hope your scan goes well tomorrow and that you get the recommendation for the pain relief radiation that you want. I will be thinking of you.
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In your pocket Irish love, glad the place is 5 mins away. I live close to the hospital as well which is really nice and only part of why moving does not appeal to me.
I woke up today with digestive issues that are unpleasant, I think more to do with my bedtime schedule than anything else, medicating as needed, eat boring stuff in the mean time.
Got a dirty laundry going on, wiped the window sills and terrible dirt stains, put in with my combo detergent liquid and oxyclean mix, soaking and agitating for an hour and will see how it comes out before drying. I also did an amazon purchase of a happy hood for my cat, he won't allow me to trim claws but think this will work since I simulated it on his head and handled his paws, he stayed in a relaxed mood. I don't want to try a clip on the back of his neck because I do not believe it would be comfortable for him.
It is nice outside so if and when stomach settles down some, will go outside for a walk. Hope everyone has a good day, in pockets as needed.
Ihaven't wanted to eat so staying in bed. Feeling depressed as well.
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Back from Houston and boy did I miss my bed. I brought back my favorite freshly baked everything bagels and some fantastic 7 grain bread, so breakfasts and lunches are going to be delicious. CT results next week, which is fine but my Brain MRI was great, nothing new and a questionable spot is not cancer, just an effect from previous treatment.
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Illimae -Congratulations on your good MRI! Those can be soooo worrisome. Time to relax in your own bed and enjoy those bagels.
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Just a quick hello as I have to be up early for Pet/scan.
I now have a new G.P. from Gainesville. Today's appt. was my yearly exam and we covered everything. She spent an hour with me. Met my requests for referrals to Opthalmologist and Gastro due. She prescribed valium for anxiety getting into the machine. She's hooking me up with a pallative team. Finally they have it available in our area. It will hopefully relieve some of the stress of managing this disease and DH's non-hodgkins-lymphoma. Balancing act with meds for cancer, MS and now colitis. I'm excited to finally receive a full package of caring. She started me on statin as my cholesterol is high and I have artherosclerosis. She said statins are the best to treat inflammation, and that is my biggest nemisis, so it's serve double duty. Exhausted, gotta go to be, I did a great deal of walking today, over did it and ouch… In pockets for everyone's needs and scans.
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Hello everyone, I've been reading along and cheering, laughing, nodding in understanding and empathy...
This recovery from spine surgery is no joke, but it is getting better, day by day. Supposed to have my bone/CT scans in two weeks, but I honestly don't know if I can do them - I am not healed from this surgery yet, and I just don't think I could emotionally handle anything else going wrong right now. Like what was the point of the surgery then? I'm likely just having a difficult few days here, and may feel differently soon.
Emac, hoping the catheters are getting more comfortable for you.
Threetree, congrats on good scan results!
Mae, congrats on good MRI results!
Mel, Mara, Sunshine, Cookie, Irish, Shanagirl, Tanya, Sondra, Candy, Eleanora, Wren.. and everyone else whose name escapes my memory at this moment but who lives in my heart - sending support and love and hope for better days for us all.
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Yay Mae ~ congrats on more good news. Keep it coming.
Sfcakes~I hope you start to heal from your surgery faster than you thought and I hope it makes a huge difference. Pain after a while is exhausting…. Sending well wishes.
still missing my mom. I want to pick up the phone and talk to her. That feeling crashes in once a day at least. I don’t enjoy it. I want to hear her voice. Grief sucks
hope everyone has a good day. Good to see wrenn and Tanya. Haven’t seen SeeQ. Hope all is well. KBL as well .
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Mae, congrats on scanning results. Enjoy the bagels.
I was pretty sick yesterday, digestive issues. Did not wind up eating anything at all and basically spending the day in and out of bed from the early afternoon on. Finally got some solid sleep instead of a couple hours here and there. Spoke too soon, had another loose stool that just came out, no control. Still thinking is related to the sleep schedule. Ate breakfast anyway, was not good. English muffin was sitting in pan and was pretty crispy, toasted it and it was much more crispy. Oh well, I think we all have had bowel issues at one time or another, need to stop being whiny about it and take immodium post meals. Stop thinking about it all the time and do what I need to in the mean time. I have pads and bottoms that contain it. Still going to eat and add beans and stuff back into the diet as well to bulk it up, not going to whine and cry about it.
Hope everyone has a good day and in pockets for those who need it.
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Mae Congrats on good results!! Bagels and bread sound delish, enjoy!
Mel Grief is so hard sending strength and comfort. Hugs.
Mara Hope you are feeling better today, sheesh always something.
Irish In your pocket for a good PET. Sending god vibes your way.
sf-cakes Yes spinal surgery is no joke at all. I understand why you would want to postpone scanning take it day by day. Sometimes 2 weeks makes a big difference in healing, fingers crossed.
Hi to all, wishing everyone a good day!
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Mae - great news on MRI! Fingers crossed that CT results are the same.
Irishlove - I can hear through your writing that there was a big sigh of relief after meeting your new GP. Sounds like she is truly concerned about her patients. If only they were all like that……
sf-cakes - maybe they can move your scans back a few weeks. I can’t imagine being on my back this soon after surgery….
Mara - sorry your tummy caused you a day in bed. Hopefully today will be a better day but take it easy.
Mel - keeping you in prayer as you mourn the loss of your beloved mother.
Waving hello to my other sisters. The sun is shining and we’re expecting 65 degrees. Hope your day is sunny, warm and bright too!0 -
Goldens, still have incontinence but owe that to no food yesterday, will buy myself some pads in case it continues tomorrow when I do for Herceptin, nothing I can really do about it but add some more fiber. I don't feel ill and it is not exactly the Big D either. Bump up fiber and cheese and still take immodium before eating. I am planning to take it easy too. Find my adult diapers and just say f it, not a big deal.
Looking on Amazon as well and seeing what I can get too. But the bump in fiber and the immodium before a meal should help. Like I say, not feeling ill otherwise.
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Mel - So sorry about your ongoing grief and want to say it is perfectly normal, especially at this point in your experience. Your mom hasn't been gone very long at all. My mother's been gone for 16 years now and I still miss her every day. On bad rainy, drippy, and dreary days like we are having now in my area, I especially miss her. I'd love to just spend an afternoon with my mom on one of these days, just sitting around the dining room table having coffee and some sort of nut bread ( my mother just loved all kinds of nut breads), and talk about anything and everything with her. I've worked with "older people" (now I'm one of them) for years, and they've all told me that the grief over a lost parent never goes away. They told me it gets better, softer, and the pains occur much less frequently over time, but that it always remains. I believe them and that has been my experience, like they said. My heart goes out to you. Please be kind to yourself and give yourself lots of time. It does definitely get better. Hugs!
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I'm just stopping in to say hello and offering hugs and Kleenex to anyone who needs them. Life is tough. Mara, I hope your "digestive" issues don't continue. This may be TMI, but it's rough when one doesn't know if it's just gas or the big D.
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Thank you threetree, that means a lot. I really do miss her. What you said really helps. Thanks for being so thoughtful.
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Mel - More hugs!
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Good evening sweet ladies. @illimae Oh love raisin and cinnamon bagels. Enjoy. Best wishes for a great scan! @micmel Wishing you sweet days ahead and that your grief subsides. Love and hugs to you sweetheart. @sf-cakes Oh that's too soon for scanning. Besides the pain and fear, I would think there will be inflammation due to healing. Wishes for a recovery that is quick and scans are great. @mara51506 I'm sorry that you have stomach problems. Fiber should do the trick. @sunshine99 Best wishes for negative scans. Sometimes those headaches are stress, seasonal stuff and in my case, autoimmune (MS) related. Hi cookie, goldens, threetree, emac, shanagirl and all those here at Mel's place. Hope you are doing good.
Gorgeous day and 60 degree evening at 9 o'clock. Pet scan went fine. Fav tech Tony can always find a vein and is sweet. This scan is for soft tissue as last one was bone scan. Fingers crossed for good scans for all.
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