My Husband, My Life, My Love, My Family, My Cancer
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Got go ahead to book tripto CO today so end of September dh are leaving for 5 days im excited, now need to keep feeling good.
Chemo went well but tired tonight.
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Woo hoo Keetmom!
You will absolutely love CO
So glad you will be able to come out with DH. Hope your energy returns quickly.My brother sent this link to me today...for all the English majors out there...
https://i.redd.it/7vr8q1kedz711.jpg
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yay keetmom!
Micmel, thanks for updating us on nan, I was worried too.
Iwrite, that was really funny 😆 thanks!
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having a quick scan through. Been off line for nearly a week.
Hugs to everyone. Will catch up.
Divine, and Runor, I have a Superman husband too. E.g. Cutting my toe nails is like asking for the holy grail, but anyone else ask for ANYTHING, no problem.
Love to all x
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Good morning everyone,
I have been worried about Mags because we haven't heard from her lately. I checked on the Insomniacs rhread because I know she posts there. It says that she has been in the hospital with pulmonary embolisms. I am sure she would appreciate some prayers. Hopefully, she will be back home soon.
Hugs and prayers from, Lynne
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50's thank you for the update on Magda. I was concerned as well. Good idea to check that thread. I am sending droves and droves of prayers. I hope she is back on track, so very scary. I adore all you ladies.
Minnie~ hello sweety. Praying for your scan
Keetmom~ Colorado is magnificent. I am beyond thrilled for you. My sweet sweet Chelle lives there. I want to go!!!!! Wahhh.
Thanks for sharing Iwrite!!! Gonna save that one! Much love to all. Hope you have a great weekend ladies.
Hi Gracie!! Anyone seen Tanya ? Been little while. Prayers for Magda! That is serious to have to go through. Grannax~ still thinking of you and your son. I know how important that is to your family honey
Much love ~M~
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Prayers to Magda! Thanks Lynne, for letting us know!
Keetmom-How wonderful! Enjoy your trip!
Minnie-Hoping all goes well with your scan!
Lynne
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BigB, it is so hard to be the primary caregiver! I hope you are able to get a few minutes to yourself once in a while to destress and breath! You've had so much going on. Sending you big hugs!
MJH, hoping you are having just a wonderful trip!!!!
Runor, I'm so sorry you are going through so much suffering! I am sincerely praying you get a little break from the emotions and anger that it must cause to have someone be so....self involved with himself! It's so hard when we feel alone. I lost Tom 6 1/2 years ago and going through this cancer and all the treatments alone has been one of the hardest things I've ever done. But we here are all with you, and pulling for you, no matter what. Sending you big huge cyber hugs!!!
Wow Mae! Those are awesome photos. Did you have a camera set up on a timer? And are those feral hogs scary? I've kind of heard they can be pretty aggresive.
Lynne (50's), hoping your new therapy zaps the heck outta those TM's!!!! And thanks for letting us know about Mags. Will be steppiing up prayer for her.
Grannax, I am so sorry to hear about your DS's test! I'm glad he can retake it, but gosh that seems like a long time to have to wait! And I totally concur that I would much rather have a doctor who is caring and compassionate over one who would be cold and aggressive! Geesh! Just makes you wonder of the board has every had anyone in their lives terminally ill!!!! Will be praying for his next test to be a breeze!!!
Lynne (Man), thinking of you today getting to go on that ride tomorrow! That would be glorious! Tom had a bike for years and I really miss just getting out on it, especially on summer nights when it was nice. Have a great time!
Keetmom! Yea on your trip! September should be cooling down a little too and I love Colorado. It's such a beautiful place!
I start Abraxane on Monday and then port placement on Friday. Am concerned over the port placement. Trying to rmemeber from last time. I remember I couldn't sleep on the bed for over a week, just couldn't find a comfortable position, and then (ok this is a little funny), I'm so danged short, that the only recliner I have left is Tom's big one, and honestly, sometimes I struggle when I'm in good shape to be able to reach over the arm of the chair and hit that danged lever to put the footstool down! I'm thiking good grief, what if I can't get out of the chair???? I am going to look into a lift chair I think since I'm here by myself, but am not familiar with them. Anyone have any advice on a chair, brand name or anything? And anyone have any advice on getting through the weekend after port placement alone?
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OH Gracie, I have no advice about the port placement since I have no experience. I just could not let the morning go by without telling you that I had a good laugh (sorry, at your expense) picturing your tiny body in that huge recliner. Take some food and water and a phone into the chair with you in case you become trapped. Can you imagine the 911call? "Hello, this is Gracie, and I am being held captive by an overgrown recliner." I apologize. That is in poor taste. Apparently deep down I am a mean and evil person. I do know someone who had a lift chair, but I do not know the brand. It was very useful. I think the best plan would be for you to try out several different brands and models because, just like recliners, there are different sizes. You want to get one that is comfortable, apporopriately-sized, easy to handle, with a good warranty. I hope you do well on Abraxane with minimal side effects while knocking out those nasty cancer cells. How often will you receive treatment?
Keetmom, I am glad you will be able to take that trip to Colorado. I have never been there, but I would like to go. Micmel -I would also try to visit Chelle if I did go.
Lynne, Enjoy your motorcycle ride. Tomorrow sounds like a perfect day to go.
Hugs and prayers from, Lynne
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ladies I finally read through posts since June 30
I went to NY drove with my mom to Washington DC for a family reunion for a family of hers I discovered on ancestry. She was given away at 3 months but raised by her bio mothers step brother and wife. Her 85th bday was June 29
Left DC July 1 I drove back to NY.
Visited with son and grand daughter and then left for Morocco I. The morning.
I’m sorry for everyone’s progression Lynne and 50s Lynne. I hope the taxotere works for good and for a very late no time
Gracie I’m glad the cyber knife grew progressively better
Grannax your remodel is amazing
Mae those animals in the habitat are exotic. I love your cabin life.
Micmel happy your DH is home and your new empty nest life begins
Hugs to MJH Magda keetmom Runor Holmes Big B Minnie and anyone and everyone i’ve Forgotten. Finally got to read driving from Casa Blanca to Tangiers
Pics to follow
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- Grandson in DC
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Mom in DC
Niece Roshelle on the left Lakota on the right new cousin in the middle
Sister Maria new cousin in the middle
New cousin is tall guy in the middle
Everyone else are sister Neice mom nieces sons and grandson with red white blue t shir
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Tanya~ My DH and I have a home in DC. I known the area well and so does my DH. Every inch of it. It's really something everyone to try to see. Some awesome museums and history. Love love it there !
Thinking of everyone. Magda. Gracie. The Lynne's !
~M~
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Lynne, no that is really funny and I’m not offended at all lol!!! My son would say “oh gosh Mom”! If I called and said helpmim stuck lol!!!!!!! So funny😂 Abraxane will be once a week, three weeks on, one week off. Hoping it’s pretty easy and does a good job!
Tanya, you really have a beautiful family! Looks like DC was a hit. I’ve never been back East at all.
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Sorry Gracie, but like Lynne I laughed at the thought of you trapped in the chair. What awful people we are!!
I'm catching up bit by bit. Micmel I hope you get used to your empty nest.
Tanya, great pictures, and have a great time in Morocco.
My sister is visiting this week, so busier than usual, and more eating out and socialising.
We hadn't seen each other for a long time because of work, moving to another place etc, and now just so glad we have this time to catch up. Then oldest daughter and her DH and 2 oldest grandkids are visiting for a week too.
Hoping everyone is doing fine tonight. Late here in Spain. Night night xx
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as I went back to Lynne's post. I also have to agree, quite humorous! Let's just hope someone was aroundro record it so Gracie makes money on America's funniest home videos lol. Lynne you're a hoot! Thanks for the laugh! Thinking of everyone who had Chemo today ! Hugs of love! ~M~. Tanya. There is that gorgeous family again!
Minnie~ Hello dear. Enjoy your family time. I still have my clunky loud son here, but it is a little quieter for sure. Now it makes me want to be an empty nester ! Help!
Hi Gracie. Hope abraxane is gentle on you. I had 9 rounds of it. Keep your nails Painted, eat during your infusion. And have them Slow down the drip. Ask for Ativan pre meds and Benadryl. My first time my throat closed up. Drink water and take Tylenol before you even go. Be prepared, no one told me. Love you darling. ~M~
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Thanks Micmel for all the info...always good to get advice from others who have already been there! My onc said six rounds to start then we’ll just see how things look, maybe longer
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Gracie-I don't know if they put you out to have your port placement, but they did not with me. They kept giving me morphine, so I was awake, and felt them giving me the numbing shots (about 10 of them), they hurt a lot, and I'm screaming "Ow" over and over again. I had a blanket over my face, 2 inches above it. I felt the blood running down my neck, as they opened me up. Later, when I got back to the room, I told the nurse that I was in a puddle of blood. The pillow and the back and side of my head were covered in it. Worst hospital experience ever. That's coming from someone who had 4 children without any meds, as well as having other surgeries.
I too laughed, at Lynne's picturing you stuck in the chair. My Mom broke her humerus bone, and she had surgery to repair it. When she got home, they did not want her going upstairs (where he bedroom was). So we went to the furniture store, and tried a few chairs (they do come in all sizes). She isn't even 5ft tall, and we found one for her. We brought it home, and showed her how to work the remote. She slept in it, and had to get up in the middle of the night. You got it, it wouldn't work. She had to climb out of it, with it being reclined, and only able to use one hand. She was 78 at the time, and lives alone. We figured out that she had locked the remote. Then we made her sleep with the phone. She somehow did it again, and called my youngest sister (who's 3 houses away, and we are 3 houses away from my sister, all in the same neighborhood). My sister came to her rescue. She slept in her canadian rocking chair for the rest of the week. She still is always in the rocker, instead of the recliner. My grandkids love playing with it when they visit her. I'll sit in it when I visit. So make sure you have everything (especially that phone) when you get in it. Good luck with your new treatment. I also hope they give you numbing cream to put on the port and hour or two, before you have your chemo. It helps.
Tanya-It looks like you had a wonderful trip with your beautiful family! Great pictures! I love DC too. I've only been there a couple of times, but there is so much to see.
Heat here has finally gone down, after a week in the 90s. No humidity! I can finally breathe when I go outside now. Not a cloud in the sky! This is the weather I like. We may head out on the bike today by ourselves. Our friends have plans today, we may go with them tomorrow, but we'll have to see how she feels (she has MS and is wheelchair bound) and I feel. Last day on post steroids is today, and the past 2 days I felt lousy. Today, so far I'm ok, but I think tomorrow will be a no go. Once I'm off the steroids, that's when the side effects hit me head on.
I hope everyone has a wonderful weekend!!
Hugs!
Lynne
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Oh gosh Lynne (man) well at least I’m not alone but totally understand your Mom’s problem!
Hoping my port placement goes better than yours, that sounds like a horrible experience!!!!
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Gracie They did put me out for mine but that was almost ten years ago. I've never had any problems with it, still works great.
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I made sure I was out. Don't even entertain the idea of not being put out. That did sound like a horrible experience for anyone to go through geeze. Do they think we are robots ? Like seriously. It hurt at first for a little while but now, unless I give it a good knocking Or jarring. It doesn't bother me at all. I just call it my third eye, but not having one, is not an option!! I am still laughing at 50's chair story. And Lynne (Man) your poor Mom. Getting stuck alone. My goodness. Lol thank you for the morning laugh!! Much love ~M~
Beautiful beautiful family as usual Tanya. Loving DC!!!
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Oh Lynne (man) I’m shocked by your port surgery story, hopefully that was some one time error and not how that hospital works normally.
Gracie, mine was opposite in every way. I was sedated and the surgeon played music and sang girl from ipanima (sp?), wonderful world and dream a little dream as I drifted off. Best surgery ever!
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Mae, I want your experience lol! Hoping they put it in in such a way that I can still sleep on my side..I have been acside sleeper all my life and just cannot sleep on my bavk
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Gracie~ same for me. Side sleeper!! You'll adjust to it. It will be a little uncomfortable at first. But it's really worth it in the end. I just came across something that may just be one rough thing To experience during life!! Like seriously ? What adult okayed that sign????!!
Good grief. This world we live in! Much love ~M~
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keetmom- I'm so glad you are able and go on your trip. It will be a great adventure
Gracie- I was a sleep when they put my port in. But I do remember the discomfort afterwards.
tanya- you were in my neck of the woods😊 we usually go to the zoo in dc twice a year and i love the museums.
magda- you are in my prayers.
I went to the beach with my family this past week and I could tell the difference in my energy level. I pushed through and regretted it yesterday because all I wanted to do was sleep.
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http://www.livingben.com/my-new-world/my-new-world-5-the-incredible-mda
Not my story but similar, if anyone wants to read about or hear my singing surgeon. I can’t seem to post the ones he emailed me.
Hope everyone is well. It’s starting to rain here, so we’re in for the night. Heading home tomorrow.
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what. Is energy? That has alluded me for over two and a half years now. I know I had it once. But it's gone. Anyone finds it. Please let me know. I am already waiting for bed like now! Love to all!
Much love ~M~
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Gracie, I know I was conscious when I had mine. Stayed in hospital overnight to make sure there was no bleeding. It was uncomfortable but not really painful. Still have it 11 years on. I hope yours goes as well as mine. Sending best wishes for your treatment too.
Night night all. Exhausted with all these visitors, and temps in 90s every day
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Hi Gracie my port placement in April 2018
they gave me a twilight sleep. No pain but now the port will take an infusion but won’t give bloodI caught a cold and self diagnosed my ibrance and delayed starting 2 days. With cold nearly gone I resumed ibrance. In two days coughing up terrible stuff so I put myself on antibiotics and off ibrance. I have surgery on my spine when I return from Morocco so no time for being sick.
This is in tangier cave of Hercules
Seated my fathers wife when he passed. Mom in orange
Have a great day ladies
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those pics are amazing Tanya. I know I will never have seen what you have! You have such a lovely family and you're so very active and always doing something. It really does put me to shame. Ibrance just flattens me. I know as long as its working for me, there will be no changes or even suggestions. I love your family trips a lot. All together, spending precious time and seeing all you can see! Just perfection! Thank you so much for letting us share your good times. Much love ~M~
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