My Husband, My Life, My Love, My Family, My Cancer
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Muddlingthrough, that’s quite an improvement!! Sounds like you’re on the upswing!!! Very proud of your efforts, sometimes for me, it’s easier to make excuses.0
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Hey guys. I go for my PET tomorrow and I must admit, I’m terrified it’s going to show progression. 15 months out from my stage 4 dx, and I’m already on my third line of treatment. But my back started hurting a couple of weeks ago and has consistently gotten worse. I’ve been in tears most of the morning today. Narcotics don’t help. Heating pad works as long as I’m using it. Laying down was helping, now there’s pain with that as well. It’s just been a rough morning... hope everyone else is having a good day... (hugs))
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oh Shelia~Honey we all know how you feel, we really do. I always try to remember that the medicine causes all sorts of jumping muscle aches and joint pains. I am sending you a big hug and we will be in your pocket during your scan.... I honestly worry every single day with every ache or pain! We will be checking in to see how you are doing. Just take deep breaths. Hang on to us tight because we get it. Welcome to our home away from home. Much love ~M~
Muddling~You are awesome. I always think that if I had an elypitical I may hop up on it and give it a go! Those weights are good. Keep it up! I'm glad you're having a good day. I am still fighting this cold/sinus infection thingy.
Hugs to all~M~
Lynnwood~I agree totally!! Makes me look bad!! Ugh! Hugs!! ~M~
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Shelia, I understand the worry. I hope you can find something to relieve your pain.
Micmel, that sinus infection doesn't want to let you go! I hope you have antibiotics.
Lynwood, I make plenty of excuses myself! Sometimes when I feel very bad and get upset with being weak and hurting I try to remember that I have gotten better, just not where I want to be.
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muddling through. I am thoroughly impressed by your effort and improvement. You go girl.
I went to PCP today and she is sending me to ENT for my continuing sinus issues. She said you can't keep taking antibiotics so much. Thank goodness for her, she's looking at the big picture for me. Not just writing me off since I'm MBC.
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Sorry I haven't been able to go back through and read for a whike. I'm not handling this Abraxane very well. Had more sick days this round than good days. Today is another sick day. Can't hardly get anything down and what I do manage to get down is going straight through, even with meds!!!! Sure hope it's kicking cancers rear!!!!
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Gracie, I’m sorry things are so tough. Food issues on abraxane were the worst for me next to painful toenails. For a couple months I could only handle ramen and fried rice, the saltier, the better.
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oh Gracie Honey!!!! I am very sorry that you're finding abraxane hard. I had nine of them, so I know exactly what you mean about how harsh those rounds are. I am holding your hand tightly and hoping your bad days settle down. Please make sure you're drinking enough liquids and if you're not tolerating it well make sure they are giving you premeds for nausea,... also ask the nurse to slow down the infusion from 30 mins to like 45 for example. It helped my body tremendously, and make sure you eat during the infusion... also take two aleve or Advil before you go... i noticed those things helped me a lot. I'm thinking of you. What round are you on? How many are you projected to have.?
Hugs ~M~
Grannax~I have sinus issues as well. Not all the time, but when I get a cold, it usually ends up that way. Please let us know what your ENT says. !! How wa the first day of school for the kids
Muddling~I hate going to the doctors really bad. Usually I wait until I have to be dragged in to go. I’ll admit I am turning into a horrible patient.. ugh!
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Lynne, a beautiful Bride and groom. sounds like a lovely wedding and I'm sure you looked great too. Days like that lift the spirits.
Muddling, wow, you are brilliant 2500 steps. Well done. Proud of you!!
DH and I had a nice Asian meal tonight, first time in ages we have had a meal out with just the 2 of us, and it's not even an Anniversary!! Keeping fingers crossed it doesn't affect my tummy, but if it does I don't care, coz I enjoyed it 😂
Night All You Womderful Ladies xx
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Minnie~dinner sounds delicious. I can't do anything spicy at all. It's bad, not to mention my taste buds are fried!
I have been on a Charlie's Angels kick. Lol I saw it was being played on a channel that plays all the old shows. So I have been recording it everyday they play it. I on demanded it and would youbelieve theif company Verizon wants you to pay for something that was released and played since the 1970's? I am shocked that they have the gall to ask for $2.99 an episode. Are they really crazy or what? They nickel and dime every single thing. I was paying the bill the other day and I saw the taxes that the federal government charges. It almost adds up to like $35 or so. It's amazing. I dropped some channels temporarily, until Game of thrones comes back on. Also shameless, then ill add them for a month or so and then drop it again, when the season is over. Cable is robbery!
Hope all is well.
Waving to Mae!
~M~
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Gracie, so sorry that you are having a hard time on your chemo! Some of Micmels tips might work. I don’t have any experience with IV chemo, I’ve always been treated with AIs and Ibrance.0
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gracie- I am so sorry that you are not handling this treatment very well. Are you almost done? Micmel gave some great advice I hope it helps.
Sheila- I hope that when they do the pet scan there is no progression. Did you start out with Mets on your spine. I have heard of several women being in so much pain and then they use radiation and they feel soooo much better.
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Holmes - when my mets were discovered I had extensive lymph node involvement and one met on my L2. This back pain is new, and worrisome. I’m about to head to my PET. Fingers crossed..
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In your pocket Sheila~ if I am too noisy just throw me a graham cracker, I'll behave I promise. I may cackle like a chicken, or bark like a dog, but do not be alarmed. It's all for your entertainment pleasure. Just for you! Holding your hand tight. Waiting with you! ~M~
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Mae, thanks so much. Am the same with salt...it’s about all I can taste and then it’s not salty enough! Not liking this at all.
Micmel, I have two anti nauseas now...neither doing much, and meds for the big D, which is not controlling it at all. So it’s jusy running havoc on my system. Can’t keep enough liquid down. See the onc on Monday, will see what he says
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Gracie~even if you talk to the doctor and say how hard it is for you. They usually don't really get what that means. They have never had it. The key is talking to your infusion nurses. At least try to have them slow down your infusion. I know it sounds weird. But it really helped me. Even if you have to eat toast during the infusion do it. If you're not eating that is a problem, stress that with the doctor. Sometimes I don't thin they really listen to us. By slowing down the infusion your body has a chance to slowly accept it and by eating the absorption process changes. That is what my infusion nurse told me. It helped me a lot. I am no doctor but I have had abraxane and I know how hard it is. If you have to continue on it. At least try it. It may just help... thinking of you!! ~M~
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Gracie I had Abraxane but it was back in 2010, long before I had mets. I wish I knew something to help you, sounds miserable. They did not use steroids with it when I took it. Not needed with Abraxane, which was a good thing for me. I wonder if they could pre med you with some. Maybe it would help you.
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Gracie-Hoping you can find something you can keep down. I hope it's getting better for you.
Sheila-I hope they can figure out your back pain. I've had sciatica since late July, and can not get the steroid shots for 2 more weeks. That was the earliest date they had. Back pain is awful. I also have a compression fracture that can not be repaired by kyphoplasty (I've had 4 repaired), because it is too high up, L2. I get pain occasionally from there, between my shoulder blades. Usually at bedtime. Big Hugs to you!
Muddling-You are amazing!
Micmel-All the iv chemos I've had, had a dexamethasone iv prior to the chemo. I had to also take pills for days before and after with the first 2, because of reactions. They make my face and neck flush ( I call it the Irish glow). Nice rosy cheeks. I also have trouble sleeping on it. I did not notice it making me eat anymore though. I'm actually losing weight (50 lbs since being rediagnosed 6 years ago), which I needed to do anyhow. I just don't have an appetite anymore. Lucky if I eat my cereal for breakfast, and either lunch or dinner, but not both.
MJH-Yes, September sounds great (except the first week) for another ME/NH luncheon! Enjoy your company!
Lynne-Sorry you had to deal with the evil Stephanie! I got the new girl last time! I have an appointment tomorrow with the dr and blood work (a week early, I'll be on vacation next week). I already have my next chemo appointment, so it's just my dr's appointment I'll have to make, hopefully not with the evil one. Hope all is well with you!
I'm still in my nightgown from last night. I guess I'll shower, and put on a fresh one. My neighbor and I usually get together after she gets home, on Thursdays. I don't think we've seen each other in over a month. We've talked on the phone, but she doesn't get home until 7:30 (at the earliest) and they have a home in the mountains, and have been going up for the weekend on Thursday nights. If she calls this evening, and I'm up for it, I'll have her come here, instead of me going there. I have wine here too!
Hugs to all!
Lynne
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hi Grannax~ I think we have a lot of people who have danced with heavy iv chemos. I know I experienced pain after every round, and neuropathy pain that will never leave. I just had to find my rhythm with the meds. I'm alllergic to steroids, which is why abraxane was chosen.
Lynne(Man)~ Taxol I believe you get them in the pre meds. Is that correct? Joint pain that makes me feel ninety I know will also never go away. Today wasn't bad. I totally agree with you in the eating arena. I am so so bad at that. I get headaches and I am honestly NOT hungry at all. I am a one meal a day woman taste buds permanently ruined. But ill ride the ibrance train until wheels fall off the tracks. You amaze me, all that you do! I can't drink wine. Since I only breathe on one lung, it makes me ultra dehydrated. To the point of shaking. It's like I am sponge bob square Pants under the lamp. All dried up. Have a glass for me please ? 🍷 good to See you, can't wait till this summer of rain and soup is done! Much love ladies ~M~
Waving hello to Holmes~Hope all is well in your world.
Hello to my friend GP too!!🌷🌷.
I've been on these boards what will be two years in feb2019...I have never been insulted before, mostly everyone is so nice and loving. They get support and they receive support, it's like a loving handshake. I have always supported this person and always had nothing but kind things to say. Today I was insulted and it hurt my feelings. I was so shocked that someone would even begin to bring someone down like that. Makes me strongly want to consider a break. I never treat anyone badly. Hard to imagine wanting to treat anyone badly here when we are all on the same sinking ship, just in different parts of the ship. Very disappointed! You ladies have a wonderful weekend and be safe!! Much love ~M~
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Micmel, if you took a break, no one would fault you. The work it takes for you to keep everyone and their events straight and current, you are AMAZING! You have made this thread, as others have said, a warm safe room where everyone can be who they are and feel what they feel and not be made to feel bad about it. Cancer gives us enough to feel bad about, we don't need to make it worse. So, if you are tired, if being the center of this universe is wearing you out, take a break if you need to. But we will miss you. I know I will. But I still support you in doing whatever you need to do. For you! We all want you to know what you need and get it. If that's a break, then you take your break!
Don't know if I mentioned it here or not (tamoxifen brain, can't remember shit) but early July a pee test showed blood and doc said, well, if the cancer has spread he wants to know now, not later. Ordered ultrasound of bladder and kidneys and more pee tests. So we can get on it early. Ordered tests in July. My ultrasound date is January 2019. Please tell me how a stinking 6 month wait for an ultrasound is EARLY detection?!?
Got my knickers in a knot and called doc office and said either they could phone and rattle some chains or I could, but either way, if there is something bad going on and doc wants to know early, THIS IS NOT EARLY!! Doc calls me back and says, I have your cytology pee test results (three pees over three days) and there is nothing cancerous, nothing worrisome, nothing suspicious and the blood you have is TRACE amounts. (I always have trace amounts. Always. For over 40 years.) So he did NOT feel, based on the pee test, that I needed to worry and waiting until January for the ultrasound wold probably be fine. But if something changes, if I feel any symptoms at all....call him and he'll makes sure things get done pronto. I am very pleased with this new doc. He is on the ball! So.. I think this is good news. Whew.
Micmel, I am tucking you in bed in your new room with a juicy book, a tall glass of milk and a box of Oreo cookies. That is a good time right there! Bless you my dear hearted friend. Hugs and strength to all you other ladies too. All of you should go buy yourselves some Oreos.
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Micmel, I am horrified to think that someone has hurt your feelings! You are truly the heart and soul of our special place, always kind, compassionate with a touch of optimism and humor. Perhaps that person lashed out in fear and is sorry now...I pray that is the case. If you need to take a break you will be sorely missed but we will understand and patiently wait for your return. Remember that you are loved here.!0
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Micmel, I hope you won't have to take a break, but understand if you do.
Lynne (Man), thanks for your kind words but not deserved! I try to move and exercise but some days are better than others! Some days I'm a couch potato!
Hi to everyone!
In the past week my DH and I have each had a cousin to pass away. My cousin had cancer, but he died in a car wreck. We just heard about the other cousin and don't know what happened but she'd had many health challenges for a long time. So sad for their families too. Many of my first cousins have or had cancer. Each one with a different kind. I'm the only BC in the list and I hope it stays that way!
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micmel. Oh no, no break. Don't let that mean person have that much power over you! Fight back, stay right here with your kind, encouraging words. You are the queen of this thread. We follow you. We know how much you've helped all of us. Let that mean person go away not you. I'm not sounding very forgiving of her at the moment. NO ONE insults our queen, right girls?
But, you would not want us to be unforgiving, that's not what we do here. We will be in your pocket even if you are not here.😢
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Grannax~You struck something inside of me, when you mentioned forgiveness.. that is A very good point. I am not really like that and either is this thread. I am sure that maybe it wasn't even meant to blow up my feelings. But sometimes words hurt especially when we all are going through so much together. This was not done here on this thread. It was another one. I was offering some positive hope for a woman who just got the dreaded diagnosis. We all have gotten. I was trying to tell her people do suffer from pain, and side effects. We all know what we have been told by our doctors and care groups. I would never say something that wasn't true. And i was basically called a liar about my own condition. It just hurt me, it was almost as if I was being told off because I said how I was doing!
But fear may have driven the comment. But wow. It really opened my eyes. I do love you guys very much. Muddling. Holmes. Lynnwood....my sweet friend GP. Thanks for making me feel better as usual! ❤️
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Micmel, I am sorry that someone insulted you. I hope that the person didn't really mean to do that. It is easy to choose the wrong word or phrase when communicating online. There are no facial expressions or tones of voice to help us interpret the true meaning of what is written. All we have are those stark words that we can interpret very differently than they way they were intended. The person who wrote those words has no way to see things from your perspective. She does not have the benefit of hearing the words of your medical team nor feeling your physical experiences since your treatment began. She can only voice an opinion as an outsider. Maybe she was having a bad day when she posted. Maybe she doesn't realize how her words sounded. No matter what happened, it was just one post from one person. Please don't let it overshadow the thousands of positive messages you have received from so many people.
Hugs and prayers from, Lynne
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muddling.....I am very sorry for your losses....it seems this world never gives anyone any breaks. I am very sorry that this is what has happened. Sending you hugs. ~M~
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Just dropping by to send positive thoughts y'all's way. As per usual inspired by your support of one another during these difficult times and your will to live and fight.
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Daniel~Had a post all prepared... lost it. Grrrrr. I hope your summer has been a good one.... I also hope Leslie is doing well. Please let her know she is thought of everyday. I am sure summer is wrapping up for all of us and I am very fine with that. Hug Leslie for us all and keep on being her superstar husband. I know my DH is my reason for fighting. He and my three kids. So good to see you. Much love ~M~
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Micmel, this is your thread. Where would we be without you? This is our moaning to a friend page, where we know we can say things that we can't say anywhere else. Most of us will never meet each other and that gives us a freedom we wouldn't otherwise have.
Today is my youngest daughter's 37th birthday. I am luckier than many MBC women to have seen my daughters grow up and have their own children. Thank you God.
Good night from across the miles. Much love to all x
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Runor~ I am very glad the results showed no cancer. That's very important, but I can understand you not wanting to wait six months. It's always something we have to worry about. I get over feeling sick and then. I have a mouth sore. Problem is each time I have a week off, the mouth sore starts to heal and then, it's time to start again., and it happens all over again. Very annoying. Ty for your kind words. Sometimes people do not realize that what they say can impact someone. Even if we all will never meet doesn't mean I don't have respect for you all and what you say. I hope you're feeling good today. I just woke up from a nap. Big shock I know. The reception is gaining on me. Yikes !Hugs to you!
Minnie~ good to see you. You are all very important to me and I don't like the fact that we all have to deal with cancer. It just sucks. Thank you for caring and for telling me your honest opinion of the thread. This is my second family who does get it.... and I'm sure it may even happen again. I'll tuck my tail and let it go! Thanks again.
Has anyone seen Mae ? Haven't seen her in a little while. Her DH came home perhaps? That would Be pretty awesome.
Lynne(50's)~ once again your post rings true and I thank you for your openness and setting me straight. I guess the emotional part gets us sometimes. I hope you're feeling well and am sending you a big hug! Hoping everyone enjoys their weekend!!
Much love ~M~
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