My Husband, My Life, My Love, My Family, My Cancer

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  • micmel
    micmel Member Posts: 10,057

    hoping Lynnwood is all done and out of her scan. Holding tight with you! Love you! ~M~

  • Minnie31
    Minnie31 Member Posts: 494

    With you Lynnwood, holding your hand. Thoughts with you too Lynn, and also your mil. It's a cruel world. There are some really bad people in this world, why do things happen to the good people? I suppose you can't dwell on thoughts like that. Micmel, I miss being active. Thing is, I still think I can do things, but with this blasted ruined hip joint, I have to remember to stop. I push myself to the limits and suffer for it.

    My husband makes a mean fried chicken, he calls it Charlie's fried chicken, CFC!

    Still scorching here, and humid. Roll on September.

    Best wishes to all our group. Night night

  • micmel
    micmel Member Posts: 10,057

    Minnie~ Hello beautiful! I am about sick of the hot and humid soup crap myself. I hate going outside honestly. I love fall, even though it leads to winter and shoveling. Yuck! No snow is ok with me, maybe a light snow that melts in the morning. I am convinced it has to be the medicine. look at Mae.... the gym? I'd fall over even though the day I was diagnosed I ran six miles in 60 mins and that is the honest truth. Makes me sick and sad. Cancer is evil pure evil..... hope you sleep well!

    Thinking of Patty , hoping Lynnwood gets great results... hoping Lynn and her mil are doing ok.

    Haven't seen Blueshine. In a long time. 🧐hmmmm.

    Missing my friend Robin. 💔

    Much love ~M~

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Wanted to update all of you wonderful ladies who sent me prayers and good wishes. You all really helped to talk me off the ledge! My onc called at the end of her day . Said that she will review my scan in the morning but that the written report that she got doesn’t show anything that we don’t already know about. She didn’t want me to worry overnight. I’m relieved and emotionally exhausted. The stress of the scan results almost do me in. I REALLY appreciate your support.. you guys really get it. Thanks again!
  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Lynnwood, how great that your onc called tonight so you wouldn't worry. Sleep well!

  • micmel
    micmel Member Posts: 10,057

    Lynnwood~ That is so wonderful sweetheart!!!! I am so happy for you. I have been thinking of you all day long. Now you can get a good night sleep. Rest up my friend.

    Waving hello to muddling !

    Much love ~M~

  • tanya_djamila
    tanya_djamila Member Posts: 1,541

    Lynnwood 1960 that Onc is a keeper. Happy for your good scan results.

    Mae we love fried chicken over here.

    Micmel thanks for always thinking of me.

    My DH and I are off to NY to see the grandkids, my mom and he has a high school reunion. He's 68 so they do several years together.

    Bless everyone going through tests and scans. Stay strong dear beautiful ladies. My next appt is Aug 22 and we'll be bakc for that fun.

    Take Care all,

    Tanya


  • micmel
    micmel Member Posts: 10,057

    Tanya~ Hello lovely!! I have some blood work coming up aroundThen as well and then an Onc visit, I will be thinking of you and hoping you're doing well. I hope your family is doing well. I can't believe the summer Is almost over I am glad for that. I need fall and cool temps.hugs to you! Much love~M~

  • runor
    runor Member Posts: 1,615

    Lynnwood, like everyone before me I was hoping for good news and dare to feel a bit of optimism on your behalf since your doc seemed to have good news. And if not outright good, then not bad. Prayers that that is confirmed for you soon.

    Goodnight to all. Sleep well.

  • Minnie31
    Minnie31 Member Posts: 494

    Lynnwood, a little bit of relief.

    Add me to next weeks list of blood work, and Oncologist visit, probably heart check up too. Always look on the bright side of life, de dum de dum de dum de dum de dum!!

    Love to all xx

  • holmes13
    holmes13 Member Posts: 192

    good morning ladies! Lynnwood you have an awesome mo! I'm glad that nothing new appeared. I go Friday for blood work and my 7th dose of faslodex. Things have been going pretty good but as of lately the fear has come back. I'm usually the type that only worries if there is a new pain but there isn't. I don't know if it's the fact that I go for my first pet scan since being diagnosed in two weeks or if it's what our dear sister patty is going through. I tried to make myself believe that god wouldn't take us from our young children but patty is a clear sign this isn't true plus I lost my mom to this disease when I was 10. Sorry ladies just feeling very emotional.

  • micmel
    micmel Member Posts: 10,057

    Holmes~ we all feel the same way darling. I understand completely. I have been constantly stressing and worrying also.. I am deeply concerned about her.. it's just not fair. After the loss of Robin. I've decided I better become numb. It's the only way to make it through such losses. I'm devastated. Patty is devastating,so young and so beautiful. Fu cancer hurting all those we love.

    Waving hello to muddling and Minnie and Mae! And Tanya! Magda is also on my mind.

    Love all of you dear ladies.

    Much love ~M~

  • Lynne
    Lynne Member Posts: 368

    Lynnwood-Wonderful news on your scans!

    Tanya-Enjoy your time in NY, visiting the grandkids is the best!

    Tomorrow, I start treatment number 7. I chose CMF for my next chemo. Hopefully, the side effects are few and easy. We are leaving, after the appointment, for VT. Our nephew (and my godchild), is getting married Sat evening. It's outside. They are having a tent, I hope they are wrong about the forecast. Thunderstorms and showers.

    Enjoy your Wednesday everyone!

    Lynne



  • micmel
    micmel Member Posts: 10,057

    Lynne~ will be sending good thoughts your way for both treatments and the weather for this outdoor wedding. Please travel safe on your trip. You're an amazing woman. Let's hope this cmf knocks the crap out of it! Be safe and much love ~M~

  • micmel
    micmel Member Posts: 10,057

    Lynnwood ~I hope you can enjoy your day with confidence and big beautiful smile. Love you friend! ~M~

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Lynne, best of luck on your new chemo! Safe travels on your trip! Thanks again to all for your kind words of support, feeling relieved but still perplexed about the rising tumor markers. I guess I’ll have to let my onc figure it out. Busy week for me, my son and his girlfriend are moving in together... my how times have changed! We are moving things from our house, my brothers house ( they have furniture stored there) , her house and her family’s storage unit. The big move will be on Saturday with lots of family members from both sides chipping in to help. We have been sorting and packing. I’m very happy and excited to be able to participate in all of the activities!! They talk about getting married in about 5 years... I silently cringe inside because my mind goes to a dark place, but I smile and nod.
  • GracieM2007
    GracieM2007 Member Posts: 1,255

    Two years ago I found out my cancer had metasticized to my bones...two years. Now to make it for 18 more! I said I wanted 20 more years. Am working on that!!

  • micmel
    micmel Member Posts: 10,057

    Lynnwood ~I know exactly how that feels. I worry I won't see my son marry. It scares me. Everyday. I live frightened of something I can't see invading my body... but they see it. I cringe with a flip of a calendar month because it brings me that much closer to another scan dive. I'm so pleased for your results. Even songs send me straight to tears. I get it... yes I do.

    Gracie~ keep going my sweet friend. You're a strong woman 2 years. 💙 let's add a 0 to that at least.. love you ladies. All of you are strong sisters. Much love ~M~

  • 50sgirl
    50sgirl Member Posts: 2,071

    Gracie, I popped online for a minute and saw your post. Two years! WOOHOO! I plan on 20 years, too, but my time is up a year before yours. We can grow old together.

    Lynnwood, Congratulations on your scan results. Sometimes those TMs go up then settle back down without any explanation. My advice is to just accept, enjoy, and celebrate. WOOHOO!

    Lynne, Good luck with your chemo session tomorrow. I hope you and your family have a wonderful time at the wedding. I will keep my fingers crossed for good weather. Today I am blinded by the sun. My eyes are trying to adjust. I think I was beginning to mildew. How is your MIL doing? Does your DH think she should have additional treatment? I am not sure what I would do if I were in her shoes. I know that at this point in my life, I want to continue living and will continue treatment. I enjoy my life and my family. As you well know, I am no spring chicken, but I am not done yet. Would I feel differently I feel I were your mil? I don't know. Everyone is different.I will pray for her. Stephanie checked me in yesterday. I thought of you, of course. She was her usual charming self.

    Tanya, Enjoy your trip to NY. I hope you post pictures for us.

    Micmel, The shower looked and sounded beautiful. You did a good job. I am sure the reception will be even more memorable. You can do it.

    Holmes, It is normal to worry about scan results. Just don't let that worry take over your life and overshadow all the wonderful experiences you are having. I tend be just the opposite and assume the best until progression appears. I have had progression twice so far, and you know what? I got upset, sad and scared, then I adjusted and moved on. If I dwell in the negative, I would miss all the joy.

    MJH, Maybe when things settle down for you, you, Lynne, and I can plan another lunch. It's tough to reel you two very busy women in.

    Hi to everyone. I have to run.

    Hugs and prayers from, Lynne

  • micmel
    micmel Member Posts: 10,057

    Lynne(50's)Hello lovely. We've missed you and I am very happy to see your smiling face. I hope you're feeling well and enjoying what's left of the extremely rainy and humid soup like summer...thank you for the kind words on the shower, I am already separating rose petals to get a head start....but I am still panicking. A lot to do before still, including blood work, which I hate...but don't we all?? So good to see you.. much love ~M~

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    So my onc called me today to tell me that she reviewed my scan with the radiologist. Cancer wise I am stable with no new findings and stable bone mets. My left ureter is dilated. On my last scan, my left kidney had decreased blood flow to it that they attributed to NSAID uae. Kidney looks great this time but ureter dilated. Radiologist thinks I have passed a kidney stone. I can assure you that I would certainly know if I did as they are very painful. Another cause may be infection or kidney stone trying to form. All kidney function tests are “ perfect” on bloodwork. Onc says this is not cancer related but may be the cause of the rising tumor markers. Wants me to see a urologist who also deals with cancer patients. Says she will ask him to review the scan. Feels he will take a wait and watch approach. Does this stuff ever end??? Does every scan have to show something else that needs attention??? So frustrating!!! Another thing to worry about let alone another copay. Sorry for the rant. If anyone has any experience with anything like this please chime in.
  • 50sgirl
    50sgirl Member Posts: 2,071

    Lynnwood, Isn't it great that scans show all those non-cancer issues that we really would rather not hear about? My first CT scan three years ago revealed issues with my kidneys. I have had many tests and procedures since then, and my urologist and I know each other better than I had ever wanted, but things are fine now. I saw my urologist on Monday, and now I only have to have an annual ultrasound and urology visit. Yay! I have read that kidney infections and inflammation can affect the tumor markers. I hope you quickly learn the source of your issue and that it can be quickly resolved. If you have any questions about procedures or tests, send me a PM. If I have first hand knowledge to share, I will.

    Hugs and prayers from, Lynne


  • micmel
    micmel Member Posts: 10,057

    Lynnwood~argggghhh! Seriously? Infection was a thought I had and I have had several Kidney stones before. I have also passed ones without even knowing it. They can be quite small for younto notice but can cause inflammation and infection on the way out. Irritation to say the least. The reason I know I passed it and it was little.... because they saw it in the scan and contrast. There were a total of four. One Big which knocked me unconscious, but the other three i did end uppassing without even knowing it. The follow up scan said they were gone. So it is certainly possible. Maybe not big enough for you to notice but big enough to irritate your insides. I am hoping that is exactly what it was. At least they don't think it's cancer related. I know though... you're sitting there thinking of every word said and every word you've read. One thing to remember, stable. Hang onto that until there is a concrete reason not too. I am holding your hand tight my friend. Waving hello to (50)'s

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Thanks Lynne and Micmel!! Lynne you might be hearing from me via PM after I see the urologist! Micmel, I had no idea that you could pass a kidney stone without knowing! She said the radiologist was certain that I passed one. Hopefully it’s an easy diagnosis and fix! I don’t know what I would do without you ladies! Thanks for easing my mind once again!!!
  • KatyK
    KatyK Member Posts: 206

    Trying to keep up here and read the last few pages. I can relate to every post. This is scary shit and I hate cancer and what it does to us. I try so hard every day to be “ normal” and live my life for myself and my loved ones but man it’s hard! Only others going through this really get it. I have scans on Friday and already scared. I’m feeling good so hope that means good news. Had a very rough emotional day today but reading these posts helps - such a courageous, funny, loving group of ladies! Really helps to read these posts. I’ll try to keep up

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Katyk, good luck with your scans on Friday! I think that the scans cause anxiety for many of us, I know they do for me!! The fact that you’re feeling well is a very good sign. I’m glad that reading here is helping you, I have found so much support , advice and friendship here!
  • micmel
    micmel Member Posts: 10,057

    KatyK~We all know the feeling of the scanxiety, I wish I could take it all away for everyone. It is truly a shit stew of course no one wants to have. We will be with you in your pocket like we are for each of us. It does get loud but we do our best to behave. I will certainly be keeping you in thought and sending good vibes for nothing but excellent results. I do believe in how you feel is a reflection, at least for me it was. I was awfully sick before getting in treatment. Lots of pain also. I wish you great scans and I hope you can calm down. I know it’s so hard, if you have Ativan take some. Give your mind a break.You'll be in my thoughts. Hugs from across the miles. ~M~

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    I had my routine blood work yesterday and all is well to keep on with the I/L. Also had Xgeva.

    I have a question about B-12 and folate. I get some in my multi vitamin and in the B complex tablet but I wonder if any of your doctors have given you recommendations about how much to take.

  • KatyK
    KatyK Member Posts: 206

    Thanks for the good wishes on scans, Lynwood and Micmel. I hate the bone scan - the plate comes so close to my face. Claustrophobia! I practice my meditation. But I can do it! It helps knowing my DH is waiting for me and I’ll get a big hug when done. Crappy stuff and I hate the hospital

  • micmel
    micmel Member Posts: 10,057

    muddling ~ I was told to take one b12daily in a supplement. So I do! I have my blooodwork on Monday yuck! Back to that crap again. Glad all was well !

    KatyK~I feel the same thing you do. With the scanning I hate to be closed in. I get very quiet. I just wait and wait and wait for it to be over even though it seems to move a hair an hour. Just remember I am in your pocket making goofy noises. Hugs my friend ~M~