My Husband, My Life, My Love, My Family, My Cancer
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Add me in your pocket too!! Hope it’s a big one!
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Lynnwood~Hello beautiful, that you for caring. I’m definitely upset with worry but what else is new. I don’t feel any different. So let’s hope. Ty you for sharing my life and sharing your life with me also! Hugs to you beautiful ladies (and some men even. Right Daniel? Hugs to Leslie! Thanks guys !
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Melissa, I hope your scan results are as good as your TM results. I am thinking of you.
Hugs and prayers from, Lynne
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Hi Lynne🌷~Thank you very much sweet woman. I am also hoping the scan will match my markers. It's just maddening. It's always sooo good to see you. I adore you. Hope everything's is going good for you and DH. Isn't he scanning soon as well? 💙💙~M~
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That vile contrast they make you drink - blah! At first I thought I had to sip it so had the taste for ages. Then a chap came and drowned it 'in one' very quickly. I nearly retched. So I asked if I could and they said yes. I never did it in quite the magnificent style of that guy.
Now I have PET scans as I have bone lesions which I understand PET is better for. No more yuck for now!
Phoning this morning and hoping my Appois in the system ready to be booked.
Good morning from California!
Sarah
(Omg I’m exhausted correcting my typos and prob left loads- must use MacBook nextime)
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Scwilly~I also pinch my nose and down the entire bottle in what I try in three gulps. The key is also a straw and chocolate sauce. I mix it in and shake it. My oncologist nurse assistant told me that. Works every time. It helps tremendously! It honestly tastes like hand lotion!
When are you having a pet scan ? My ins will only pay for two of those in my lifetime. Apparently they are a no no with Medicare. It's always something with insurance companies. I wonder how they sleep at night with themselves. Those people sometimes seem so insensitive!! Or perhaps it's just me?. Who knows. I'm a mental mess until I see results that I am hoping will be good ! I hate this so much!
It's always good to see you my dear ! Hugs to you in California. My thoughts are still with those struggling and such loss is astonishing. 😞
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Micmel-Good luck today! Those drinks are nasty. I get banana (I feel the least disgusting of the 3 choices). I take a straw, put it in the back of the mouth (to avoid the tongue as much as I can) and start gulping, and don't stop until it's gone. I drink one at home, and one there. They have got to improve on those drinks! Glad your son went to the ER. Sorry they found something he has to deal with the rest of his life. My older daughter was born with heart defects, and has had 4 heart surgeries (first one at 5 days old), an ablation, an angioplasty and a stent put in. She had 3 strokes in 6 months (which left her with left sided weakness to this day) and had to have arteries from the outside of her skull rerouted, after parts of skull were removed, to on top of her brain. She is now 31 and will still need at least one more surgery to replace her aorta (it has several aneurysms). She does what she wants (she played soccer, baseball, and basketball as a kid, and still skis). She also has scoliosis, and was called a hunchback (because of the brace she wore for 5 years), by some nasty kids in high school. She is my smallest and loudest of my 4. She's a survivor (she has strong, she had tattooed, on the inside of one wrist and survivor on the inside of the other). I think your son will be ok. I would not have left his side at the ER either. Us Moms never stop being moms, even after our children are adults. Hugs!
Sheila-I'm so happy your pain level has gone down. I hope it stays that way!
Mary Jane-I am having "splits" on my thumbs, and some of fingers lately too. I agree, the splits are far worse than the peeling. Glad you had a good Thanksgiving.
Mae-Once again, beautiful pics from you second home!
Tanya-I totally agree with that Canadian boy. I worked for a health insurance company for 15 years, and saw first hand of the greed that goes on there.
I got a phone call this morning from the oncology office. I thought it was for the results of my PET scan from Wed. Nope. She called to say that my blood work showed my iron was low, and she wants to put me on ferrous sulfate 325mg. I told the girl the last time I had to take iron was after the birth of my first child (almost 33 years ago, yikes!) and I got constipated. They did not tell me to take a stool softener or a laxative, and I was a horrible mess. She told me to take 1 capsule of miralax a day. I've only see it come in a bottle of powder. I'll have to look around I guess.
When I went to the oncology office on Fri, she did not have the Pet scan results (it's done in a van that they go from hospital to hospital with, and it is out of Mass, not NH). So I will be calling again this afternoon (even though the woman I spoke to this morning, said the dr usually has them call once they get the results, we see how well that worked out for my tumor markers, I waited a week for those results). I told her about my fevers most evenings, and because my white cells were low (so no chemo then, now I'm scheduled for Fri), and I didn't have any symptoms of anything else, she put me on an antibiotic for 7 days. Now the iron pills too. Maybe because one causes diarrhea and the other constipates, I'll break out even! LOL I did not have a fever last evening. First evening in awhile, lets hope it continues that way.
I hope you all had a wonderful Thanksgiving! Our youngest and his girlfriend came home from Wed morning (the left at 1am and got here at 8), and stayed until Sunday morning. We were busy. It was at my in-law's. Our family of 11 went, his sister and her husband came, his oldest brother came with his wife, 2 kids, son-in-law, and new grandson. Thankfully, his other brother did not come. They have 5 kids, and their spouses or significant others. The house is small. We were wherever we could find a seat. The living room, the closed in porch, or in the basement. Half of them, after our mid-afternoon meal, played penny poker (a request of my mother-in-law). They used to do it after every Thanksgiving meal. It hasn't been done in a long time. We didn't get home until 7pm. I was totally full and exhausted!
My house is so quiet now. Just me and the 2 cats. After a very loud long weekend, it's nice!
Rain today, snow tonight. Crazy weather!
Have a good day everyone!
Lynne
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Hi Micmel
I was in your pocket too although I’m not sure what swill you had to drink. I’m nauseous before I even get inside. I’m praying for great results for you.
Lynne NH sorry about the wait. I swear I try to relax deep breathing showers everything but my mind always fixated on result call. And I call them and bug everyone. I already explained to them how stressful it is to wait. I think they care but the system sucks.
S cwilly I do the PET scans we drink some type of lemonade and of course get injected with some nuclear sugar concoction first. Waving back to California.
Hi Lynwood 1960 Mae Daniel Runor Parny 50’s girl.
I’m looking forward to our upcoming getaways, Wed. Vegas. I hope we get to do the Grand Canyon. I love seeing natural beauty.
We’ll visit some relatives in Orlando for five days. A niece, nephew and bunch of cousins. I told them to save my place for physical therapy bc I’m not ready for that quite yet. I move around but still feel very sedentary. My week off and I’m looking forward to not taking ibrance.
Anyone I forgot have a wonderful day.
Tanya
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Lynne~Thank you for the kind words for my son. It was so freaky. Scared me pretty good. I don't want my kids to deal with anything like that. I'll take it all for them. I'm already a medical night mare. Waiting for my Results. I guess I'll know more Tomorrow!
Tanya~ Hello darling. I hope all is well with you. It rained all day here like Lynne mentioned. But no snow for us yet. what we got is all gone. I enjoyed my day today though. My sister came up and visited me. It's been three weeks in a row. It's been a great thing. So far I feel happy and emotionally ok. If I admit it, it makes me happy. I always loved her. Loosing her from my life was bad. Didn't enjoy that at all.
But it still needs to be earned. So far I'm pleased. She has made me a priority. Today she came over for lunch. Brought over a pizza and we had some home made chicken soup that DH made. She bought me over an early Christmas present. An amazon echo.. Alexa. Im laying here now listening to thunderstorms sounds in the dark relaxing and trying to think about calming things. It was a very wonderfully thoughtful gift and I am touched. I have always wanted one of those. The funny thing is. She has never been a gifting kind of a person like ever. For her to get me something like, that was this thoughtful, knowing how much time I spend at home. Means she really put some thought into this present. Something she just never would have done before. I am touched because its another small sign, she's changed for the better.
I'm so tired. I can see a 10:00 bedtime in my future lol love to all.
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Michel: I love your description of the taste, 'Hand Lotion', spot on! Wonder what chocolate hand lotion tastes like, my pups wouldn't stop licking it off me. 😆 I’m trying to book my scan. We called today and the earliest is Dec 14, which to me is too far out as it's to confirm current growth and change of chemo. I've put in for a cancellation and also asked my MO to help. It's not normally this long. Usually it can be done that week. Am so sorry you can't get the scan your doctor feels is best for you.
Lynne so sorry you haven't got your scan results back yet, waiting is the pits. Constipatin is down in the pits too. I'm suffering at the moment as Havelen is making me v dehydrated. I'm also having pain pills for my liver and nausea medicine which exasperates it. And to top it all I'm hardly eating or drinking anything so nothing to push down! Laxatives are my friends.
Tanya : I only get the glucose injection - but had heard of different regimes for Pet scans through my local support group. No food only water for 6 hours before and no exercise (not hard at mo!)
On a brighter note to all my moans. We had a lovely Thanksgiving - my brother and his GF was here from UK, my two sons, 22 & 20 home from college in Seattle and Boston respectively, and a very close family from Florida. Lots of help from everyone.0 -
Hi, Micmel. I've been lurking since my computer died (it's too hard typing on an IPhone) but DH surprised me with a new IPad so I'm back!
How's your son doing? It is so scary when something happens to one of our kids (or grandkids). I can identify with your situation. Years ago, my DS had just graduated from college & was taking an employment physical & discovered he had a heart murmur cause by a faulty valve. It completely derailed his career plans & really shocked all of us. Fast forward almost 20 years & he's happily married with two adorable daughters & doing well in his second choice of careers ... he may still need surgery some day but right now he's healthy & in good physical shape & I am so grateful.
I'm so glad to hear that you are rebuilding your relationships with your father & your sister. It sounds like they are trying to mend things with you & you deserve that. I love that your DS (can we call her that yet?) brought you a thoughtful gift! If things don't work out, you'll know that you tried & that should bring you peace. Families can sure be challenging, can't they?
I'm sending positive thoughts that you get great results from your scan. Good news would be a great Christmas gift, wouldn't it?
Sending hugs out to all on this thread. Hope you are all looking forward to the holidays!!!
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Scwilly~Hi there! It's still pretty bad tasting but makes it more tolerable to me. I think that they need to get it together. I have also never heard of banana either. I would sure try that as well. It sucks any way you coat it. Now I sit and wait. I'm sorry you're getting the run around for your scan. That's not acceptable.
I would keep calling for a cancellation. Those pain in the rear ends! Always good to see you here. Hugs to you! It's windy and rainy now. Can't wait to sleep! ~M~
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OMG Micmel, I'm reading your post a while ago and it says "hand lotion drunk" and I'm thinking, you can get drunk from hand lotion? What kind of hand lotion is she drinking? It must have a high alcohol content. Which would make it very bad hand lotion, very drying. I've never heard of anyone getting drunk on hand lotion and why would they when they can drink vanilla or toilet bowl cleaner? And then the penny dropped, ahhh, she isn't drunk on hand lotion, she has consumed the goopy stuff for the scan. Got it. Duh. I am not smart sometimes.
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Micmel, unless you love things with fake banana flavoring, skip the banana scan drink if they give you a choice. I like real bananas but can't stand anything with banana flavoring. Time before last, that's the scan flavor I got. Yuck! However, you might like it. It tastes like those banana BB bats taffy suckers and they were popular, just not for me. Last time I had a bottle of grape flavored water with the glow juice in it. I've had that before and like it the best.
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I literally cannot drink that scan concoction.. the last time I tried I vomited all over the steering wheel as I was driving to the scan. I had my onc write no oral contrast on the script. I had a cool scans without it then the tech told me there is a contrast that I can drink there. They mix it in iced tea and it is truly tasteless. Only drawback is that you have to drink it there, an hour and a half before the scan . To me, it's worth it. I just take a book and read and sip my iced tea.
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Micmel, It must be nice to have the scans behind you. Now comes the hardest part, waiting for results. I have had mocha flavored contrast the last few times. It is far from delicious, but it is tolerable as long as I use a straw. Yes, my DH did have scans last week. He is unable to have any kind of contrast because he has CKD so he doesn't worry about drinking the yucky stuff. The results were good - no evidence of metastatic disease. YAY, I can breathe for another year.
Lynne, I hope you have your PET scan results by now. I don't understand what the hold up is. I hope the antibiotic keeps the fevers away. It sounds like your Thanksgiving was a bit hectic. Mine was really great. Every time I started to do something, one of my sons or daughters-in- law suddenly appeared and said, " I'll do that , Mom" or "What can I do to help?" I was told to stay seated when it came time to clear the table. Without a word of direction, everyone else, including my grandchildren, started clearing the table. My DH told me that two of my daughters-in-law took over in the kitchen, and everyone chipped in until all the leftovers were put away and dishes were loaded to the dishwasher. It all made me realize that my children have learned the importance of family,, of helping one another, and of cooperation. Wow, maybe my DH and I did something right as parents after all. LOL. That night arrangements had been made for several of my grandchildren to spend the night with their cousins. It is wonderful to see how well they all get along. My son from NY state arrived Wednesday with my grandson, granddaughter, and their two, yes two, a Great Danes.Those dogs are HUGE, but they are the calmest, gentlest dogs I have ever met. They adjusted to their temporary home very quickly. They all left Sunday morning. Like your house, mine seems very quiet now. Having everyone here for a Thanksgiving brought me a lot of joy. I feel like it also gave my immune system a much-needed boost because I feel better now. Maybe Xeloda is beginning to kick in. We'll see if my hemoglobin is up and my TMs are down when I see my MO in two weeks. My TMs were up to 2615 two weeks ago (up 150 from last time). It's time for them to take a big drop.
I have no idea what to get some of my grandchildren for Christmas. I told them all that if I don't receive suggestions from them by December 1, this year's default gifts will be a package of socks and a package of underwear. I have since received lists from most of them hahaha.
Tanya, I can't wait to hear about your trips and see pictures. I have never seen the Grand Canyon, but it is one place I would really like to go. I hope you get there. My DH and I are planning to go to Disneyworld in January, just the two of us. It will be much slower-paced than trips we have taken with our children and grandchildren. It will get us out of the cold weather for a while and give us the opportunity to do whatever we want while we are there. I hope my energy level is better by then.
Well, the rain just turned to snow here. Ugh!
Have a good day, everyone.
Hugs and prayers from, Lynne
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JKL~Hello Beautiful...I was wondering how you were doing. I always try to keep my sisters in my minds pocket. They come and go but I never really forget. This is a circle we can't get out of. But we can Love who we travel that circle with. I'm glad you're back... congratulations on the new I pad. Big deal to us!!! Things are working really well with my sister so far. My dad will never change, but I see my sister has grown. Changed. Different. Unconditional finally is being tested. It's nice to have my sister back. I cannot lie. I feel hopeful.. but it should be earned. I can't handle more disappointments. My great niece has been another sweet addition. She's precious. Funny. Loving. That had to come from my sister. She has raised her since birth. Since my niece can't stay out of jail and function at all! much love to you my friend. Welcome back! 🌷🤲 also ty for the kind words about my son. I was terrified. But he didnt know that.. I kept my cool. I think that comes with the cancer diagnosis... it just comes instantly.
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Runor~LOL I guess It definitely could have been seen as that! If that could have been the case, I would have not any hand lotion left in the house. Lol. I can't drink. Never could. I was never a drinker. Now with the meds, it's not even a thought. Like I said you always make me laugh every single day! Hugs my friend. ~M~
Lynnwood~ your poor steering wheel!!! I did feel really nauseous...full feeling. With a gross nastyness.....to accompany all we hate to have to do! It's really a shit show! I hate the entire process and the waiting... well I'd rather not get started on that! Ugh!
Mae~I'm watching American horror story.. it's good But the first season is the best Hope you're doing good!
Muddling~Glad you mentioned that, i like banana, but nothing artificially banana! So I won't be choosing that awfulness either Ty for the heads up! 😊😊😊
Lynne~So glad to hear your DH has good scans!! So happy.... I'm still waiting Last time they were read quickly... this time not so much! Waiting waiting ugh! Your story of your family warmed my heart, I was also sitting and being instructed to do nothing I was up in bed by 530 exhausted and napping! Some days I'm just so tired. Christmas. Bah humbug! I have two presents bought that's it I have no idea what the heck to do or even attempt buy! Budget isn't Friendly this year! I just want good results, if I'm totally honest....
much love to all....~M~
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Hi everyone, trying to catch up with everything going on. I just seem to be so tired at the minute that every time I sit to read the posts I am falling asleep before I get to the end. So many posts!! I'm glad for the good news, like your Son Melissa, and your Sister relationship. That is really nice. What do you think of American Horror Story? We have watched all of it. Loved most, but it does get a bit weird at times!
Lynne, I get the cracked fingers too. Makes me want to wear gloves all the time. I'm using hand cream every time I wash my hands but they come back. Tanya, I hope you have a great trip to Las Vegas.
Preparing for Christmas, on line shopping makes life easy, and when the grandkids can tell you what to order, even better. Still my daughters and their husbands, and my Mother to buy. DH and I generally buy each other small gifts, as can never think of anything anyway. We will be home this year cooking turkey for the first time in maybe 5 years. A quiet holiday season, as I feel that I just want to stay home, have dinner and watch some rubbish tv. A few friends dropping by for drinks etc sounds good to me. Can't be with my Canada family, and would love to go to my Scottish family, but can't do it this year:(.
Managed to contribute tonight before sleeping. My best wishes for all the scans coming up. MIne will be before 8 January.. Much love to those suffering oriole side effects etc. I think of you all x
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Minnie~Hi there Darling. I was worried about this up coming holiday. My dd didn't like the missing of the family thanksgiving.... so she had a talk with her husband and she will be coming here for Christmas after all. She is not liking the entire changing of the guard so to speak. She has been raised this way for 22 years it cannot change overnight ... I think I'm getting an ear infection that ive been ignoring for a little. Who wants to see your primary care physician after all this crap we go through. Not me. American horror story can make my skin crawl at times. The suggestiveness of the show is staggering at times. But it's something else to watch. I would not recommend watching it with parental figures lol. Or of course younger children. It could really scare them for sure. When I was younger I enjoyed horror movies more. Now i just feel like I'm living one now. Sucks !
Love to all of you! ~M~
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I thought AHS was good this season but I wish it just ended without the new Antichrist part.
DH made turkey ala king tonight and it was great!
No holiday craziness for us since we don’t celebrate but we do buy ourselves gifts for our anniversary on Christmas Eve. So far I got new clothes and a satchel/bag, DH is buying himself tools and a radio/walkie talkie, I think. Shopping for ourselves really takes the pressure off 🙂
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Mae~I haven't seen the entire season yet. I am finding it interesting that they are incorporating in the second season into this one. Bringing in mertyle again. Love that character. Her bright red hair... Emma Roberts Is always a real bitch.. but a good actress... queenie is being re encarnated. The first two episodes were really good but there are a few things that didn't add up and some questions I still have. I am only on episode #5. So I have some ways to go. I am also enjoying it. That young man devil dude is a good looking guy. I have never heard of him. I miss lady Gaga.. and couldnt believe they killed off Joan Collins so quickly. Oh and classic classic Kathy Bates. Fabulous!! I'm binge watching so I'll be caught up soon! How many episodes this season ? More and more I don't want to celebrate anything. Really ! ~M~ Christmas is becoming harder with this disease. I need a healthy clone. Please. ?
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This is a similar post to one I did in the Liver mets thread - just not so detailed medically. Not a lot of different really but wanted to make sure its not missed here.
Went to get my second dose of Havelen today, but my Lymphocytes were down to 0.7. TBH I was feeling rotten from the severe dehydration - which came the day after my Havelen dose - leading to high heartbeat and v low blood pressure. I had a big dose of Saline via IV today for that and I must say I'm feeling very much better (finally treatment that makes me better not worse). I describe it as the heavy cloak being lifted. May not last for ever but I love it for now. Doesn't help the fact I can't have chemo but I' m so happy to feel better. I had a shot to raise my lymphocytes, and getting another one tomorrow. Then WBC on Thursday and hopefully chemo Friday. Both my MO and I don't want to miss a dose and allow the cancer to grow more. So frustrating
I using Biotene rinse for dry mouth and its really great (first dose that is) I am still eating like a baby bird - or you could say now sparrow or owl as my niece suggested as I'm feeling a little better Fresh Orange juice is great for my nausea also sparkling water (not together) Im going to try some Ensure chocolate shake tomorrow morning to get some nutrition down me(thought of y I think think this is the liver issues. I'm getting the strong pain back (that needs medication at least twice a day) I'm using 10mg Hydrocodone as this is a great drug for me (though I know not others) All these shenanigans bring crazy constipation - which I hope will finally bog-off once I start eating more - as its getting enough medical help to move a mountain!
Minnie31: Sometimes I get so sleepy when I try to type anything on my phone or laptop I close my eyes and type a load of rubbish (trash) or I wake-up to see my finger pointing at the screen just like a 'witch finger' doing aspell! (cackle, cackle) If I think of a good curate spell for us all I will be releasing it for everyones use worldwide to use immediately - free 🤑
Sarah
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Mae, is there a new AHS this year. Haven't caught up if there is. Self present buying is the best!
Sarah, I do that too, iPad lying on top of me. I also take hydrocodone and works fine for me. Also when my appetite was really bad, I ate good ice cream, and cake. I figured my body needed calories whatever way. My taste buds seem to be more alive now, 2 years down the road of treatment. DH seems relieved that I eat the same food as him again.
Morning here in Spain, the sun is shining, gotta get up!! X
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50s girl, it warms my heart to read how your family all pitched in to make Thanksgiving easy on you. What a true gift.Micmel, sister relationships can be complicated (I know mine are!). I'm glad you're making amends with yours. And great to hear your dd is realizing what family means to her, especially at holiday time.
Minnie, you had me at rubbish tv. Haha!
Illimae, happy anniversary in advance!
Scwilly, glad the saline iv and lymphocite shots are helping you feel better, and I hope things will even out so you can get the chemo dose.
I, too, had a very, very nice Thanksgiving. Not to sound snarky, but one main reasons was because we didn't have the responsibility of taking care of my MIL. Far less stressful.
I enjoy Christmas most when I keep it simple. I do some store shopping but agree how helpful internet shopping is. In early December I'll be attending the high school Christmas play of my niece and a high school music concert of my sister's step grandchild. Family will gather here on Christmas Eve and I'll serve appetizers and drinks, nothing elaborate.
Hey, it's been a hell of an odd year for me! What about yins?
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scwilly~seems like you have been through the ringer. This week. If I sit and think about what each of us has gone through. It's like we have fought a war. I am glad you're feeling better. And that something finally pepped you up. I had to laugh at your comment of the finger pointing at the screen. Please find that spell! Free is for me!
Minnie~There is a current season running now. On Fx “apocalypse".....more than half way through. I have a lot to watch today... to get caught up! It's always a good show. It takes my mind off of everything. If I could just close my mouth from my jaw hanging down from women of the the things they say And do. But that's entertainment! It certainly is strange but I like strange shows that make you think a lot. Glad it's sunny! Freezing here windy and cold cold!
Divine~I am enjoying having my sister back. There really isn't anyone in my life that I have been closer to. She protected me as a child, and I realize that more and more everyday! There is nothing wrong with being able to admit that you had a nice holiday not having to take care of anyone else. You deserve to sit and have loved ones take care of you. We all know we would do the same. I know I could not take care of anyone else being sick. I barely want to shower some days. Always love seeing you here! Love the new avatar!
Much love to all ~M~
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Mae~I am thrilled to see Jessica Lange. She is my very favorite. I am liking this season more and more. Now I need lady Gaga. Awesome !
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Minnie31. And talking of iPads whilst in bed I do get punched on my nose! as every now and then because it invariably finds its way to exactly bop the top of my nose - the very bit that hurts -as I fall asleep and it rocks backwards. I searched it on the internet and it's actually a thing people complain about.! Ouchy!
Have fun in your sun in Spain. It's clinging on here in Southern California.
Sarah
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Lynne-It sounds like you had a wonderful Thanksgiving. Did all 6 sons make it? It's wonderful how they all took over for you!
Tanya-Have a wonderful trip. Grand Canyon is next on my list. Hopefully, late this spring. My husband said I had to plan it. I think I'll go see my nephew at AAA. Let him plan it for me!
Micmel-I hope you get your results soon!
I got my results, while we were out to eat last night,(she called my husband's cell phone after we didn't answer the home phone). Luckily, we had just finished. She said the PET scan showed uptake in that lymph node that had grown in size and also in my liver. She asked me if I were taking a lot of tylenol. I said nope, everything is the same. It was strange that it showed in the liver, since it didn't show up on the CT scan. She said that maybe it was too small to see. So now I'm off of CMF. I am waiting for Dana Farber to call me for an appointment for a second opinion. The breast oncologist there, had mentioned that she might have a clinical trial I can do. I'll check that out and see if there are other chemos. My oncologist here suggested navelbine and gemacitabine. Has anyone been on either of these? What did you have for side effects, and what was the schedule to receive them? At least I'm getting a break from chemo. Of course now she has me on Iron pills because it was low last week. We'll see what this week brings, when I see her on Friday. She told me I could keep that appointment, or just see her after I go to Boston. I'll think I'll keep it, to see how my Iron level is. On to treatment number 8. Let's hope this one works longer.
Hugs to everyone!
Lynne
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Lynne, I’m sorry to hear you have to change treatments! My onc suggested Navelbine as one we might try too. I have a PET on the 7th and will see what he says. I do worry about Tylenol because I take some almost every day. Oh well, gotta have something for pain!!!
Lynne, your Thanksgiving sounds lovely!!! I had all my kids home too and it was wonderful! I came home with my daughter to Wyoming and am loving being here!
Micmel, hoping your son is doing much better and that what he has is something they can control easily. How were your scans? Praying about them!
Tanya, sounds like a wonderful trip! I would love to go there someday too!
Mae, the altitude isn’t bothering me much, just every once in a while I can tell, but so glad you posted about being up 7000 feet, that’s higher than I am and it helped me make the decision to just do it!!!
Doing ok except I hit the tube that goes into my neck really hard this morning and thought I was going to pass out from the pain! It’s hard to explain but I was sitting down in a chair and had my elbow out kind of bracing it on that arm, and I miss judged the distance between my elbow and arm of the chair and drove my shoulder up into my neck, wowsers, talk about something that hurts! It’s still hurts and it’s been Over an hour, but I took two extra strength Tylenol and it’s getting a little better. I don’t think there’s anything else I can do about it, being here there aren’t very many doctors close, and the ones that are probably have no idea about dealing with ports so just praying it’s ok.
Y’all have a great day and I’ll talk to you later.
I know I missed some of you, but I think of all of you often and keep you all in my prayers!!!
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