My Husband, My Life, My Love, My Family, My Cancer
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Darn it, Lynne. I was hoping you would be able to stay on your current treatment. I hope your next one isn't too frequent and has few or no SEs. If you enroll in a clinical trial, do you think you will have to check in at DF for all your tests and follow ups? It would be nice if you could have blood tests, etc. in NH, either at NHOH or at DF's satellite location in Londonderry. Your eighth line of treatment....you have been through a lot. I am only on my fourth line, and I must tell you that I admire your strength and attitude. Let us know what you decide after your appointment at DF. Enjoy your chemo break. I hope the iron supplement is doing its job.
Gracie, Ouch, that sounds painful. I am glad that Tylenol is helping, but keep an eye on it. If anything questionable happens, go to the ER to have it checked. Relax and your time with your DD. I am so happy you decided to go.
Micmel, When do you expect to receive your scan results?
Hugs and prayers to everyone, Lynne
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Thanks Lynne. Will watch it closely!!! Scared me!
Micmel, I have Medicare and have had multiple PET scans. Just had one five months ago and having another on the 7th. I’m wondering if you are just in another plan. Mine pays fir whatever my oncologist orders
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Lynne (man) when were you dx with stage iv?
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It’s hurting like crazy but no bruising at all, so that’s probably a good thing wouldn’t you think?
Had to retype this, my phone is acting weird
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Lynne, hope you get sorted with treatment. I take iron all the time, as always anaemic. Also have to take duphalac to avoid constipation. Oh, the joys of life.
Started watching AHS Apocalypse tonight, first 2 episodes. Poor Joan Collins, she played her part well!!
Sarah, I sort of lean it against my knee, so at least my nose is safe 😂!
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Iron does the exact opposite to me due to my colitis. So I’m no help at all in that subject
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Hello Ladies. ~Gracie~Hello darling. I'm happy to see you. I have been thinking of you often. I know exactly what you mean when you bang that port. It may hurt for up to a week in certain ways you move and lay. I have dropped my remote on it before. Doesn't feel great at all. I am happy you're visiting your DD that is super special! Enjoy every single second. Hugs to you sweetheart!
Shelia?? how is the radiation helping ? How are you honey. Xeloda? Miss you 🌷
Minnie~The entire show is always good to me. Keep watching us all I can say. It gets even better. I have things to say... but do not want to ruin it.
Mae? Where are you?
Lynne(50's)~I talked to my oncologist nurse and she told me they are way behind because of the holiday and vacations. My status is still pending. So there is a back log.. waiting sucks. If it wasn't that my markers were lower this time than last. I may have lost my marbles. But as always, I feel every ache and pain And want to freak out. I call them Jumpers. They seem to jump from body part to body part. Ty for asking! Sweet woman! 💙
Lynne~(Man)~I am glad that you will be getting a break from chemo, but sorry you have to tackle another line of treatment. You're amazing is right. I am in awe of your strength and determination.. it's something to behold, like Lynne said wow. I don't even think I have ever heard you complain about anything. Seriously as I think back. It's astonishing really. I am such a whiny biatch sometimes. Hugs to you dear woman... I have no words for how amazing you are. I think I'm a whimp honestly. But then I think about the 6 surgeries I have had to stay alive. To love my family for however long I'm able. Someone needs to figure this shit out. And quickly.
Waving to Tanya. And Lynnwood.. scwilly... Muddling....Divine....Runor....Masonsma.....
Bella....MJH....JKL......JFL....sandybeaches.....
MissBianca....Footprintsangel.....GP😊......Grannax.. you ok? Haven’t seen you in a while. Hope all is well fashionista!
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Micmel, waiting is horrible! Will be praying they move yours up!!! I actually hit the neck where it goes into the vein with my shoulder! Sounds weird I know but just kind of jammed my shoulder up into the hollow right beneath the jaw bone...Lord I actually saw stars!!!!! It’s feeling a little better now. Was worried I might have torn the spot where it goes into the vein. Hopefully it’s going to be ok.
Will be praying and waiting for you to post results and everyone else too
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Gracie~I know right. It blows like the wind outside my window. It's 33 degrees here and old man winter isn't far behind. I think I would be freaking out a lot more if I hadn't had a chance to see my tumor markers. They went down two full points. I have been feeling pretty good. But some days I'm so exhausted I sleep all night and then wake up for a few hours and then im back in bed again for another 3 napping! I can sleep like it's my full time job! It sounds like you really gave yourself... a boo boo! Maybe ice can alleviate someOf the inflammation if it keeps bothering you. You may even see a bruise. Seeing stars doesn't sound like too much fun! I'm so glad you're ok. keep us posted on how you're feeling. Love you gf. 💜 love ~M~
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Thanks Micmel! I'm just so glad your tumor markers were down! That's awesome and I know it makes me feel safer! Hugs gf!!! 🤗
I know you understand how fast those accidents happen (I know your fall was a lot worse than what I did, but it just happened so fast!)
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Good night ladies. Hope tomorrow brings no pain... no cancer ... no doctors appointments... no worries. Damn I wish I could make that happen for us all. I truly in my heart so very much do. Winter keeps us inside more. Doesn’t seem like fall lasted as long as the calendar said it should! Drat! Everyday cold whipping wind yuck! Sleep well and stay warm! ~M~
Gn Gracie
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Yay Gracie, I’m happy you’re enjoying yourself and glad to have nudged in my little way 🙂
Back at the gym this week and signed up for a healthy heart fitness program at MDA, hopefully I start that next week. Goodnight all.
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Thought I would share that....Yay, the chemo worked! The CT scan shows that the abdominal tumour has disappeared as has one lung nodule, the other shrank by half. So 6 cycles of low dose Taxol, 21 treatments, did their job. I was stunned yesterday when I got the news. It’s hard to take it in...I feel like I should still be worrying...but for now, i’m Stable. Now to figure out what feeling and being “normal” means...., what my new normal looks like.
Be well ladies,
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Pots~That is so awesome !!!! 🤲🍾🌟😘🌷💜. I am doin the happy dance for you. Atta girl. big hugs of love and support to you sweet woman ! Yay team! Play on new normal! Much love ~M~
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Mae~Hi darling. I am all caught up on AHS. I can see what you mean on how it took a turn for the dark. But I do enjoy the time spent away from all things cancer! It’s good for the mind to get away sometimes.
I love the idea of your cardio class. Who cares what others think. You’re a walking miracle. A loved miracle! Silver sneakers all the way!
Love you all~M~
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Pots, great news!!! Very happy for you!!! Do something special and celebrate!!
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Pots-Good news! Very happy for you!
Gracie-OUCH! I worry about hitting my neck in that spot to because of the port. Sounds like it's getting better though. Let us know how you make out on the 7th. I'm glad you got to have all your kids for Thanksgiving, and that you could get away. I take tylenol twice a day anyway, 2 extra strength. If I have pain during the day, I will take another dose. I can't take ibuprofen (which I would prefer, it works better), because I am on an arthritis medicine. I think between navelbine and gematibine, I would choose the second. Just because the navelbine causes neuropathy, which I still have leftover from the Taxotere, 6 months ago. Also I saw navelbine causes hair loss. My hair is just barely filling in on the top. I've been 1 1/2 years wearing a scarf or hat (I've only worn my wig 6 time, to weddings and funerals, I hate the thing). At home inside and out, I go without anything on my head, otherwise it's covered. I'm also sick of drawing in my eyebrows (which are very slowly growing back, not that there was much there before) and my eyelashes have grown back a little. I put mascara on the little stubs for Thanksgiving. I didn't look as much like an alien for once.
Lynne-Yup, now the waiting game for DF. to call and make an appointment. That will be the main question on that clincial trial. How often I would have to go to Boston. Maybe they would let me do everything in Londonderry. That wouldn't be bad (although the traffic would be), and its further away than Hooksett for me. I did keep my appointment tomorrow with my local oncologist, just not having chemo, as I was scheduled for.
Micmel-My family would beg to differ on the complaining thing. You would think I complain constantly! I've complained on here about the office people at the oncology office and trying to get test results, when they have them in there hands, and the oncologist hasn't signed off on it. Thanks for the hugs!
I'll find out tomorrow if my white cells and iron are back up. I'll also ask her how long I have to be on the iron. I don't want to mess up my insides anymore than they already are.
I forgot to post a Thanksgiving pic. Here are our 2 grandsons. Matthew 7 1/2, and Aiden who will be 6 on the 9th. Our twin tornadoes we call them, because they are only a year and half apart, and when they come over, they leave a trail of disaster behind. The flowers, are the ones my husband got his mother (he got me a dozen roses too).
I hope everyone has a nice day! Cold and blustery outside, but the sun is out.
Hugs!
Lynne
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Lynne~Precious Angels!! All spiffed up. And handsome for a turkey feast! I am also miffed about the entire results issue. We have a patient portal....nothing is being posted. Before the holiday I had my blood work results the same day. I cannot understand how a holiday could push back results almost 3 Days to Be read. I am supposed to see my oncologist Tomorrow which I hate. I usually know before I see him. I don’t like walking in feeling blind. It’s really shitty having to beg someone else to know about your own body. I don’t like that at all. We should know before anyone. But I understand we may not understand the nomenclature that is used in the report. Still it stops my heart everytime... I log into see if anything has been posted yet. 😞 like seriously? We go through enough. My turn to complain apparently.. lol0 -
Finally!!!!!! I had one of my nurse friends look into it and I just got a text from her. Nothing new in the scan. Nothing new anywhere. I'm officially still in remission! I can't even believe I can breathe again. I go to see him (onc) tomorrow and then I can, look forward to staying the course on ibrance. 25 month here I come! Ty you ladies for the support. As always, ty for being here! Much love ~M~
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Micmel!!!! Great way to head on into the holidays & new year!!! So happy for you!!!
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Micmel, yea!!!!!!! Great results!!! Onward and upward!!!! Am very happy for you! Hugs!
Lynne, yes it’s much better today, thanks 👍 One of the reasons I’m on a chemo break is due to neuropathy, so am thinking nabelbine might not be fun!!
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Thank you very much for the well wishes. It’s turning out to be a very good day! Phew
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Ladies I am glad to hear all the good news on here. I had a beautiful Thanksgiving with all my family and my extended family on my husband's side. Huge group of family and friends.
I found out yesterday that my I R doc wants an MRI of my liver. So I will be having it very soon, way before the PET my MO ordered. But, I'm actually happy about that. After my scare in September, I've learned that MRI is the more definitive scan for liver mets. There were four tiny lesions on my September MRI, it makes sense that he wants to FU on that. My MO tends to rely on him alot. His experience in reading scans is way more extensive than hers. So, they are working together. I'm thankful for that.
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Hi Grannax, glad you had a good Thanksgiving! Will be praying for you that the scan looks really good
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Pots, great news. Celebrate!!
Melissa too. Stable, that's the way to go!!
Have my date for scan on 28 December. Not going to even think about it till Christmas is over. Our daughter sent her Dad his first present. An advent calendar of Pork Scratchings. A happy man for 24 days 😂
Lynne, those boys look like fun x
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Melissa, awesome news for you!! Very happy for you!!! I know what a relief a good scan is! Now you can really enjoy the holidays!!
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Yea, Micmel, celebrating with you! May this be the beginning of a very happy holiday season for you!!! (How's your dad doing?)
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Grannax~I am glad you’re seeing a IR for this liver issue. I had one perform my biopsy and he was great. Maybe they are thinking ablation? I have heard its a very good way to handle mets! I had a liver resection myself. Best decision I ever made, although the surgery is tough and long to hear ... it’s good to see you here. Was wondering how you were doing !
Minnie~Thank you very much. It means a lot to be able to leave this cancer behind for Christmas. Exactly what I wanted. Of course we all want it! Cure is what we need! Sleep tight. Gonna get cold here. 61 one day and then 32 the next.. perfect set up for a round of new colds to go around. I’m off to sleep.
Waving hello to Gracie! Gn friend. 🌷
~M~
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Tanya~those are beautiful pictures. Wow. Look at those mountains. I have always wanted to go to Arizona. My brother lives there. It's dry heat and hot hot. As usual I am in awe of your travels ! Be safe beautiful lady. And who is the gentleman in the photo with you? Hope you're having a blast.
Lynnwood~Thank you sweetheart. Relief is exactly the word. I was starting to panic. Waiting for results will drive anyone crazy. Your mind goes to places. As we all have. Experienced many times over. Ptsd is real! I see onc tomorrow, so I'll get my refills of ibrance, and be on my way. I'm going to sleep sleep !
JKL~It has made thinking about the holidays aloteasier. More off of my mind and more able to focus. Now just to come up with the money needed. Things just are so expensive. It sucks ass. My dad is holding his own. My two kids are going to see him this weekend. I took a break this week. I was tired and with blood work and scans it was too much. So maybe next week. Thank you for thinking of me. It means so much!
Much love to you all. ~M~
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