My Husband, My Life, My Love, My Family, My Cancer
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Grannax - I hope that you are able to get some resolution to the issues with your DD tomorrow.
Lynnewood - maybe I missed something, but don't the scans show where and how large your mets are. Why does the doc think there may be progression now? Will you be getting different scans that may give more of an explanation. I'm with you in thinking that if Ibrance has been working, why the thoughts of changing? It is so hard changing TX.
Minnie and MarianElizabeth - thanks for posting the beautiful picture. How special that you got to meet!
Mae - loved your mountain pictures. Just breathing that fresh air must have felt so good. And the cancer card, lol! It sure would be fun to have one of those handy!
Micmel - I hope you are feeling better and being gentle with yourself. You do so much for so many. If you need a break, don't feel guilty.
Parry - always thinking of you and hoping for your comfort. I was at the doctor this morning and thinking of you and how unhappy you are with your MO. I feel blessed that I have an MO that is not only treating my cancer, but treating the whole me.
And speaking of that, time for another TX change, but I think it will ultimately be for the better - I hope! The CT scan showed that the largest liver tumor has grown to 10cm. It is pressing on things and causing pain. She had told me it might be time to bring on the big guns, so I am going on 4 treatments of A/C (pending an echo cardiogram). She practically guarantees that it will shrink the tumors and relieve the pain. The best part about it is that I will be done on May 30, in time for me to head out of town for 5 weeks for our annual trip back east. Hey 50's girl, I'm coming your way. We always spend 3 weeks at Newfound Lake in Bristol, NH! Anyhow, I digress....while I am away, she will give me a break from any treatment at all. I am so looking forward to feeling normal for a while. What a huge gift. When I get back, she is launching a trial that she wants to get me into, but if that is not ready to go, we will discuss the next step then. I have heard that A/C is not easy, but I am ready to go through it knowing that I will be getting a significant break on the other side. If any of you have thoughts on coping with A/C, I would appreciate it. Of course, losing my hair for the third time is ugh, but oh well.
Finding joy......
Donna
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Hi Donna, the onc thinks I’m having progression because my tumor markers have been on a steady rise for about a year and a half. My markers have always been accurate for me. My onc says that the bone scan shows where the mets are but not how active they are, only a pet scan can show that. I’ve had about 8 ct scans and an MRI to try to find the reason and all come back stable. Frustrating! I’m glad you will be getting a break off of chemo just in time for your vacation! Sounds like a lovely trip. I know you will love feeling normal again. Sometimes a break helps so much mentally!
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Thanks everyone. Glad to hear from those of you doing well getting out there see places and meeting new friends. I’m shocked and sad about Shelia and the many lately.
Donna I’m so glad to hear from you. I was shocked and saddened by your deep hole lost and wished so much i could reach out and hug you. I’m 31 right now and was just so struck. To see you keeping on even in the face of this disease helps ease some of the pain and guilt I have about leaving my own family. Thanks for the recommendation...I’m just more motivated to get to Texas and find a MO there. My MO at UCSD has always been great about how she goes about treatments and me and everything, but lately it’s like a coin flipped and I just think she is overwhelmed. I saw her Monday. More progression and she didn’t have an answer for my next option just that she is working on a trial I might qualify for. She doesn’t want me to stop this chemo yet in case it’s slowing things down. Asked again about chemo if this trial doesn’t go through and still nothing solid. Pushed her again and she said maybe Xempra.
Grannax I hope the meeting with the counselor goes well and not the fight it might seem like it’s gearing up to be. I’m sure the counselor has more understanding about hot chemo can mess with us and I hope she give DD a wake up call that you have some big things going on in your life that can effect many different aspects of your life and she could use some flexibility in understanding what you are going through. You don’t need this added bs stress from family no less!
Aside from the progression this last weekend was scary. I woke up and felt so off I couldn’t put it in words. I was in tears with DH saying I think I need to go to the ER. I didn’t tell him but it felt like if I went in they wouldn’t let me leave. Turns out I was pretty anemic and hitting nadir among other things going on. Feeling much better now. More good news is MO raised my pain meds and I was able to do some laundry yesterday. I even go some new clothes I can wear instead of just sweatshirts to cover my messed up chest & bandages & f’d up boobs (both are just a mess) so that raises self confidence a bit.
Take care ladies
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Parry, glad to hear that you are feeling some better. Better pain management makes a world of difference! I hope your onc comes up with a plan for you. I so hate the uncertainty of it all! I’m a control freak and this is the one thing that I can’t control despite me trying to anyway! I got some new clothes this weekend too, nothing fancy just a few t shirts that kohl’s had on sale for $7.99. I have such an issue with clothes, I’m tall, fat, and can’t have too low of a neckline because of my mastectomy. Quite a challenge!
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Donna~Hi there darling, so very nice to see you and I have been thinking of you and your family. Sending many hugs your way. Hope you have large pockets for the team to crawl in for support. It's so frustrating when they have things to say that are mixed bag... you don't know what to think. Good luck tomorrow and I hope you get some solid good news. You deserve it!
Minnie and MarianElizabeth~The scenery is breathtaking and that blue delicious looking water blows my mind. I'm so happy you two ladies could meet. Funny how things work out. Even when you're so far from home. So nice to see you beauties! Little cutie patootie as well! Abigail!! Love the name! Be safe for the rest of your trip. Hugs to both !
Lynnwood ~I hope you get to stay on ibrance. I hope they continue to watch closely and change another element. You've done so well. Maybe it's be anti hormonal that isn't doing the trick alongside of ibrance. My onc also said to me that xeloda wouldn't be my next treatment. He told me there were many others orally. He knows I am not in the market for iv chemo ever again. That ship has sailed! I am thinking nothing but good thoughts for you my friend.
Joe777~I honestly hope that isn't a myth because I've read it also. We have to have something to believe in! Ugh! Good to see you 💐
JFL~Hello lovely! Hope all is well in your world. Always good to see you here. Ready for spring? I know I am. But only the 55 to 65 please for a good long while. Too hot is also never good !
Lynne(50's)~Hello beautiful!! Hope you're feeling well and knowing spring was official should help, but aren't you on tap for some spring snow? I sure hope not!!
Grannax~ I am right by yourside with the family swirling issues. You're not alone. I'm appalled when people think of all a sudden they have obtained a degree in mental heath, PTSD, depression and every side effect we could get from not only chemos. But combined side effects from all the shit we go through, and all other medicines we take! Unreal. You keep your eyes wide open and try to remember you have Effing stage four cancer they should be so very very ashamed of themselves. Like I always say you only Get one mother. I wish these damn kids would wake the hell up and realize our time is limited. The way they chose to spend it, is baffling me. It's semi happening to me too, except I'm the crazy cancer lady. But that is ok. I'm allowed to be. Having cancer will change how you act from day to day. Sorry people get over it! That's what I think. ! I wish you many easier days ahead. Don't let them gang up on you. No way! You don't need that stress. Hugs to you my sweet friend. Remind them that they are making you feel manic. They won't leave you alone. Who says you're not having a hard time living knowing that people don't understand the hell we live in. How even one good day makes us so happy. Poo poo on them!
Muddling ~ always good to see you here. Hope you're well my friend. Goodnight !!
much love ~M~
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Parry~I am glad to hear that you seem to have better pain management. That makes all the difference for sure! I am speechless at all you have been enduring this past month especially. I can understand if your onc is overwhelmed, but then they consult with other oncologists and they discuss it as a group for a more deep approach with everyone's opinion. I would keep the communication and concern directly in their laps. There must be another way to beat it back. Thinking of you! Goodnight!
Gracie~Missing you!!
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Hi Micmel! Spring is interesting where I live as winter is our ideal weather. Tropical climate here in South Florida. I look forward to spring for longer days and for the summer for the streets to quiet down when tourist season is over. However, with summer comes hurricane season and constant 93 degree days. Today it was uncharacteristically "cold" at 74 degrees. All is relative. I came from NY where anything above 20 degrees in the winter felt "warm". Our blood seems to adjust to the temperature where we live as I truly feel cold when it is in the low 70s now. Strange for anyone in a normal climate to hear, I am sure! However, on the flip side, I have grown comfortable running in 85 degree weather and can even tolerate 90s for a few miles. When my sister, who lives is a temperate, somewhat moderate climate teases me for feeling cold when it is 70, I remind her about the running as she can't run in anything over 65. I started a clinical trial last month of an FGFR inhibitor and had a stretch with some tough side effects and extreme swings in my bloodwork, but hoping everything is under control now after taking a break from the medication, which I will resume at a lower dose on Friday.
I am sad to hear about Sheila. I suspect that Kaption is no longer with us as well. Her last post was the end of November and I know she wasn't doing so great before then. I think about how amazing it is to see how everyone has honored Patty (Peppermint) while she was with us and after she went to heaven. All one has to do is look at her dedicated thread to see just how much people have honored her with their thoughts and well wishes. I saw today that her thread is still active, despite the time that has elapsed since she left this world. I find myself thinking that everyone who has passed here deserves that same level of honoring.
Grannax, I hope things resolve with your family. I am surprised the Tramadol was causing rapid speech and "upper" symptoms. However, one never knows how these medications will effect us. I had some issues on Afinitor with insomnia, heart pounding, and too much anxious energy (although at the same time feeling a bit weak/fatigued; can't explain it). I take a medication for treatment-induced fatigue and had realized I would need to significantly lower the dose had I stayed on Afinitor. Given my time on Afinitor was short-lived at three months, I didn't need to do that. It is amazing what an impact these medications can have on our energy levels and different bodily functions and, by extension, personality and communication in some respects. It must be so frustrating and heart breaking for those impacts to be questioned as MDD or something else. I have a close family member with MDD and trust me, it goes WAY beyond rapid speech and other more superficial manifestations like that. One cannot begin to comprehend the extent of MDD without seeing it firsthand.
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Hi everyone, I am not a stage 4 patient but something I just read prompted me to post... "I wish these damn kids would wake the hell up and realize our time is limited."
So.... my step-daughter's mom was diagnosed stage 4 de novo in 2006... at the time, my step daughter was in college on the opposite coast, and I know her mother was intentionally very "light" about her diagnosis, kind of downplaying the seriousness, and shielding her from worry, so she could focus on school, graduating, etc. And in fact, she did very very well with treatment for a long time and things were not serious in terms of SEs, nor life threatening. Given these 'oh it's not serious yet' cues, our daughter did not phone to check in frequently, because her Mom had brushed the seriousness to the side, and downplayed it, and that was the message she took in.
Over time, this light attitude on the part of our daughter bothered her Mom more and more (which she shared with me). In a way it was extremely hard for her to switch gears and say "now I really need your support, this is terminal, this is scary" and so our daughter was stuck in a little happy cloud of denial that her Mom actually had set up to begin with. When her Mom did finally share it, she was at a point of anger and disappointment -- and that felt rather unfair to our daughter, as she had been misled somewhat and felt like her lecture was coming out of nowhere.
Anyhow, she is a good person and she clicked in, and became more regular about checking in-- taking things more seriously and being more available-- and then *more years* passed of things not seemingly getting any worse or any better. This too was hard on our daughter (like: is it an emergency, or not??). She was on the hook as the closest relative and supporter of her mom through something long and chronic and she was only in her 20s at this time. (It's an emotional marathon for our supporters too.)
Then her mom's condition got worse, and I was a witness to the worsening as I was on her emergency call list etc. I had stepped in to help because our D was living out of state for work (a job her Mom had encouraged her to take) and I knew it would take pressure off her if she knew I was keeping an eye on her Mom. I could see her mom's condition was deteriorating, but her Mom still was being stoic and not admitting it (not to herself even). So I phoned to say, "I think she is in serious condition, and you should come visit," which our D considered "overreacting and being a downer" since it did not jibe with the "I'm fine!" message her Mom was giving her. But she came to visit for two weeks, and I was so glad she did, because her Mom passed away very suddenly a few months later. Nobody saw that coming.
This was in 2014. In 2018, I got diagnosed with BC. My daughter has been supportive and kind, but not particularly attentive. My sons have been incredibly attentive. I just know it is my D's history with her bio Mom and the long haul of her Mom's treatment that is affecting her. (Her Dad talked to her and he told me she said, "how can this happen again, how can I maybe lose both my Mothers??") I am not angry about it because I can see where this comes from... She spent her 20's as a cancer patient's supporter and now it's her 30's and the same rigamarole happens with her step Mom... I get it. She is replaying that experience, she is in denial, and she is waiting for an 'urgency' signal from me... plus she is in her own feeling of crisis and worry.
Part of me doing my rads near my D was to have some low key time together and enjoy her company without it feeling like an obligation or a crisis. It has been nice to feel close and to enjoy time with her.
I am sharing this story to say when we are sick, our kids definitely have their own internal crisis... they may use denial as a coping skill and if so we may feel ignored. They can be carrying a lot of invisible weight we may not realize-- just as we carry invisible weight they do not realize. Both parties, the sick person and the family member of the sick person, have a lot of fear and pain to contend with. There can be a role reversal the kids are not ready for, which might prompt anger. Neglect may be an unintended consequence of denial and frozenness. I have seen this in my family... So I offer this story to say, your kids may not intend to be callous but they may have some scar tissue protecting THEIR hearts that comes off as callousness when it is actually denial and numb fear. Or a "why am I the only 25 year old with a mom in stage 4?" feeling of unfairness.
We can get a lot more of what we want by being vulnerable rather than stoic or angry. Try not to convey "I'm fine" if that is not true. I think it's probably most important to say, "our relationship is very important to me, and I would like to feel closer to you and let you feel closer to me; how can I help that happen?"
SB
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JFL~I Hope you're feeling more stable with your blood work. I known this is all so. Exhausting... I am sick of being sick and tired of being tired. I need nice temperatures. But one thing I don't like is mud!! It's everywhere. The dogs feet. The back yard. Every where.
I agree that everyone should be honored. It makes me happy to feel like that is our place to talk to her. I hope she knows how loved She is. They all are.
I am convinced. Ibrance has taken my fingerprints away. I am noticing they are slowly fading and other dry spots and cracks are appearing. I could use a gallon of lotion., and it just soaks it right up like no ones business. Wow! Lynnwood, did you or do you have this ?
Hope everyone is well today raining here so it's raw and a little chilly. Went back to docs, pluerisy has morphed into a bronchial infection and sinus infection. Glad though because my lungs have improved. Bam! Hopefully, I'll finally kick this. I'm getting sick because of the constant exposure of germs from the hospice unit while always visiting my dad. How complicated does this seriously need to be just so I can visit my dying father? Ugh so difficult just trying to survive.
Much love to all
You too Gracie! ❤️ Waiting for you!
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Santa~Thank you for sharing your story and thoughts about this subject. I am going through it heavily now. I have always allowed my young adults. (22 and 23) to be apart of the doctors visits and chemo sessions so they could see it for themselves. I would never want to say I am fine when physically and mentally I'm not. My son had been in denial since my diagnosis. He just never allowed it in. The other night he did. It was a terrifying, beautiful moment. He was very honest and scared. It made me want to fight harder. It's just a terrible disease and it absolutely effects everyone differently. There is no blue print to follow for any of this. That is why I have to love unconditionally. I need to. Thank you again for the look at each possible feeling and perspective of everyone. It's important to remember the ones left behind actually have it the worst in the end. That is what scares me and breaks my heart the most. Much love ~M~
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Santabarbarian - thank you for your thoughtful post. You brought up a lot of good points that I will be reflecting on. As a Mom, my first thought is to shield my children (even tho they are adults) from pain. And I think I am a little guilty of downplaying the effects of this disease with my daughter. She is two hours away and doesn't have to live with it daily. I generally try to be upbeat and energetic when we are together. She is in the fourth year of a doctoral program and is so busy and stressed with her own challenges, I don't want to add onto that. She was matched for an internship starting in August in Pittsburgh, and will be moving across the country. I want her to feel comfortable doing that and not to think that she should stay in CA because of me. We had a long talk last night on the phone and I told her about my TX change to A/C and she became very upset. Although she knows the diagnosis, has even been to several doctors appts with me, and we communicate on an almost daily basis, she feels cut off and distrustful that she is getting the full picture from me. She also admitted that seeing me lose my hair again is a trigger for her because it is a visual reminder that I am sick. I tried so hard to be understanding and open to what she was saying and to acknowledge her feelings, but the conversation ended with a lot of things unresolved and vague. Your wise words, and your first hand experiences, have given me food for thought on my part in this. We have always enjoyed the most wonderful of mother/daughter relationships and I am determined that stupid cancer will not get away with interfering with that.
Donna
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Hi everyone,
I don’t post here often (or ever?) but wanted to get in on the action, say hello and give hugs and love.
Life is complex, isn’t it?
I am sorry to hear about our communities recent losses
Last night I took my mom (who is 73) to dinner and to the theatre 🎭 it was a sweet mother daughter night! We ended up discussing which states it is legal to have compassionate death (euthanization). It turns out my mom has already researched this pretty extensively (for herself!) and we both agreed that if things get too uncomfortable for either of us (or my dad, who is 75) that we will seek this route.
Interesting convos to have! Important. I am so grateful that she’s on top of this! Felt like a relief to talk about it.
Love and hugs,
Brenda
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Hello LovefromPhilly~I am in the burbs of Philly! Small world. Huh!? Welcome to our little family! It’s always nice to see your smiling face. I had seen you and your positive spirit on other threads. It’s always nice to officially know someone is local to me! Hope you’re avoiding the rain drops today. Hugs and love right back! Hope to see you around here again. And oh. 🥂 to a wonderful mother and daughter memory making evening at the theater! 🎭!! Sounds like heaven honestly.
Hello sweet Donna! 🌹🌹 much love !
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Micmel, yes to the fingerprint trouble! I was in a store trying to use the fingerprint thing and couldn’t get my fingerprint to register. My husband kept laughing and saying I just wasn’t doing it right and teasing me for being so technically challenged. I never connected it to Ibrance until I read of it here! We are not alone in this. The tips of my fingers are very rough and dry.0
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Santa, Donna and Micmel and Love from Philly ( I’m 20 minutes south of Philly) thank you for your stories about our children. .My kids are young adults, our oldest has Aspergers which is a challenge itself. We have always told them from the very beginning that we would never lie to them about what was going on. We always say, what we know, you guys know. I know they worry and they show it in their own way. Our youngest face times me every night although he lives a half hour away and we see him twice a week. Our middle son calls me on his way home from work “ just to check in”. Our oldest lives with us and is always wanting to help me. We all have Sunday dinner together every week, along with my mom, brother and sister in law. This year for the first time in years, they have all rearranged their schedules so that we can all take a short trip to the shore this summer together. Micmel and love from philly... Wildwood . Their Xmas gift to us this year was a 3 night stay at the hotel we have been staying in for 30 years.0
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Philly and its suburbs are my hometown. I live in LA, but grew up in King of Prussia and then in the Northeast. Went to HS in center city. My fave cousin still lives in BlueBell. A lot of other have movedto the shore....mostly in ventnor. So, I love LA but I will always be a Philly girl.
Sunset
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sunset~Small world for sure! Outside of Doylestown for me!! Love the wooded areas. Born and raised in burbs I love the area for sure. Give a holler if you're ever traveling to visit favorite cousin!!! I'm about less than an hour from Kop! Busy lil place now, huge malls. Homes. You name it. I kinda like your beach idea for sure... I don't do well in the sun. Anymore but I could donn a big floppy hat and an umbrella over my head with a tropical 🏝 drink 🍹 in my hands! Hugs to all!
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Santa, thank you for posting. I'm the one minimizing things for DS. He lives several hundred miles away and I don't want him to worry yet. Then, illogically, I feel neglected, lol. I'm going to stick with the same program though. I'll know when to sound the alarm.
Parry, hugs and hopes for a new plan.
Philly!! Good to see you here.
I feel bad. Like you Micmel, I'm sick and tired of being sick and tired. Don't know how long I can keep it up. I'm trying.
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I feel like everything on me is backwards. Ugh0 -
..... we gotta a pouncer folks!0 -
Donna - I just finished 7 rounds of ac and I guess I'm still here to tell-
My doctors didn't give me an echo before bc it was simply put the liver is so bad the heart isn't priority. I'd probably die from one or the other if I didn't try the ac combo. I did just have an echothis week and I do have some issues from the chemo. Normal LVEF is 55-70 or 75, can't remeber, and mine is 48. So it did cause some damage but nothing of huge concern.
I did find, for me, the ac chemo was easier than abraxane really. It took a lot out of me and I did have a week in the hospital after the first round. I had a fever and low low, scary low red and white blood cell counts. Low platelets and then low potassium. Every round of chemo I then went for two bags of blood. I'd say that was maybe what made the ac easier bc I kept blood counts Up then.
It was a long haul but my cat scan just showed some spots in my liver we're a bit bigger and some a bit smaller. It wasn't the magic I hoped it would be. My tumor markers went up from 40.3 to 44.6 and the heart issue on top of it made the doctor feel I got all I could from ac. It basically ended up just holding me stable is what it came to. For many it does magic. I'm so waiting for my magic chemo!
I am leaving to see my son tomorrow in Colorado Springs. My daughter has spring break and I'm ready for a vaca! I'm on a chemo break till I get back and it scares the hell out of me. I told the doctor it worried me bc I feel these liver mets are aggressive. He said that the ac chemo could have at least halted the aggressiveness if nothing much else. He told me I need the break, I need the time off for counts to recoup, and try to leave cancer behind. He said sometimes time away is the best thing of all.
So, I'll be starting halaven when i come back. Anyone who can lead me to some good threads for that, please? Any tips or ideas for help?
Good luck with the ac. I never slept much more than normal on it. I'm kind of weird i guess. The only one so far that made me want to just lay down and sleep is abraxane. Sounds like halaven will do the same to me though.
I'd just like another long run on a chemo. I don't care if it keeps me stable it's better than bad news.
Stupid liver of mine, just cooperate!
Thinking of you all everyday as we travel our road. Up hills, down hills, around the corners we go. Sometimes the road is closed for construction or IT may have detours but we keep traveling and hoping to never get lost. Never run out of gas.
Sarah
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Skitz....your liver is on my shit list. At least the AC did something even if it wasn’t magic. If I find some magic I’ll lend you some ❤️ I was on Halaven for a hot minute, it wasn’t bad at all for the short 30 days i was on it. I tried to look through my saved forums as there is one titled Halaven. Some nice ladies who are on or just starting as well. I hate how casual my MO can be about being on treatment. Every moment feels like the cancer is growing why aren’t we doing anything? It’s a hard head space to be in. Damn it’s nice to feel ok for a day or so off any chemo...that tantalizer of what life used to be like. That feel good time helps me muster some strength to keep on. Keep hoping for some magic. You can’t find it if you don’t look right? So fill’er up cuz neither of us is done on this nightmare road trip.0 -
parry- why do they think the halaven didn’t work? I’m getting one dose a week for two weeks and then a week off. So did you really only get two doses? I did read it messes the liver numbers up so it might be hard to go by that.
Sarah
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thank you for the welcome friends!! And a giant hug out to my Philly people!! I live and work in Center City. Maybe one of these days we can have a little BCO MBC meetup???
Micmel love that cat pic 😂 that cat is ready for action!
Happy Friday all!! Hugs 🤗 hug
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Hello Skitz~I always said I would never do AC chemo ever again myself. Also told the heart suffers. Next time I may ask. What doesn’t suffer?! Then we can start with that! The entire experience has sucked. I hate it. I catch everything and it pisses me off. Greatly. Another rainy raw day here today. Pouring rain. I’m still recovering. Sometimes I wonder why my DH loves me like he doesn’t. I’m always sick. I hate that word too!
Philly~ I would LOVE LOVE. To have a meet up. Lynnwood? You interested also, you’re in the realm of locality as well. I would be honored to meet you all. It would make, making this thread even more worth it. I would be so grateful for the chance to share knowing such wonderful ladies . Ty for the suggestion Philly!!plus the weather is getting nicer So they say lol
My dream is to meet my Chelle.... she and I have become sisters in the sense that not one day goes by without us talking. I speak to her DH regularly with her on the phone and we all three laugh. I call her mother mom! She’s my angel gift. I always figure if you have the chance to share sometime with someone who really understands, its a blessing. I would really love that!
Parry~Hello beautiful! I’m still working on that magic wand. I wish I was a magician 🎩... one is my first tricks would be to take away our cancer. If I were a genie with three wishes. You absolutely know that money would not be really be any of my first choices. It would be cancer for sure and alteimerzs (sp) and any other terminal diseases. Because I’m sick of seeing people suffer. I love you Parry my sweet friend. How is the research going for a second opinion ? Third? Fourth?
Gracie..... still waiting. I texted Gracie and she had her Brain mri. She didn’t go into too much detail. Other than saying her feelings were hurt we had not asked about her. I told her we love her. And would be here no matter what. We are always here. We just may not catch every single thing. I realize with myself i haven’t been up to date. With my dying father and his sickness I cannot shake. It’s been hard to get out of bed.
Grannax~Has terrible issues going on. With her family and we all have battles we fight. When we coming together here. It’s to put down our feelings and let them. Out. I hope you’re doing ok darling. My dd and I are like two cats with claws pissing each other off!!!
Mae~ hope all is good !0 -
chiming in to ask if you wouldn't mind sharing any myths or misconceptions about MBC you may have experienced since your diagnosis. Go here to list them, if you don't mind. Thank you!!
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It’s nice to see such beautiful connections being made here despite the reasoning. I have a hard time truly making friends because I feel like one foot is already out the door and I don’t want to hurt anyone else. Micmel I envy your big loving heart, but I know it’s also a curse. My chosen mom is the same way. Thank you for all your love 💕 the second opinion is waiting on my disability application, which then leads to Medicaid and then to the place I’d like to go since it’s the best closest to where we are moving. I wish it was a clearer more direct process. Some good news my bff/sister are planning a girls trip to glass beach and the big redwood forest. I can’t travel too long or far so this trip is hopefully not too much. I want to have a heart to heart with her. I know she is a crazy strong person mentally and emotionally, but she’s struggling. Her and I were all we had for a long time and with our backgrounds not many people relate. I am making her a box with letters and such as well as my husband. It’s spring so I imagine how green it will be 😊
Hope everyone is doing ok out there!0 -
love you right back Parry!!!! Hoping you and your DH are having a Good Friday evening together
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Good evening all
Gracie since Micmel has been reaching out to you constantly I was just waiting for a response from you. Didn’t realize you needed more but I understand.
Take care
Tanya
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waving hello to Tanya!! Hope you're all recovered from your vacation. Those Hawaii pics were something else. I think Lynne (50’) went last year if I’m Not mistaken. Or Grannax. Can’t remember! Ugh chemo brain 🧠 is a thing for sure. Goodnight beauties!
Gracie. Still waiting
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