My Husband, My Life, My Love, My Family, My Cancer
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I second that vote for 50sGirl and Grace!!
Regarding how often I get scans: I may be one of the few folks on here with a different-style/approach MO. We are using the approach: let's use my breast as the "canary in the coal mine" as well as following my symptoms of any new lumps bumps or symptoms that could imply progression. UNLESS of course I want more frequent scans.
I have had the scans upon my original diagnosis in April 2017...then follow-up scans in October 2017 which showed the treatments were working...then next set of scans was not until October 2018 (one year later)...
In Jan 2019 I had a neck MRI so we could see if I was cleared to do physical therapy to address some neck pain. The MRI came back not looking too good so I had a follow-up bone scan in February 2019 which showed that the MRI had picked up on old lesions that are now sclerotic and healed, so I got the green light for PT on my neck.
All that said - I feel like I am ready to get a fresh "base line" with another round of CT scans. I am planning to do this in late May or early June.
It does give me some level of confidence (?) that my MO is so comfortable with waiting so far and in between with the scans.
We are aware that Ibrance generally lasts for about 3 years for most people on it, prior to progression. I am on now on cycle 25...so this information is in my brain that progression could be now or within the next one-to-two years.
Love and hugs to all on this beautiful sunny spring day!
Philly
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I second that vote for 50sGirl and Grace!!
Regarding how often I get scans: I may be one of the few folks on here with a different-style/approach MO. We are using the approach: let's use my breast as the "canary in the coal mine" as well as following my symptoms of any new lumps bumps or symptoms that could imply progression. UNLESS of course I want more frequent scans.
I have had the scans upon my original diagnosis in April 2017...then follow-up scans in October 2017 which showed the treatments were working...then next set of scans was not until October 2018 (one year later)...
In Jan 2019 I had a neck MRI so we could see if I was cleared to do physical therapy to address some neck pain. The MRI came back not looking too good so I had a follow-up bone scan in February 2019 which showed that the MRI had picked up on old lesions that are now sclerotic and healed, so I got the green light for PT on my neck.
All that said - I feel like I am ready to get a fresh "base line" with another round of CT scans. I am planning to do this in late May or early June.
It does give me some level of confidence (?) that my MO is so comfortable with waiting so far and in between with the scans.
We are aware that Ibrance generally lasts for about 3 years for most people on it, prior to progression. I am on now on cycle 25...so this information is in my brain that progression could be now or within the next one-to-two years.
Love and hugs to all on this beautiful sunny spring day!
Philly
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Lynne~I guess for me it's paralyzing fear and the thought of leaving my family. I am also very angry. I need to be strong to help my Dad and I feel weak. I realize I have limited disease, I don't always know the exact way to convey how I feel all the time perfectly either. I get angry for seeing such pain here with friends, and seeing good people roll through treatments. It is a crap shoot... we don't know how any one treatment will make us feel, or any of the side effects. Every time I come near scanning I fall into a hole.. I miss my own. Strength. The aggressive treatments I have had, have done some damage to my feet, fingertips, and spine area. Which is where one of the Mets are located. So for me it's a matter of unlucky placement. But luckily it is limited disease. But I still heard my oncologist say , “someday cancer will take your life" Sometimes that plays over in my head. My hormones are wrecked and when I start to do anything physical. I sweat embarrassingly in front of everyone. If i sit too long my spine hurts, if I stand to long, my spine hurts. If I move the wrong way. It's very painful and causes sciatica pain down my Leg that would stop a train. So while, yes. I may have limited disease, I have some damage from that aggressive curative intent.
I also am not sure if Ive ever mentioned, that I had a full liver resection in 2016. I had a tumor removed that was the size of a pencil head. They went in and searched my liver for any suspicious looking further issues. I had 65 staples across my stomach. My nerves don't feel anything around that scar area. It's actually quite painful, when I twist and bend. It's the middle of my body. I have had 9 surgeries in 2 years. For different things and I have a separate disability that isn't cancer related. I also, only breathe on one lung. Due to a complication from one of those surgeries and have to be placed on life machines to assure I make it through any anesthesia surgeries. I cannot feel my right arm from a tubing accident, that tore my entire shoulder cavity out of the socket. So I do tend to get down sometimes. Living with extreme pain in every area of my body. It's very difficult to explain sometimes. The pit each and everyone climbs out of sometimes. I try to be supportive and loving. But sometimes. I also like to have support and be loved. I try hard to be optimistic, I'm watching my father die and I'm trying to process this as well. I apologize if my words made anyone feel uncomfortable or if I've made anyone feel like I only see negativity. Somedays are just not enjoyable no matter what I try. I do like your suggestion of. Adjusting or rolling with whatever comes along. I hope someday I'll get there. For now. I have to cry when I need to cry and vent when I feel angry. You are good with your words and I appreciate your heartfelt posts so much. I may not be as good with words as you are , but I sure do try !
Philly~ you always make me smile. I had heard that term before. Several times as well. But I never really applied it to myself. I guess it's because of all my other health issues. Sometimes they roll together. Hope you're feeling well today. The weather was odd. One second looked like buckets could be coming down, the next a little warm.
I hope everyone has a Good day. Seems the rain is coming! Hugs to all!
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Micmel! Oh my dear girl! Now you listen here. This is me giving you a lecture in the most loving way. You are weak? In a pig's eye! Not a hope in hell that you are weak. I will tell you what weak is. Weak is when you just quit. Quit moving. Quit caring. Quit trying. Quit brushing your teeth or tweezing those horrible hairs out of your chin. You are tired - but that is not weak! You are ill - but that is not weak! You have physical limitations - but that is not weak! Your body might be tired and hurting so bad. (I hate that!) But you are the bloody screaming opposite of weak! You are there for your family. You rose to this most extreme challenge of rekindling a relationship with your dad at the most difficult time both of you have ever faced. Weak!? Are you kidding me with this stuff? You are impatient with being tired. You are scared about the future. You are enraged at the stupidity of it all and doubled over with grief at the thought of leaving your loved ones sooner than you hoped. NONE OF THAT IS WEAK! You run this thread like a well oiled machine, your mind is sharp, your posts are on point, your compassion and support are unsurpassed. Weak?! Girlfriend ... shaddup with that shit! You are down - rightly so - but down is not out and you are most definitely not out!
Did your Oncologist tell you that cancer will take your life? Who gave him the crystal ball? He can't say that for sure and you shouldn't believe him. Let's briefly examine other REAL threats to your life and limb that exist daily. Walking past a golf course a hurtling golf ball clips you on the noggin at 300 miles an hour. Lights out for you. Not cancer. You are trying on lingerie at Walmart, doing a suggestive private dance in the change room for your Hub when one of those monster overhead fans let's loose and flattens you. Not cancer. You are grinding coffee beans and accidentally get sucked into the grinder and pop out in the other dimension that exists on the other side of coffee grinders. Not cancer. The world is a dangerous place, people are sitting ducks. We die in some very basic ways but also in some spectacularly stupid ways. You might consider taking up NASCAR racing for example. Or juggling dynamite. If you were immune to every other life threat (watch those damn golf balls!) your oncologist might be right. But he isn't. You are a child of the universe and the universe can get up to some tricky shit. We are all at risk all the time. Thus I grind coffee with great care.
I know you are down, it breaks my heart. I know so many feel the same way. I do to sometimes, more often than ever before. I wish I could hug you all into betterness. Let's just all walk into the universe with greater awareness around golf balls and coffee grinders. Feel the love.
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Micmel, I am afraid that you have misinterpreted the intent of my message. I was not trying to make you feel bad or have you think that you are handling things inappropriately. I know that you have in the past and are now living through very difficult situations. I am not diminishing the impact of that. I was just trying to give you some hope in light of the information posted by Bestbird. I also tried to answer your question about why we try so hard. It was probably a rhetorical question that I shouldn’t have answered. I am truly sorry that I offended you. I don’t ever want to do that again, so I will keep my nose out of your thread. I know that mbc has an emotional impact on all of us.I wish only good things for you.
Hugs and prayers from, Lynne
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50’s, please don’t leave the thread. We all take comments/intentions differently, heart to hearts don’t always translate well in text.
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Runor~I was reading with an open mind and heart. How fitting it would be you that would
Post next. The sweetest poster (Lynne) followed by the raw honesty and bitch slapping of reality in both of your words. I guess the weakness comes from being a cardio nut and a toned body of strength that could lift 100's of pounds at age 45. Fast forward 4 years. Dude I'm physically weak lol. I do appreciate you pointing out the things I have been able to accomplish and show me that I do have something left inside my tank. It certainly is the worst and most difficult time in both of our lives. Our family lives actually every single one because of this cancer. I am for sure frustrated with my traitor body. I appreciate the solidly honesty and different views. It's why I love this thread so much, because I want people to speak how they feel, what they see. Think , share different things that at my weak point you can kick my rear end back into gear when maybe others in my family couldn't. I thank you for the friendship and kindness you both show by telling me as you see things. I can't argue with some points that's for sure & I also value you both very much. 💐💙
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Lynne~ Goodness me. I am not one to get offended honestly. I have my moments to where I look in the mirror and don’t recognize my own face. The more I go through this that harder it seems to get. I thought I would adjust better to being limited in what I can do. Instead I find it harder and harder. This Is your home, I don’t ever want anyone to ever worry about sharing what they see. Believe it or not some of your points I was shaking my head thinking she’s right I do tend to slide into my bad place. I do tend to wonder why we fight so hard. So I certainly would NEVER want one of the kindest sweetest women who post on BCO to leave any thread for any reason. I honestly wasn’t offended. I was just listing my horrid history on display, it helps remind me of why I sometimes do get scared and angry. But I am sending my apologies if it was misunderstood how I had taken your post. I don’t think you have a mean bone or thought for anyone if I am honest. I will leave it in your hands. ❤️🦋
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nobody leave!!!!!!
I love the rawness and honesty that everyone is sharing!! It feels like “home!" We are commutating with love!!! Passion!! Compassion!! Empathy!!
50sgirl - i definitely did not read your post in the eyes that I think you second guessed yourself being thought of. STAY!! 💕💕💕💕
Micmel - thank you for sharing your story with us all! I did not know the details and wow you've been through some sh@t woman!!! That's a lot for your body to take on in 4 years!! No wonder why you are tired and in pain. I always tell my patients who undergo surgeries to give themselves a LONG time to heal. Everyone wants to jump up and be healed so quickly. But the body reminds us: we must rest. We must recover. This is why our bodies fight with us. Sometimes we are healedbut our bodies still want us to never forget the story that goes along with the scars. So sometimes our scars ache and shoot painful reminders to our brains' memory centers.
At the same time, when we rest and have a stage 4 diagnosis, we also may feel like we are losing precious time that is allotted to us. Since it feels to many of us as if we have a time bomb ticking away - counting down the minutes, hours, days, months, years till our time is up. So why rest even if our bodies are aching and in need of deep rest? Who wants to sleep and allow life to just pass us by?? We must keep moving. When we stop, do we wave the white flag and say I give up?
I wish it wasn't true but being on these treatments feels to me like every day is a little more of an effort. I don't remember feeling the pain of simply the push of arising out of bed to start the day. How can that hurt so much and be so hard? I do not remember feeling this way so deeply before. Is it all in my head? Yet I look and appear like a regular mortal human doing the same as everyone else. Simply, in photos of myself I feel that I look less “rosy cheeked" and “sparkly-eyed" than anyone else in the photos with me. I feel like MBC has stolen a piece of my spirit or life that once sparkles and yet at the same time replaced it with a stronger, wiser, more wrinkled with laugh lines and intuition ability to be more set free in some odd way.
Oh my goodness I am rambling...love
You all!!!
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Parry, I just wanted to chime in on the social security. With stage IV we are automatically eligible for expedited approval effect from the last day of work. I think mine was approved in 4-5 weeks with payments beginning five months later. I did get help from the financial counselor at my cancer center. Your center may have a resource that can help you get it straightened out. The key point (which is difficult) is you have to check the box that says the disease is going to kill you. It sounds like they messed up if the sent a check and then withdrew again. In any event sounds like you need to get in contact with them and straighten it out and you should get any arrears. I wish you well dear one. Tough to read about your challenges. Hugs
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I hope 50's doesn't leave. Her posts amaze me with their wisdom and grace and utter diplomacy.
Micmel! Did I bitch slap you?! Well hell's bells, it's been a while since I did that to anyone. I'm feeling quite invigorated. Like maybe I want to put on my man stomping boots and get in a bar fight. Well. I'd have to put on lipstick for that and I'm too lazy so maybe instead I'll just open a bottle of wine and recline on the sofa and ponder what a badass I am.
There is so much to weep over. For good reason. Sometimes a chuckle is the only thing that can cure a tear. SOmetimes you have to be silly, not sad. God knows the sad is real and seeps into every crack and crevice of life. I think we all suffer from O.D.D., optimistic depressive disorder. It's when you have a real reason to be depressed but have to find a way to be optimistic anyway in order not to collapse, face down, in an unmoving heap. It's a real thing! You all know it!
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50s, mine is liver and bone, hope it was treated aggressively! Like you, I try to live with Cancer. I aim to see my grandkids grow up. I know my life has changed, but now I adjust my life accordingly. Not always easy to do. Please stay positive ladies x
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Runor~sometimes I need a good dose of reality. No worries. No one said maybe I needed it. To keep me Grounded. I never in a million years would want anyone to think, that we can’t share our deepest and darkest here. Or our happiest moments as well. I do not take things to heart. I love you guys. This is my Second home. I try every day to think of something positive. But sometimes it's just nice to have people here that won't let you be alone and or tells you like it is. I appreciate that. More than words. So it wasn't anything than my chuckling. Like you said! Man kicking boots. I own a pair-of them, though I haven’thad to use them yet! Another day another chance to see the sunshine instead of just feeling the cold. ! Thanks for the wake up ladies
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Hello MBC sisters and husband of,
Enjoying 2 wk vacation in Florida with the family and my sister. first time on computer. Thinking of all of you and will write much more detailed post soon.....
Mary Jane
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Micmel, your days are legit just like mine and everyone else's. Here's the thing: today might be cruddy but tomorrow will be better. Or vice versa. Both are perfectly real. My days can swing to extremes in both directions a few times a day.
Lynne 50's, please stay. I treasure your posts and more than once you've talked me in off the ledge even if you weren't aware. Plus I want to hear from you, get your updates.
Happy Friday everyone.
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.....This is where I want to be. Please ? 0 -
micmel, summer’s almost here, have a beach day!
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I am sure going forward, to start to try. The thing is my father and his care is demanding. Today he was almost attacked by his roommate, he was hurling wheelchair legs through the air and assaulting the nurses and aides. They had to call the police and remove him in a stretcher! My father had to Be removed to a private room for his own safety. Was really upsetting for sure.
Have a great Friday.
Muddling I agree. We all have our days. I know I do. Perhaps more than just days. More like seasons. I do well then I don’t mentally. It is what it is! Hugs ladies. And much love. !!
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Hello Everyone. I hope this weekend day greets you beautifully~
Grannax I'm glad my long posts don't bother you (or hopefully anyone else). I tend to ramble! Everyone here is at different points in treatment, some points you or I may never cross. That variety is part of what I think makes BCO forums my place for many reasons. I truly hope your journey doesn't look like mine. It's a big wish for everyone to get to NEAD and not have complications. I care about all of you guys & gals and wish I could make it all better. In my next life I want to be a fairy godmother and say F U to everyone's cancer or illness. The X-Men idea is great! Any way to visualize the cancer being killed or dying is a positive in my mind. I have this one big skin met I've named Big Bertha so I have a name to curse at, lol. I like to see my scans and US so I can imagine the chemo and diet and everything else destroying the tumors. When I had SRS for my recent brain mets I payed there imagining a Star Wars like battle going on. Pew pewpew PePew. My MRI Monday showed the tumors shrinking so that was amazing news! I hope they go away completely.
Daniel that's just great news despite the ongoing seizure mystery. Hugs to you both
thanks for the info on SCWilly....it feels surreal, but now I'm thinking all of the people I've made connections with here will be there on the other side. I once heard someone say make your treasures for heaven. I didn't understand for a while, but I think they were talking about people since I don't think I'll need nice clothes and items over there. Muddling glad your b-day went good. Mexican food is one of my favs. We have this place here called Tacos El Gordo and just mmmmm. I could drool if I didn't know better, lol. I'm still waking on this pain management bull. Next week I see palliative care again. Oh, thanks for the compliment about our new comforter. So far I'm loving it. Not too hot or cold, plus it so bring and cheery and intricate. Hope you are well and everything is going good. Hugs
Minnie thanks for the thoughts
I think about you, and everyone really, often and just pray pray pray things get better for everyone. I feel like we are sisters (and some bros) in arms stuck in a trench together just trying to survive. No one really gets what we go through so I have a special bond with everyone here. JFL that is damn crap news, but at least you had a good run. You can do it again and who knows maybe a NEAD is in your future
the mini dose of Halaven is weird...why even bother at that point? Dorimak I get scans every 2 months unless some symptom or SE has popped up. Usually it's a MRI for brain and CT for torso. Yes, the risk of another cancer due to the added radiation exposure is a concern, but my MO said the benefits outweigh the negative especially with my prognosis. So, they scan the heck out off me and I don't mind knowing what the enemy is doing in there. Thanks for the SS info. We are just going to go in and talk to someone. I have 6 letters from them all saying different things. I did call yesterday as one letter said I needed to pay back a check I just got. Well the lady I spoke to said I was approved and should see my first real check around the 23rd....but then I have letters saying I'm not approved and it's just a mess. I wonder if my age has something to do with it, but I finally got the letter from my MO saying I am permanently disabled so that will help my case. Thanks for the well wishes
same goes to you!Micmel you are an amazingly strong woman. I know people who have gone through less and could use you as a role model in grace, dignity and a sense of humor. This cancer thing does get tiring. It's ok to not be ok too. You can't expect yourself to be perfect and good with everything always. I hope you can find a happy medium between dad and yourself. I haven't been face to face watching a loved one die, but my family is watch me and I can say that just them being there to talk to or visit means so much.
Skitz I'm right there with you! Stupid cancer.
Runor you make me laugh with the lipstick thing! For me it's if I have to put real clothes on and not just pj's or athleisure wear.
Mary Jane your trip sounds lovely. I'm glad you get to enjoy it
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Speaking of trips I had to cancel the redwoods vacation. Ended up in the hospital 🏥I couldn't stop throwing up - even my own saliva. That means I could t take any of my meds and you can't just stop hard core medicines. Well the staff at the hospital apparently didn't think of that so I was throwing up and going through withdrawals. It was a hoot....NOT! Home now and I can keep soft foods and liquids down. I think it was from my last chemo. I'll be stopping the Gem/Cis since we now have my MRI results. I do have a situation I could use some guidance on. So this trip was supposed be my sister and I. I specifically planned it to stay in my state so if I needed to go to the hospital it wouldn't be so bad since I have state health insurance. Anyways, I tell her what's going on and I just got discharged (I convinced them if I could drink some juice and keep it down I could go home, haha it worked!). She asks if I cancelled my flight yet and if I didn't I could still fly to SF and she could pick me up and drive to Reno,NV, our hometown where she lives, and go do fun stuff all weekend. Dude I just got out of the hospital...I'm lucky to take a shower standing up. Then she said she could come here in a few weeks and we can go do a ton of stuff. Again I don't know how I will feel or what my treatment schedule is or how sick I'll get. I don't understand where she is coming from. I don't just have a cold. This is serious stuff and I need to make sure I take care of me and that usually doesn't involve days at the beach or going to the Zoo. Making it downstairs and out of bed is what I call a good day and I've expressed all this to her since we talk everyday almost. She knows how sick I am and how hard things are. Why would she think I can just go paint the town red? I'm not sure how to bring it up since I thought I was pretty raw with my exact position with my health. Am I being a baby getting upset about this? Anyways, mom and dad came down and it's so good to see them. They are such a big help. They cleaned a lot of the hose and back patio. I haven't been able to do any of that and the hubby plus his brother from another mother...well they are young guys so you can imagine how clean they are or how everything has a home it goes back to and not just crammed in where it fits. I could go on for days, but I'll spare y'all the rant, lol. It's nice to have s tidy home. I just miss mom & dad and wish they weren't so far. I've lost 30lbs and mom got mad and said she is going to come up often to make sure I'm eating and doing ok. It takes a lot of stress off hubby to know she is here too. Oh and another mini rant. So hubby called to cancel my flight, the flight I paid extra to be able to cancel, and they wouldn't refund me or even give me a credit. It was through Alaska. I'm so disappointed since they have always been a good airline for us, no issues, good service, ect. I guess I'll have to call and have it out with them. Grrr ....another thing on my plate!
Micmel in honor of your pics I'll share some I took on a recent drive up to Bakersfield to see the family.
Take care everyone and have a good weekend. Stay safe and warm inside if you are on the east coast.
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Parry~Hello lovely woman. Those pics are exactly where I'd like to be. Just in awe. Looking around. Feeling so small In the grand scheme of things. I am sorry that you had to cancel your trip. I know exactly what you mean about going anywhere really. My two closest friends wanted to go have dinner with me and my DH. I just couldnt sit there. I was tired. I couldn't go. I got the pic of them smiling telling me they missed me. I missed me too. I try to stop always feeling like I Am in constant grieving, I realize thats because I am. A lot of people just don't get it. They think we shouldn't feel so tired all of the time. Um sorry. Fatigue is the number one cancer side effect. I would call that airline 10 times a day and get 10 different people until you get your money back. Stress. “ I have stage four cancer. I was too sick to go?" Pull that cancer card over and over and over. Honestly, it's the only thing that has been even close to helpful since being diagnosed, is sometimes pulling that card helps. Sometimes they stare at you, or a quiet pause comes over and silence fills the phone line. Like we have one foot in the ground already. I call them people stew-pit!! Don't give up on that refund. And your disability. Never !!!!!! Hugs lovely lady. ~M~
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good morning Parry. I have a sister like that too. You've got to be really direct with them. My sis didn't want to believe that I was terminal. Always..."something will come up and you'll be ok." Well, I'm not gonna be ok. And I'm not gonna be ok sooner than later. So I laid it out for her. She cried hysterically..... but she needed to know the raw truth. And now she can take this journey with me in an appropriate manner.
My liver is literally covered in tumor. Doc says without intervention... 3-4 months. The last two chemos failed. I haven't given up. We are gonna do Y90 to hopefully get the Mets under control...then probably Abraxane. I've been living with metastatic breast cancer for EIGHT years. I realistically can't go on much longer. Doc says two more years is optimistic. So .... there it is. My expiration date. In 8 years he has never said this. Doctor Postive has always said I'm gonna live a long time. Now that it's taken over my liver...he's not so positive anymore.
I also have an appointment with Dr Nagourney next week. I remember Z mentioned possibly giving him a try. I don't think she did. I am lucky to live near his facility and my husband actually knows him personally. He's very unconventional, but he has been known to bring a few people back from the brink. So, we'll see about that too.
A Beautiful Sunset
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My younger sister (who is actually a very good sister overall) was in so much denial during my treatment. It's partly the cliche that sick people "need visitors" Or need "cheering up." No, sick people need rest, food, clean sheets, love, and minimal demands. A postcard is very good! My sister wanted to visit me but due to denial she had none of the sensitivity or awareness (or cooking skills) needed.
I am the elder sister, the protector between us. She is highly competent, and gets a lot done in life, but somehow needs me to be the caregiver between us interpersonally. She came to visit me, and then she took nothing in hand... did not organize or initiate anything like a meal or a trip to store... and finally I had to pull my beanie off, point at my bald head and say, "do you not get it that THIS is how sick I am, and how sick I feel? I do not want to have to whine about it, or give you instructions about everything, nor have to advocate for myself-- I want you to just know I am sick, and proceed to assist me in a low key way or not come. The only visitor I want is one who lightens my load without needing to be instructed about it." She was hurt ... but ultimately she did hear me.
The irony is, she is great with cats! Just no clue about caregiving to humans! She is baby of family and never had kids, which might explain lacking practice with caregiver skills.
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Parry, glad to see you posting and big congrats on the shrinking brain tumors!
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Wow I go away for a bit and so much is going on it’s hard to catch up!
After a/c put me in the hospital for 3 days, I had one more blood transfusion and got on a plane with DH the next day for Wash DC. We had a wonderful time. The city was bursting with springtime color, so green, everything budding and growing and so full of flowers. Went to our dear friends 70th birthday and had a blast.
Then it was off to Boston. We took the train and it is my favorite way to travel. Met my sister, BIL, and 2 nephews and took in a Red Sox game. My DH can make things happen in such amazing ways. He started talking with an usher, and next thing you know we were moved to front row seats, right on the field. It’s probably hard if you’re not a baseball fan, but being in those seats was everything, and Fenway Park and the staff were awesome. As a bonus, they took us after the game onto the field in front of the “green monster,” the left field wall:
We even got to see the inside where they still hand change the scores on the wall. It was a special day for me!
I went to the game with hair, but when we went back to the hotel and ran a brush through it, it all came out. I have thick hair so it was a lot! This is my 3rd time losing hair and the other times it was a lot more gradual. I keep thinking of the poor cleaning staff who probably wondered what the heck happened when she emptied that trash can the next day, lol.
Got my second a/c on Thursday and things seem to be ok this round. MO did reduce the cytoxin so hope that will help.
For everyone going through rough patches right now, know that I am thinking of you and sending positive thoughts.
Donna
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Ahh, I love Fenway Park. I lived walking distance when I was in Boston for school. I could hear the cheering crowds during the playoffs from my window. It was amazing.
Parry, for the record, I love your long posts, too!
Parry and Santabarbarian, I have had my fare share of family issues and them being completely clueless about what is going on. I totally relate to your experiences. They don't get that I am not going to be around forever. They think because I look good and still work that everything is fine and dandy. One bit of humor is a few years into my mets diagnosis, my parents asked me to be a backup executor of their will. I accepted as I laughed to myself in shock and confusion as to how they didn't get it. A quick Google of "stage 4 breast cancer" is enough to clue them in that this is not a disease that just goes away on its own and that my life expectancy is much shorter than theirs, despite the fact that they are in their 70s. It was too crazy to even warrant a response to their lack of understanding. My siblings still don't get it. I may need to have a come to Jesus talk with them soon - "I will probably only be around for 6 months to 2 years so plan accordingly. Despite how good you think I look, the prognosis is the same. Oh yeah, and I am one of the lucky ones who "beat the odds" and made it past 2.5 to 3 years."
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Beautiful Sunset, I'm sorry to read of your liver progression and hope formthe very best for you as you move on to the Y90 treatment. Big hugs for you.
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Wishing all of my friends here a lovely Easter or Passover. I love you all and pray for all of us daily. ❤️0
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Happy Easter 🐇🐰🐣 and Passover to all the awesome friends here. Thanks for the love and support and sharing.
Peace,
Donna
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Happy Game of Thrones Sunday. My neighbors just put up a House Stark banner and I love it!
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