My Husband, My Life, My Love, My Family, My Cancer

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 600

    that's so cool. I want one

  • illimae
    illimae Member Posts: 5,738

    micmel? You missed yesterday, you ok?

    Donnabelle, traveling after 3 days in the hospital is quite the display of determination, hope you found enough energy to enjoy it 🙂

  • skitzblitz
    skitzblitz Member Posts: 153

    Donna, glad you had a good trip and amazed how Much you did after round one of ac. It does get better as you go on. Keep drinking and drinking and drink some more water. Flush out as much of the lovely red as you can! Make sure to at least get up and move around the house as often as you can. The killer for me was low red blood counts that lead to weak legs and harder breathing. Climbing steps felt like I climbed a mountain. I did lots of transfusions which are a breeze and a couple platelet transfusions. Keep eating to to keep up the strength.

    Quiet thread today! Michmel missed roll call, not like her! Hope u are ok girl.

    Hoping for halaven tomorrow, such a sad thing to hope for.

    Parry - how are u doing? Your sister must be related to my bf. I keep telling him, you have no clue or you just don’t get it or you’ll never understand and I hope you never have to. He thinks bc his two parents died of cancer he gets it. I understand watching people go through cancer but you never understood their fear and sadness and the stupid crying over everything you think about every day. He used to complain that his dad cried all the time over nothing, for no reason. I get it! He had his own reason in his head. Something he would miss, someone he would make miss. Whatever he cried over, it was real to me.

    I think our feelings beat up as much as, if not more, than the cancer itself.

    I hope everyone is as well as they can be.

    Sara

  • JFL
    JFL Member Posts: 1,373

    Skitz, sad indeed when we find ourselves "hoping" for chemo. I have had the same thought when I find myself mentioning my "favorite" chemo and the chemo that "I love" and "wished I could have stayed on forever". We live in a different world here, one that is a bit twisted.

  • micmel
    micmel Member Posts: 10,055

    Hello Ladies I am here. Exhausted from my Dad. Had a lovely Easter with. My DH making me a precious basket with the sweetest card I have ever seen!! Made me tear up of course. That’s what he does. He is so romantic and loving. I cannot imagine how we all can be so lucky in ways. And unlucky in health. Love to all! image

  • micmel
    micmel Member Posts: 10,055

    Mae~ Stillivin~Dodgers girl ~ skitz~.

    Thanks for asking about me. And for the private messages I received after only one day. I appreciate that you care. I honestly do. It means everything to me. 🦋🌈🌹

  • ABeautifulSunset
    ABeautifulSunset Member Posts: 600

    Welcome back, Micmel. You are a popular woman here. We all noticed you missing (in just a day!).


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    Afternoon Tea at a fancy shmancy hotel with best friends #bucketlist

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  • illimae
    illimae Member Posts: 5,738

    wow, beautiful pics!

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Hey Ladies

    Beautiful picture sunset.

    My sister, her two grand kids and my niece drove from North Carolina this weekend to visit. It’s been a beautiful time. They’ll leave in the morning. I had my Pet scan today. I was distracted by company so minimal anxiety.

    Glad you’re back Mel and that you had a nice time this weekend.

    Tanya

  • holmes13
    holmes13 Member Posts: 192

    I hope that everyone had a wonderful Easter! Here are my granddaughters after their fun Easter. They are my pride and joys. I am so thankful that god has given me another year with themimage

  • micmel
    micmel Member Posts: 10,055

    omg such perfect innocence ❤️❤️ Throbbing. Heart filed with love. I pray I get to share such joy. But for now. I’ll live through you wonderful ladies who have that amazing experience! Here is my grand puppy image

  • holmes13
    holmes13 Member Posts: 192

    i have a pit bull and pug mix. sorry i don’t know how to shrink the pictures imageimageHe's adorable!! i have two dogs. A pug mix and a pitbull.

  • micmel
    micmel Member Posts: 10,055

    lmao is that a bagel in his mouth?? Lol precious puppies

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,019

    awwwww beautiful pics of children and puppies!!

    I want a puppy soooo badly. My building does not allow pets but my psychologist is happy to write me a letter that says I am allowed to have an emotional support dog.

    I could definitely get through the red tape, would take some steps and some $$$.

    I worry about the financial costs that a dog would have, as I am really in no position to spend money on an animal as I can barely take care of myself financially at this point.

    I’m still trying to negotiate this one in my mind

  • micmel
    micmel Member Posts: 10,055

    I have had my two for years now, way before my diagnosis. My Deeohgee was 8 weeks old when we got him. He is now 10. Our tag we thought was the same age, but now we are thinking he's older than we thought. He's slowly fading. He's had 3 strokes. They are a lot of work. They wake me up every single Morning and they bark all the time. But they love me good day or bad. Bad mood or. Not. Sliding down my hole of pity, they don't judge or stare At me, not knowing what to say. They do love unconditionally.. that's what makes them so special. But it is a big commitment. They become like children for sure.

  • illimae
    illimae Member Posts: 5,738

    holmes, your pug is adorable but I must say, the white pitty is just stunning! DH and I had a fawn pit and after he passed, we got English and French bulldogs. We’re dogless now but not forever 🙂

  • micmel
    micmel Member Posts: 10,055

    imageDeeohgee is saying hello as well!

    Miss you Lynne!

  • skitzblitz
    skitzblitz Member Posts: 153

    I'm not one to talk about my cancer and I'm not one to call everyone and let them know how my appointments are and my latest news. My bf however seems to call everyone all the time with the latest appointment. To me, it is my choice who and what I tell. I am just this way, keep to myself.

    Last week my bf's

    friend called while we were driving to work. He said to the friend “ here I'll let you ask her" I get on the phone and he tells me all about a fund raiser for cancer and how there is a survivor parade Friday night. They ride in their semi tractor and announce your name as a survivor. I said sure I'd love to ride with you.

    As time passes, it has been three years now, I'm happy to be a survivor. I'm thankful for three years. I'm proud of myself I held up this long.

    It's funny how this has changed my perception of things in life. Some days I have an I don't give a crap attitude. Some days I'm glad I got this far. Some days I want to just give up this whole gig. Some days I wish I could pass this burden off to someone else for awhile. Some days I tell myself if my grandma who is 99 can do it, so can I!

    Some days I just wish I didn't talk to myself at all, lol!

    I have a lovey suck cat! A few times I thought about getting a little dog I could take to work and the lake and home with me.

    The little white place is my summer cabin. It's about that time where I go every weekend and let go of everything thing else in my life. So quiet and relaxing. Once school is out we stay a lot during the week. Gold carts and side by sides are all we use to run around. A simple life!

    Tanya- crossing my fingers for you for your scan!

    Michmel glad You had a wonderful Easter, very cute card!

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    Sarah

  • micmel
    micmel Member Posts: 10,055

    Donna~I have never been to Fenway Park. Wonderful pics, memories to remember .....you look wonderful.... I miss being able to travel so much. Love seeing your smile. Hugs to you beautiful!!

    Sunset ~wow some gorgeous ladies at that dining table!! What magnificent food you had. Yummy oh yummy! Looks like a hotel I'd love to go to!! My favorite place ever is Cameron estates.. in mount joy pa . Look up that bad boy. It was the first place my DH took me on an over night. He's romantic! My sweet !

    Mae~ Hi honey. Thanks for being there ! 💜 and caring.

    Tanya~Hi beautiful one! Hope your weekend was a relaxing one. Hope the family is well! Always love seeing you here. Big hugs.

    Holmes~Hello lovely. Those pups are precious and I have to say I love dogs I'm crazy for them, I've even warmed up to pit bulls. Beautiful!!!

    Philly~Hello sister. Hope the parents are doing well!

    Skitz~Id love a stay at that cabin!! Looks serene and peaceful. Just what I honestly need! My dogs are driving me crazy. My one dog is getting senile and barks if I drop the remote. Running into things including myself. I'm afraid I'm going to fall at some time! Which is scary to feel unstable. When are you going to the cabin? Pictures please ?! Lol

    Love to all. Gracie .. Lynne...

    much love ~M~

    JFL~Waving hello to you! Hope you're well!

  • marianelizabeth
    marianelizabeth Member Posts: 1,156

    Donna, the Fenway Park photo made my week!


  • micmel
    micmel Member Posts: 10,055

    I know we all feel this way at one point or another. But it doesn’t make me feel anymore smart. If anything it makes me want to. Hurl! image

  • JFL
    JFL Member Posts: 1,373

    I fall into the ruminating bunch but never associated that with my intellect!

  • Grannax2
    Grannax2 Member Posts: 2,387

    runer You nailed it! That's what I have optimistic depression disorder ( ODO). I have a name, at last. That's why I like to be silly. How enlightening that you just figured this out for me. That's why I'm the grandmother who let's grandchildren throw confetti eggs at me. Even my son and my SIL egg bombed me. They know they can, because I like to be silly. They don't know why. I hope they never do. Just have memories and pictures oh Granna being silly and laughing.

    Yes, I had a wonderful peaceful day w my family. I'll post a pic. Such a relief after over two months of strife. But, my DD, informed me it's not over. UGH More counseling she says UGH I'm sick of counseling. Or should I call it Confronting. Same thing I think. When I go alone it's not but when the group came it was.

    So, I'm one week out on X. Yucky would describe my week in regard to SE. That's mostly the reason I haven't even posted. The first 3 days was diarrhea and complete misery. My DD thought I was dying, I looked so bad. I told her it was just SE. So I did get better but constant nausea, dizziness, taste changes have stayed with me. And a few surprise SE thrown in. X has way more SE than I realized, just hope it will work.

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Grannax I hope your SE’s subside. Sounds miserable. Also praying that X does the job.

    Hello ladies and Daniel!!

    Tanya

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107

    Grannax, I’m a newbie on X too and took it for 8 days before I had to go off for a non cancer related surgery. Starting back on Saturday. I felt exactly like you described! Very nauseous, weak, tired, no motivation and the diarrhea came on the last day I took it. It took 4 days after my left pill before I started to feel better. Not looking forward to start back. I took Ibrance like a champ with tolerable side effects. X is certainly harsher. Wishing both of us an improvement on the cycles to come

  • micmel
    micmel Member Posts: 10,055

    ladies. Sorry about the madam X. I was hoping she would be gentle. Maybe a reduction would help you both. They tend to alter that when it's too harsh for you to handle. Looks like this weekend we may be facing putting our Tag down. He's been with us for over 12 years. But this morning he would not go downstairs. I'm really worried. This may just be his last weekend. 💔 s hard, they become my family! As you all well know ! 😞🐾🐾🐾🐾

  • Grannax2
    Grannax2 Member Posts: 2,387

    image

  • Grannax2
    Grannax2 Member Posts: 2,387

    Family Easter pic. Pretty good for a selfie.

  • micmel
    micmel Member Posts: 10,055

    Grannax~Loving seeing your clan smiling together. I’m going through some odd things with my father and step mother and this new dynamic. Seeing that pic gives me hope. Things can be civil and good. Thank you for sharing you beautiful woman.


  • Donnabelle
    Donnabelle Member Posts: 140

    Oh Granna, what a beautiful family picture! You all look so happy and together. I hope for you that it will continue harmoniously.

    Thanks everyone for the compliments on my Fenway pics. I may live in CA now, but I grew up in Sudbury MA and you can't take the Red Sox (or Celtics or Bruins or for that matter even the Patriots) out of the girl. I love the spirit of the Boston fans. And singing Sweet Caroline!

    Skitz, thanks for the tips on how to handle the A/C. I am having a hard time this week after the 2nd treatment last week. I am going in for blood work tomorrow to see if I need a transfusion. I hope feeling this crappy means that it is working, but who knows. I still can feel my enlarged liver and have had plenty of back pain on that side. Also, that cottage by the lake looks so lovely.

    I am looking forward to heading to NH on 6/13 for three weeks by a lake. It's in the middle of nowhere, no TV, very spotty internet,etc. we play a lot of cribbage and scrabble and cook awesome meals. All 4 of my sibs will be there, as well as my 92 year old Dad. Harking back to an earlier topic, of my sibs (3 sisters and 1 bro) it is my brother who keeps up with me the most about cancer. Two of my sisters, who I used to think were very close, haven't called or asked about how I'm feeling for months. Even while I was with one sis for 2 days in Boston, she never asked once how I was feeling.....and my hair was falling out at the time. I'm hurt and baffled, but don't feel like I am going to blather on and on if they don't want to hear it. I have a lot of support from my husbands family and friends so I count my blessings, but seriously, what gives?

    Holmes, those girls are just precious. I want some grandchildren!

    And Sunset, I want that tea! My DD took me for mother's day a few years ago and I felt so pampered and just love the little sandwiches and scones.

    Tanya, good luck with the scan. We will hope for only good news.

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    So here is our dog Gonzo, a Boston Terrier of course! All in all a great dog except for his stinky gas, lol! And yes, he is on a Pittsburgh Steeler blanket, because they are my other NFL team.

    Have a peaceful, worry free day everyone.

    Donna