My Husband, My Life, My Love, My Family, My Cancer

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  • Gumdoctor
    Gumdoctor Member Posts: 618

    Rosie - Thank you for asking about me. I started Xeloda (oral chemo) last Saturday. This is day #6 of 7 in cycle 1. SE's are slowly creeping in. Today, my feet finally got the hand and feet syndrome memo and feel like they have been torched on the bottom. Walking is painful. Also my lips are getting into the game...I have a kniwn lipstick allergy. They are doing the same thing with Xeloda - tingling then swelling. I have looked like a Kardashian wirh lipstick before. They are not that bad yet...but it is cycle #1. Fatigue, of course, is ever present. This is very different from AI and Ibrance fatigue, for me at least. I feel like I am in quicksand...physically and mentally. Hoping it will all settle down and I will adjust sooner than later.

    Philly and Micmel - You are not alone in these low days. Somehow they pass and then we are reminded why we are going through all this treatment...not the low days but for the high, glorious, spectacular days and moments. Even if they are few and far between, they make it worth it to hang in there. Please hang in there...

    Gumdoctor

  • runor
    runor Member Posts: 1,615

    Micmel, I've been cleaning horse tack, rubbing soap into leather, running the cloth down the length or reins and around the turns of the headstall. And thinking.

    I hope you don't feel that my 'humorous' posts are flippant or not recognizing of the serious and tragic state of things in your life (in all our lives!). All I can do is base my words on my own life and own experiences and I share what I actually do and what has helped me.

    Life is hard. Bloody hard. It is so full of hurt that it's amazing any of us have kids knowing what they're in for. A whole bunch of ways to suffer and hurt, some that we haven't even imagined yet. That is the truth and reality and the way it has been since the first caveman picked up a rock, dropped it on his toe and discovered gravity (it was not Newton, it was cavemen!). So life is hard and we hurt and we often have REAL reasons to feel REALLY shitty.

    BUT... are we stuck there? If you get up one morning and put on a pair of pink, fuzzy slippers, are you committed and obligated to never change those damn slippers? Do you have to wear them every minute of every day, no matter what you're doing, no matter if they are appropriate footwear or not? NO! NO! You can boot those pink, fuzzy monstrosities under the bed or throw them out the window and you can PUT ON NEW SHOES!

    Sometimes stuff gets so black, so bleak and crushing that people break. We can't break. Others depend on us. For most of us breaking is not an option. Yet we place ourselves in grave peril of breaking completely by never ever stepping out of our pink, fuzzy slippers.

    Putting on disco, dance and sayi to yourself, GODDAMNIT ANYWAY, TODAY I AM NOT GOING TO LET ALL THIS SHIT SUCK THE JOY OUT OF MY LIFE! I am not suggesting that you can, with pure mind power, wish away the truths and realities of your life. No. I do not support delusion or avoidance. However, now and then, for personal maintenance, to keep the engine oiled and running, I do support temporary suspension of grief. Temporary blocking out the bad. Saying NO to those leaden feelings that have made life bland and tasteless, joyless and gray. For one day you have the permission, power and absolute right to just say no to feeling like hell. FOr one day you can put your hair up, slap on your brightest lipstick, squirt on that perfume you're saving for 'good' and put on the stereo and shake your groove thing. Or call friends and go out for a piece of cake, with a sparkler stuck in it! You can paint your nails and announce, literally into an empty room if needed, Hot damn I'm good looking! Tell the dog. Better yet, put on a 50s style housework show for the dog, wearing a dress and high heels, narrated in that voice that all 50s housewives had on tv. Wash dishes while wearing rubber gloves up to your armpits and SMILE for the camera. Be crazy. Be impractical. Be naughty. Be absent from all that pain. Just for a day. It will all be there waiting for you when you get up the next day. Do it because we older folks know that disco can heal things in a way that grunge metal of today never will. Do it so you face the suffering of tomorrow slightly renewed, slightly better, and with better rhythm than the day before.

    I say none of this in jest. I say this because life hurts. We have reason to grieve. We also have reason to put on some music and dance around the living room.

  • candy-678
    candy-678 Member Posts: 4,172

    Hey all. Just checking in with you all this 4th of July evening.

    Philly--- I totally get the feelings you posted about. Some days I feel so emotional. And some days I just feel plain sick. Today I stayed inside my cool quiet house with my cat. Reading, watching TV, and on the computer with BCO. Yesterday I was talking with my sister and was discussing my plan for "retiring" from work due to the MBC. We were discussing some options for volunteering in my area since I will be out of the workforce. Today I was reminded of why I am "retiring". One of those days of fatigue and kind of nauseous/dizzy. That "I feel unwell" feeling that comes over me sometimes.

    I hope you all have a good evening of fireworks, food, and friends. For me, inside with a good book. Hugs.

  • jensgotthis
    jensgotthis Member Posts: 673

    Philly, I wonder if the nurse forgot to warm the Xgeva bottle....or maybe she hit a nerve during the injection or wasn’t slow enough. Pain from the shot is like a rotten cherry on top of an ice cream sundae.

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,019

    Thank you friends!

    Candy - you make it sound so delicious and no apologies! "For me, inside with a good book" I love it! I am SUCH an extrovert typically that I have a hard time settling down and "in" and I want to be out and about and in the center of the party. But having MBC has forced me to listen to my body like 100% and not ignoring the signals anymore. I need to rock the staying home and lazing around like you do.

    Jensgotthis - Yes! Andi also suggested this on another thread. I am going to ask about it next time. Very annoying shot yesterday. And I think simply the lupron and aromatase inhibitor just makes me dang moody sometimes. But heck, this is way better than before I started the Lexapro, LOL! So praise medications!!!!!!!

  • micmel
    micmel Member Posts: 10,055

    Yndorian~I hope you had a good day today. I hope that it wasn't too hot where you are. Although, what temps are you experiencing this time of year ?

    Rosie~ a 3 week road trip sounds lovely. I know that I always tend to Panic and worry how I am going to feel. Every week is different. I think it sounds awesome, DH and I have spoken of one for the past year. We're just going to have to do it. I hope your trip is amazing. Can't wait to hear about it.

    Philly~I also went through something very similar with my oncologist nurse. She was there the day I found out serious this was. She's been my friend also. Gosh I know that feeling. It's almost like you are shocked that that connection changes, just like some other Effin things cancer does to us. I got her number and we still talk she gives me hope. The XGeva shot sucks. Sucks worse without Claritin, I know when each of the nurses are going to take care of me. Luckily if i don't tense up at all. It seems to be ok. Im sorry yours was an ouchie!!! I rested indoors also today air conditioned and happy. Humid yuck. So good for you. You, we all have to be good to ourselves. !!

    It was hot outside and my DH wasn't feeling too good. So we opted for Chinese and Tomorrow were going to have steak and scallops! Yum! I am going to break down and shop with him, poor guy always makes sure he goes for me. I’m going to go heat or not.

    Always thinking of you Gracie. She’s gone text silent so I’m worried and I pray one of her children picks up her phone. I text every day. Small things of course. Hearts flower

    Hope everyone has a goodnight sleep

  • micmel
    micmel Member Posts: 10,055

    Gumdoctor~Thank you for letting me know that you have experienced the feeling of it being just so exhausting to basically think sometimes. I am better for sure. My DH is home. I love that. He's amazing. We laugh. I love to laugh . It is the little things. I know someone said that today. I think I got a hold of this funk. Geeze keeping my ass from going nuts is hard work (I'm kidding DH and family keep me grounded) but sometimes you just gotta scream in a place no one you want, can hear you. A place where Only people Hear you that really understand. Amazing thing right there.

    Runor~I never find anything you say worriesome or anything but honest and quite frankly usually right on target and you and I have known each other long enough now, that you know I don't really take advice or suggestions wrong. I welcome them. So I appreciate you taking the time to even want to help me. I hate how the emotional shit puddles appear and you have no way to avoid the flies. I listened to some good music yesterday and it did feel good. So I in turn feel better!

    Candy~i hope that feeling you spoke of has passed. I get it usually when I wake up from a nap. I don't know why but for the first half hour I feel like a zombie. I'm hoping your dizziness subsided. Mediations certain weeks get me. Drink a lot of water. Feel Better! Please ?

    Jensgotnthis~all I can say is ouchie!!! That hurts terribly. My side effects from that lasted months. It was crazy pain. Geeze I hope they didn't hit a nerve. It finally went away. But I wanna lucky because I got a port. I can't imagine women receiving chemo and giving blood a lot not having one. My veins would blow in minutes. It was torture. I'm sure you all know to well.

    I hope everyone sleeps well ! Gn

  • candy-678
    candy-678 Member Posts: 4,172

    Morning all. Slept well last night- up once to pee- even though I did nothing yesterday. Good grief.

    I too, like Philly posted, used to be social. An extrovert. Loved the get-togethers. Good food, good conversation. But that too has changed. Like so many other things. I just don't feel well enough physically anymore. And sometimes I just don't want to have to explain things to people. The other day I went to my nephew's birthday get-together. Of course, people would come up to me and ask how I am doing. I mumble "doing ok" or something like that and change the subject. It is just easier to be at home than to have to face that type of conversation all the time. I know people care, but I just want to be my old self. Yes the book yesterday in the A/C was nice, but I also envy others that are out and enjoying the Holiday.

    Micmel-- "Keeping my ass from going nuts is hard work"--your quote is so true. I feel that way sometimes too. Sometimes I just have to chant to myself, "I am ok. It will be ok." over and over. Thanks for the concern you posted about me. Doing better this morning so far. Hope it continues throughout today. I just hate how I feel anymore. Best way to explain it is just "unwell". Some days will be doing ok and bam out of nowhere feel fatigue and nausea/dizzy. Some days short bursts of "unwell" and some days I feel that way all day. Yuck.

    Hope everyone has a good day.


  • Grannax2
    Grannax2 Member Posts: 2,387

    Gumdoctor. Where do you live? You have that view from your porch? I'm moving in with you! Seriously. That's a million dollar view. I don't even have a porch, unless you call a 4x4' square of concrete a porch.

    Sorry you're having SE from X. I got lucky yesterday and got to put real shoes on. First time in two weeks. And I felt good enough to go to a 4th of Juliy cook out with friends and family. I decked out in every red, white and blue thing I own. Including cut off shorts w sparkly flowers, top w stars and red, white and blue Keds. I'll try two send a pic.

    Runor You're a horse woman? I knew I liked you. Horse people are the best.

    Micmel I had another kind of funny memory about bathing. I'm 71, so probably only the older ladies will relate to this. When I was a child, like every other child in the 50's, I had only one bath a week. We didn't even have a shower. It was the norm. Kids got baths on Saturday night so they would look presentable for church. That's it. It was the acceptable norm for everyone, not just my family. No one thought we were dirty, unkempt or negliected children and we were not poor, either. That's just the way it was and it was OK. I vote for giving yourself a break. The norm has changed drastically. But that does not mean we have to always do what the "norm" says. We don't have to conform to today's extreme norm that is on every commercial, every magazine. Maybe, every once in a while, we can tell ourselves it's OK to be a 50's girl today. Play a little Elvis and rock and roll, to add to runor's disco. 💞

  • Gumdoctor
    Gumdoctor Member Posts: 618

    Grannax - You are HILARIOUS!!! we have 2 main houses. The one with the spectacular view is actually in a quiet little town in Missouri. Only great view at other main house is my husband...

    My sister-in-law tells me we have a resort view in Missouri. When shopping online for houses, there was only one tiny picture of the valley below thrown into the realtor pics. It was that one tiny pic that got my attention. Kind of like they did not know what they had...house is on a hill and has the best view on the entire street of that 180 degrees of valley down below. I am very blessed.

    I had a really good cry on the phone with my wonderful ONC nurse this morning. Dr Angel is away. Sub MO said it will be ok for me to skip this last X dose (day 7 is today) tonight and start my week off tomorrow. Then she will discuss with Dr Angel and predicts we will go with a dose reduction when I start cycle 2 next Saturday.

    I want to be so strong for my husband and for others who are looking for me, their Colonel Doctor they know and so love, to do so well with all of this...so much pressure to be a "good little patient"...and a "good Colonel Doctor who dies well like she has done everything else in her life"...

    I cracked this morning...30 min on the phone.

    Better now. Driving from beautiful view Missouri house to other house with beautiful husband view...he is waiting for me...told him today...crying on the phone...he is the best medicine for me right now.

    I understand this is temporary...and it will get better...and I WILL succeed in managing it...

    I also know I am not upset solely with HFS...this feels like the beginning of the next phase...and the next phase seems like it will be the HARDER PHASE...HARDEST PHASE will be at the very end...

    I don't want any of this...easy...hard...end...but it has been forced on me and on all of you...and here we are. OMG.

    Ok. I will stop now. I am in the parking lot... mustering the strength to walk into the store to get some HFS supplies for tonight and the next few days...

    Thank you for your encouragement and love to you all,

    Gumdoctor

  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 551

    Grannax2: I wish there was a "like"button! I completely agree with you, specially because I'm recovering of my surgery and it is a very cold winter here... I became a big fan of baby wipes!

  • candy-678
    candy-678 Member Posts: 4,172

    Gumdoctor-- Praying for your "harder phase". Have a good weekend with hubby.

    Grannax- Sounds like you were rockin the look for the 4th!!!! Yes, I remember those Saturday night baths--and I am 48 years old. Haha.

  • micmel
    micmel Member Posts: 10,055

    good morning ladies. Lol I just woke up from a mega nap. Geeze. Like wow. Opened my eyes this morning at 8:32. Am back in bed for a nap from 1:30 until 345. Ugh! Zombie 🧟♀️ girl checking in. I brushed my hair. Yes I did. My Deeohgee didn't want to get off my bed so everytime I tried to kick his little arse down he would make a complete circle and lay back down again. He makes mewarm. Which wakes me up. Hope all is well.

  • micmel
    micmel Member Posts: 10,055

    Gumdoctor~I was thinking about your comment of the harder phase. I am terrified of that phase. I seriously am. When I read that I was like wow there it is. I'm already seeing a hard phase and I am constantly hammered with life sucking fatigue. I sleep for a living because just going out one place does me in. No dinner and a movie, just dinner or a movie. Not both. Not a chance. It would become very uncomfortable, for me the feeling of being unwell is swirling around and effects many areas for me. One second it could be a dizziness and headache sweating wave, then the next one. Can be staggering weakness to where if I don't sit down that second. No matter where I am l, I'll go down. It can be my legs forgetting how to climb correctly and I'll stumble ever so slightly. Or even seem off balance when im very much trying NOT to be. I am noticing a decline in some things. I don't say too much to my family. I already feel like a huge burden. I don't know how many times someone can say thank you. I feel as if sometimes the Hole in the bucket just gets bigger and bigger. I want so much to be

    Productive. I get up convinced I'm going to clean the bathrooms... I struggle with one, when finished, am doused in hormonal seepage and sweating like it's my profession. I have to take many breaks. I get it done. But it takes a awhile. Useless. I do empty the dishwasher and load it. I can run into the store for a few things and get my own Medicine. I am able to drive.

    My newest issue is my lymphadeama arm. When I fell I really pulled it., and I have a fibrous, fragmented small tear in my rotator cuff. It is killing me. My arm is swelling back up again and even my fingers are looking like sausages. Painful! Pain makes me tired for sure. But fighting cancer takes the cake.

    Thank you ladies for being you.

    Waving to Yndorian, candy, Grannax, Mae my sweet! Masonsma, Gracie my sweet friend on my mind every second. I love you. Missing Tanya! donna?? Blueshine? Divine hi darlin

    Much love ~M~

  • divinemrsm
    divinemrsm Member Posts: 6,614

    Thanks, everyone, for the porch compliments. The house, originally a duplex that we opened into one house, could easily have been a tear-down 30 years ago when I moved in with dh. We took it one home project at a time, knowing which ones to tackle ourselves and which ones to hire professionals. Tho I can sew curtains and paint, I didn't feel as skilled as dh who did things like electrical and drywall work. Then I read where a Do-It-Yourselfer considered her best DIY skill to be vision. And I realized that it was mine, too! Over the years, I’ve pictured then developed a nice floor plan, making our home welcoming and comfortable to live in. So I guess dh and my skills compliment each other.

    Gumdoctor, you really do have an incredible view from your porch! To be able to look out over a valley below—-no wonder you spend a lot of time out there!

    I'm sorry about the rough day you had. We are here for you in spirit. Many hugs.

  • runor
    runor Member Posts: 1,615

    Grannax, I am not a horsewoman. I am mother to a horsewoman. I do everything but ride. I groom, I bathe, I fly spray, I shovel shit, I pack hay, I scrub water tubs and fill them.I reach my arm into sheaths to clean them out. I apply and remove blankets, face masks and leg wraps. I polish tack, wash saddle pads and oil spurs. I doctor horses, tend to foals and hold horses while vets tend them. I have driven all over the countryside with Daughter while she evaluates and buys horseflesh. I help judge conformation, freedom of movement, angle of shoulder, length of pastern etc. She tends to favour broncy bucking stock with a hate-on for humanity and a desire to kill people, wild horse with a bit of draft thrown in for good bone. I sit on the sidelines with a phone set to 911 when she gets on a horse that spent its formative years bucking people off at rodeos. I set jumps, open and close gates, apply salve to scrapes and bites and remind her to put her damn helmet on. This has slowed down for me in the past couple years since Daughter grew up and moved out, but she is still doing horses and still comes by with a massive Eamor or some such clunker for me to clean and condition. I love rubbing leather and bringing it back to life. It's like meditation.

  • micmel
    micmel Member Posts: 10,055

    Runor~you seem to surprise me everyday! I grew up with horses as a child. They were very strong animals.

    Okay ladies anyone watched the handmaids Tales?? Wow abs like wow. It's really an amazing story with one hell of a story to follow. I am still blown away by this. To think that someone would or could be treated like this is astonishing. It's definitely a great show though that Hulu is making here. Mind boggling mind *f*c* for sure.

  • divinemrsm
    divinemrsm Member Posts: 6,614

    Micmel, I’ve watched Seasons 1 & 2 of A Handmaid’s Tale. Years ago, I saw the movie of the book with Fay Dunaway, so I had an idea what it was about. Of course, the series is so much more. My main reason for watching it is I love Elisabeth Moss (who was so great in The West Wing and Mad Men) . Towards the end of Season 2, I got a little tired of the long, drawn-out suspenseful scenes with little talking, just a lot of close ups of Elisabeth’s face filled with emotions, and I fast forwarded thru those parts! My second favorite character is Serena Joy (played by Yvonne Strahovski) —the wife of Commander Fred. I can’t believe how many times I hated her, then liked her, the hated her, then liked her, etc., through the whole series. Such a great actress.

    I haven’t checked out Season 3 yet and not sure I will. It’s very intense!

    Speaking of intense, tho, I watch Orange Is The New Black which is intense in its own way. I love that its stories are about women of all ages, shapes, sizes, ethnicities, sexual orientation and more. The first few seasons were the best; the final season (7) will be out later this month and I will watch to see how it wraps up.

  • micmel
    micmel Member Posts: 10,055

    Divine~~~Omg yes Serena Joy Waterford , amazing actress! I totally feel the exact way about her. What a beautiful actress also. She's been in dexter as well another awesome show. They probably show her up close so much.(June) Her expressions rule the show! I'm starting season three this week!

    Wish I could watch it from my porch!

  • booboo1
    booboo1 Member Posts: 1,196

    Philly,

    Sending you hugs and smiles from sunny FL. It’s hot here, but not unbearable. Not sure if I’m just getting used to it?

    I hope you enjoy your rest and know that better days are ahead!

    Lauri

  • Moomala
    Moomala Member Posts: 397

    Hi everyone!

    Oh my Dexter is one of my all-time favorite shows. I love the expressions on June's face even if they are a little drawn out. In season three I find myself saying aloud "uh oh June's getting pissed offffff!!!!" Definitely love-hate with Serena in season three but I won't spoil. I keep up with it every week.

    I binged season three of Stranger Things yesterday. It was too hot to be outside and my husband was at work all day. So I did a little exercise in the morning, then a little housework, an errand and then plunked my keister in my cozy chair for hours and hours and television. I watched a movie last night called Hotel Mumbai. I had a hard time falling asleep afterward because the tension was fairly high. In the movie there was a room full of hostages who were being shot one-by-one. I could feel the fear but it reminded me of my own fear of impending death, just for ,me it's played out in slow motion.

    Runor I am the mother of actors and musicians. I think I have it much easier than mother of horsewoman! Wow - that's a lot of work and hats off to your dedication. My kids are both adults now and that part of my responsbility is over but I remember the days and all I really had to do was give people rides places, pay for lessons and workshops and an occasional costume/hair/makeup adjustment.

    Having a nice quiet long weekend. My daughter and grand girls are away. My son and his wife are busy with their friends. Husband is working out of town. I have played my piano a bit and done some organizing around the house along with a bit of cooking now that my back is better and I can actually be in the kitchen for longer periods. This summer I'm off work and I don't miss it one single bit. When I go back in the fall my schedule will be much much lighter.

    Gumdoctor, people expect a lot from doctors. It's true that may doctors I know (some of them in my family) are quite clinical when it comes to reactions about my diagnosis and treatment. And so - that is my expectation of doctors. Inside I know my family members are human. We all crack sometimes. Big hug blowing your way from New York my dear.

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,019

    good morning everyone :-)

    Booboo/Lauri thank you for the loving hug! I accept!!!! I love hugs!!!

    Candy - I hear ya about being less social and the having to explain oneself and how we are doing and feeling. I met someone with 12 yrs out from an MBC diagnosis recently. I didn’t realize it at the time that she also is living with MBC, but my mother found out and then told me the next day. I feel like I just want to know HOW does she do it?? And I’m sure after 12 years, the thoughts and outlooks shift and change quite a bit.

    I am at about 2 years and 4 months since my diagnosis. I am envisioning where my head will be in 12 years in relation to MBC. Where will medicine be in relation to MBC?

    I am feeling much better after a much needed jump in the pool after a lovely thunder and lightning storm yesterday.

    Here’s a silly pic of me pretending to beat my friend up at the pool. I had just done a bunch of cupping on his back and we were laughing about how his wife’s family is going to freak out about it today at their family bbq. We took this photos as a way of giving an explanation that was more “Philly” than alternative...

    image

  • candy-678
    candy-678 Member Posts: 4,172

    Morning all. Another hot day in Illinois-heat index 100 degrees or more. Plan is to stay inside with the air conditioning. I have never been a summer person, but just cannot tolerate it anymore. Ready for the cool crisp fall days.

    Micmel- Your post rang true for me-- the fatigue, "not dinner and a movie but dinner or a movie". So true anymore. And the housecleaning story, Yes !! "Doused in hormonal seepage" so true. I can be lounging in house with A/C cranked down, cat curled up in a ball with cold feeling ears, and I am sweating to beat the band !!! So sorry about your arm. You really did it good with the fall didn't you.

    Sorry cannot comment on the shows, I have not seen them. Moomala-- That movie sounds good. Creepy. But yeah I can understand how it can be upsetting too.

    Nice to read what my virtual friends are doing. And how they are doing. Hugs.

  • micmel
    micmel Member Posts: 10,055

    watched orange is the new black already. Which. Moria is in handmaids tale.... as well as orange is the new black. Pooosay! Who is the reason for the riots. Great show ! Great actresses. Love it. I don’t know what I would do without television. I just need more to watch. Heard the Americans are also good. The Mick. Hilarious. Dead to me. Christina Applegate. Fabulous! VEEP. Wonderful comedy I wish we could all watch together!
  • candy-678
    candy-678 Member Posts: 4,172

    Philly--- Looks like you were having a lot of fun !!!!!! Good for ya. Darn he has a wife, thought maybe your boyfriend. LOL. I just LOVE your hair.

  • divinemrsm
    divinemrsm Member Posts: 6,614

    Moomala, I watch Stranger Things with dh, so we've only caught the first episode of the third season. We will be busy for the next week, so not sure when we will view the rest of the season. I love all the 1980s references and that time period before the explosion of the internet and cell phones.

    Micmel, did you watch Alias Grace on Netflix? It is only seven or eight eposodes but SO GOOD. I also liked Nurse Jackie. And for a total change of pace, When Calls The Heart. Its a Hallmark series, which normally I can’t stomache, bur I do love this series, its sort of a glammed up Little House on the Prarie type show. “Sisters” is another off the wall series where the public learns a fertility doctor secretly impregnated many women with his own sperm....it’s sort of comedy/drama. And I totally loved Kimmie Schmidt. And GLOW—-awesome show, mostly women cast,


  • Moomala
    Moomala Member Posts: 397

    omg Micmel definitely The Americans. I couldn't get enough of that. I'd never watched it so we had to binge all the seasons over the winter. It was so good! I'm watching VEEP from the beginning now but Stranger Things was a good break. My next binge after VEEP is Billions.

    Philly, the cupping, the marks! Does that hurt? So glad to see you are at a public pool. I'm starting aqua therapy Monday for my hip and back and was worried about my ANC with doing the exercise at the PT place and then the Y. I'm running 1.1 to 1.3 and my oncologist says it should be ok but of COURSE I have anxiety about it. You look fantastic and happy! But I am starting to hate when people say that to me so take that the way I really mean it. I am happy to see you happy yesterday at your pool. Please let us be talking together in 12 years and looking back on these times with amazement at how far medicine has come. I know that 24 years after my initial dx treatments and things are quite different now. btw I have a LOT of family near Philly in the Lansdale/Harleysville area. I love it there. It's such a pleasant drive down there - they were all just up here last weekend! BUT! In all the times I've visited them I have never once been into Philly!


  • illimae
    illimae Member Posts: 5,738

    Good morning all 🙂

    We've returned from our river trip. Looong story short, DH wasn't feeling well Wednesday, so he had a nap and we left at 4pm, later than planned. I underestimated travel time, 4.5 hours instead of 3. Noticed a low tire on the way, DH changed it to the spare and re-aired it. About 20 miles short of our friends place the spare shredded and smoked. It's now 9pm and no small town tire shops were open or had the tire, so unhitched and drove 40 miles to a Walmart, found a workable temporary spar, then my flip flop broke, went back in barefoot and got new ones. Drove the 40 milestone back, DH had s heck of a time getting the rim off but did and we arrived at 2:30am.

    I went tubbing with everyone on the 4th (3 hours to float from their place to the pick up spot). Sunscreen was used but somehow I got burned, I got stuck twice on shallow rocks, it was exhausting and I'm a little banged up, my tube deflated, so a friend gave me theirs, it was fun though.

    Fireworks that evening in a nearby town and returning home Friday, getting proper new trailer tires on the way. Today is rest and TV.

    image

    image

  • Moomala
    Moomala Member Posts: 397

    Looks wonderful Mae! I used to live just steps away from the bayou off memorial drive. I don't know what it's like now but in the 70s we used to go in the water and my memory says it was pretty gross. What an adventure you had! Good lord that's a lot of "mishap"! The river looks great! It's a great day for resting and television!

  • runor
    runor Member Posts: 1,615

    Moomala, we all do our thing raising our kids. Hockey moms, acting moms, music school moms, horse moms, it's what we do.

    Divine, we started out watching Orange is new Black but it got darker and darker as the seasons went on and I lost interest. Lead character starts out good and ends up bad and while it might a statement on the reality of prisons, it is also a statement on how people forfeit their own free will and their own obligation to moral fortitude. And that bothers the hell out of me. I had to quit watching. Now I am watching Santa Clarita Diet, which is utterly ridiculous, but I think Drew Barrymore is cute as a button and I need things that are lighthearted and silly. My mind too easily slips into dreary blackness. Hub has just stared watching Breaking Bad - I can't do that sort of programming. Nope. I need happy.