My Husband, My Life, My Love, My Family, My Cancer
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Yes, posting a lot today. Just got back from our Maine vacation, and oh my, what an incredible time. Mae, hope you got to relax and enjoy the Maine weather. We went to Mt. Washington yesterday, and it was in the 80s at the bottom of the mountain, and dropped to 54 degrees at the summit. And the views. So beautiful.
Every time I had lobster (mostly had lobster rolls) I thought of you, Mel. It was good, but we were told the best lobster is shipped out of Maine. But no worries, the second best was just fine with me!
Thinking of all of those who are hurting today. I hope you’ll reach out and let us know what we can do for you. This thread is a lifeline. Was to me at my very lowest. And many other moments when I was not sure where to turn. Here you are loved and accepted no matter your race, political affiliation, spiritual choice, geographical location, or any other affiliation. Here, we are one voice. We support each other through he good, bad, and the ugly (sorry, that Clint Eastwood movie was on the other night).
Love to all,
Boo
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Mae ~BooBoo~. I am here. DH has a few extra days off so we are in cuddle mode. He just made me tilapia and a baked potato and now im having a strawberry milkshake!!!! I feel tired today! I want lobster please. Lobster rolls. Lobster claws ! Can't complain too much. Next month blood work. Hanging on as we all have to do. Much love.
Mae♾ Love ya
Booboo you’re so special. I adore you too. My super sisters! Waving toTanya!
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Hi all. Just like illimae posted, not much going on here. Just thought I would post. Praying for Gumdoctor and Grannax especially but I pray for all the ladies on here everyday. Yes, Boo, I too have thought that we are all one here. With so much division in the world now, especially in the U.S. I have thought before that we on here are one, no matter our differences. I hope we can have a good weekend in any way we can. Micmel- That strawberry milkshake sounds divine !!!!! It has been a while since I have had a milkshake. Hugs all.
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Candy~Second families never hurt anyone!!! Hugs to all my Sisters. Just relaxing with my DH. Tired today but other than that doing ok.
Grannax... GumDoctor.....special hugs and glad we have some movement Grannax!
You ladies are special to me!
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Saying Hello to you All! Thinking of you on this quiet weekend.
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lovely weather. Spending some good time with my precious DH. Not a bad weekend. Cannot complain. We have this family of bunnies living under our large pine tree. I love watching them hop around together. Cute little family. It makes me smile !
Love to all
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Michel and Divine,thanks for the good wishes. We had a great day.
Not feeling terrible today but this fatigue! Oh my. You all understand.
Praying for all of you here.
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I just got done feeling the fatigue. It seems to hit in hours. I wake up, feel better... more alert. A few hours later wham. Sometimes even an hour. Then I’ll nap. Waking up from a nap must be the hardest thing for me to do to. I feel like unnatural, like my head is foggy, I can’t think correctly. I wake up and fall back asleep three times before I even get up. I gotta beg for a doseage reduction. Almost ready to start #35. Exhaustion handed me my ass all those months. Keep on trucking darling ladies. ~M~
Waving hello to Mods!!!
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Good Morning. Ladies. Long beautiful weekend. Hope each and everyone of you had some sunshine and some smiles. My DH was here and I miss him already. Supposed to be hot hot this week, the beginning at least. Grab a cold one. ! Who has the pool? I’ve got food , a cooler..... let’s do it! Beautiful water. Like Gum Doctor showed last week for our serenity... much love to a strong week!
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Mel,
Who is Brooke? That is hysterical! I am laughing at how funny that note is!
Hope you are having a good day. I hate to hear that your DH is gone for the week. I don't know how you do it. I would not be able to be without my DH for that long. But it seems to work for you, so that's good.
Boobo
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BooBoo~Hi darling. My DH works near DC he hates it. But when he's home. We make the best of it all. We hold hands in bed snuggle up a storm. We laugh and make the most of every single second. He cooks for me. He makes sure I have all I need. I adore him with everything I am.
That letter was in a bunch of funnies that we looked through. We spend alot time just us two together I laughed as well. I find laughter helps the soul. Thanks for checking in. Much to you my sweet friend 💚!
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It turns out his mommy worked at Home Depot and she was selling snow shovels because of a really big snow storm. But the teacher didn’t know this. Kids!!0 -
Punch other mother in the face BA HA HA! I needed that laugh! Hi to all.
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Runor~Hello my sweet friend. I am happy to see you. Always am. I laughed at that also. The kids say the funniest things. I hope you’re doing ok and I think of you everyday! Along with my sisters here at my second (hopefully some of yours also) second home I adore you. We all need laughter. It makes the day worth living. Much love my sweet friend.
Thinking of you Yndorian
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I always come here ... you know ... I just don't speak 💔💔💔
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Hey gang, checking in again. I have just come from my MO and the decision has been made to come off Taxol because the pain has worsened even though the scans do not reflect any progression. I have been trying to search for Tamoxifen and just don't get anywhere. Could any of you give me a hand in how to search since we are all on so many regimes?
Marian
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Marianelizabeth, I’m not sure where you’re searching but there’s a thread here called Bottle O’ Tamoxifen and if you’re googling different manufacturers of the med, I know Teva and Mayne are common.
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Marianelizabeth~Thefe is a tamoxifen support thread started by Michelle Cornwall. It seems to be informative. Spoonie is a wonderful source of knowledge. A welcoming bunch for sure.
Mae~Hi girl. Hope you're well. I've been so tired. Nothing new really. Zombie woman. Starting round number #35 of ibrance. The side effects are definitely accumulating for sure! But I'm thankful I can rest when needed. How is DH??
Yndorian~~Honey, I know you are going through a lot. You post when you want or don't, if you feel like you can. I adore you and am here no matter what. Support is here for you. When you need it. I adore you either way!
BooBoo~My sweet friend. I laughed a lot also. I like things that make you think. Could you even imagine? She turned it into school. They got a good laugh as well. Miss and love you!
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Hi all
Marianelizabeth when I couldn’t take taxol I took taxotere. Wishing you the best on your next line of tx.
Tanya
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HAHAHAHAHAHAHAHAHAHAHA, Micmel!!!!!
Best. Post. Ever. !!!!
That is hysterical.LOL
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I thought so too, soo had to share !! Lmao! Nothing like a good laugh. Good night darling
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Laughing Micmel!! -- so funny....
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LOL. That was funny. Nice way to end the day.
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marianelizabeth, not too many stage 4 patients are given tamoxifen, although I am currently on it. When it is given, it is often later in the treatment lines, when one has cycled through most of the standard treatments and is looking for other options. I am on a combo of tamoxifen and the chemo drug navelbine. My MO thinks the tamoxifen is working well on my bones and perhaps parts of my liver. I am resistant to AIs and Faslodex at this point. I haven't found (but haven't looked for) any stage 4 tamoxifen threads. I do a lot of research on Google, mostly about drug interactions (as many drugs are metabolized by the same enzyme as tamoxifen - CYP2D6, which can impact its efficacy) and about a newer generation drug in trials (endoxifen) that is hundreds of times more potent than tamoxifen and metabolized by a different enzyme. I would really like to get on this drug at some point.
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I am worried about BlaineJennifer. She hasn't been "seen" around here since June 16, 2019. Not long before then, she indicated her MO gave her "the talk". Has anyone heard any updates?
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MarianE, I second what JFL and other have said. Tamoxifen is not a chemo drug. It is a hormonal. It is easy to get Taxol, Taxotere and Tamoxifen mixed up, too many Ts and Xs.
But if it is the hormonal medication Tamoxifen that you are looking into there is a thread here, Bottle O Tamoxifen that you can also look in on for tamoxifen thought, debate and complaint.0 -
Something happened.
About cancer.
Nothing bad. In fact, something good, I think. I"m not sure what to think.
I have not posted it because I felt that it would be bad form to share what seems to be good news. Isn't that awful? That I think I will be upsetting someone if I tell what happened at my oncologist visit early this month? But it has not left my mind. Seems it is something I need to share. So I wade in. You can tell me what you think.
My original pathology report after biopsy was stage 1, grade 1. I asked for a second opinion. My specimen was sent off to The Grande Fromage (the head cheese for those who don't speak French) of all pathology reports and he upgraded me. From stage 1 to stage 2B and to grade 2 from grade 1. He included the reasons why he felt I was under staged and why he felt that my tumour with it's 'highly invasive growth pattern', was worse than first thought.
This news was very demoralizing and alarming. Back in 2017.
At this second annual visit with my oncologist I asked if there was any benefit to me staying on tamoxifen for 10 years instead of 5. He looked puzzled. He said "You are such an extremely low risk, there is no known point at all to 10 years in your case."
It was my turn to be puzzled because my tumour was on the large side (25mms on path report) and upgraded to stage 2, grade 2. This is, to me, not something trivial. My situation had been deemed WORSE than originally thought. I reminded oncologist of this.
He spent a moment digging through my file. . He reads a few things then looks at me and shakes his head. He says (paraphrasing), "The Oncotype places you firmly in the grade 1, stage 1 category and they come to this conclusion based on a much larger array of tests than your pathologist has at his disposal. As to your tumour size or 25mms, it actually says that the size of your tumour was indeterminate with the last accurate measurement at 19mm so they estimated it to be, at its largest, 25mm, but this is a guess erring on the safe side. The true size of your cancer is not known, but there are clean margins all around. So if the Oncotype says you are stage 1 grade 1, it doesn't matter what your second opinion says. Oncotype wins. "
This was good news. But I think in that moment I was not able to wrap my head around it. I think for a long time I have been afraid to feel any hope. Afraid to let my guard down lest I be sucker punched again by this disease. Truth told any of us, no matter what, can be sucker punched again. But still ... this was news that I had not been aware of for the past two years. I want to feel cautiously optimistic. But I also feel guilty as hell. And like being hopeful is setting me up for failure. God. I need wine.
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