My Husband, My Life, My Love, My Family, My Cancer
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I don't want you ladies dealing with what I am dealing with. I am just dumbfounded. It seems the other thread that was also “moved" was the ring worm medicine thread. Someone has way to much time on their hands to be playing inspector gadget on a BCO website, with women filled with fear and sadness. That they have to pick pick pick at the smallest things imo. I can't imagine reporting anything that wasn't hurtful or mean or singling outsomeone by name negatively! I guess some people have other ideas of what supporting people Are.
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I was so glad when I found BCO. The education, the friendships, the understanding. The love. I hope it is not ruined. I am alone in this life and I don't want to lose my friends here. I don't know what I would do without all of you and your understanding of the fear and sadness of STAGE 4 folks. Yes we are all sisters with Breast Cancer. The cancer binds us together. But Stage 4 is another beast altogether.
Mods -- I wish you would have left well enough alone. IMO Stage 4 should be for Stage 4 only. And if a non-stage 4 person comments on a stage 4 only thread, it should be ok if it is ok with the other posters.
Please don't ruin this for us. We, I, need this site.
Mel- Please hang in there with us. Lets just see how this plays out. Maybe we can still salvage it.
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Oh Candy~ You sweet woman!!! Thank you for being honest. That at least you ladies give me. Except the little snake that decided to make a huge issue out of what is maybe 4 freaking people. I thought that we are a family and if anything bothered you at all, you would come to me. Knowing how big my heart is. I totally care and that's why there is almost 11k posts in two years and two months. That means 1k of posts in two months. Don't they see it as An important entity for us also???? I am disgusted that I took my time and energy and went to their headquarters to help guide the new platform they wanted to roll out. I did interviews with their requests. Drove over and hour each way. Because I believe in this BCO place. Or Believed would be the operative word now.
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Mel- Hugs to you.
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I would truly be lost without this thread especially with the gut punch I received a week ago tomorrow revealing progression after 6 3/4 years. 🤢🤢🤢
Mods Please don’t ruin this for us. Love you Mel
Suzy
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Micmel, this is your thread, and I have so much respect for you. You’re compassionate, passionate, caring and kind. The only reason I voiced my opinion about stage iv and non stage iv posters is because that’s what’s currently being discussed on this thread.
I read stuff on the bc forum I don’t always agree with but most often, I just move on. We’re such a vast group of women, surely we won’t all agree all the time. Ocassionally, there’s a flair up with something, but like Candy says, you could see how this plays out.
I don’t think anyone intentionally wants to stress you out. And I’m glad you’re giving it to the Mods. Haha, I like them and am glad the site has them, but I’ve been critical of them, too.
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Suzy~ I love you too my sweet friend. I am holding your hand still. I haven’t let go! Thank you for your honesty!! ♥️
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Suzy,
I am so sorry to hear this. I, too, was just told the same thing. Only difference is that nothing except Taxol has put a hit on my lesions. I’m waiting to find out what my next treatment will be. Please know that we care, and will support you through it. Takecare
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Suzy, I am sorry to hear about your progression after such a long time. For sure is a gut punch. I am thinking of you.
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Mods: Please move this thread to only stage 4 again. And please clarify if there was a specific complaint about this thread or not, since Mel is very hurt to think that she was betrayed by someone here and maybe she was not. Many other women are very distressed too, and others are giving explanations that they don't have to give. The other moved thread continued its course without problems, but here it is generating an energy that is not good for anyone. Let it go, Mods, please. It worked fine for a long time.
PD: I was not going to publish anymore, but I am one of the people involved who broke the rules ...
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Stilivin-- So sorry for your progression !!!!! What happened? I cannot remember reading any posts from you about the specifics.
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Yndorian1,
I love your approach. I know I’m not he best person when it comes to conflict. I try to always respect others, but I feel totally disrespected by the Mods. Thank you, though, for your kindness and sincere response. I just hope it’s enough to make a difference!
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Hi Micmel and Mods,
I just wanted to say that I certainly hope I was not the reason this thread was reported.
I popped in the other day to congratulate Mel on her good news. I realize my posts don't show that I have MBC. I choose not to list treatments or stage information about myself. I can assure anyone that may have complained about me posting here that I am absolutely metastatic.
Mel, you have created a loving home for many women, probably hundreds, that like me, read the thread, but don't post often or at all.
Please do not let this situation cast a shadow on the amazing work you and everyone that posts here have done to create this special place.
I apologize again if anyone assumed I was not metastatic.
Mel, you keep on keepin on and NEVER let the bastards get you down.(The cancer kind or any other kind)
Hugs to all,
Laine
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oh honey ~ Lanie my sweet I know it wasn't you. I can assure you that it must have been more than one to make such an issue occur. Please don't worry. You're more than welcome here. As a matter of a Fact. Anyone can post here now. I must admit I have some discomfort myself having to post next to someone who is stage 0 or 1. No dis respect. More of jealousy. If I'm honest with myself. What a shame the mods couldn't see they failed to enforce the rules when it was beginning, not years after. After all the bonds were made.
Yndorian~ I love you, you're beautiful and funny, such-a nice combination.
I just worry I will loose my family here. My sisters my people. The ones who helped me build this place. Without you all I would just be journaling to myself. I hope people won't leave. I hope you'll all stay in our Living room.
I'm going to take a break for a little to think about keeping the thread or not. I really feel like nothing was discussed correctly and no mod ever warned about the postings issue and then wham, I looked at other threads and didn't see any other warnings ,Ours wasn't removed, so it was clear whoever complained had a reason. It was just our thread, they added the ringworm to make it look better. I think I know who it was, but it must have been more than one for it to become such a big deal that they would act that quickly without discussing or warnings.
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Love you BooBoo! You’re a good friend. Thank you for your support.
Thank you everyone for the PMs it means a lot to know how you all feel about the thread and it’s future. It means more than you know.
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Hi Mel, just popping in as I got roll called. Having a PET this Friday and would love friends for pocket duty. I’m nervous after more pain than usual on my hip and rising markers. I haven’t had a PET since dx. Praying that it doesn’t pick up any other spots just hiding out
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I caught up on the complaint issue. Perhaps the person who’s complained had no idea the damage that would be caused...and perhaps that person could go back to the mods and rescind. Please just let us be
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Jensgothis😄~we will be arriving for pocket duty promptly and will Bring the needed snacks and beverages. We’ve got your back! Here is hoping that you news is outstanding. Thanks for the voice 🥰 we adore you ......~M~
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Gracies tree!!!!!!!!!! OMG! 💔♥️😭. Oh Giddy perfect timing...... it’s so thoughtful. Thank you
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what a reminder of what REALLY matters. Thank you. I needed that.
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Dear Micmel - I am sorry this took so long (broken phone technical difficulties etc.) However the small tree is Gracie's tree (it is a shanta cleer) and the picture is how I hope it will look in the spring. It blooms with pink and white blossoms in the early spring so fingers crossed. It got its fertilizer and I have a tree stake for it to protect it from the wind in winter and lots of mulch. I have read of the troubles your wonderful site is having and apologize sincerely since I knew I was not supposed to be here. You have created an amazing family - sisters in the truest sense of the word. All of you are incredible warm loving people who deserve to have your Micmel living room. You are all incredible beautiful women whom I am honored to have gotten to know even a little bit. I will respect the site and not post again but know I will be thinking of all of you wishing you miracles and safe journeys and endless amounts of love. When spring comes I will post a thread with pictures of Gracie's tree. I thought a little plaque in the spring might be nice so if you can let me know what you would like it to say I will look after that. I will if possible keep checking in on the site to see how you all are doing.
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Hi All -
I have been taking a break from everything lately as I am stoll adjusting to IV chemo. 3 scans tomorrow to see if it is doing any good or not. Have been skimming and am now aware of the Mods / thread issue...
It has never mattered to me what stage BCO members were here. Still doesn't.
Micmel - I am sorry this is so upsetting for you and hope it dies down quickly so we can all get back to supporting each other.
While this is not a democracy...if I got a vote...I would vote for the thread to continue for as long as it can...in whatever form it can.
Love to all - Gumdoctor
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Mods, please keep this topic Stage IV only.
Any other group, would potentially weaken what makes this thread strong..the massive emotional support of being a Stage IV patient.
This is just plain unkind to Micmel. Give her the opportunity to address non MBC folks in her own way. They are her friends, too.
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if anyone is available for pocket duty while I wait for my results that would be so great. Scans were this a.m and I’m hoping for a quick phone call tomorrow to give me the basics. You can come and go as you please, I’m trying to think about other things but not having a lot of luck.
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Giddy~They changed the status of the thread any stage May post here now. That is the change they made. I’m happy that I get to have my non stage four friends here of course. But I don’t want to loose anyone. So please feel free! Don’t go away. Thank you from the bottom of my heart for the Gracie tree I hope she knows how we felt about her That’s what this thread is about. Not donning a cop cap and wagging My nightstick at bad posters. 💗
Gumdoctor~I hope you are feeling better with your chemo. I feel bad when I know others aren’t feeling well. Of course you get a vote darling. You’re part of this family as well!
I thank you all for being here !
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Rosie😘Pocket duty at your service ma’am. Snacks included. Big hugs for you. Sweet friend.
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Thanks Micmel! You’re the best. 💕.
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In other news.... this is the 'project' horse my daughter lugged home last weekend. I told her to write a will. I seriously told her to get to a lawyer and write a bloody will because this bad boy is going to take her out. I keep one eye on him at all times as I feed, fill the water and shovel shit. Daughter no longer lives here, but her horses do. I am the horse keeper, which is not great since I do not like horses, they scare the crap out of me. Especially the wild units she hauls home. If Micmel gets to post cute mini kitties, I get to post wild, killer rez ponies. Cause, that's kind of the same.
Rats! I can't figure out how to load this video clip! It's a Facebook video clip. If anyone knows the trick, let me know.0 -
Good morning ladies~I'm still really reeling from this entire issue. Again just wish people. Could be honest.
Don't want the thread to change. If it does I'm doing to just leave it behind. Someone wanted to damage our family. That bothers me. A lot.
I've never hurt anyone and always been blatantly honest. Maybe that is the problem!!! Pocket duty reporting
Much love~M~
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