My Husband, My Life, My Love, My Family, My Cancer

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  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 551

    Tanya has been "spectacular"! It is not surprising that she was sore after all that experience. I would have fainted just from being among so many people! I'm glad she made many sisters happy today. Big hugs to you all, ladies🌷

  • candy-678
    candy-678 Member Posts: 4,171

    Tanya- You rock !!!!! Glad you had this experience.

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    we had to leave at 4:30 a.m. to get there by 6:15. Once they seated us we couldn't get up again. We had to do stairs and lots of walking. MBC needs more exposure and understanding. I was fortunate to be in NY while they had that opportunity. We'll be going to pocono pa to see my grandsons homecoming game Friday. He's a senior now and I never made it to a game, so I'm going for it.

    Mel I'm happy you know Melissa she's genuine and warm. I really like her spirit.


  • illimae
    illimae Member Posts: 5,736

    Rest well superstar!

  • micmel
    micmel Member Posts: 10,055

    Tanya~I am only about an hour from the Poconos Pa! You really travel up a storm don't you. I'm wondering which way you'll be traveling and if we may be able to grab a meal together? That's amazing that you do the things you do, I'm proud to know you!

  • laine615
    laine615 Member Posts: 102

    Hi everyone,

    I love reading all of your posts. I haven't "met" most of you but your post encourage me everyday. I private messaged many of you when I was first diagnosed de novo and I was using Hope1018 as a user name.

    Micmel, Candy, Divine, Illimae, and Philly are the names that come to mind right now. I just wanted to thank you all of the words of wisdom, encouragement, and compassion you have shared with me.

    I have had another very challenging event take place this year. At 2:30 in the afternoon this past Sunday my office suite was destryed by fire. Thankfully no one was in the office building and no injuries occured. However, nothing in my office can be salvaged. So if anyone has any spare prayers or good vibes to send my way, I would greatly appreciate it.

    Love to all,

    Laine


  • jensgotthis
    jensgotthis Member Posts: 673

    So awesome to see you Tanya on GMA and with Robin Roberts. And that your family was with you is just so awesome. Way to reprrsent

  • micmel
    micmel Member Posts: 10,055

    Lanie~ You have all of my good vibes that I can give. I'm always actively including my sisters in my thoughts. I believe in good vibes. I'm sorry you're having a hard time. God knows we've all been there. It's another reason why Tanya, lifting us up.showing us. You can do it! We can still do awesome things and live. !! Holding your hand. waving to Jen!!!!! Hello beauty!!

    Tanya~ our Star hope you're having some good tea or coffee soon along with your heating pad. You're amazing woman!! much love ~M~.

  • micmel
    micmel Member Posts: 10,055

    imageThe beach in Spain, where my aunt is this week. Pretty gorgeous Minnie!!!!! She said Barcelona I believe !

  • mara51506
    mara51506 Member Posts: 6,500

    Great to see the photos of Tanya on GMA. That looked exciting for sure.

    It took a long time for me stop grave sitting. I did most my grave sitting before officially being dx Stage 4.

    I had to stop having that at the forefront of my mind because it was too draining. I now have an awareness that I will not likely live to be older, but I don't have it front and center in my mind. Took a long time but finally got to that point. I just try to enjoy my quiet life mostly on my own. I took myself out to lunch and the dollar store and had fun. Small things make me happy.

  • micmel
    micmel Member Posts: 10,055

    Mara~My DH alway says. Today I have you. I don't want to think about a time where you won't be here. He also says, I drive a hell of a lot for a living. He has a Ford Fusion, this car has been hit 11 times. Rear ended 8 side 3. It's either the safest car ever or the worst. Depending on how you look at it. So I continue to grave sit unwillingly, because my fear of losing someone I love scares me more than my losing myself. I love the dollar store. I love the greeting cards especially. Very good quality and a. Great price. (I sound like a commercial that is on Micmel and friends talk show or something lol) Love lunches also. Shame we all can't just be together! It would help me many days to have someone to sit with that would totally understand. I don't mind being alone usually. But sometimes, i do. I spend a great deal of amount of time alone in my mind, in my head. It takes a lot of out of me to worry about the future.

    I am freaking out because this new medicine they tweaked for my depression meds to add into my effexor is causing me to gain weight like it's my job. I don't even eat. A lot. It's very distressing because honestly I'm uncomfortable with myself. But it truly has helped tremendously, I don’t want to stop taking it!!!! It helps so much . I can't excersise because Of my spinal met. I'm going to try to seek physical so therapy to regain my core strength. That may help. Gotta start somewhere right ladies ??

    Much love to all!

  • candy-678
    candy-678 Member Posts: 4,171

    Laine- Good to hear from you !!!! Yes we PM'd before. Don't confuse me girl. Changing screen names always confuses me. Sorry to hear about the fire. Glad no one was hurt. Post here anytime.

    I like Dollar General and Family Dollar.

    Today is my day for the Food Pantry volunteering. One more day of heat - 90 degrees. Tomorrow supposed to be much cooler. Hope this is the last of the hot weather for the season.

    Hugs to all.

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Tanya, LOVE what you did in support of all of us!!! The pictures are awesome! Thank you so much!! Seeing this brings tears to my eyes. You’re an amazing, strong woman! Proud to call you one of my MBC friends!
  • illimae
    illimae Member Posts: 5,736

    So sorry about the fire Laine, good vibes coming your way!

  • Donnabelle
    Donnabelle Member Posts: 140

    Hello all, I am just back from traveling to Pittsburgh to visit DD and I can relate to all of your posts about the heat! Hello, it was cooler in SoCal than in Pittsburgh, how does that happen?

    Congrats Tanya on your spectacular TV debut. You all looked wonderful, what a beautiful family you have!

    Philly, so nice that you were able to reconnect with an old friend and it was so fun and fulfilling for you! Here's to many more good times.

    Muddling, I hope and pray that you are on your way to recovery. Gum doctor, so happy that it seems like the docs are getting a handle on what is going on with your liver. Sounds like positive steps in the right direction. Love your posts of the gorgeous flowers 🌺. I so understand the grave sitting analogy. I try very hard to keep myself in an upbeat spirit about things. My best way to do this is to try to concentrate on something else, TV, a book, meddling in my kids lives (just kidding!). Sometimes I think it's not a healthy approach and that I should try to confront reality, and I know that at some time soon I will need to get my affairs in order to make things easier for my husband. For instance, he has no clue how to pay the bills or run the household. Does he even know where my life insurance paperwork is? I keep thinking I should put together a notebook of instructions for him, but can't seem to get around to it. So I ignore. I guess I need that happy medium of acknowledging the gravity of the situation, but also living life as normally as I can.

    Which brings me to another recent topic, that of addiction. I hope so much, Mel, that your niece is on her road to recovery and sobriety. What I learned over many hard years of coping with my son is that of course, no matter how desperately you love them and want to save them, and devote your life to that goal, to the detriment of relationships and time with other family, nothing will change until they truly want it to change. My brilliant, artistic, highly educated, funny, special human being tried so hard. The bottom line is that enough drugs will change your brain chemistry and make it almost impossible for the cravings to subside. After a wonderful two years of sobriety, he relapsed and lost his battle, and took away life as our family knew it. I stopped taking care of myself and am quite sure that Stage IV is the result of that, and now DH and son and daughter will likely be facing another loss.

    So, how to end on a positive note after that? Well, we take hope in the little tidbits of good news that come our way. Iam happy that my ANC count was high enough for me to get treatment yesterday, and I feel like this one may be working. Also, I set up an appt to explore Y90 on Oct. 15. Yay!

    Hug to all,

    Donna


  • micmel
    micmel Member Posts: 10,055

    Donna~Hello busy lady! I know what the heat has been like in northeast pa. Humidity isn’t a woman’s best friend! It’s so very nice to see you here again! It has been a while!!!!! I’m holding my breath where my Niece is concerned, I can see the wanting in her eyes. It’s a jittery kind of behavior they never seem to leave behind. She is struggling. I can see it. She is trying to keep telling herself what they taught her in the system. But now she has outside interference. That scares us. I wouldn’t wish this on anyone. My sister always worry’s is this the last time I’ll see her alive? Not to mentioned her little daughter who is ten. Who is thrilled to have her mother home from jail. It will break my heart for sure. I hope she can do it. Wow two years. That’s long. She has 18 months clean. I hope she doesn’t throw it all away! My poor sister is on the edge!!!!!! So hard to go through and to watch it happening. Thank you for your advice. I need it. I know nothing about addiction honestly. Again good to have you home. Much love ~M~
  • micmel
    micmel Member Posts: 10,055

    imageMy aunt is in Spain! And sending some magnificent shots over Id like to share. At the end I’ll name the cathedral. Minnie May already know it.

  • micmel
    micmel Member Posts: 10,055

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    This was inside The Segrada Família, a cathedral designed by Gaudi. It is magnificent!

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  • micmel
    micmel Member Posts: 10,055

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  • micmel
    micmel Member Posts: 10,055

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  • laine615
    laine615 Member Posts: 102

    Candy you made me laugh and I needed that. I stay confused!! I hear you about the heat. It was 96 here today and it's forcasted to be 96 tomorrow. I got in my car and the temperature read 107!! It's just unbearable.

    Micmel & Illimae thank you for all the good vibes. I appreciate them.

    Tanya you looked beautiful on GMA!! Thank you for representing all of us.


  • simone60
    simone60 Member Posts: 952

    Micmel,

    Those are beautiful pics. I had no idea Spain had such beautiful churches.

  • Rosie24
    Rosie24 Member Posts: 1,026

    Mel, Awesome pics from your aunt. Sagrada Familia is just unbelievable.

  • mara51506
    mara51506 Member Posts: 6,500

    Beautiful pictures Micmel. Beautiful architecture as well.

    I can understand the distress weight gain can have in making us uncomfortable. I did gain about 10 pounds this past year. In my case, medication is not to blame but my love for sweets. I do a lot of walking but my food choices do not always promote being slim. I have decided to let go of my worry about my body. I also enjoy chair marching workouts. I put my pedometer around my ankle and counted those steps since I am lifting my legs. If I did not do all my activity, my weight would definitely skyrocket. I have to be satisfied that I fit in my clothes and my weight is now stable, though higher.

    It can be hard to accept change in the body at the best of times but to have weight gain because of meds is difficult for sure. Sorry you are having to deal with this.

  • MJHJAN1014
    MJHJAN1014 Member Posts: 622

    Tanya! You just plain rock! I loved seeing the photos of you and yours on GMA! I did that years before BC with girlfriends; you made me feel so proud and represented!

    Mel, I have been to Barcelona and it is beyond amazing! The Sagrada Familia is probably the most amazing structure I have ever seen. An architect by the name of Gaudi designed it, and many many other unique buildings there! Spain is definitely one of my favorite countries!

    I am aching for your niece, you, and your sister. I have been down the road of addiction with my daughter, and it is a long, long tortuous road. it started with eating disorders at age 17, lapsed into alcoholism, IV drug abuse, then compulsive shoplifting. Thirteen years of pure hell for all. She is totally clean and sober now, and in her first semester of X Ray school. I am very grateful that she made it out, and immensely proud. There were many days when I thought she might not make it. She is almost 34. Donnabelle, I cannot imagine a greater loss, and my heart aches for you, sweet sister.

    My Best, Mary Jane

  • Grannax2
    Grannax2 Member Posts: 2,387

    Tanya. Love all your pics. I didn't get to watch it but I'm loving your pics and hearing about your TV debut. Front and center. You looked beautiful. Sometimes being front and center takes work. I completely understand the heating pad. You just stay busy. I hope you're home and have some time to rest up from your exciting adventure. 💞

  • micmel
    micmel Member Posts: 10,055

    Lanie~GeeZe I knew my non functioning brain neglected to mention that fire. Like wow. Thank god no one was hurt. Fire is very scary. My step mothers father had a large family. They had five children. The oldest was cooking late at night and fell asleep while cooking with oil on the stove and the house went up. The parents and that one oldest child lived. The other four children could not be reached. They had four coffins lined up. Ranging from ages 2-12..... small coffins. It was devastating. The family was never the same, the oldest was my step mothers father that lived. He went on to have 6 children. I wasn't born obviously but heard the horror stories. Fire freaks me out. But it freaks everyone else out. I'm very sorry. To even have to experience anything related to it.

  • micmel
    micmel Member Posts: 10,055

    Simone~I love the pics as well.....my jaw drops with every new one I get. Our Minnie is lucky to live there wow!!!!!

    Rosie~I wish I could travel So much. So much I want to see. Then again I can’t wait to come home after a run to cvs. I couldn’t do the walking Before cancer hell to the yeah! Now. Not so much😞. Sucks bad to think all I look forward to is my dispensary visits. Pathetic I know. It helps the bone mets pain.


    Mara~yeah I’m Pretty much pissed off that I have to take these medicines and I have no control over what happens after I swallow it. It is to the point to where I don’t want to eat a thing. I love my DH’s cooking and he is a masterful baker as well. And omg the holidays are coming. Someone stop me please lol. I’m going to start to walk the weather today is only 59 but rain As soon as it’s not rain and it is crisp I’m getting my head phones on. It will be good I love music. I love the idea of marching. I did a little today! You go girl!

  • micmel
    micmel Member Posts: 10,055

    MJH~It's difficult for sure. I don't know how my sister can live this way. Everyday she's worried. Every phone call worries her. It's almost as if she was better off in the system because that way she was never left alone. It's the people they put themselves around. That's already starting. To be honest. I'm afraid for her daughter. Seems like prior behaviors make an addict fail to prioritize correctly. It scares me. She needs her mother. Age 10 almost 11. Critical age. Why is everything so scary.??

    Hug to Donnabella!!! You're an amazing woman. Amazing. My sister lives in perpetual fear daily kinda like us but a little different. It's not natural an addiction. Just isnt. Evil evil for sure!! Hugs to you both! ~M~

    Waving to Grannax!! 👋

  • illimae
    illimae Member Posts: 5,736

    I’m having waaay too much fun with these little colored scratch off note pads I bought yesterday.

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