My Husband, My Life, My Love, My Family, My Cancer
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Booboo listen to your body. I had awful side effects from taxol hives and just horribleness. I went to the ER and found out I was going into anaphylactic shock. A week later I got out of the hospital skin burned off my body from head to toe. If you feel it it’s real!!!
Tanya
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Just a little chemo brain humor before bed 😆😴
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Moomala - Man,that sounds real real rough. I hope you are feeling a little better today. Is there anything you can track to look back on and see progress? That's how I've been managing this pelvic thing, so when I feel down about laying in bed yet again I can look back and see the progress in the last few weeks. Unfortunate timing, but I bet you still all have a great Christmas, even if its modified a bit. Sometimes those can turn out to be the most memorable.
Philly - glad you checked in with those interesting results. And that the kickboxing paid off!
Let's hope you can keep dancing a bit longer..Feeling a bit low and anxious today as I got to bed late because I wasn't really tired, but boy am I paying for that now. Maybe a short walk to the grocery store to find something appealing for lunch is in order, and then a nap. The grey weather isn't really helping and as much as I would love to book a vacation to some sun well, guess that has to wait until I get the all clear to travel. So bored of this!
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true story! Mae! Hello Sondra..
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Thanks Tanya. Wow, that’s quite a reaction. Good thing you went to the ER when you did!
Ever since I had the run-in with my onc’s PA, it has been nothing but games, poor treatment, and just plain rudeness from that practice. The last straw is when she said Abraxane was the next drug, and she smiled when she told me I’d lose my hair again. I guess I’m trying to get over the anger of this whole thing. It leaves me feeling very sad to think that even MBC patients can be mistreated. As if we don’t have enough to deal with. I don’t expect balloons and lollipops, but a little compassion would be nice. But I’m reminded that there are plenty of really good doctors out there who do care very deeply about their patients, so I’m hopeful.
Mel,
Do you have a cold? So many people I know are battling colds and other junk. Take care of yourself. We like your living room too much to have to move to another room!
Big hugs to all
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Just jumping in to ask if you would take the time to complete a survey assessing your opinions on medical cannabis.
It will take close to 10 minutes to complete
And pass along please to others, if you would like.
Thanks for your help! We're trying to get a few hundred to complete the survey! (In one night we had 27 responses!)
p.s. only women from USA, sorry.
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BooBoo~No cold. Just the tummy ache with dizziness. Hit me like a brick. No worries. I’ll stay quarantined until it passes. Just with the holidays I don’t have anytime to waste sleeping even more than I already do. Ugh!
Thinking of you Philly.
Hello Santa!
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BooBoo I just cannot fathom an MO treating a patient this way. It's heartbreaking to me. You are right - you have enough to deal with. How awful for them to be such jerks. I'm glad that you got rid of them - I hope there was an exit survey! Need any help filling it out??? HaHa!
Mel I'm sorry you are not feeling well. There is a ton going around right now so I closed my piano studio for the rest of the month. My fever is better on the antibiotics. Hopefully it stays away. I feel achey and just tired. Not too much of a cough which surprised me. Just a small dry cough here and there and a high heart rate with body aches and all around malaise. And the runs. And a small appetite. Honestly if I hadn't been tested in the hospital I'd insist I have the flu, not pneumonia. Yesterday I sweated so hard I had to change my jammies. I've been feeling yuck since last Wednesday. Just trying to push the fluids and rest up. You do the same ok Mel?
I have told my doctor that I no longer want to be on Afinitor. I believe this is partly the culprit for this. She's not having it. I'll stop myself if this goes on much longer. When I saw her Saturday in the hospital I told her that the pharmacist told me that some people do well on Afinitor and some people fall apart. She nodded her head quite vigorously about this, and I then told her that I feel I am falling apart. It was going just fine for six weeks and then things started to go. She told me it would be foolish to stop the drug protocol before 12 weeks. I don't understand why - they're seeing progression, the drug seems to be causing me all sorts of issues. omg I miss Ibrance.
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Moomala~you also get that rest. I’m concerned you’ll catch something else. I’m so glad to got my flu shot. I can’t hack being sick in top of everything else. The stress of Christmas is kicking my rear end. There are things I have to still get..... but it’s been icy and raining here for three days straight and the fourth day was some snow. I am already sick of it all. Super yuck! I sincerely hope you feel better and your mo pays attention. I get annoyed with mine sometimes as well. They think just because they say something , then it’s true. When we , the ones who are actually taking the treatment. Are telling them how it feels. Hellllooooo? Pay freaking attention. Ugh! Wrapping you in hugs
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Thanks Mel! I had flu shot beginning of October so I'm thinking it is not flu but sure feels like it. I'm staying in the house and in bed. My PCP just called me and listened to me cough over the phone and said my friend, pneumonia is a four-week ordeal in most cases and if you felt any better right now I'd say you do not have pneumonia. So he said rest but do walk around your house and just let your body heal up. Stay inside and just let christmas happen around you and just get better. He assured me that my heart is okay, my lungs look like they have pneumonia, and that I just should get as much rest as possible.
I'm not done with my shopping Mel. I have nothing for my grandkids and several others but I'm not stressing it at all. It'll happen with or without the gifts and frankly they all love gift cards anyway. Pneumonia is a much more serious thing to take care of and the doc has convinced me of this now. DH is in his busiest time so I'm not seeing much of him at all but he's making sure I have supplies and things. It's great that he cooks dinner each night and makes sure I've got what I need.
Didn't they used to fly people like us to sanitariums in Arizona? How great would that be. Nice weather, Birds, Sunshine. Nothing to do all day. Aaaahhhh
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Meant to send this earlier. My sister did most of it, so I'm grateful for that!0 -
so interesting article
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Moomala, hope you are feeling better soon so you can enjoy your holiday. I agree, if you are sick, gifts are not what you should stress about, taking care of you and DH taking care of you as well.
I did get my Christmas shopping done. We set a budget of no more than 25 dollars each so I got gift cards. Tried to be more thoughtful of what I got like UBER gift cards, clothing cards and movie theater cards amongst others. Also bought gas gift cards for SIL's mom and stepfather since they are having me over. Figure they do a lot of driving around, thought it would make sense.
I am also trying something weird food wise today. Will let you know if it works. I am slightly anemic and my MO office is starting to bug me more about it. I refuse to take an iron supplement and cannot stand cooking spinach so I picked up some beef kidney. My thought is too cook it up, then cook up a couple of hamburgers, then grind them together after cooking as I expect the kidney to have its own taste that I might not like. The blood coming out is grossing me out but I am going to persist My hope is that it tastes good since it has more iron than even just the burger.
I did try the beef kidney and burger cooked up and ground up together. Put mexican shredded cheese and sour cream in and heated it up. Added shredded spinach as well. It was delicious. I will find ways to utilize beef kidneys or liver in other meats. Possibly even premade meat pies. I am in no way a cook but think this will help to have it a couple times a week and see if my numbers improve. Fingers crossed.
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Lots going on here ladies, just reading recently.
Moomala you sound much more like yourself even if you still feel crap!
Everyone else, I think the festive season affects us all. We either get stuck in, or we consider that this might be our last which is depressingly scary ( get that), or we don't engage in the festive thing at all. One thing that resonated was the founder of Maggie's centres in the UK.... a metastatic patient. “Above all what matters most is not to lose the joy of living amongst the fear of dying".
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Moomala~ pneumonia is nothing to fool around with. Absolutely agree with your pcp. It isn’t something to take lightly. I hope you get done whatever you can get done. The weather has been soo shitty I don’t even want to go outside.. ive been a hermit and just wrapping and opening the door for deliveries only! Please take good care..
BooBoo~ I love your tree it looks lovely. Blue is my favorite color... it truly does look fantastic...thumbs up for the family help. My DH took care of mostly everything except decorating. I did my own. I love to do it. It’s taking it down id love the help with. Yuck!
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waving to Mara and to Karen!!! Hope you’re having an okay day.... where I am the weather stinks! Hugs to both
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Laurie, that sure is a lovely tree you have. The blue is very beautiful.
Hi Mel, I had a good day. Weather here was not bad, just cold. Icy sidewalks so put cleats on bottoms of shoes. Did not slide a bit.
If it snows tomorrow, I will put cleats on and just walk around the neighbourhood if my delivery is not scheduled tomorrow.
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Moomala, Afinitor (aka Aphonytor) can have really serious side effects on the lungs. You are right that some people are okay on it and others have major problems pretty quickly. Sometimes it can take a good bit of time for the pneumonitis to heal after stopping Afinitor. Do you know what your next treatment will be? I have found various chemos more tolerable than Afinitor. The most disenchanting part of it is that the drug seems to work for very few people, despite its harsh side effects on so many (hence, the nickname Aphonytor).
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Boo - what a fun tree! And its so tall!
Mara - I do consume a lot of spinach (quite a bit in smoothies in fact), but I've also been wondering about the whole liver thing. Last night I almost went downstairs to try a little nibble of OH's liver pate (aka braunschweiger in some parts of the US) but was too tired and figured I could wait on that experiment. I like your idea though, of hiding it in some other meat and things. Some meatballs could work, especially if you added some spinach into the mix as well, with some tomato sauce. May have to try that!
Moomala- I guess keep on keeping on, right?
I remember your post last week about how tired you were before the piano recital madness.This year seems especially bad for upper respiratory infections of either colds or flu, I can't tell you how many people I know over here who got something that laid them low for almost a week with a bad cough. Too many nasties in the air! Mel and Karen and Tanja - hello!
The sun is starting to peak through here, thankfully, and I have like three days to finalise gifts and make it look like I did something on this work project. The election results here could throw the whole thing off anyway by the new year,so not too much stress
Feeling a bit congested in the chest, so taking it a bit easier at home. Muscle-wise feeling well enough to see how long I can go without a hit of Advil, just in case I have a fever (so far, no). Hard to believe it is only a week until Christmas - I could swear it was just August...0 -
Everyone has such beautiful Christmas trees.
I have a full day today with scans, blood work, and Onc appointment with 2.5 hours total travel time. My son is going with me I'm glad I'm not on call for work tonight. I have some anxiety as I feel I have new aches and pains. Maybe the letrozole?
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Dutchiris, I’ll be in your pocket while you wait for your scan results. Hoping that all is stable, of course.
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I'll be there in your pocket as well dutchiris. Hoping for clear scans as well.
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in your pocket reporting for duty!!! Dutchiris.... holding your hand and waiting with you! Much love and hugs. My friend..
Hello Sondra~ I am feeling a little better today yuck, tummy issues aren’t fun as we all know!!!! I have to run some errands with my friend today. I hope I find some energy laying around in some pockets. Adderall works only for so long I’ll Be taking two Today. Tomorrow is medicine day. Gotta go up to the palliative care. Doctor whom I love She listens That’s important to us all.
have the best day we all can. Love to all!
where is our Minnie? 💖0 -
welcome Back JFL! Always good to see you... sending out hugs to you too!
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So glad you all like the tree. DH and I are pretty happy with it too. Thanks again to my sister who did most of the decorating.
Well, we were supposed to go to Universal in Orlando, FL today (for three days), but I am still not over this cold and sinus thing that’s been lingering for several months now. DH thinks I should get a chest X-ray to rule out (or confirm) pneumonia. However, PIQRAY also has pneumonitis as a side effect, so maybe you and I are fighting this together, Moomala. I sure hope you are feeling better. I have a doctor’s appt. soon, so I have to run. Will update as soon as I know what’s up
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Tiny tree for us this year. I’m out of room and have no patience for a huge tree. Funny how things change.. we always had a huge live tree that took hours to decorate. This year I let my husband handle things. I don’t know if you can see in the picture but the tree “ snows”.0
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Hello everyone! Happy Holidays! This is my new visitor to my terrace. My daughter sent me the idea, so i went for it!0 -
Lynnwood~I think the size is perfect. Even better it snows! Yay! How cool that must look. At least DH took the initiative to get it done. Sounds like a good deal to me. I hope you enjoy watching the snow from your living room!!!
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I made this for my good friend's adult daughter who is severely autistic. She lives in a small group home and they all loved it.0
