My Husband, My Life, My Love, My Family, My Cancer
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I have 2 trees, this is the more traditional one.0 -
MJH☺️~Hello sweet friend and OG of this thread.... welcome home. So good to see your name here... I love your mr elf or helper. Is his nose a potato? So very creative. My daughter is creative like that and I love the things she comes up with. That is like you. Incredibly creative... always good to see you here. Sending you big hugs!!!!! Miss you around Hope that grandson is doing well also!!! Much love ~M~
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And here is the blue/silver one.0 -
MJH I am a sucker for a traditional tree like yours. Also, I love that block print wallpaper!!
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Jumping in pockets for dutchchris and philly and anyone I may have missed.
Last infusion of 2019 on Monday, then taking the new travel trailer on its first trip to a local state park for our anniversary (12/24).
Got an email about a complimentary 4 day trip to Laughlin, NV. It was legit and hotel and flight were free, so hell yeah DH and I are booked. I’m a Cesar’s member, so I just paid a $35 admin fee. Of course they expect to make their money back with my gambling losses but I’m pretty lucky on the slots, so we’ll see.
Not much else going on at the moment.
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hi everyone!
dutchiris I’m in your pocket for your long haul today of tests. Glad your son is with you to keep you company. Here’s to hoping there’s nothing much going on in those results!! 🤞🏽
I am doing well - mentally calm and feeling good!
Blood tests for wbc and neutrophils on Friday again...candy I think you asked how low I am? Well sounds like you run pretty low normally? My neutrophils were 0.8 and WBCs were 2.0. For me that is low. I’ve only been that low one other time which is when they took me down from 125mg of Ibrance to 100mg. Since then I’ve fluctuated between 1.0-1.4 neutrophils and 2.7.-3.4 WBCs pretty much I think. We are all so different! And I don’t think that having the low counts on Ibrance is anything the same as having them so low on chemotherapy - as far as being incredibly concerned? I could be wrong here, but that’s what I’ve been picking up! We are learning right along with our MOs as Ibrance is still relatively new on the market (since January 2017 I believe?)
Still waiting for insurance approval for PET scan and I’ll prob wait till after the holidays to do that since it’s such a busy busy time right now.
My BFF is getting a mastectomy and diep flap as I write this. She’s in my thoughts so much right now 😭
Beautiful Xmas trees everyone and love the potato Xmas porch troll!! So cute!!
Hoping that Mel, Moomoola, Mara, Sondra and there was one other person but I can’t go back to look without losing my message, all are feeling better today?
Mae - awesome on the free trip!!!! I LOVE the desert soooo much!! I used to live in AZ and I loved it there!!! Love the drive to LV from Flagstaff. So gorgeous and amazing!! Have a blast!! Make some $$$
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Lynnwood,
Your tree is beautiful. Trust me, if my sister hadn’t decorated ours, I doubt whether we’d have one.
I am trying to recover from the side effects of PIQRAY, and it’s not happening very fast. I’m not sure how long these drugs stay in our bodies, but I feel like I’ve been sick a long time. Hoping lots of rest and fluids will help. My doctor said he doesn’t want to prescribe anything until I get a chest X-ray, butthat will have to wait until tomorrow. I just have no energy to get there today.
MJH,
Wow. Both trees are beautiful. Hope your holidays are good!
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Mae,
Hope you have a great time on your trip. Sounds like a lot of fun
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Thank you Micmel, for the warm hello! I miss being a daily participant here, but can't seem to get my stuff together. I spent part of yesterday afternoon catching up here. I see that most are hanging in there, living in this weird realm of MBC.
I don't feel as though I have gotten to know most of you, but I want you to know I'm in your corner 100%!
Moomala- crappy pneumonia-what a stupid illness, and to have it just before Christmas. Everyone will understand if you can't be "Mrs. Christmas", though I'm sure it's more than a bit frustrating to you.
DodgersGirl-welcome to this heavenly place. You will find such great support here.
Runor- I, too, am among your fans! If we need levity, we head right over to Comedy Central, AKA Runor's posts!
Mae- I can empathize with the "OMG, I won't always be here" meltdowns. I can go from working around my house to gut wrenching sobs in 3 nanoseconds. I was at my 10yo grandson's winter concert, smiling and singing along- then I thought "Wow, Aiden might actually have his first date with one of the girls up there singing" And then the sick realization dawned on me that I may never see it happen-right there in front of God and everyone. I sort of squelched it and recovered to enjoy the rest of the evening. It crept back up on me the next day and between sobs, I asked DH if he could narrate parts of my grandsons' life to me when I'm gone and maybe somehow I could hear it? It brings me to my knees, but usually I am able to get back into the moment.
Tanya-steadfast and sweet friend- love reading your posts and admire how you soldier on.
Candy-what a rip off for your young acquaintance. You must have felt so stunned and sad.I couldn't hate MBC more.
Boo-good for you for talking with your feet. Sounds as though your experience has been dehumanizing. I hope your new MO has the compassion we all deserve.
Mara- I love to read about your sweet little routine and how you take care of yourself.
And to Simone, BevJen, Sandra, Rosie, Karen and anyone I've missed, may the force be with all of you.
I am on my 5th round of Taxol, which has stabilized and maybe slightly improved my numerous lesions. I have tolerated it fairly well. I have some neuropathy in my feet and developed what is possibly neuropathy in my jaw. It has been painful at times, resembling toothaches, but also causing earaches and headaches. I was put on gabapentin which has helped a lot, but it makes me sleepy. ONJ from Xgeva has not been ruled out, though it really doesn't present as that. As far as "old lady chin hairs"- fuggetaboutit ! I have no hair anywhere! Thank goodness for my favorite Anoki brand soft cotton scarves. Of course, like all of us, I want to get a lot of mileage out of Taxol. I am looking at a clinical trial at Mass. General which involves an AKT1 inhibitor (I have AKT1 mutation) and Ibrance. The hope is that the AKT1 inhibitor may enable Ibrance to work again in patients that have had it previously.
So, lately I have just been playing "Mrs. Christmas". My grandson is really into it and excited. I have scaled things down considerably, so it's mostly fun. I have taken my time and tried not to stress. But, sometimes it can be a bit frustrating to be "the little red hen" amidst my family that seem to reap all the benefits-you know what I'm talkin' about....
Love to each and enjoy hot toddy on me!
Mary Jane
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We LOVE seeing the photos
! Beautiful. 0 -
I agree ladies. The trees are pretty damn nice! I hope everyone will keep sharing. If you celebrate of course! It’s a blustery day here with cold temps and snow squalls! It’s feeling more like Christmas. One week today. I am waiting for two more packages....then I’m done. Three more to wrap. I am sick of wrapping for sure! I’m also out of tape! Ugh! It was on my list, maybe it would have helped if I looked at it .... sometimes I wonder where my brain off and went too.
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Hi everyone!
Yes, I love seeing everyone's tree. They are all beautiful.
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I am SO enjoying all the tree pictures!!! Here is our little tree in the family room. We are still working on the tree in the living room. It used to be such a celebration, but now I can only manage a few ornaments a day. Fortunately, DH and DD have stepped up, especially DD, who put all the lights on the trees, and most of the ornaments. Its a struggle to remain positive, although the last several years trees have been more and more challenging to complete, as fatigue accumulated--little did I know the reason.
I am so grateful to have found all the wonderful people here supporting us through this stupid disease.
Happy Holidays everyone!
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my tree is a little sad. Some of the lights are not working and my ornaments are not done. I call this Pneumonia Tree.
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Moomala~Your tree is lovely. I love the reindeer In the front and I spy a piano...... loving those hardwood floors! Feel better please.... the tree is just fine.
Movingsoccermom~I love your little snow mans. They are cheerful and happy. My kids would have gone. Crazy over them as kids.. I love the tree size as well.. I am finding they are easier to take care of anyway. The needles end up everywhere. I hope to have mine out way before that happens. Just want to rally the troops to put the damn decorations away!!!
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Moomala, I am sorry, I know you were not meaning to be funny, but Pneumonia Tree, oh my god, I laughed out loud! Since I have no tree, at least not yet and might not, I might name my tree In Quarantine Tree...where no one can see it! You are a genius!
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HaHa runor! Next project in pneumonia-ville is figuring out how to give people gifts without wrapping them. I just don't feel like it. At this point, the grandkids are getting money. I'm sure they'll love it but it's so not me. I am typically the queen of festivus with food, drink, gifts, music and merriments. I have cancelled all Christmas activities. DH and I are staying home alone. This is the first time in 20 something years I have not done Christmas Eve dinner for both sides of our families. DH and I will have a quiet Christmas eve at home followed by Christmas day at home. Everyone else seems to have scattered and dropped into various plans with other people. Life goes on. Hopefully next Christmas will be a little better inlcuding me, alive and with a different attitude that I do NOT have to do it all.
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Moomala,
My guess is you’ll decide this was the best Christmas EVER! This is our first Christmas in FL and away from all family and friends. You have no idea how excited we are to skip the parties, dinners, etc. I know I sound like Scrooge, but I was so tired of the same thing over and over, so we are happy campers. We’ll go to church on Christmas Eve, eat out afterwards, and then home to our nice quiet house. Can’t wait
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That's awesome Booboo! I'm looking forward to it now!
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I am in full agreement about the quiet Christmas.....It will be just my DH, DS,DSS and myself for Christmas morning, my DD and SIL will come for dinner later. It will be my first year without her here Christmas morning. Even last year she drove up to be here. I guess her DH didn't like that very much. I just want to be with my family. I have so much fun and we watch the Christmas story over and over on TBS. I love it. Cracks me up. Ho-Ho-Ho-Merry Christmas Kid!
“Youll shoot your eye out!”
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MJH~Somehow missed that awesome gingerbread house....I love the colors and how neat it looks completed. Who wouldn’t love that beautiful house to snack upon will.... you’re so very creative. Ever since Ive known you you’ve been so active and creative. You’re amazing.0 -
11 1/2 hours later, all is stable and to slightly improved. I am so tired. Sitting for periods of time makes me so stiff and sore. Even sitting for my 30 minute lunch break makes it so hard to move again.
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Going in tomorrow for a restaging PET scan. They are looking to see where other mets are. It will be my 3rd PET scan. Last one was clear. That will not be the case tomorrow. Hoping for bone only mets for Christmas.
If anyone wants to come along, please bring water as I am NPO after midnight and the muscle relaxer I am taking at night really dries my mouth. I think after the scan, my tongue will stick to my teeth.
In keeping with the current theme, here is a close up of our tree sans ornaments (which may be how it looks on Christmas Day)
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Yay!Dutchiris~ that’s great to hear. Wonderful going into Christmas week. Sending you hugs from a far..
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Great news dutchiris!!! I love this!
Water's ready dodgers girl!
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Dodgersgirl~Reporting for pocket duty in the morning with strawberry’s and raspberries and fresh fruit. Make sure the pockets are big!!!! There are a lot of us.
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Micmel— I am counting on needing big pockets. Tomorrow’s PET and later this month my brain MRI have me a bit scared. I know you all understand. I love strawberries and fresh fruit.
Moomala— thanks for the water!!
Still waiting on insurance to approve my Ibrance. BC is definitely a hurry up and wait thing
Thanks for the company tomorrow!!
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In your pocket tomorrow, Dodgersgirl. I’ll bring some water for you, for sure, iced tea for me. Hoping it goes by quick and easy.
Moomala, Your quiet Christmas sounds like a good thing for you this year. You can re-evaluate for next year when you’re healthier.
Dutchiris, yay for stable and improved!
MJH, Hello, I’m sorry to hear about your jaw pain. I hope it’s not found to be onj. About being the little red hen, I can understand being frustrated and tired about doing it all. Glad you’re enjoying the simplified activities with your grandson. Kids do make Christmas fun.
I love all the tree pictures too. 🎄🌲🎄🌲🎄🌲🎄🌲🎄🌲
Saw my MO for checkup. I’ll have to make a decision next month about going ahead with liver treatment (not sure what exactly) and rads for post lumpectomy. She said if no liver treatment, then not worth going through rads either. I’m really not sure if I should go aggressive or not. Doc said there are no definitive studies showing added overall survival. But at Sept appt she said there’s a school of thought that taking primary tumor is beneficial so I did that. As of now I think I’ll wait for liver mri next month and see what IR proposes, if anything. Thanks for listening, I’m just trying to sort this out.
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Yay dutchchris, great news!
Dodgersgirl, in your pocket for the PET, good luck!
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