My Husband, My Life, My Love, My Family, My Cancer
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Mel, at times it can. I quite enjoy a day sitting on the couch, filling out surveys for cash and watching either youtube or finding a movie to watch. I also enjoy audiobooks quite a bit. I do sometimes take so called rest days if waiting on a delivery as well to give my feet a break. I have orthotics but can still feel slight pain in my two toes next to the big one. I have a toe spreader that I think I can wear with shoes that I am going to try out next time I do some walks. Just want to make sure I do not cause them a lot of pain. Got stress fractures a couple years back walking too much while on steroids for the brain issues.
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Mara ~ I have my resting routine. Having two dogs makes that a challenge some days.Dh puts up With them in the mornings. It just gets to the point to where you’re just plain worn out. I’ve had a stress fracture from
So much running. I can relate to walking to much. I went from being at the gym every week day morning for hours. Down to driving past the gym and being sad. Cancer came inn like a wrecking ball! Blam. Blew my life up...0 -
Morning all -
Another hot day forecast here but given the sinus headache I woke up with, and the weather report, looks like it is set to cool off back to normal after some rain/storms either this afternoon or tonight or tomorrow. Our new place stays so SO much cooler than the old one so other than a few hours in the middle of the day when its like an oven in the conservatory area, the rest of the house more or less stays pretty comfortable. Just have cats flopping all over the place in search of the best breeze so we put a fan at floor level for them. That and a bag of ice for water/drinks and we are good.
Was supposed to go in to MO check up today but they called yesterday late afternoon with scan results and I guess that was my monthly. After seven cycles on I/L almost all bone mets have resolved or are barely registering, so they were very happy with the response to the drugs. Thats fab and all, but boob tumor had no change! The spine MRI didn't show any new mechanical issues other than the known stenosis, so I think its down to me to get strengthening. I do have to go in to get my drugs this morning, but they are releasing two month supply now which means we are down to just the injection appointment once a month. If I have to go in its at least an air conditioned Tube line, some of the old, deep lines get well over 100F in the summer and are essentially rolling saunas.
I ventured into my first non-grocery store yesterday with a stop at the local TJ Maxx. Last week there was a line to get in, but this week I walked right in and there were maybe 10 people in there total. Got some new candles, a new therapy wrap, and other assorted random crap that always seems to find its way into your basket there. Good thing Homewares was on the second floor and I didn't want to deal with the elevator! They had hand sanitizer out which seemed like a good idea at first, but was so heavily perfumed that even after washing my hands at home multiple times for a few minutes each time I STILL couldn't wash it off. Like super concentrated Department Store scent. Ugh.
On a sad note, I was sorry to read of nbnotes passing. I remember her posting just before Christmas about a concert she gave and how proud she was to achieve that goal. Seeing how long she had lived with Stage IV and was still working was reassuring in those early diagnosis days.
Take care everyone!
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Sondra~I was also saddened to hear about NBnotes. I hate this disease so much. Hatred is just too nice of a word. She was such a sweet person. I hope her family Is as good as possible. Losses are never easy. Never.
Congrats Sondra on your response to Ibrance. ! Way to go.... I find it either works or doesn’t. I wish it worked for all of us.
Moomala~ thinking of you you!
Philly~Ty for reaching out! I was worried again!
Gm Mara and Candy! Rosie and Simone ! have a good day!
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I have had a relaxing day. As busy as I kept myself yesterday, today was about chilling out and making sure I don't walk my feet into more stress fractures. Next walk, I will wear my toe spreaders to take impact off the part that feels sore. Ate lots of beans, washed a couple of blankets and filled out surveys for cash, things I enjoy doing.
Did get some essential oils that don't drip as much as pour out. Looked up the solution to this, apparently just need to put something like a chopstick or a pencil to prevent this. I really only like the eucalyptus, lemon and orange. Think I will make my laundry smell more lemony than even the sunlight does. Love Sunlight lemon smell.
I am sorry to hear about nbnotes, she was one of the first names I followed, did not actually talk, mostly read what she had to say about music and everything. It is good she had a long time but would have been better if she could have stayed. Obviously, only if the quality of life was decent.
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Micmel, we are out of lockdown in Spain now. Still have to keep our distance and wear masks when in shops or where there are groups of people. We have been lucky in this area, so will continue to be wary especially as summer tourists arrive. You all take care x
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Sondra, great news on your bone mets! Hope the primary gets on the ball & starts shrinking soon.
Candy, how are you doing today?
Mel, the summer nails are so pretty! I have short fingernails & leave them unpolished but I usually get pedicures for sandal weather. Not this year, plain Jane and happy enough!
Minnie, I'm glad your area is doing well with Covid. And hopefully the tourists behave themselves and wear masks in public, if that's required.
I had a scary surprise last week with very low lab numbers, lowest ever, but an extra week off did the trick and I'm back to acceptable numbers for starting my next cycle. I met with the endocrinologist about my parathyroid issue and he says it's mild and see him in 6 months. My blood value was pretty high according to the range but, what do I know?!
Hi to Mara, Mae, Tanya, Booboo, Dodgers, and others whose names have slipped my mind. 😊 Hi Philly, take care of you, but miss you
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Thanks Rosie for thinking of me.
I am ok today. Laundry and house work. Went to Medical Records and got my records on disc and then went to Post Office to mail them to consulting MO---appt July 13.
I have been posting a lot on the Ibrance Thread lately about all this whoopla about my lab numbers and Ibrance use and MO's reaction.
Mel- You commented that Philly reached out to you. Hope she is doing ok and comes back here periodically to check in with us. Miss her posts.
7pm here and wearing down for the day.
Hope all are ok tonight.
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Mara~ Hello my friend. I was wanting nachos all day. Love queso....... got me hooked again.
Candy~I am so sorrry that you're continually dealing with this problem, I know insurance companies have strict rules for classes and levels for oncology medicines. Lines of treatments. Any progression on the current treatment they say oh. Won't pay for it anymore. They are like hawk eyes. But you should always always have four MOs support fully.
Sondra<🌻🌹 hello sweetheart
Minnie~ I hope those tourists wear the masks and keep you guys safe. Our covid is spiking again in some. State's. I just don't see how this. Could be ok with out a vaccine. Always good to see you darling. 💗
Rosie~ I spend a lot of time on my nails. I used to bite them. But when I was like 13 someone took a pic of me biting them and if looked horrible so I never bit them again. They have been long ever since. I love all the colors. I have many. Sometimes I have to cut them back but I wanted to have peppy summer nails. I may go to a nail place and have them air brushed after I do my own manicure. Just charge for the art work. That's a lot of fun. It gives me something to do. But when one breaks and upsets the Apple Cart. Mama get grumpy.
I read in a menopause article that basically we become bitches. Moody plump women. I'm reading along thinking. And checking boxes off as I read. Totally have all the symptoms and I know I was slammed into it. Which is the worst for us. I was like. Yeah turn that air conditioning down again and I'll cut you. ( not serious) but damn. Leave my air alone. I need the house to be an ice box people, don't you get it.? Break out the flannels. Etc. I need it cold. Rough times without it. I was who that article was written for. Ugh! Heat flashes. Skin crawls. Headaches. Dry skin, use a gallon of Lotion a month. Bruise If you look at me wrong. Can't take the sun anymore. Nor heat. So much does happen to Our bodies. Then they got to the brain. Oh joy. There is more. Forgetful. Check. Agitated check. Self worth questioning, check...depression. Check. Foggy thoughts. Check! Outstanding article!! Ugh
Philly is doing good. Just trying to get things going again with her life and this virus and clients. She sends her love!
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Illimae— hope your MRI went well today. In your pocket for results tomorrow.
Is the Sahara sand going to impact the weather where you are? Makes me think about the movie “The Mummy”
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Mel - I don't seem to have the heat problem but boy howdy did the moodiness come on like a freight train the last two months. I had a falling out with a work friend yesterday (it was bad and its on him completely, not just getting butthurt over something random) and Other Half came rushing into the room to find out why I was having a major breakdown because I had been fine the rest of the day. Like all of a sudden I will start crying and feeling bad about everything going on and then it stops. Then starts.. lol - its like I didn't get hot flashes, I got sobbing fits.
This was the second time this friend has pulled this stunt of saying something to the effect that I need to take more responsibility and do this and that and it makes me want to scream - taking too much responsibility when managing a major project last year meant I didn't put time aside to take care of myself. The first time was the day after I found out I had cancer, and I told him then his comments made me feel bad and not to do it again. He doesn't know my diagnosis but even without cancer it was inexcusable. We both just went for the same promotion even though I knew it was tailor made for him and I was genuinely happy as he was passed over last year for two inferior candidates - I told him to call me when he heard. But it descended from that into what I think he thought was helpful career advice but delivered very badly and hitting WAY below the belt at some issues I've been struggling with relating to the C. Ah well, what he also doesn't know is that I have strong form in quickly cutting people out of my life when they give too much drama - the relationship never really recovered after that first incident, even though he apologized at the time, but its done now which is a shame as I enjoyed talking about certain topics with him.
I did lift some weights last night and it made me feel a lot better, so I am hoping that once the spin bike arrives next week and I can slowly start doing more substantial exercise I will get on a more even keel mentally.
Rosie -- I know! I keep poking at it, hoping that it will get a move on
However, I think I would rather bone mets resolve first so I can get out and about more with less pain.Mara - the jar of America-bought queso in my cupboard is just calling out to be eaten - perhaps I will try some on chips with spinach and home cooked black beans, just like you
Mae - good luck today and on your trial!
Stay cool everyone!
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Micmel...can you post what you use to get those beautiful nails?
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Sally Hansen gel colors from the drug store. You have to have the top coat. Revelon also has their own line of the gel series. I just constantly make sure they are Always painted. The gel gives them strength. I have every color imaginable. Thank you for noticing.
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having a busier day today. Already went shopping at a store that was having 20 times the points if I spent 50.00 in the store. Decided to stock up on essentials and picked up reading glasses for filling out surveys on the computer . Spent 95.00 and received 35.00 in rewards which was nice. Can use that toward next shopping trip for groceries. Was a nice walk to the bus stop and a workout to get home as I was carrying a heavy knapsack and extra bag. Extra queso, beans and chocolate were picked up too. I managed to get on the bus better today with the heavy stuff and made it home with the heavy knapsack, slow but no rest breaks, probably a 15-20 min walk from the bus stop. I may start throwing some weights in my knapsack when just walking around the block to get used to it. I know I could get a grocery cart BUT I hate pulling it behind me. Nothing much else happening, going to order smaller size hamburgers from my local fast food place, don't like my grocery store burger meat any more. I can walk there and pick them up after a big lunch today I thing.
I hope everyone has a good day and a decent weekend. Mel, your nails are beautiful. I envy people with that talent.
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Mara ~you’re a busy woman so early Already. You go! It’s goin to be stormy this weekend here. So I won’t be doing too much walking. Maybe we will ride somewhere and I can wear my new dress. I wish we could go out to dinner. But no inside dining. And I can’t take the heat.
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Mel, I decided I needed cheese and tortilla chips that I forgot. I thought, I'll take a longer way through a nice park by the river, it will be fun I told myself. HA, there is a steep incline uphill. It is the only way to get up the hill to the street I need. I did make it up the hill but I thought I was going to die. Went to the grocery store and on the way home sat on every bench I saw for a few seconds. It is almost 90 here so pretty hot. Got home and stripped every thing off but bra and undies and am in front of a fan now. My cheeks are all red and not from a sunburn. I feel really good but think I need to try that hill in the morning when it is cooler, is a good challenge.
Edited to add, Mel I am not a fan of the heat but if walking, I sweat no matter what the weather is like. When I do put clothes on, that will be my third change of clothes.
Second edit, had a really nice nap on the couch with my kitty right next to me. He is so cute.
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Mara,
You go, girl. I was thinking of you earlier today when I did go out for a walk around a garden-type park near me. I wasn't going to go, and then I thought -- no, if Mara can do it, so can I. I did intend to do a double loop but after one, I had had it. But I did get in a walk, thanks to your inspiration. Thanks!
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Bev Jen for you. It usually feels so good after it is done. When it comes to that hill, I will keep going up it but will likely try earlier in the day, not in the heat of the afternoon. I will also throw weights in my knapsack when just walking around the block so that the groceries won't be such an effort. Glad I can inspire you.
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I forgot to share some good news. Last weekend my family was able to purchase our favorite brand of toilet paper, Clorox wipes (large 4 pack), and our favorite brand of paper towels. Funny how something that used to be so routine was cause for a happy dance!
Sam’s was still out of all the items listed above as well as out of water and soda. So the world is not yet back to normal. Baby steps!
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Micmel, the Sally Hansen gel polish is amazing! In normal times I only have my nails done at the salon and always use gel. It is a game changer. I bought this stuff to try out since and it works so well! Much better than expected. I have 3 colors now and will probably buy more.
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Mae I hope all went well with your appt today.
SondraF maybe having sobbing moments is a Se of ibrance. I have them too. I stopped working in Jan 2017 when I got stage4. I had a stressful job replete with co-workers and potential for lots of battles. I’m proud of you for standing up to your co-worker. Deep sigh.
Mara you really have great energy! I’m always amazed that you walk and carry heavy packages. It’s one or the other for me and I stop and rest.
Nothing going on here just trying to stay busy with gardening and then belly flop into the pool. It’s quiet and peaceful and I’m grateful to be here.
Dodgers girl really Clorox wipes!!!!!
Mel hope you get to go out and soon andwear your new outfit too.
Tanya
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Tanya, enjoy the pool. The weather is going to be hot here, would be nice to jump into a pool. Have a good weekend. My energy is mostly from my mind, not so much my body. Persistence or stubbornness I would say.
I plan to go to bed early tonight, weather is supposed to feel like over 100 so I will likely stay in. May or may not use the treadmill or just take a rest day from walking. I should probably do some arm work with my weights. I'll find out tomorrow. Going to bed
Mel, hope you enjoy your new purchases soon.
Dodgersgirl, I certainly felt the happiness when I could purchase a rubbing alcohol at the grocery store. I only took one as I figured I could leave some for others.
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Hi ladies, I’m ok but not in Avery good place today, just trying to stay positive. MRI results weren’t ready but my neuro rads onc called and mentioned that she saw something in the imaging but we have to wait for the radiologist to review and do the report. This “something” was seen in/on the spine. I mentioned my recent bone scan and CT but she said this is different. When I asked if she meant Lepto or spinal fluid, she didn’t say no, only asked me not to be alarmed (oh. Ok lol). So I don’t know anything but yikes, I’m not ready for more problems.
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Mae~ Sending all of my positive vibes. Everyone I can muster. You have had a rough time And you deserve a break. Hoping it’s like she said and you really don’t have to be alarmed. Easier said than done lady.
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Mae~ Sending all of my positive vibes. Everyone I can muster. You have had a rough time And you deserve a break. Hoping it's like she said and you really don't have to be alarmed. Easier said than done lady. Do they hear what they say to us ? Hugging you !!!
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had a double post somehow!
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Mae, sorry to hear you aren't in a good place. A bit tough to tell someone that you see something in their spine and then tell them not to be alarmed. Doctors sometimes think out loud, stream of consciousness, when maybe they should wait until they have cohesive thoughts to speak. Hoping this truly is a fire drill and much ado about nothing.
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Thank you. I think she was trying to gently prepare me for a hard talk and she knows I want to know anything and everything up front, no sugar coating. She did say that no matter what, they’ll take care of me. I’m mostly ok but I did cry when I had to break it to my husband. Monday I’ll have more info, so I wait calmly until then.
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Mae, Hugs to you. 💕 That’s sure easy for someone to say, don’t be alarmed. I hope, in fact, there’s nothing to be alarmed about
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Mae~ I know that must have been a hard thing to do. I know those DH’s try to be our rocks.sometimes we just have to let go. We can’t be iron all the time I know how strong you are. I’ll be thinking of You. I know sleeping may be a little Difficult For you , but I hope you get some rest. 🌻🌻🌻
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