My Husband, My Life, My Love, My Family, My Cancer
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Mel,
Wow. Your Dad was very handsome! Awesome picture. And I definitely see James Dean.
Same with you, Mara. Love seeing those pictures of your family.
Ithink you are both honoring them by posting.
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Thanks a lot Laurie. I confess I had never seen the ones with him in front of the Eiffel Tower or his uniform. He was a handsome man. My DB was also very cute too.
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Good morning ladies
Dr appt tomorrow. Meds bloodwork and I have to speak to him about changing dose of ibrance faslodex. Last 3 months have been tougher than usual.
Candy I think you posted on ibrance thread about how you’re feeling tired achy sick etc. we’ve been on this regimen for about the same time 3 years for me. I did reduce to 75 once but still felt fatigue so I went back to 100. I’m going to ask for reduction again or longer space between cycles. whatever I can do I don’t do it the way I used to. I figured out my most tired SE times and did travel to Hawaii Morocco NY to visit family and friends. I went with my mom so it was easy to do an 80 year olds pace bc she’s going slow with me.
My pool is the only place I feel more normal. The buoyancy of the water helps the joint impact and I can swim or float. Grateful to get in.
Mae I know you’ll be so happy in your pool after purple markers are done. I got tattoos where my RADS were targeted.Booboo it’s always good to see you post. Since you’re off your meds now I’m imaging your Dream energy. I’m waiting for a bike 🚲 pic. Minnie has a bike pic I think a few years ago.
Mara thanks for sharing those pics. Your brother and dad are handsome. I’ll have to lift dads pics from FB too. Maybe later today bc I don’t have FB on my phone anymore.
Father’s Day I went to the cemetery and felt sad/happy. Happy for all the flowers on graves. I had a talk with DD while DH waited on a bench. Updates really then sat with DH on bench for awhile.
The kitty was returned yesterday too. My DGD was happy and I’m happy for her. We miss the curious kitty.
Mel thanks for your dad pics too. You were so good to your dad and I know that has to make you feel better that you gave him dignity.
Waving hello to all. So many names Big B Lynwood 50s girl Grannax2 dodgers moomala philly divine take care. Have a wonderful Monday.
Tany
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I want a pool. I want to feel bouyancy and feel that coolness wash over me again. I grew up with an in ground pool.after I had kids and we moved , We would join the local pool for the summer. I’d go everyday sometimes. I loved the Sun. Now I just can’t take the heat. Or maybe it’s the sun now Only. The pool would help. I just can’t be in direct sunlight because of medicines and possible side effects I can do with out. I miss swimming a lot. Enjoy for me please.
Boo Boo. Ty for the comment about my dad. He was a very handsome man. Even the day he died. Full head of black hair. Slight grey but more black. He was a fun man. I miss knowing he’s alive. Knowing I could call. ☹️ That’s what I’m struggling with.Hi Mara!!! Your dad looked so handsome in his uniform! Great pics.
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Illimae— In your pocket this week
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Morning all. Saying Hi to everyone.
Today is injection day---Lupron. Also Port Flush and labs. I started cycle 30 of Ibrance 2 weeks ago after all the whoopla about my counts, the break from Ibrance, and the Zarxio injection. My MO wanted a repeat CBC in 2 weeks---today. I know it is going to be lower, as that is how the med works---nadir at day 15. So I hope my MO doesn't overreact at today's results. I just want to continue the Ibrance without a bunch of stuff-- back and forth with MO, order Zarxio and I don't want it, etc. I just want to skip the drama.
I may swing by library to get some more books to read. Otherwise another day. My big outing is the doctors office--whoopie. Things are open here-- limited capacity and masks of course. But I just don't have much to do. Constant boredom. Frustrating. Plus the icky feelings I have. Just wish things were different---felt good and had a busy schedule. I don't make a very good housebound, cancer patient.
Mae- Hope you are doing ok with the radiation.
My note says Sondra has appt with MO this week also.
Hugs to all.
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Hi Candy,
Just remember that you are in charge of your tx options. Your MO is someone you pay for a service. If you want something specific (i.e., a change of meds or dose reduction), then you should tell her that’s what you want. I know there are some MOs that act more like Army sergeants, but I have to remind myself that I’m in control and not them. We see our MOs once a month (some more, some less), butwe have to live with our treatments daily; they are not the ones who have to take these drugs. I’m in your pocket cheering you along....hope you have a good conversation with your MO today.
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Booboo- Thank your for your support.
I do not see my MO today. Just the nurses for the Port Flush, blood draw, and Lupron injection. I will get a follow up call on the lab results later today or tomorrow. The MO will see the results and leave an order for the nurse to call and tell me. I hope it will be "continue Ibrance cycle as is" and that is it. I worry that my MO will order another Zarxio injection if the labs are low. I do not want the injection. They make me hurt and more importantly they are not protocol with CDK inhibitor use. Also, I worry that my MO will want to change treatments if we cannot keep my counts where she wants them.
So my "wants" is not a change of meds or dose reduction, but to leave things as is. I am not that worried about my counts, since they have been low all along and I have not had any illnesses due to the low counts. My "want" is to continue the Ibrance as is because it is helping the cancer. Just to leave things alone. If it not broken, don't change it.
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Candy~I’ll be hoping right along with you. I’m starting my 46 month on Monday. Ibrance fatigue is real , but I’ll take it. Good luck! Hope those counts are good. !
Hi BooBoo my sweet! Nice to see your beautiful self here as well!
Mara~ you doing ok? Hope all is well!
Mae~ hello my dear. Simone. , Moomala, hope you’re feeling better with your pain. Rosie, hi ya today! Tanya, hello lovely woman. How are you today? Floating around in a pool maybe? Jealous! I am. Minnie. Hello darlin... Iwrite, hello there...... jensgotthis Hope you’re doing good Philly Hope you’re anxiety is getting better. As things open more. I’m having chemo brain lately. It’s weird. It comes and goes, I notice it everyday somehow. In what I’m doing. Der What did I come in here for?? Hoping everyone has something cool planned. Because it’s supposed to be very hot and some bad storms in areas. So also be careful !!
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I can relate to having to put your foot down on what works for you. You have every right to refuse injection or other drugs as well. I have refused things like depression drugs and seizure drugs that are stronger. Those drugs lower my BP and I pass out on the commode. No thanks.
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Candy,
Yup, got it. Whether you want to change, stay the same, etc., it’s your body. That’s all I was really saying. I know in the beginning of this circus I would never say or do anything that my MO didn’t want. As time went on, I could see that the method chosen for me was often a crap-shoot. So now I’ll try new (or old) drugs, but if they start to make me feel worse than the cancer does, that’s when I speak up. Nope. Not doing it. Anyway, you get my point. And I am always here for you to cheer you on. Always! I don’t want any of us to suffer more than we already do.
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Hi Micmel and ladies,
I am reading, but not much to say really. Latest scan results were good, so treatment continues. Feeling not too bad and enjoying life. Think of you all, take care x
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Hello Miss Minnie!!! I just babble anyway half the time. It's always good to see you. How is the covid in Spain? You all out of restricted times? Glad all Is well !
Haven’t seen Shetland either ! ♥️🌹
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ladies I got so Bored I broke out my nail polish! Insomniac checking in. Hope everyone. Is sound asleep resting! Sweet dreams!
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wanted to get summery!! Hugs to all!
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Mel your nails are pretty. I’m awake faslodex shots for some reason I’m not crashing yet.
I hope you don’t see this until late tomorrow and you’re asleep now.
Tany
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Mel- I LOVE the nails!!!!! So summery and happy.
Minnie- Woohoo on the good scans!!!! Happy for ya.
I posted more saga on the Ibrance Thread. MO appt this morning. Worried about it. I don't like confrontation. I want everyone to like me. Not make waves. But it is coming to a head. I will post later today.
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Good luck, Candy! In your pocket for moral support and hoping it’s a productive appointment. You’re ready. 🌻🌻🌻
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Candy~just be your honest sweet self. Honesty is the way to go. I don't understand why some doctors have bed side manner and some just don't, you should never stress over seeing your doctor!!! I'm in your pocket I'll scratch him with my summer nails. ! Or her even!
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Tanya~ I woke up at 948 this morning. So I finally fell asleep rather well. But now I’m awake and livin the dream!!!! Ibrance fatigue here front and center. Hope you slept also fine lady! 🌻
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Waving hello to Rosie. Good Morning Mara. ! Feel like I’m saying hello to family. Lol.
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Candy,
In your Pocket too! As Mel said, you are so sweet. Best wishes. I’ll be waiting to hear how things go...
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Mel beautiful nails indeed.
Candy in your pocket too.
Beautiful day here, been on two walks. On the way to dollar tree on the bus.
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Update on Ibrance Thread.
My head is swimming.
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I answered you on the ibrance thread Candy.
I have had a good day so far. Went for two short walks this morning and went out to the dollar store on the bus this afternoon. Got a couple laundry things there and a couple of groceries from the store next door. I had planned to get burgers at the restaurant there for takeout BUT my bag was too heavy, had to take the bus home another way with less walking. It was comical because I almost could not hoist myself up because the bag is too heavy but I made it home and put the bag on every second stair to get into my apartment. Still feeling good. I may go to the restaurant this afternoon but we will see about that.
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mara- I am continuing on the Ibrance for now--- I am mid cycle. But who knows about next cycle. Will be based on my blood test.
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Well, I have mixed updates. Radiation for the trial is delayed, while insurance approved my participation in the trial, radiation itself is being denied. A peer to peer was done, an appeal filed and now we’re waiting on an outside independent review.
However, yesterday I had 1/4 everything bagel with cream cheese, 1/2 a bean and cheese burrito and 1/2 a cob of corn. Small improvements but better than previous efforts.
Not much else going on, just staying in as Covid cases continue to rise with openings, etc.
Hi to all 😀
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insurance companies are completely annoying. I’m sorry that you have to deal with that and have to prepare for radiation. I hope they move their paper fast. Like you would wake up and say hey I feel like having a trial for cancer to attend to today! Yeah that’s it I mean your doctor is involved like hellllooooooo. Mcfly!!! ?
Shetland. You doing ok ?
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Mae, I am hoping they get everything settled for you soon. Glad to hear you were able to eat a little more. Every small step is a victory.
I did not go out again after the third time out today. Decided to take it easy the rest of the day. Will need to find exercises to strengthen my upper legs because I really almost could not get on the bus with my grocery bag. Will consult youtube about that. Not planning to be quite so busy tomorrow but like being able to get some stuff done at the same time. I was quite lazy for a few days last week.
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Mara~ lazy and your name do not fit in the same sentence!! My little engine that can!
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