My Husband, My Life, My Love, My Family, My Cancer
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Hello Mae!! Hope you had a good day! How are the temps going out therein Texas ? Windy and freezing here. I really don't like it. I want the 65 degrees back! I had some cauliflower sauce linguine and it was pretty darn good. I have so much to do and I miss my walking. This lower degree weather makes it impossible for me to go walking outside. My eyes would freeze. lol I was thinking about bringing up the stepper! I have one, just need to familiarize myself of not being clumsy! Sleep well everyone ! Hugs to all ~M~
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Claudia~ I was having my trouble sleeping early. But I wanted you to know that I am thinking of you and will be sending all my strength and good thoughts I can. I now how hard it feels with the scans. I wish I could take it all away. Just lean on us. We will be your ears if you need screaming. Or shoulder for a hug. Or hands to applaud that's it's freaking over with. Just sending a special thought your way. Much love ~M~
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Good morning ladies.
I hope everyone is doing well, I was wondering if anyone has heard of a spray that you spray directly onto your pillow, it contains chamomile and lilac. It's supposed to calm your senses and allow you to calm down without drugs. I just came across it as a sample, given to me. I'm going to try it tonight, I just wondered if anyone else has tried it and if you guys had any input. Hope all is well. I know how everyone is busy. Preparing for the holidays. If you don't celebrate Christmas. I Am kinda envious! I have almost spent 1k$ already. Arrrghhh! Has anyone else seen the new stupid kit kat commercials? They are really awful. The music is annoying, is anyone else sensitive to noise more since you have gotten cancer.? Maybe it's just me. Much love ~M~
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Hello Everyone! It looks like the holidays are fast approaching and everyone is spending time with family and friends, cooking, baking, and finding pleasure in snow, lights, and warm wishes.
I have a liver bx on Thursday so need to run to get my blood work done and pick up my Xeloda at the cancer center. I just don't seem to be very motivated today. I need to just get up.
Have any of you had trouble getting your pain medication? Last script I got from my MO was about 4 months ago. Interesting conversation around that script. MO stated that a colleague had been reprimanded by the state for his pain med scripts...really...an MO prescribing pain meds to cancer patients. This sent a chill through my bones. In this current climate we seem to be painting broad brush strokes regarding pain med scripts and many people who are in need of these meds are not going to get them because we can't seem to differentiate appropriate and inappropriate usage. I take gabapentin for nerve pain and when I went to get the pain med script filled I asked the pharmacist about med interactions. The pharmacist looked at me and very sarcastically told me the pain med should only be used PRN. I looked at her with daggers shooting out of my eyes and told her yes, I knew that. I then proceeded to tell her that it was her job under her licenses to provided the medication prescribed by my medical practitioner under their licenses. I then looked at her and informed her I had stage IV cancer. She became very quiet. I sure hope that in the future our conversation will play back in her head as she addresses others.
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NO1~I would look into a palliative care doctor through your infusion center. Seriously I have never heard such crap in my life. My palliative care doctor just enrolled me in the medical marijuana program for even more relief. I get whatever I need, three months in advance even. She pre writes them for me. You need to get to the medicine person. But I will say even my Japanese MO will give me what I ask for. I try to filter my medicine through the palliative care doctor because that is what they are for! I found mine through my hospital. I wouldn't accept that Crap. You need what you need. I am pretty sure most hospitals have them. I am stage four and I intend to take whatever I need to, to be able to survive as normal as possible for as long as I have left. I have heard of the crack down, but still you're a cancer patient. I would seriously research a palliative care doctor. Mine is fabulous! Nice to see you here. We had been hoping all was well for you! Big hugs. Preparing for the holidays is certainly alot of work . I also don't ever feel like doing anything. I know the medicine does have side effects and they suck outloud! But we must power on! While we can. Don't be a stranger! You take care of you! Much love ~M~ Will be sending good thoughts for good blood work!!
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Holy smokes! I haven’t been on the threads in a while. This thread moves like a Ferrari! I have several pages to catch up on!
I will read before I post much. Just checking in to say all is status quo. And I hope all is well with all of you!
And I also love jigsaw puzzles! I bought the round swiveling puzzle table from bits and peices
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Chelle~ so glad to see you!! We were starting to get worried!! I am always glad to see your beautiful smile here. I am sure your decorating is magnificent and we await more pictures of the beauty. I was thinking if we had a Christmas tree, we could all post pics. I would love love to see everyone's beautiful trees and the different decorations. Makes me happy to see the lights. I have to admit I feel more in the spirit since my scans are over.
Claudia~ I am thinking of you today honey! Holding your hand and making noise from your pocket so you know I am there. Gentle hugs for you my friend. 💕🌹
Tanya~ hope you're doing good today!
Lynne(man)~I hope your cold is better today. I am almost done all the shopping, but I have to replenish my money first lol. I looked into my DH's closet where I put all the presents and I almost fell over when I realized how much I have to wrap. My DH won't be up until the Friday before Christmas, so I am taking each day and trying to get something done. I feel like I am stalking the ups man, always on the look out for him, "where's my packages????😜😜😜 they probably think I am nuts!
50's~ hope you're well also sweetheart!
Waving hi to Gracie
Keetmom ~Bundle up
NAN!!!!!!!!!!!!!!!!!?????😩
Much love to all.
Mae? You ok sweety !!?
Leapfrog~Still smiling about your garden! Love some pics
~M~
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......ok guys this is my first selfie with my grand puppy Chief. Lmao. I don't do those but he is just so darn adorable ! Much love ~M~0 -
Micmel, I hope I did not give you the wrong impression, as my MO will write for what ever I ask for. The pharmacist was who gave me so much grief. And it wasn't the first time this particular pharmacist has given me c**p. I was so ticked off at her. I asked to speak to the pharmacy manager. First, the pharmacist has a license to fill the prescription as written by my MO. If the darn pharmacist wants to write prescriptions she needs to go back to school...medical school.
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NO1~well thank goodness. That makes me feel better. I was all mad for you. No pharmacist should have the right to question anything other any reactions you may be at risk for. I feel better for you. lol I am like a mother hen I swear! Hugs to you ~M~
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Mel, the grand puppy is gorgeous, as are you😊
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Thank you Gracie. Nothing of how I used to look! Makes me sad. It was windy that day. But love my big guy now! Hope you're doing good today! When are you starting ibrance? What milligram? I hope you don't get too much fatigue. Sending you hugs. Much love ~M~
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micmel, your grand puppy certainly is getting big. And wow nearly a grand on gifts?!! I think I maxed out on about $200 on myself and nothing really for anyone else.
Nice to see you back Chelle
The current puzzle has me completely addicted, lol0 -
Hi everyone, I have a lot to catch up on, but I will eventually read all the posts I missed.
Lynne, I hope your cold and bronchitis have improved. I have also been suffering with a miserable cough and cold and now a sore throat thrown in, just for the fun of it. I think everyone in this neck of the woods either has a cold, is getting over a cold, or is just coming down with one. Are you having your treatment this week? I hope it goes well and that your week of misery that usually follows isn't severe. You have a busy schedule coming up with all the birthdays as well as Chritmas Eve and Christmas celebrations.
Claudia, When will you get the results of today's scans? I do hope that the experience wasn't as bad as you feared. How are you feeling?
Mae, Did I see that you had snow down there in Texas? I hope that it didn't stick around too long. Did you have to shovel or did it just melt away?
Tanya, I love that picture you posted of all the smiling faces of the women in your family. It is always so special to get together like that. I am glad that you were feeling well during the trip. I must confess that you were right - the relationships by marriages are a bit confusing. Lol. As long as you can keep them straight, that is all that matters.
Mel, The picture of you and the puppy is really nice. Of course, the puppie's head is about twice the size of yours. He is ONE BIG PUPPY! Although you cannot see it yourself, you are still a beautiful woman. You might look different than you did once, but our looks are constantly changing throughout our lives. You changed more dramatically than you had anticipated, and not as you wanted, but the results are still quite wonderful. Do not be so hard on yourself. I see you with an unbiased eye, and I see beauty there.
No1, Have you had a liver biopsy before or will Thursday's be the first one? How long does it take to get results? Are they checking to see if the tumor still has the same characteristics as in the past or are you going to have testing such as Foundation One?
Keetmom, How much snow do you get in an average winter? I hope you are feeling well.
MJH, You live in Maine? Do you receive treatment there or travel to Boston?
Leapfrog, I hope you will be posting pictures of your lovely garden soon. Since we are now in the grips of the winter cold, it will be wonderful to see flowers and plants.
Minnie, Welcome to the thread.
Gracie, I am happy to hear that your progression is still confined to bone. I think you will find Faslodex and Ibrance to be a relatively easy combo. I have heard that Femera has more SEs than Faslodex. If you haven't already done so, please go to the Faslodex thread and read the recommendations before you get injections. They seem to prevent soreness from the shots. For example, make sure the injections are done slowly and that the syringes are warmed before the injections are given. I have had very few issues with Faslodex and Ibrance other than low blood counts. My life remains pretty normal.
I know I have missed people, but this post has grown into a book.
Hugs and prayers to everyone from, Lynne
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Mae~Hi there! I am asking for some jigsaw puzzles for Christmas. I really enjoy them. I am very interested in Chelle's mention of the swivel puzzle table. Is this an expensive thing? It will take me a few months to recover from Christmas. Yuck! I mean I have to admit it is fun on Christmas 🎄 morning all around together. I could spend $200. On myself lol. I've got quite a bit of people to buy for. I saw a picture of your puzzle I believe. Have you started a new one.? Thanks for the tips before on where to find them! Much love ~M~ Yes the grand puppy is Grande! I can't hold him anymore. I'm hoping for a visit tomorrow! I'm going to attempt to go to bed early. That's a laugh. I am going to attempt a nice sleep. Have a good night ladies.
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50's~So nice to see your sweet post! You are always so kind. I appreciate the sweet thing you said to me about the selfie with the puppers. I am very hard on myself. 45 years of knowing myself as one way and then the shock of what I am now. Seems I've aged ten years in two. So sad. I am just thankful that I am doing well! That's all that matters really. Living life. I hope you're feeling better from your cold. I am hoping not to get one. I am washing my hands like crazy and I don't really go out too much in this freezing weather! Awful 35 degrees with wind is! Really happy to see you here. Hugs!!!! Much love ~M~
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Macmel, nice picture of you and the big puppy!
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Blue~Thank you very much! He is a big baby. But I adore him. He's like a small pony now. I hope you and your family have a great holiday season!! Hugs ~M~ Hope you will come back and get to know us all, we have some good friendships here , also we talk about anything your heart desires. Yell if you want. Vent about family. Anything at all. The special thing in our lives are people and families. So why not have a place to discuss difficult things dealing with families or anything with this shitty cancer. Sleep well. And welcome again !
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I am on my third marriage. My second husband died from a brain tumor. I am older than most of you, 74. My current husband is younger, 67. I realize that my experience and place in life makes a great difference in how I feel. I was 60 when my previous husband, D, died and a few years later I married J. He was never able to take the place of D whom I couldn't bare to lose. It was hard on him, but now I have learned to love him, but in such a different way. I want him to find someone... he doesn't do well alone. I feel bad for him, but am sure he'll have some opportunities and probably will take one of them. BUT... he won't forget me. I will be careful to set things up to protect my children. A retirement fund is the best... That you can designate as you wish and is not divided up. We will work out the property so he can live in our retirement home, but my kids eventually get it. We have another house we share and that should be his. I do not mind at all that he has another wife or female friend. I've seen too many widows and widowers in my retirement home that have found a happy future together that otherwise would be very sad and lonely... Hope that your husbands find that solace and that the lonely women do too.
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Kacy2~Hi there and welcome to our thread! it truly is such a hard thing to talk about for me. This man is my one true love and I know I am his. Before we met he was another way, cold distant and rude honestly. He didn't care what women thought ever. He didn't even give many of them the time of Day and was never truly happy in his marriage the first time around. Either was I. I did love him I thought, but the second I met DH #2, my world changed, I was content and happy and did not ever need anything else In my life again. He was my home. My love my life my husband. My everything. The thought of losing one day together wrecks us. I don't want him alone. He insists he just doesn't want to go through anything like dating again because of our true happiness together and he deep and honestly faithful history, I am obviously aware he could quite possibly meet someone, because he is amazing. I would never want him to suffer. Ever. But I do know that within my own heart, I would want more of a group of friends and someone to spend time with. But as far as real true love. I believe there really is only that one. Like you said. It's a different kind of love. Thank you for sharing with us. And once again welcome to our thread it's like our little pub and we support each other and have nice friendships here. I hope you will come back and get to know us. Have a warm Great evening. Don't know where you are. But here it's freezing. Lol. Hugs to you. ~M~
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....our tree has blue bulbs and red flowers and bows. I tried to get a picture inthe dark. But my phone didn't like that. I love the special ornaments we all collect from our kids and families, I try to keep everything the kids made when they were in elementary school. Those were special times ! Have a good sleep. Much love ~M~0 -
50’s I will go check out that thread. Thanks 👍
Mel, I start at 125 mg. I am going to ask if I can wait to start until after Christmas since all my kids will be here
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Nice
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50's I was wondering about you. Always so positive and I can feel your love in all of your postiings.
My liver bx that is schedule at the crack of dawn tomorrow will be my first. Even though I am a retired perioperitive nurse, I would be telling a fib if I said I wasn't a bit nervous. My tumors are not in a location that is easy to get to so I suspect I will be pretty sore after.
The tissue will be used for receptor confirmation and will also be sent to F1. My MO has ordered a pathologist to be present to look at the tissue immediately to assure we have cancer cells in the samples that we collect. She has also ordered a CT guided instead of ultrasound. Again, the tumors are in a couple of tough areas to get to.
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Micmel, your tree is beautiful.
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NO1~we will be thinking of you as you go through this tomorrow! I had a liver biopsy, and I couldn't move for four hours after flat on my back. Had to use the under the bum potty for a few hours. They worry about the bleeding and keeping that under control. Mine wasn't that bad. Discomfort after. I was awake the entire time. I wish for you it will be quick and easy and you can be on your way! I agree with you on 50's posting, she is the sweetest thing and you can tell she really cares!! You're a strong woman! Much love ~M~
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thanks about the tree. I would love to see anyone else's if they feel Iike posting it. It takes so much work and it's over in a half hour or an hour tops. Then all the crap you spent days putting up, will need days to come down again!! Ugh! ~M~
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Good morning my support world sisters,
I truly appreciate you all. I was on last night reading but I didn't want to turn on the computer and wake my DH up.
I had anxiety to the moon last night. I couldn't shake it for hours. I was triggered because I got my bone density test results and the doctor didn't do a good job with the report. No comparison to my last 10 years of bone density reports and no appointment recommendation. I felt like once he found out that my BC is Stage IV he didn't feel like it was worth it. Yuck. Maybe he didn't feel that way but his actions made me feel terrible. I went into his office and handed the botched report and asked the receptionist to put a note on it and tell him to compare my bone density to my previous reports and not to the "adult mean", and recommend an appt. date, not necessarily with him but when it is needed again. Vent vent vent. Thanks for the space.
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Tanya~Always remember the patient is always right! Ask for what you want. My onc used to make me wait a week for my results. After the first two times in agony. I went around him to one of my friends from my primary care doctors office of 17 years. She would get me all results. But then she moved to Georgia and got a divorce bless her beautiful soul. So then there I was again having to wait. So my onc assistant was also leaving her position (which broke my 💔) because she was with me since diagnosis. She gave me her personal cell phone. I called her and she contacted the new onc assistant and she said, call this patient with the results immediately. Bloodwork I get my results from the infusion center, I saw my onc after. I don't think he was thrilled by my going around him. But damn!! Listen to US people ! We are the patients here!!!!! It's always so very nice to see you here! I am so sorry you had a rough night! Geeze, we all have certainly been there! Vent away! Big hugs ~M~ Good job demanding that they compare density! Smart woman!
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Mic mel Grandpuppy is gorgeous. You must be very strong to handle him at all. Gigantic beautiful baby.
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