My Husband, My Life, My Love, My Family, My Cancer
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Hi all, I completed my 3 radiation treatments for the trial yesterday, so after delivering a gift/balloons for a friends daughters birthday drive by, I’m hitting the pool 😁 I avoided the pool recently because of the markings and tape related to rads.
Got a mini trip planned to a state park a few hours away in a couple weeks for some river swimming. I’ll post pics later, hopefully nothing happens to stop it. Texas has rolled back reopening but is pretty firm about not locking down again, we’ll see.
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Enjoy, illimae! A well-deserved break!
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Illimae— enjoy the water. I bet it will feel wonderful
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Enjoy yourself Mae. Enjoy the pool. There is a community pool open not to far from me but unsure about it since I have not taken a swim and probably 30 years. It may be something to check off my imposed things to do list we will see.
I am not doing much today, just walking (short walks about 10 to 15 minutes several times to give me time to cool off, listening to an audiobook and laundry, couple of blankets and a duvet cover that SIL gave me. Like the pattern so will just actually use it as a decorative blanket on my bed or on the couch. Kept a thin fleecy blanket too. Really good for bedtime warmth.
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hello Beauties Just checking in Think of you all daily. I’ve been sewing masks. I’m going to take some to the infusion center so patients or the nurses may have use for them. I’m also going to supply my neighbors. I have made 48 so far. I’m on a roll! So much pretty fabric. I think I’ve become a junkie.
((((((Nicole)))))). Hugs
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Hi all.
Another quiet day here. They all run into each other. Did go to Dollar store this morning for supplies. Laundry today. Hot--heat index up to 110. Niece home from hospital and recovering. I cannot go see her-Covid restrictions. And she is still feeling cruddy. Tomorrow church service online---do not feel comfortable going to in-person service. This is my life now-- in house except store and doctor. It is what it is. Cannot tolerate the heat and Covid fears (real to be fearful).
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Candy, I am sorry the heat is bothering you so much. That really, really sucks since it is so hot and humid. Same weather here as well.
My DB and SIL and I went out, got a drink and a burger for me to eat first, then to my surprised we stopped at the park to walk. I was surprised to find I did not die of the heat, plenty of shady parts for me, felt good. Then we went to a grocery store where I finally scored 3 packages of wheat bran which I mix with taco seasoning for fiber and to stretch out the seasoning, went to the dollar store next door and found a decent broom and dustpan set so I am glad I did not pay 50 for the set on amazon. Also got lots of reese peanut cups and pieces as well. Overall it was a good day for me, though my face is bright red, did not find the heat too overwhelming. I am guessing it has to be mind over matter for me personally. I would not have been out even last year in this weather. I just know I need to be able to get to public transit to get to the hospital for scans or walk up to the hospital if need be even in the hot weather. I am FINALLY accustomed to wearing masks indoors without dying as well. This is good because they are going to be mandatory as of a couple of days if not in place now. I fully agree with masking for indoors as well to protect others. If people can wear pants, they can put up with a mask for a quick in and out. There are exceptions for this but more people need to just wear them. Here there will be a fine of 500 dollars if not worn. I don't kid myself the mask is protecting me but if a sneeze escapes without my knowledge, it will be contained.
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Thinking of Jaylea today. Praying she is comfortable and surrounded by loved ones.
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Nicole, sounds like your MO is sensible and supportive...onwards.
Sondra, with you on the weather, but don’t fancy the humidity the others mention! Also had swollen ankle and calf this week, but no pain, so putting that down to the 8.6 mile walk with a friend on Wed - fab views from Strathblane over Dumgoyne and the Campsie hills were worth it!
Mel, fab going with the masks.
Mara, your emergency phone pic made me laugh 😂
Anyone else noticed there seems to be a bit of a spike in cancer patient stage IV stories in the general media? Am I just having a moment? Finding that a bit hard so Mae, Rosie, Candy, Tanya, Booboo, BevJen and everyone else you are keeping me going!
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Oh boy, crazy day! While waiting for DH so we could do the birthday party drive by, I saw a post that an old friend of DH’s was found dead this morning, possible suicide. So he comes downstairs, I’m crying, he reads the post and calls the friend, no answer. We stop for balloons and I get back in the truck to find out that the friend called back, he’s alive! His Facebook got hacked, someone’s idea of a devastating joke, F&$k!
After spending a little time distancing in the birthday friends yard, we came home where I ate two tacos!
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Mae~what a freaky thing to have happen. Geeze. I’m glad your friend is ok.
BooBoo~Hello my friend sending hugs
Candy~ Hi ya darling ! Mara.~hello sweetheart. I don’t like the heat. You’re a trooper for sure. I had queso today thought of you!
Karen ~ hello there. Hope all is good today for you. I’ve been a sewing freak!
Lee~ welcomE to the thread. Pull up a chair.Sondra~ 🌻🤗hi ya!
Chicagoan~ welcome back my friend good to see you.
Lynnwood~where are ya? Think of you!
Lynne~ 50’s thinking of you
Nicole~ also on my mind for sure
Moth~Hello hello hello! 🌹
Tanya~My girl. I worry about you and boo and mar being in these states. I’ll send you some of my masks to protect you. Just give me your address ! Amazing. I was hoping this virus thing would die out because of the warmer weather. It’s freaky that it hasn’t Dont like that at all !
Rosie~Hello darling hope you’re having a good weekend. It’s hot as balls here this weekend. I’m hibernating inside with my ac... Dh says we could hang meat in our living room. I just love to sleep with it being chilly. Works better for me and my hot flashes Ugh I’m done with This cancer shit. I know we all are..
Dodgers~I’ve been thinking about maes pool all day also. I miss the feeling of swimming I’d like to do it again. I just don’t want to scare anyone. I used to love the water.
Off to bed early tonight last night was late. Up till midnight which is something else for me I don’t usually do that But we were just hanging out. It was nice But I need to make sure I don’t burn out. So goodnight ladies. Sleep tight!
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Mae, so glad the friend is OK but what a terrible thing for someone to do. I am very glad to hear you got to eat two tacos.
Mel, sweet dreams to you as well. Glad you had some queso. My favourite for sure.
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Mae, that is just awful what happened to your friend, but so glad he's ok. That's just cruel what that hacker did. Yay for enjoying two tacos, too!
Last week my DD, her friend and I went to the Great Sand Dunes Nat'l Park for the day; hot for sure! I am on disability now, but found out that I was eligible for and received a lifetime US Nat'l Parks pass at no cost; a little bonus! Thought I'd pass on the information for those on disability since I didn't know about it.
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Bliss,
Wow. Really? That’s so cool. How do you get a pass?
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Found another product that seems to be impossible to find at grocery stores in town:
Dixie Kitchen 5 ounce cups
I have a kitchen dispenser for these 5 oz. cups which I have used for decades. I just opened my last unopened box of cups so I asked DH to pick up some more. He checked 4 stores in town. OUT
Looked at Walmart online. Shows out of stock
Looked at Amazon. They are available but way more expensive than they could be (like $12 for 100 cups).
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That is very odd indeed Dodgers, funny the things that people stock up on or that stores can't keep in stock. Gotta love amazon allowing profiteers on their site as well. Shameful.
Well today is great, we have a tornado warning right now. Strong thunderstorms from all the heat and humidity. Hopefully it passes by. I'll just stay home and hope for the best.
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Booboo1, when we got to the pay booth at the park, the ranger said "the entrance fee is $25 unless you are current or former military or are permanently disabled." I said, "well I'm on disability." I have a hard time considering myself permanently disabled cuz I can still walk albeit with a cane, but she read me a statement and said if I can answer "yes" that I qualify. The statement said something to the effect "if you are permanently disabled from work... " which I am, so I answered yes. She took down my name, gave me a pass, told me it's non-transferable, to sign the back, and said enjoy the park.
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I happened to get my National Parks disability pass last week. I drove to a National Park and brought along my letter from Social Security. The entrance person examined my letter and my id and then gave me the pass to sign. I was expecting more of a production. You can also apply by mail but there is a $10 fee. We may as well take advantage of this little perk. I had hoped to take a long road trip this summer, making my way to Banff and stopping at National Parks along the way but I guess that is not to be since the border will remain closed for a while.
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Chicagoan, good for you taking your SSDI letter. I didn't know we got that perk, but I agree we might as well take advantage. I was surprised it was so easy, too. I did have my handicap placard with me, but taking along a letter would be the best way to go. We're also planning a trip this fall to Mesa Verde, staying within our state this year. We were in Banff for the first time almost two yrs ago; gorgeous! Hoping to visit Glacier Nat'l Park for the first time before the glaciers are completely gone!
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DodgersGirl, wow, those 5 oz Dixie Cups bring back memories of my childhood. My mom used those in the bathrooms. Or it might have been 3 oz, but she had the little container you put them in. I hadn't thought of those for a long time.
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Bliss, Chicagoan,
Thank you so much for sharing this info! DH and I have talked for a long time about doing a cross-country trip and stopping at as many state parks as we can. You just made my day! Bless you both for the info.
P.S. I just got my Garrett’s caramel corn I ordered. OMG how good is that? You are lucky to be a Chicagoan, with that treat and deep dish pizza!!!
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Booboo-Enjoy your Garrett's-so delicious!
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Regarding the Great Dixie Cup Mystery - I wonder if its more supply chain problems if the paper comes in from Canada. I've noticed intermittent supply problems here with various random things, and the stores are still trying to unload stock from the Spring.
Garretts is so good but damn if it doesn't give me an upset tummy every single time. They finally put a tiny outlet in Terminal 5 in O'Hare last year so its now (or was) possible to pick up a few small size bags of Chicago Mix (yeah yeah i know they had to rename it due to the lawsuit) before getting on an intl. flight. I actually tracked down the shop in Kuala Lumpur when we were passing through in order to get a fix. There is another brand that is similar you can get at Costco in a mega sized bag, but its not the same!
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Dixie Cup mystery: SondraF...wonder if it is a supply demand issue? I wondered if they were making masks or something so production of those 5 oz and 3 oz cups are on hold?
Ref Garrett’s popcorn—- we always pick up caramel and cheese popcorn when in the city. Yummy
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Hi ladies I had a lot of reading to catch up.
Thanks for the pocket duty and I will be there with you Monday Mara.
My appt. went well. My back looks awful on an xray. Apparently the cement from the kyphoplasty leaks out and is surrounding arthritis in my lower back. The arthritic place is near/on a nerve. I don't need surgery bc nothings so bad to be surgically repaired but I can get the nerve burned. It will grow back in 6 months to a year. That doesn't have anything to do with cancer pains but I'll take the relief. My backs been hurting so long that I am used to it. Next week on the 29th I'll have the first surgery which just identifies the nerve on one side and they numb with medicine. Then the following week they do the other side. If this works then I'll have the nerve burning surgery and I think it will be done all at once. I also handed in my DNR living will papers to my ONC and Moffit hospital last week. I don't know why I waited so long except it was emotional and makes me confront what the end could look like.
I've been swimming as often as I can. Being outside in water is a mood booster. The garden has suffered from all this heat. I think I should plant flowers instead of vegetables lol.
Mel I'll message you my address for one of your beautiful masks. I saw a 94 year old woman sewing masks on one of the morning news shows. I think she was around with rosie the riveter bc her masks were all red an white polka dots and she did the rosie power stance - making a muscle.
Mae I know you'll enjoy the lazy river so much. Cant wait to see the pics.
Candy I haven't been to the dentist since 2017 bc I had all this treatment/surgeries, then Covid. I've been thinking of calling but wouldn't feel comfortable to go until around Sept. I think. Covid here is soaring.
I harvested some pineapples today and walked across the street to bring a few to my neighbor. I also brought them some magic mouthwash bc her mom (87) is suffering with mouth sores. I kept feeling like I was not fully dressed. When her son opened the door I realized - no mask! They have a newborn too and I was at a hospital this week. I apologized and high tailed it back home.
Dodgers I'm glad you got the AC repaired. My refrigerator is probably gonna die soon. It's old but it still keeps everything cold, just leaking.
I never had Garrets popcorn but I love popcorn more than the average person so I think I'll look for garetts.
Thank you all so much for the support. I'm telling you when I'm in the hospital/Dr office I put my hand in my pocket and make believe were all holding on together.
Take Care All
Tanya
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Bliss, I hope you get to Glacier Nat. Park. It’s an amazing place. The main road through the park, the Going to the Sun Road has a limited part of the year (summer) open due to snow, so you have to plan with that in mind. But I heartily say “Go!” if you can. DH and I just finished watching Ken Burns’ National Park series on PBS. Setting all the park lands across the country aside years ago, and protecting them, was a gift to us all. We hope travel is in our future again someday.
Mara, I’m in your pocket tomorrow. Hope all goes well. No tornado today I hope?
Candy, I’ve been seeing my dentist pretty regularly. After my dx she requested I come every 4 months instead of 6, so she could keep better tabs on any dental issues due to meds. I’m off that schedule now, but the hygienist and the dentist were fully gowned and masked with face shields too. I felt like I was the one putting them at risk.
Tanya, I’ll be thinking of you with your back procedures. You seem like an active person and I’m sure your back pain is hard to live with. Pocket duty on the 29th!
Mae, Lol on the man-cold for my DH. He’s still dragging quite a bit but not with typical COVID symptoms so who knows what it is. Results should come by Friday. That was a terrible joke about your friend having passed away. Great that you’re enjoying food again. Maybe you won’t keep dropping your drawers on the stairs.Hello to everyone reading here. 🌺🌺🌺
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Tanya, glad to see you and appreciate the pocket duty for tomorrow. I hope the nerve burning will relieve all that pain and I am glad you are enjoying your pool God knows you need it in this heat.
Rosie, glad to see you as well, though there was the warning and we got rain and thunder, thankfully no tornado here. Wind did knock over a few trees in the west London area, my area was undamaged. It was quite a quick storm from start to finish.
It will be nice to get the scan tomorrow over with and hopefully stable so I can wait another six months to the next one.
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Evening all (Sunday evening).
I have been saddened today (Sunday). I watched Facebook stream of my church's service this morning. They announced the passing of one of our members. She was out watering her flowers on Saturday and fell. Hit her head. Brain bleed- on blood thinners. Died early Sunday morning. Such a shock. I talked to her on the phone last Wednesday. Visitation and funeral this Wednesday. I want to go, but with Covid.... I am going to call funeral home tomorrow (Monday) and see what precautions they are doing and tell them that I am high risk. I wish I could go and pay my respects. This is the first death I have had to deal with since Covid.
Mel- I may be taking you up on the offer to send masks. This lady sewed and I bought some masks from her before and had placed another order for more and was to pick up this week.
Pocket duty for mara for tomorrow. Booboo for tomorrow MO appt. Rabbit scans last week--results?? Jack5ie- Wednesday. That is what my notes say. And I should hear from 2nd opinion MO this week and injections and Port Flush appointment on Tuesday.
I just feel numb.
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Tanya - I hope your pain is relieved soon. How neat that you have pineapples! First time I ever saw them growing was in Hawaii when we took the Dole tour. Silly me thought they somehow grew on trees like coconuts so I was quite surprised by the reality
Candy - so sorry for your loss. Life is so fragile.
Mara - reporting for pocket duty tomorrow
I'm tired and a bit sore today. I suspect the grastofil injections for the wbc are to blame.
Also, I'm a bit cranky and lonely. You know how after diagnosis some people just disappear? And I get that. But I think covid has made it easier for people to disappear even more. Everyone is stressed, everyone is keeping social circles small. Gotta admit I suck at reaching out too so it's not like I can complain much
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It's funny, I just got a PM from someone who I used to see on a different thread here. It was nice to hear from him because I have been thinking of people I have not heard from for a long time. I don't always reach out either. I am estranged from my younger brother and was just going through my social media checking on his son and it turns out he is having another baby. Grandbaby #2 for my younger brother. I did not feel too sad but just a little regretful that I will not be part of these kids lives at all, I have reached out to nephew but not pursued it because I don't want to make it awkward for him and his father. I will just follow along by facebook and hope the best for the whole family.
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