My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • kbl
    kbl Member Posts: 2,969

    Thank you, Micmel

  • micmel
    micmel Member Posts: 10,055

    KBL~ always. 🌻

    My DD has been complaining about getting her hair done which I understand. But who does this when it happens ? imageThis generation cracks me up, then the next post is a picture of dinner. Lol. Too much !

  • molliefish
    molliefish Member Posts: 650

    who are these Cuties?...... love i

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    Thank you all for your support. When I was about to go under the anesthesiologist told me to think happy thoughts, and I told him I was already thinking of people who care about me. Everything went smoothly. I consumed a lot of soup and popsicles when I got home.

    Dodgers, I bet you could use cream of chicken soup or cream of something else soup in your recipes. Maybe add some sautéed celery.

    Wow, that’s a big deal, Illimae. It is good they take it so seriously and do all that cleaning and rescheduling. I had a day between my covid-19 test and my ERCP. I did not go anywhere and neither did DH or kid on the day between. But I did think that probably some people do.

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    KBL, you could give the radiologists who look at your scan this article, along with a note emphasizing that you have ILC and they should look for thickening and stranding, no just masses.

    Jpn J Radiol (2016) 34:400–408 DOI 10.1007/s11604-016-0541-7

    PICTORIAL ESSAY

    Imaging of metastases from breast cancer to uncommon sites: a pictorial review

  • sondraf
    sondraf Member Posts: 1,679

    I have short hair (or well, I dont know what you would call it now) and the back was getting so long it was driving me nuts, so I took the hair scissors to it yesterday in the shower just to get it off the nape of my neck. NO IDEA what it looks like back there, but damn does it feel better! Then I texted my hair stylist and asked if he was back cutting and he said he was, so I booked an appointment for next Tuesday an hour after my monthly injection appt (he's down the hill from the hospital). CANT WAIT.

    Yesterday our internet went out for a little while in the morning, so we wandered over to the village area to get a coffee and pastry and a 4G connection. Our first trip to a cafe in months and it was really lovely - sat outside and watched the world go by for a bit.

    Dodgers - what were you making that required cream of celery? Ive always wondered in the soup aisle who uses some of those more random cream of soups!

  • karenfizedbo15
    karenfizedbo15 Member Posts: 719

    Shetland, sounds like all went smoothly, so hope you recover quickly. Mae - you always sound so matter of fact about your stuff which is a good thing IMO. Hope your cyberknife goes well when it happens - I think we’re all in there for you! Mel...your DH has great hair, although I couldn’t quite get a handle on your family post re Covid #easilyconfused!

  • kbl
    kbl Member Posts: 2,969

    ShetlandPony, thank you. I’ve copied and pasted a note of what you put. There wasn’t supposed to be a link with your post, right

  • micmel
    micmel Member Posts: 10,055

    Mollie~ my daughter and her husband.

  • illimae
    illimae Member Posts: 5,725

    Shetland, I agree. I don’t know anything about the previous patient but so many people travel to MDA that it’s possible they were out of towners and maybe had to go out for food or something. I’m just glad I was called so quickly and they are handling it with the seriousness it deserves.

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    KBL, here is a link. Lol I was not equal to providing it yesterday after my ERCP. There is a link on a thread I made called ‘ILC (Lobular) “Unusual” Mets Sites’ which is here:

    https://community.breastcancer.org/forum/8/topics/876844?page=1#post_5564030


    The article is full of photos to show a radiologist what they are looking for.

    Imaging of metastases from breast cancer to uncommon sites

    https://researchmap.jp/i-imaoka/published_papers/18828484


  • kbl
    kbl Member Posts: 2,969

    ShetlandPony, thank you. I have read the other articles you had put up before, but I will go back and reread them. I appreciate it.

  • dodgersgirl
    dodgersgirl Member Posts: 1,902

    ShetlandPony— glad your pocket company was something peaceful before your procedure. It’s goid to know that all the karaoke we were doing in your pocket wasn’t distracting you! Also- ref cream of celery soup, my DH had the same thought so he brought home a can of cream of onion soup to try I have never used cream of onion soup

    Illimae— hope you did get yo sleep in today. Good luck with your rads

    SondraF- I grew up with Hamburger Helper’s tuna noodle casserole which I really liked but they don’t make the version I had so many years ago. Found a recipe that sounds similar so wanted to try it. It takes Cream of Celery soup. Also, a tuna stuffed shells recipe that I have made for years takes cream of celery soup

  • booboo1
    booboo1 Member Posts: 1,196

    Okay, so I got my scan results today. Something weird showed up in my lungs, and the person who read the scan called it “patchy airspace disease”. Anyone ever heard of that one? I could understand if it was a scan of my head...

    So I saw my pulmonologist, and she showed it to me from the disc. She said it could be an infection or the beginning of pneumonia....I don’t think she knew what it was. Anyway, she put me on antibiotics for 14 days as a precaution. I don’t feel bad, no fever, and lungs sound clear....so who knows....

    I see my MO on Monday for Xgeva shot, port cleanse, and to discuss next steps. So I will get more info then.

    Shetland, so glad everything went well for you.



  • minustwo
    minustwo Member Posts: 13,322

    I usually only lurk, but had to comment about the Cream of Celery soup. I know I read somewhere that Campbell's is cutting back on selections and will not make as many choices - but darned if I can find corroboration now. And I haven't been in a grocery store enough to tell. Wonder if that's what happened to celery?

  • Bliss58
    Bliss58 Member Posts: 938

    Booboo, I've never heard of patch airspace disease, but here's hoping it's just an infection the antibiotics will fix. Hope you get a more definitive answer from your MO.

    New2bc, when I heard about Kelly Preston's death, the second thing I thought of after wondering what type she had, was remembering about Diana Hyland dying of BC, too. She was much older than John Travolta who I think was only 25 or so at the time and she was 41 or so. Very sad.

  • dodgersgirl
    dodgersgirl Member Posts: 1,902

    MinusTwo— DH was at Walmart this afternoon and said there was 2 CASES of Cream of Celery soup. She bought me a can.

    It’s weird what foods come up missing from the store shelves during this pande

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    I can’t get any brown rice!

  • moth
    moth Member Posts: 3,293

    we are short of lime diet coke. Haven't been able to get it for over a month. Probably just as well as that stuff has to be bad for me but it was my afternoon caffeine treat

    Also still no Lysol wipes or purell hand gel

  • micmel
    micmel Member Posts: 10,055

    agree on the brown rice ! Dd scored some wipes got me a new container. Have hand sanitizer. The thing that gets me is the price gouging. For such a small bottle Of sanitizer. Toilet paper is hit or miss but go to Costco for those things. It’s crazy because it’s coming around again. It’s worsening in states again, so if they lock down again. It be round two Of chaos. So Get it while you can.. masks will be in demand for a long time and I don’t see a short time at all where we can’t not mask up. I don’t want to miss Christmas with my sister. I want to enjoy family and the gifting and laughter This better not last this long. It’s obviously thriving in the hotter weather. The opposite of the flu. So we clearly are screwed. It will be flu season next And then we worry about that. I hate cancer and I hate corona. So frustrating.

  • micmel
    micmel Member Posts: 10,055

    BooBoo~you're on my mind and hope you find answers fast knowing it IS an infection. Hugs sweet one.


    Candy~ you ok?

    Mara~Didn't see you in there either.

    Dodgers ~ I'm going to Use my Cream of celery tomorrow in dinner. Got Me wanting that dish.

    Bliss~ good to see you in your chair.

    Hello Moth! Diet Coke. Yummy!

    Minus~Psssstttt you’re not a lurker anymore sweetheart. And it’s ok

  • minustwo
    minustwo Member Posts: 13,322

    Ah, but it's impossible for me to keep up. I read all the posts Monday night, and when I checked in Tuesday night there were 54 new posts. WOW. I check in to see how Illimae is doing since we personally met & had lunch.\

    But thanks for the welcome.

  • dodgersgirl
    dodgersgirl Member Posts: 1,902

    Bliss58- bet I have seen 10 “cute” bear videos with bears and trash cans lately. With each one I think of the story you shared.

    Isn’t it amazing the things we learn to live with (including BC)

  • sandibeach57
    sandibeach57 Member Posts: 1,387

    Micmel.

    I have to blame you for this.

    image

  • mara51506
    mara51506 Member Posts: 6,473

    Mel, I am here. I have been trying to keep up with all the new posts too. Had a busy day between filling out my surveys for cash, washing my bedding and some extra bedding SIL asked me to go through to see if I wanted any and walking on the treadmill, I just have been short on time. Everybody has so much more going on than me right now anyway, my goings on are pretty routine.

    I did have a good day today. I am busy saving my money to put back in my bank from the surveys, eating my beans and queso etc. I am thinking that I may try putting white kidney beans in some garlic pasta that I have, just cook the pasta from the package first, divvy it up into containers and then when I want to have some, cook beans and add them in. I may try this tomorrow after I pick up some milk at the grocery store.

    Speaking of grocery stores, I cannot believe the shortages you guys are having. Looks like the panic buying is still going on though I know cases are on the rise in a lot of places over there.Hopefully someone can get people to actually shut down until cases stabilize. Sucks for the economy but would get you out of such dire straits in so many places. I will be interested what happens here when phase 3 officially starts. I know it is in a couple of days. Not sure if I want to shop yet or go to a movie. We will have to see.

    Also, if you know anyone who wants to know why a mask is a good thing to wear when indoors, this is a funny little thing to show them.

    image

  • illimae
    illimae Member Posts: 5,725

    Minus, This thread does move fast, no pressure, pop in whenever. I’m eating better and crawling out of my hunger/frustration funk, so I post more now.

    Mara, that pee post is funny and eww...

    goodnight everyone

  • Bliss58
    Bliss58 Member Posts: 938

    Mara, lol! That pee post is too funny, but oh so true!

    Good night y'all.

  • runor
    runor Member Posts: 1,615

    I cannot imagine what anyone would want with celery soup but now I'm craving an ice cube sandwich!

  • booboo1
    booboo1 Member Posts: 1,196

    Bliss/Mel,

    Will see if MO knows what the heck the patchy thing is...I really don't want to start the antibiotics if I don’t need them...so was thinking of waiting until after Monday’s appt. with MO to start them or not.

    Hope all are hanging in there. I’m seeing some promising news about vaccines that could be coming soon. We’ll get through this together like we do with cancer. Love you ladies!

  • candy-678
    candy-678 Member Posts: 4,168

    Mel- Thank you for missing me. I am ok.

    Just a weird week. Monday I had the 2nd opinion MO appt and I came home exhausted and posted on the Ibrance Thread. Tuesday my niece had major surgery and I could not be there (COVID precautions). So I have been texting/calling my sister (the mom). Niece surgery went good, but she has a lot of recovery. She is 13 years old.

    I have been in my house, of course. And I have been thinking about niece, and my decision whether to transfer care of MO or not. I read on here, but just haven't commented. Sorry.

    Boo- So, probably beginning of infection versus cancer progression? Hope just a blip and will all be ok. You are not on any treatment right now for the cancer, right?

    mara- I saw that poster on Facebook--someone had posted there. Good one.

    I listen to my local news daily. There were 8 new cases of COVID in my surrounding area/counties. Then next day a dozen new cases. Then Tuesday 3 dozen. Then yesterday 50 new cases. It's baacckk. I do not go anywhere--- Dollar store weekly, doctor appts. But scary. Who is infected? Who is carrying it? Will I get it somehow? I told my sis I was available to care for niece when she gets home from hospital, but, understandably, she wants to quarantine her away from everyone. She will have lowered immunity after this major surgery. I hate all this.