My Husband, My Life, My Love, My Family, My Cancer
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C7 is not the skull base and is the bottom of the cervical spine, like you note, Nicol. Even so, I have read literature about C2 having success and being recommended with radiation. Radiation can be very targeted to the impacted area these days.
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Nicole sending a big hug your way. You'll find more info out tomorrow after the scans. I'll be in your pocket at 5:45 let's find out where everything is and then let the doctors get their plan of attack together.
Booboo I'm waiting for your checkin I know you had a big appt.
Candy are you back from second opinion land yet?
Good to see you Moomala sorry about your back pain.
Mae that sounds like some good eating even if proportioned sounds delicious.
I don't know the Kelly Preston lady. Since she's a celebrity or her husband is I hope they share some of their alternative treatment/diagnosis info with other BC patients. RIP
Tanya
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Mel 40 cycles. I started in June 2017. Ibrance with faslodex shots and zometa 1x every 3 months. The past 3 cycles I took an extra time off in between. I know you’re still on 125. I’m on 100.
Tanya
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Nicole, you and I must have posted at the same time, as I didn’t see your post re scary results until just now. Hope the initial shock is soon taken over by your team having a sensible plan for you. Glad you’ve posted a couple of more times today and that folk here can give you some support as always. Hang in there.
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Hi ladies. I posted a LONG post on the Ibrance thread about my appointment. I am exhausted and need to chill. Then I will catch up on the posts here and talk with you all again.
Hugs.
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Nicole,
To the best of my knowledge, Faslodex is not targeted to bone strengthening the way Xgeva or Zometa would be. Ask your MO what he/she recommends. The c7 is the cervical spine, but targeted radiation is as they say, very targeted. My RO showed me my scan, the targeted diseased bone, and the margins she was taking. Tiny margins and she only hit the 3 areas. It is so precise, I can't imagine it is any more dangerous than hitting any other bone.
I elected to try to stop the cancer in my pelvis with the radiation rather than changing drug protocols, I am 2 weeks post last treatment, too soon to know if the bet will pay off.
My vote would be to try the radiation. See what the MO has to say.
Best,
Stacey
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Thank you so much ladies I feel so blessed from you all...I literally cannot express what a blessing you all have been.
I will update tomorrow..or Thursday once I have news.
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Nicole, Get some Information first, maybe they can radiate it. I’m sure they have seen this before. Try to Take a big breath And remember there are options. I’m sending you all my Strength , I know it’s not easy.
As far as Kelly Preston, those people Who run the “org” Do not believe in regular treatments for cancer or mental sickness. They “audit “ it out of you and they make you feel like you’ve done something. Like talking you well. It had obviously metastasized Because of lack of Treatment. People that are early stage get to Fight , and wait out the chances of hope to not have a reoccurrence. Two years ? No one knew anything at all? Scientology at its best non discloser about anything. That could be why she died so fast. Why else wouldn’t anyone know about it. ? They hid her away and just let it be. I did read where she was in treatment but we will Never know what treatment meant. Such a shame. So pretty and married so long with enough tragedy in the family. I feel sorry for any family goes through a loss like this. Came out of no where really. Life is so strange.
Runor, I was enjoying your story about your hubby and the bleach rag. Did he come home ok? Lol you’re a trip!
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NicoleRod— just wanted to reach out to you and send you hugs and virtually stay in your pocket while you wait for the next step of your treatment. As Micmel wrote, I, too, am sending you all my strength.
And, wanted to say that I have numerous bone mets throughout my spine (really, in most of my skeletal areas) and had rads to thoracic spine and both acetabulums (hip). Feel free to reach out if you have any rad questions for me
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Runor, your story about your husband’s sandwich and where to put the mustard reminded me of my DH from many years ago. I asked what he wanted for lunch and as was the typical answer he let me know he didn’t care. I must have reached my limit that day because I fixed him an ice cube sandwich which was 2 slices of Roman Meal bread (is that even sold anymore???) with mustard on both slices and lots of small ice cubes in the middle. Ta Da— The now famous ice cube sandwich..... and while I haven’t made a 2nd one, we still joke about the ice cube sandwich when he tells me he doesn’t care what’s for dinner
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NicoleRod, I’m sorry to read about your increasing mets. I hope you get a plan of action in the next few days, and take some comfort in others’ experiences. I don’t have advice on treatment but please know there are a lot of good listeners (and truly kind people) here in Mel’s living room. I’ll be in your pocket on Thursday. 🌻
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Ya, DodgersGirl because “I don’t care” means “I won’t help you come up with an idea even though you are sick and tired of coming up with what to feed people for years and years.”
Ok I am grumpy. I have had a fever for FOUR DAYS because I am apparently that many days overdue for a biliary stent exchange, which is tomorrow. Four lost days of my life. Four days of feeling lousy while my house falls into pieces around me. I’m so worried about getting past the TSA at the cancer center. And yes, I had a pre-procedure covid-19 test on Sunday.
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ShetlandPony- in your pocket fo tomorrow and May your fever magically disappear tonight and still be gone for tomorrow's temperature check at your cancer center.
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Thank you, DodgersGIrl.
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SP,
Thinking of you and hoping that the procedure goes well.
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Morning ladies. I got some sleep and now caught up on your posts.
Nicole- In your pocket. I cannot give you any advise about the C7 met. I do have mets in my C2-- found at diagnosis in 2017. It was scary due to the location, but I have not had any trouble from it. I am sorry to hear of your bone and liver progression. I am so sorry you have not had a good, successful treatment thus far. I pray for you.
Shetland- Hoping your procedure goes well and the fevers abate.
Stressful day today. I am thinking about yesterdays appt and the decisions I need to make-- transfer care to new MO or not. And also my niece is having surgery today. I cannot be there due to COVID restrictions. Parents only allowed. So getting texts with updates. They say stress is not good for the cancer----ha. How do you not stress??? That is all there is anymore.
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that is so true Candy.
With you Shetland. WAving to Nicole and dodgers !
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having a hard time finding cream of celery soup at my local stores. Amazon shows “out of stock “ or $6-$9 A CAN. Not something I thought there would be a run on during the pandemic
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Shetland pony - thinking of you while you have your procedure. Hope it's all quick and routine.
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Dodgers ~I never knew anyone else even used it! I use it for a recipe of chicken enchiladas! Now I’m Hungry !
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Thanks, guys. I passed the TSA. Waiting to be wheeled back now.
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SP,
Hope all goes smoothly and that you are soon feeling better again.
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Micmel— I have a couple of tuna recipes that use cream of celery soup. Lucked out this morning as DH found 1 can at Walmart. Whew
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Dodgers and Micmel...thank you so much for being here for me!!!
So I have decided to already be proactive and just research and schedule consults with a Radiation Oncologist (there were 2 very good ones at my current cancer center excellent on line reviews) and I also called a separate Nuerosurgeon just to get some info about cyber knife etc..from someone NOT associated with my cancer center..he got really really good reviews...I read over 40 - 5 star reviews for him all from people that had spine surgery. I am not jumping the gun that I will have to have that...but it can't hurt to have those appointments for consult lined up...right?
Plus I am waiting for my IR to review the MRI and report and call me to set up consult for TACE...
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NicoleRod— sounds like a plan and I can feel your strength as I read your words.
Still in your pocket.
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Had an MRI with and without contrast today of my lumbar and pelvic region. A different radiologist read each report. I'm sitting here on my second beer. It's not because I'm worried about what's to come. It's about the total difference between scans, biopsies, and more scans. I just can't with all the differences. I've been dealing with this crap since 2013. Can someone in the medical world please tell me what the F*** is going on with my body? Rant over.
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Well, interesting developments, my first day of the trial rads to my hip bone was uneventful but gamma knife brain rads scheduled for tomorrow is postponed until next week. The neuro team found out an hour ago that someone who had gamma knife the other day tested positive for Covid. They’re frantically rescheduling and cleaning, plus people who made the machine have to come and disassemble/sanitize it. But yay, I get to sleep in tomorrow 😁
FYI, MDA does test anyone receiving treatment, I’m guessing this person got in the window between the test and the treatment.
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love Tanya’s new pic! You look great!
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Shetland~glad the day is over I know it was a long one for you and a few others as well. Please know I was thinking of you all day. It always helps me when I know the gang is in your pocket. Makes you feel less alone because we get it. Yes we do get it I'm Sending you hugs. Precious woman.
Nicole~ Thinking Of you also, KBL I heard you. Waving to Bev Jen.
Dodgers~glad got your celery soup.0 -
Mae~sleeping in is such a delight. I’m smiling for you. You shouldn’t be going out anyway... Texas cases are on the rise. Okay let’s face it. It’s a dammed mess out there. No one could have ever predicted anything like this.
My Dh’s x wife got the covid from someone she was around. She barely has anything wrong with her. Some stomach issues and nauseating feeling. No fever. Not really anything to even mention. My DsS was worried because he HAD to quarantine for 14 days in a separate home and be tested again. He got the all clear but couldn’t be around me , until the all Clear . Even my DH was worried about getting it, being around him. Luckily, the timing wasn’t there. Ugh! The x killing the new wife ( of 17 years, so not so new). But that wouldn’t be good. This shit is scary. It’s multiplied daily by thousands. Soon it’s going to be either get it, or you’ll be afraid forever! I’m masking for a long time to come.
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