My Husband, My Life, My Love, My Family, My Cancer
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Candy ~I am surrounded by people and I still Feel alone at times. I dislike the holidays for this exact reason. It's all a lot of work, for what? To spend a ton of money , most of us don't really have . Just an enormous amount to deal with. If any of you have kids that are young I don't know how you can even do it. Amazing. I don't even care too much about the holidays anymore. I mean thanksgiving is nothing but work. For people. Christmas places people under stress to do things maybe they don't really want to do. But commercially it's every where. You can't escape it. Aren't I chipper ? Lol
Mara~ I love your cake idea! I'm sorry you have a seasonal cold. They suck. Feel better soon and relax if you're able. You sound like someone who can't sit still. Walking , elyptical that cold will be kicked ! You're too active.for it not to be
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Mel,
I have just the solution for you to get out of all of the holiday crap—MOVE! Yes, ma’am....I up and moved to FL and never looked back! I am no longer under any obligation to go to kids birthday parties (we never had kids), going to a friend or sister’s houses for Thanksgiving, and no more Christmas dinner nightmares! We now do exactly what we want during those holidays....either eat out (under normal, non-COVID times) or have whatever we want. Had pizza last year. It was wonderful!
So, want to be my neighbor? Come on down!
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I would love that. Wouldn’t that be the shit? We know so well how the other feels we all need that!! Never been to Florida. Hear it’s hot!! Humid and has big bugs. And nets around all the pools . Is that true?
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Mel, I did walk down for both the cold medicine and the tootall cake with brownie chunks. Going to have a piece after supper. The walk was fine but I got super hot even though it is not warm. I don't care, feel pretty good now. Will sit around some of the day but sprinkle some walking to boot this cold. The cancer clinic was glad that I cancelled my Herceptin but I told them that when most of the people are really immune compromised, they don't need anything I have be it covid or a cold. I also did not want to feel bad after my Herceptin with worsened symptoms. To this point I have not felt ill and would like to keep it that way.
Booboo, I could deal with the humidity, we get in the 100's regularly here in the summer, it is quite gross. I would have to acclimate to yours even. I have often thought of BC in the summer, not humid or the east coast here because most often, they are still chilly and comfortable. I just would not want to winter there.
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Cross posting from the Ibrance thread - sorry!
Well ladies that seems to be it for me with the Ibrance dance. Small pleural effusion with 5mm node and another nodule in lining and my MO says we switch treatments completely to Faslodex / fulvestrant only as of tomorrow. Any hints on how to make those injections bearable gratefully received.She says scan in 3 months and if not working it's chemo. Also that the chances of this working for as long as Ibrance Letrozole have for me ( 28 months) aren't great. We just need to wait and see how I go with it.
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Karen~I hope falsodex kicks it back. I have only been on ibrance also. I hope the new treatment is a gentle one. Sending you a hug my frien
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Thanks Mel and everyone for pocket duty. I found the Faslodex thread and there are some reassuringly familiar names there, plus lots of tips.
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Karen, I am sorry you are having to switch treatments after so long too. I agree with Mel, may Faslodex knock it back for you.
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Karen I am taking faslodex with the ibrance. I hope the faslodex does the trick. I was under the impression that the ibrance goes with faslodex or letrozole.
When I get the injection I hold them under my arms to get them warm, They have changed the composition of them they used to have to be refrigerated and then we put them on heating pads or they had round heating things that they wrap them with. Choose to get the numbing spray. Do you have some fat or your behind? The nurses say this is best. I noticed in the beginning they gave shots anywhere on my rear but now the do the top side so I can sit afterward etc. with out problems. Usually the first day afterward I just go home and go to bed. I have heard PatMGC and others talk about taking clariton before but I never did it. I hope you have "no" side effects and that this is the drug for you to get even more time than you did on ibrance.
Mara I want cake so bad right now. All your fault. I hope your cold is subsiding and not giving you too much trouble.
Nothing doing today I guess I need to figure out what I'm eating for dinner.
I overheard my DH talking on the phone to his former school teacher (he's 70) and she's (92). She was thanking him so much for calling her bc of COVID she said she never gets to talk that much to people.
Take care all
Tanya
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Karen,
I wrote to you on the Ibrance thread. But Tanya reminded me of one thing -- I DO take Claritin the day before, the day of, and the day after the shot. I have noticed that some months, I get a little bit itchy around the area of the shot, especially if I forget to take Claritin. I'm guessing it's some sort of an allergic reaction. Interesting that Tanya mentions the numbing spray -- I've never been offered that, but I would get it too if it was offered.
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Karen- I posted a response to you on the Ibrance Thread. Keep posting here. I may find myself on Faslodex someday too. Let me know how it is going.
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Thanks Tanya, glad to hear about DH making someone's day by talking to her. That is great to hear and the tips about the injection are spot on. I took claritin when I got the neulasta shot to avoid the pain afterword. I will have some cake for you.
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Definite Claritin with any shot like that. Really works.
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Karen, I, too, posted a reply about your new treatment on the Ibrance thread. And also I posted on the Faslodex thread.
Yikes, Tanya, Faslodex injections “anywhere on my rear" is not correct! They need to use the dorsogluteal site in the upper outer quadrant to avoid hitting the sciatic nerve.
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Thanks All, have picked up your other messages too which are much appreciated! Will keep posting here of course. My DH and brother are both pretty devastated, but we’ve always known the I/L would fail at some point. It’s a reminder that this will inevitably get me... but not tomorrow, or even next week. One foot on front of the other and we’ll see how we go.
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Exactly, Karen. Keep calm and carry on.
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FL right now is wonderful. And December through March is even better. No snow. And yes, it can be humid and hot, but no hotter than you had in PA this year. Mel, if you were my neighbor, we would have some BIG fun. You could teach me to sew (you have no idea the feat that would be), and I could make you some yummy treats (I love to bake). See? Win-win.
Seriously Mel....time for some honest discussion with your family. You can’t do it all anymore, and they need to get that. Give each of you kids, or relative, or whomever, something to do or bring to each of the holiday get togethers. Time for change. I hate seeing people get tortured through the holidays. It’s awful, and it doesn’t have to be that way. Hugs.
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BooBoo~My DH does everything cooking, he cleans. He washes the clothes. He's amazing. I don't have pressure to do it, it's my own pressure I put on myself because I used to it do everything alone and I loved it It makes me sad and mad. My poor hubby shouldn't have to do it all either. But DD is bringing half the meal for thanksgiving. My dh's sister will help Out also. I won't have to do much. I mean the wrapping and tree trimming. I just don't like the holidays anymore. Ever since cancer. Just always wonder. Is this my last? Happens every year. To me.
Karen~ glad you’ll still visit the living room.......we’d miss you. I hate cancer. My friend.
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Just got off the phone with my sister. Gave her an update on my MRI results (I had test Saturday and heard from nurse Monday). She said she had forgotten I was having MRI. Sad. I know she is busy. Just feeling really alone.
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Candy~we didn’t forget honey. I’m wrapping you in my arms. Sweet woman busy or not, some people are just self absorbed. My one brother knows I was diagnosed almost five years ago, and he’s never once picked up the phone or even cared one time. I understand not being close to people .
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Candy, I am sorry your sister forgot about your MRI, I just cannot imagine someone going through cancer and another person in the family forgetting. I am also with Mel, I really wish we could hug each other when needed but you have my warmest thoughts and none of us are alone if we are here for each other.
I decided that my strategy of blocking my emotions from Mom's birthday was foolhardy. I pulled up her last birthday video when she blew out candles. I had cut my piece of cake. Watched her smiling and laughing at our terrible singing. It was bittersweet to see her but I allowed myself a little cry for a few minutes and then said happy birthday. I don't watch the video all the time as I do find it painful to see her like that, but I thought it would be fitting and a good end to her birthday and National Dessert Day as well.
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Booboo, I loved baked treats too. My birthday is coming on Nov 11, Remembrance day for Canada and I know it is Veterans Day in the US. My DB knows I really want him to make me peanut butter fingers as it has been a LONG time since I have had them. Your weather sounds like my weather too. I am not looking forward to snow but am looking forward to the challenge of walking in it. I have all manner of boots and cleats to avoid slipping which was never an issue for me. Street plowing here sucks rocks and I am on a side street but I will get used to it when the time comes.
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my DH mentioned something about a gourmet cupcake and of course Maras been teasing me with her tuxedo 🤵 cupcake national desserts 🧁 day so...
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Those look really really good Tanya, hope you enjoyed them by now.
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Just checking in before I get roll called, lol. I’m reading and thinking of you all but not feeling well on Xeloda. We reduced the dose but I’m still puking, not as much as a couple weeks ago but I still hate it. And it’s making me not want to eat but I feel worse on an empty stomach. I just want to enjoy food again but I’m hopeful that another dose reduction will do the trick.
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Awwwww man!!!! Now I want something sweet. Looks delicious. Yummy.
Mara~ nice special tribute 🌹
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ohhh Mae~I’m so sorry that you’re not taking well to Xeloda. It makes me mad when we are stuck taking medicine that makes us sick. I’m So sorry. Hugging you. I hope another lower dosage helps .
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Candy, I’m sorry your sister forgot. It just doesn’t feel good when that happens. I have a CaringBridge blog that I only invited my closest friends and family to. I’m trying to only post after my monthly visit now because I’m sure they don’t want to read about me all the time. It is one way people don’t forget what’s happening, and they appreciate it. I also can let everyone know at the same time without having to write different people. Most of the people on it are people I worked closely with over the years. I have a Facebook also, but I’ve never posted anything about my cancer in there. I have people on there I’m not close with, so it’s none of their business.
Mara, I’m glad you got to watch the video of your mom. I’ve started to copy VHS tapes to digital, and right now it’s all when my daughter was little. My mom and dad are both in them, and I talk to them and tell them how much I miss them.
Tanya, yummmm!!!
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Mae, I am so sorry xeloda is hitting you so hard. Another dose reduction may be what the doctor ordered. I hope so.
KBL, I do post scan results but that is about it. My cancer is not usually top of mind.
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sleeping along nicely then wham. Wide awake. Oddball my sleeping patterns are.
I want to give a huge shout out to Lynne 50's girl, she sent me her beautiful fabric she was finished using. I have never received so much beautiful fabric to use. I am smiling from ear to ear Thinking about all of the fun I am going to have making beautiful things with it. Gorgeous. My nephew got engaged in front of the Eiffel Tower in Paris and there is fabric with the Eiffel Tower in the huge bundle she sent. I'm going to make her a mask for remembrance of that special time. I thank you from the bottom of my heart. Let's just say I won't be going to the fabric store for months, because this sweet woman cared enough to share with me and care about my mask making. I love you ladies. It's a big circle of friendship. You my dear Lynne are a treasure. Thank you so much.
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