My Husband, My Life, My Love, My Family, My Cancer
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Hugs for you Runor.
I passed my pre-op physical and labs. I get a pre-op COVID test on Sunday. Just have one more day of work (Monday) before surgery Wednesday. Things are getting more real. Mets ovarian cancer? O RADS 5
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Runor, I’m sorry to see you in this shitshow but I am an optimistic person, so I’m thinking good thoughts for you and hoping it not as bad as it seems at the moment.
Nothing really going on here, just chillin’
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Dutchiris, will send all my best wishes and be in your pocket for your surgery on Wednesday.
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Thank you Mara.
I had to stop Ibrance (last dose 3/6) to let my counts come up for surgery but am still taking letrozole. I have to wait approx 3 weeks to restart Ibrance if I continue to take it. Future treatment options depend on the pathology of the ovarian mass.
I have more discomfort in my low/mid back, neck, and ribs. I don't know how much is cancer related or ovarian mass related. I tend to fall asleep in my recliner which doesn't help.
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Runor I’m sorry to hear about your recent ER visit and all that ensued. I had a complete hysterectomy in 2017. I went to an oncological gynecologist surgeon. Message me if you want.
Dutch Chris I’m in for pocket duty Wednesday.
Mel you can probably get a rapid test to ease your mind.
Tany
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So this upcoming week--
Dutchiris surgery.
Rabbit MO appt.
Grannax MO appt.
Aprilgirl scans.
Nicolerod MRI and MO appt,
BevJen rheumatologist appt.
Runor's issues.
Some of these post on other Threads, but may pop into Mel's Living Room from time to time. We have a lot of pocket duty, girls.
Booboo when is your scans? Mae yours?
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I have a petscan on 19 April to see if the vinorelbine is doing its job. I'm in for pocket duty for everyone who needs it.
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Kitty, I forgot to say congrats on your bingo, winning once is fun, winning twice must have been very exciting!
Candy, my scans are coming soon. CT body and bone scan on April 14th & Brain MRI April 15th. I’m pretty calm about it since I’ve had no pain, new aches or odd symptoms and I’m currently on an oral chemo combination.
After scans, we hope to ramp up clearing the house, I’d really like to be ready to sell by the end of April but it all depends on DH. The process is mentally overwhelming for him and I can’t push too hard. I’m trying my best to be understanding but his “process” is totally inefficient and biting my tongue a lot, lol
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Busy week for pocket duty. I'm available for everyone. 🤞🤞🤞🤞🤞🤞🤞
Chicagoan, I watched and followed your yoga video. Thanks for doing that and posting it for us. I liked that you explained so much about the benefits of the poses. I think I'll be repeating it to hopefully get more used to them, as you said.
Runor, I had a hysterectomy too, and a bout with extended bleeding. Good luck to you.
Mel, I hope you're doing ok and escape Covid. Anything to notice since your change to 100 mg Ibrance?
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Kittykat- I have you down. Was looking at this upcoming week. You were on next weeks schedule.
Mae- Wrote ya down.
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Rosie-I am glad that you tried the video. Yoga has helped me so much that I just want to share it.
Mel-Hope you don't have Covid. Fingers crossed for a happy Easter weekend for you.
Dutchris-Peace to you as you await your surgery.
Runor-Hope that you are able to get the medical advice you need to make wise decision.
Have a good weekend everyone.
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Thanks Candy, my memory is like a sieve, I couldn't remember if I had mentioned it.
It sure was Mae, I'm looking forward to having a little break away from doctors and hospitals, even if it's just for a couple of days.
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Mel- Have you heard anything from Philly? Last posts mid Feb that she was having breast surgery for an aggressive tumor. Wish she would come back.
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Well, my shopping attempt with my DB at the grocery store was abysmal. I did not need anything major but always could pick up the odd thing. All of the grocery stores had HUGE lineups to get in, even my small local one. Stores were closed yesterday and will be closed tomorrow. My DB did not need anything major either so I said we should pack it in then as neither of us wanted to stand in line as he had to pick up SIL from work in a short while. I made an order for delivery instead. Still looking for beefless grounds without so much fat. The beyond beef has too much fat for my taste. It does taste good but others I have had don't contain so much fat.
I am in everyone's pocket, Mae, runor and kittykat as well. Thinking about your dutchiris and Mel as well, hope you can get tested soon.
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Oh hey Mara, Ive been meaning to ask if you have looked into powdered peanut butter? Or maybe Ive brought this up before (or someone else did). Its got a third of the fat and half the calories and you can use it in powdered form (like for smoothies) or you can add water for more traditional peanut butter. PB2 I think is the main brand in North America.
I went out early this morning to pick up a few last bits for dinner and it was hand to hand combat at the grocery - I got the last packet of nitrite free bacon. People pushing carts around piled with food and booze. No idea why folks wait until the last minute for holiday food shopping, especially when yesterday was a day off. Spent the afternoon chopping vegetables, cleaning out the fridge, repacking our butcher delivery into proper sizes and into the freezer, and making up the Easter buns for tomorrow morning. I can now put my feet up and let OH deal with all of dinner tomorrow!
More than a few ladies have something coming up in the next week - I hope all can find some peace tomorrow and put aside worries for the day and enjoy your time however you choose to spend it!
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Thanks for the suggestion Sondra about the peanut butter powder. I will look into it.
I did decide to order a delivery from WalMart thru instacart and was able to get a lot of the beefless ground so that was good.
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from what I can gather she had the surgery , drain is out and she's out and about. I saw her on Instagram with her brother and she looked good. We speak occasionally. (Meaning Philly
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Sondra - powdered peanut butter ?!?! What will they think of next?
I realize that mine is not the only crisis going on. When I look out into the valley and across at the mountain that rises I am struck by the vastness of this planet, and then struck mute with all the suffering that so many, many people endure. People I don't know, in places I don't know, feeling misery that I can't imagine. It's not correct to say I take comfort in knowing there is global misery. It does not help me feel any better about my situation. But it does remind me there is nothing special about me. I have not been singled out for any special curse. No cosmic bean counter found me so interesting or deserving that they chose me for this cancer carousel. It's just random shit luck. I'm still mad as hell that i have been hurled into these gut clenching, breath stealing, crushing, body shaking feelings of terror, grief and doom. But...it's not personal. Although it feels personal to me and each one of us who gets bad news and then has to stagger on, like we're normal, when we are not.
To all of you who took the time to write words to me, thank you. Bless you. I have a hard time keeping up with how everyone is doing at the best of times but right now I am not even close to my best, so my brain and focus are worse than ever. For this I apologize but I think you understand. To each of you, you are a name, you are a light, you are a living room regular, you are a distinct and unique personality here, you are the flavour and spark in Mel's amazing thread. I hope every one of you knows that wherever you are in this vast planet, whatever you are suffering through, you are held in the hearts and minds of many. We are all so far apart while being in this all together. Love, hugs, gratitude. I will keep you posted as I know what's happening and I send a prayer for everyone here.
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Runor,
You are an amazing writer. I would LOVE to read the book you write about this journey we are on. You have a way of expressing it like no one else. (I’ll be your proofreader.) I really mean it. You’d be an amazing author.
I have a PET scan on Tuesday. Could use pocket duty. Am hoping for a much better report than the last one.
I just finished my second cycle of Abraxane, and wow, it has kicked my butt. I am dragging myself from bedroom to living room to bathroom. I feel like someone sucked all of my energy out. I recently weaned myself off of prednisone and was prescribed Ritalin to help with the fatigue. Can’t say it’s working....maybe I need to give it time?
A very Happy Easter to all.
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Hi booboo, in your pocket for sure on Tuesday, I sure hope you get the result you're hoping for.
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BooBoo~abraxane kicks your butt for sure. Maybe the milligram of ritilan should be higher. You should feel something. In the form of energy. Not like before cancer. But like a gas for a car. You don't want to get up. But when you have to. You can. Pocket duty all the way.
Kitty. Hello! Waving to you !
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Good morning to all.
Many of you are SO good at remembering and responding to individual posts and posters. I am not. Sometimes, I feel bad about that, but as runor so eloquently wrote, I do read your posts and hurt with those who are hurting. Mel, God bless you for opening up your living room to us. I hope I haven't left any empty wine glasses or used tissues on your coffee table!
It's a quiet, foggy morning here. I'm enjoying my coffee and "visiting" with all of you. Thanks for letting me hang out, even when I have nothing to contribute. Wishing you all a peaceful day.
Carol
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Runor, you really do have a fantastic way to express what you are going through and good insight into what is happening with the rest of us. Still in your pocket til you know what you will have done about the bleeding.
Laurie, I am sorry the fatigue is kicking your ass so badly, makes it hard to do anything. I agree with Mel, at least need enough energy to get stuff done, even if there is not a ton more than that. How I feel most of the time. No walking, I sleep most of the day off and on as soon as I sit, if I walk, I can make it through without falling asleep.
Walked early this morning, nice and sunny again this morning. Planning for two more walks, like 10000 steps most days. Loving the beefless ground in breakfast as well, so low on the calorie count but excellent for protein. Spinach, onion powder, bit of queso and a small amount of cheese with the beans combine well and taste so good. Might try to make an old el paso soft tacobake with the beefless ground. Would save a lot of calories and fat that way and it already is similar to beef in taste and texture but no greasiness. Not eating red meat right now, unless I get a hankering for a snack burger. Not eating those everyday anymore.
Going to DB for supper tonight. Just 4 of us there. My nephew is working and niece is not coming.
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Thanks Mel. I know you had a tough time with it. I have not been too bad, but this last round has been hard for some reason. I’m dizzy a lot, and it’s hard to tell if it’s the chemo or the pain meds. My pain levels have been reduced to just my hip/leg issue, and I am seeing an OO (orthopedic Oncologist) on Friday to see just how bad it is. Last scan showed that I have cancer in 1/2 of the bone, so doesn’t surprise me that I have pain. How long were you on Abraxane? I am wondering if it’s time for a dose reduction. I have a med. Zoom with my MO on Thursday, so I will see what she says.
Thank you my sister for replying. Sending Big Love your way!
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Mara,
It’s hard when you live with a gym rat. My DH goes to the gym 6 days a week and is in very good shape. I’ll admit I’m jealous. Not that I was ever a big exercise nut, but I’d love to be able to do the things I used to...nothing big. Just walking or riding a bike. Whatever. I think once I get used to these new drugs I’m on, maybe things will settle down a bit. I just want my old life back. But reality sets in, and I’ve got to accept that that dream is likely to never happen
Happy Easter to you and your family.
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Kitty,
Thanks for the pocket duty. It really is fun to imagine all of you there in my pocket shouting out funny things, or food or sweet items that you bring. Makes me smile. I hope you are feeling better and enjoy the day with your grandson. Going to any Easter egg hunts with him? That is so fun...to watch them innocently run to find the eggs..
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Sunshine,
You always have something to contribute. You may not know it, but just posting shows your interest in helping those of us who are struggling. I am grateful for all of it....good, bad, happy or in whatever place you happen to be, sharing is what makes this thread so awesome.
Gosh, I don't know what's gotten in to me today....I'm a posting crazy lady!
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Booboo- Pocket duty on Tuesday for scan, Thursday for MO.
Another quiet day here. Church online a few minutes ago. Good service. Miss being there. Sigh...
Maybe treadmill today. Read. Open windows for fresh air---sunny and 70 today. Trying not to miss my old life.
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Hi, booboo, Finn gets shared around a lot during the holidays, he's with his dad this week so we will have a late Easter egg hunt, lucky boy, he will have 3 bites of the cherry. Today was a lazy day, like you, I've been feeling the effects of chemo, so I slept on and off most of the day.
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runor: Most eloquent musings of what is sadly a shared experience. Thank you for that
I have seen powdered peanuts but if I recall correctly it seemed to have sugar added. I had looked at the jar with consideration to using it for the bird treats I make but the sugar put me off.
It is a gorgeous day here on the coast. I think the danger of frost has passed. I am going to go out and scrub and swab the back deck, move the furniture around that has been pushed up against the house. I can't wait to be able to sit out there, listen to bird song. The little birds get used to me being there and will go to the feeder that is only a few feet away from where I sit. Such a delight. The neighbourhood's camelias are in bloom and the magnolia tree one door over is about to open its flowers. I think Spring is truly here.
Snatching joy and a feeling of peace whenever I can!!
Good luck and great hopes for all of you with upcoming scans.
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