My Husband, My Life, My Love, My Family, My Cancer
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Elderberry, I got mine under the clinically vulnerable thing & they are using Pfizer. Dh is getting the AstraZeneca that they're pushing out in the Lower Mainland pharmacies for people born 1956-1966. I brought him with me today just in case they'd give him Pfizer as a caregiver for me but no dice. I've heard of it happening - that caregivers got it when accompanying people to appts - but I think they're not really supposed to do it. Otherwise he'd have to wait for his age group & that might be several more months so we figure the AZ is a good decision. And he gets to brag about getting the Oxford vaccine https://twitter.com/JoshBerryComedy/status/1346788...
I'm ghosting the journalist. I'm like whatever - don't want to do it right now, don't even want to explain it or think about it lol
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Elderberry- I guess so---mRNA. I would be the type that would not want to mix vaccines anyway. That is how I am. Get a vaccine and let the body deal with that for a couple weeks to a month, then get another vaccine. Seems to make more sense to the body system.
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Chicagoan, Thank you for the video. I plan to try it tomorrow.
Moth, Congrats on getting your first shot. I had my second one today and it’s a good feeling to know there is some protection, even a couple weeks after the first dose.Booboo, I’m with you on the sweets addiction. Right now we have quite a few boxes of Girl Scout cookies in our house. Neighborhood girls came around and we rarely say no to what kids are selling. I also like red licorice 👍.
Candy, If you have any chance to do water PT or a water exercise class I highly recommend it.
Mara, Sending good vibes to you, glad your state of mind is getting better. I feel like we walk a tightrope with all that’s on our minds, some of it cancer stuff, some just normal stuff.
Hello everyone. Happy April. I hope it lands easy on us. 🌷🌷🌷
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Thanks Rosie-I hope the video is helpful for you. I love water exercise classes too-it's been over a year now but our pools are slowly opening up here, no classes yet though.
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Rosie, thank you I am feeling better.
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Hey guys, you're not going to believe this, I was bored so I went to another local bingo game, and won their jackpot as well, all up another $517 , the karma gods really are smiling down on me this week, so I've decided that after the school holidays here are over I'm going to treat myself to a few days at a fancy hotel near the south coast and get spoilt.
I hope you all have a relaxing Easter weekend hopefully as pain free as we can manage.
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Moth, I was asked to talk with a journalist/PR person through my cancer center. I thought I would stretch beyond my comfort zone if it would help others. But nice as she was, some of the questions were unexpected and getting too personal. Then I got the emailed release form and it was pretty broad. In the end I told her that I found I was just too private to do this, it was too stressful, and please find someone else who would actually like to be interviewed and appear in a story or stories. That I really did not want to do this at all was something I only learned about myself by dipping my toe in. Bottom line for me was that if my story is ever to be told to the public, then I will be the one to do the telliing in my own worlds, in my own way. I can't turn it over to someone else.
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Kitty, that is so awesome about your bingo wins. I am really happy for you and us. Wins for the cancer girls!
Candy, it sounds like that may not be the right yoga class for you. I hate that feeling when I can't do much of what the class is doing; it makes me want to cry too. So I only attend (online) classes with the one teacher who has the right knowledge and teaching style to adapt, adapt, adapt. We use a lot of props like foam blocks and rolled-up blankets to make poses do-able. I actually just engaged her to do some private lessons with me next month (when I will be fully vaccinated) in order to re-gain the ability I lost skipping so many classes in the past year because of injuries from Faslodex injections. I think I have figured out how to not get injured and am ready to make a come-back and eventually re-join my regular classes. I take the slow/beginner classes attended mostly by elders, and even a lady who does class from her wheelchair. Thanks for the link, Chicagoan; I will look at your video.
Intolight, what does it mean "went out to eat"? It sounds vaguely familiar. DH and I will get jab #2 this month. I have big plans. Here is how I am going to go crazy: Do my own grocery shopping. Get a haircut for the first time in over a year. See the ophthalmologist and dentist. Hug my family that doesn't live in my house. Get takeout without being nervous. Go on an easy hike without stressing about passing people on the trail. I know, pretty wild stuff. As mara says, being vaccinated may not protect completely from catching it, but ought to protect from needing to be hospitalized, and I feel with my current state of health that is good enough.
Oh thanks, booboo, now I need caramels. Today I got groceries and I consumed the whole pack of natural red vines. I deserved it.
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Kitty, happy you won again. Agree, sometimes the winning vibes go our way.
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Rosie and Chicagoan- RE water exercise. My Palliative Care Team member that suggested Yoga did mention water exercise. And I agree that would be good on the joints. But, I do not have a private pool. So anywhere I go would be public space. ???!!!! Covid, having a Port in place, low white counts. Eww. Germs. Would definitely not feel comfortable with that. Public pools seem like taking a bath with strangers. All those skin cells and body fluids floating around. I know, they use chemicals. But still....
Chicagoan- I PM'd you but wanted to say publicly that your video was really good.
Kittykat- Good for you. Have fun.
ShetlandPony- you sound like me with the vaccine. I am fully vaccinated. I have went into the library instead of curbside pickup and stopped at a dollar store once for a hard to find item. Woohoo. Really getting out there. I just am glad I am covered so if I catch Covid I may not die. But I do not feel comfortable doing things yet.
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Go Kitty!!!!!! Way to go girl. That’s awesome. Congrats.
Hello ladies. Pocket duty for anyone. Hope all is well. It’s a blustery day here
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Cold and sunny day here. Wore a pair of warm tights over my leggings and extra fleece jacket. Lovely walk though. Washing a big blanket too. I decided to steam it and then just handwash it in the broken washer. Will spin and put in the dryer. I am honestly freaked about germs so not really wanting to share a washer. I soaked it about an hour as well, put a little fabric softener when rinsing and will pull out the bigger spin dryer. Lots of work but it satisfies my clean quota by steaming off the germs first then soaking out any dirt that might be on it.
Not too much to do since stores are closed and we will be lockdown. If I need to shop, think I will set alarms so I can be there when the stores open. Store capacity will be reduced and I do not want to compete for shopping with other people.
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Candy,
You are right to be cautious about public pools. The only time I have gotten sick for more than a day or so on Ibrance was when I was using a pool during the summer that also had a lot of babies and toddlers. Warning signs to parents went up but I disregarded them b/c I liked that pool. The pools I usually use are mainly adults and high school students where everyone showers before going in. The chlorine seems to take care of normal germs and bacteria. I try not to think about it and just enjoy the water.
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Hey Shetland....how about Baby Ruth bars? My favorite of all time is English toffee. I go weak in the knees over that stuff!
Kitty, I think you need to go to a casino. You’re on a roll!
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I agree Chicagoan. Totally. I found out yesterday that my daughter and her husband both positive for covid. My sister also positive. Another surge is occurring. My docs are freaking out, because I saw my daughter Monday and Tuesday. They are freaking out. They want to see me. I feel fine. Now. What can they do now ? My lungs feel fine. If I felt sick I would tell someone. I’m not a Moron. But it’s nice to look down at your phone and see a concern doctor themselves calling to make sure you’re doing ok because she heard my daughter had covid. She was instantly worried about me and called. That is such a great doctor. I have to admit. I adore her. She’s been my primary for 23 years now. Can’t beat that..
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Mel, please go and get tested, many people here have tested positive without symptoms and gone about the community and unwittingly given covid to others. Tom Hanks and his wife came down here to Australia, had covid and spread it to other Australian TV presenters. We have trace testing down here, it's the law that everyone who has come in contact with someone who has covid to self isolate for 14 days and get tested on day 3 and 14. I think it's why we have had so few cases down here, we also have short lockdowns of 3 to 5 days so that they can trace and contact everyone who went where the person with covid went.
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Things are going from bad to worse.
I had built a bubble of good news and hopeful optimism. That bubble burst this morning.
I had thought my endometrial thickness was 1.7 millimeters, which was good news. I felt hopeful.
The emergency room doc called today and said my ultrasound is NOT all rainbows and joy. It is a very dire ultrasound. My lining is 2 CENTImeters, which is a HUGE measurement and a terrible indicator! I told her I had an appointment with gyno in a month and she said no. Absolutely not. Not good enough. She is working to line me up with a gyno in two weeks.
Now the backache I've had for the past 10 days does not seem like a gardening backache. It seems much more sinister.
At this point I think I will tell the doc to forget all the tests and D&C and just take the damn thing out.
I feel paralyzed and terrified. This is insane.
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Oh, runor, I'm so sorry!!! I had a hysterectomy in 2005 - it was the best day in my life! I was pre-menopausal, but my last period lasted 24 days! I was bleeding when they took it out. I kept my ovaries, but in retrospect, I wish I had had them take out my cervix, too. One less thing to worry about. However, that was before my first cancer diagnosis, so I didn't think about that.
I hope you can get everything out and SOON. (I still have occasional dreams about having my period, but then I wake up and remember that I do NOT have a uterus any more!)
Thinking of you. Thank you for the updates.
(((hugs)))
Carool
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runor; I had so hoped go see a "good news, not so bad" post from you. Are tests and D&C only going to prolong the inevitable? I am with you in not wanting to f**k around. I wish I could reach out and hold our hand.
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Mel, I am sorry to hear your daughter and husband are positive. Hoping that it is asymptomatic or mild. Of course this could happen, this disease is like whackamole about where it will show up. I agree with others, get yourself tested for sure to ease your mind. Thinking of you and your family.
Runor, can't say I blame you for asking about a hysterectomy. Even if the do the D&C, if it builds up again, you would be stuck again. I hope you get one and soon.
I finished my 3rd walk. Very nice and sunny. Stumbled ever so slightly on the sidewalk gap but recovered well. Lifted my feet ALOT. Felt like I was marching. When I got tired of that, walked on the side of the road. Still cold but lovely and sunny out.
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Runor, tamoxifen has been known to cause this problem, I agree, a hysterectomy seems like the way forward for you, I'm glad the ER Doctor has pushed to get you an appointment sooner.
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Mel- I am sorry to read that your daughter is positive for Covid and that you were around her. Please be careful. Self isolate. And watch for signs of illness. With the weekend if you get to feeling sick get to a health clinic or the ER to get on top of things.
Runor- So sorry to hear of more bad news for you. I would want it all out now too. Are you still bleeding now?
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People should remember with covid even after vaccination that they can still get and give covid to others. The best the vaccine offers is a much lower risk of ICU or death if they get it. I hope that the vaccinations will protect people going forward, too much sickness and death.
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Mel - sorry to hear about the sick kids. Hope they bounce back and hope that you are not also affected!
Candy - no, not still bleeding. Having mild cramps. But have those when I am constipated, which has been an ongoing issue since starting tamox. So am I constipated from tamox or from spreading cancer? You can see where my mind has gone. Nowhere good. I had convinced myself that 1.7 mm was good, and it would have been had that been eh correct measurement. I am a fool. I just want to sleep and wake up with all of this gone.
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Runor- I can understand "where your mind can go". Mine seems to be there all the time. Praying these next couple weeks will go quickly for you and you get some answers. The not knowing is the worst.
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Holy smokes! I check out for a week and I am so sorry, reading through everything I just have nothing but huge hugs for all of you!
Candy - I am so sorry to hear about the progression but it sounds like you are doing all the right things. I tried a yoga app on my phone and spent the first fifteen minutes swearing at it before I finally cried. Crying was about the only cathartic thing in the whole experience. I am now choosing poses that I can do and working through my own sequence. Prayers for you as you and your MO decide what is next.
Runor - my word! I realize healthcare in BC is different than in the states but what in the world?!!! I work in an ICU and I can't imaging sending a patient home with bleeding like that but I also live in a larger area and our more rural hospitals refer patients to us quite a bit because they don't have the resources we do. I was thinking CBC, ultrasound, CT.... I'm so sorry. You've had a hell of a week and I am glad someone is finally getting some traction and moving things forward for you.
Mara- I just wanted to encourage you. I feel the loneliness too. This frigging pandemic and all that it has wrought. I am so afraid it is creating a generation of germaphobes and that we will no longer interact with one another in the same way. We are social creatures and the distance is so hard. I wanted to say that you have inspired me with your walking and dedication through pain and bad weather to persist in it. I have started to do the same on my non-work days and right now am up to 5000-7000 steps. I sometimes break that up in to two different walks so I'm not overdoing it.
Mel - Thank you for the living room. I feel like this thread is a warm blanket all on it's own. We are connected here even though we aren't in person and it is a lifeline for so many of us. I am so grateful to you for starting it. I am praying that the Covid stays away from you.
I know I am probably missing someone, something. Having read through the last four pages I am just overwhelmed by the hardships and the resilience in all of us. Hugs to you all. I wish us all a happy Easter and better days ahead.
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runor - I am so sorry to hear of your troubles and the less than enthusiastic response in the ER. Since you are considering hysterectomy you might want to check out hystersisters.com.
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Mel, I am sorry to hear of Covid in your family again. Please monitor yourself carefully and do not wait to go see a doc at the earliest indication.
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Emac, so glad to hear that you are able to enjoy walking, great job on the steps. The walking allows you to see people and at least enjoy their animals. I do a lot of that on my walks. Lots of cute dogs here as well. I also like the breaking up of walks as well. Overall, I try not to walk much more than an hour at once which happens when I stop for small cinnamon donuts at my local restaurant.
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Runor, many hugs. I posted to you on the Anger thread.
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