Ringworm drug for dogs (Fenbendazole) might also cure cancer

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Comments

  • santabarbarian
    santabarbarian Member Posts: 2,311

    I am not sure why that list is cont considered ok for ER+. I would check that with a MO who knows about supplements. Most of them don't know....

  • santabarbarian
    santabarbarian Member Posts: 2,311

    I am not sure why that list is not considered ok for ER+. I would check that with a MO who knows about supplements. Most of them don't know. IAs one example, I believe Dr Block (the integrative MO I saw) is very PRO curcumin and quercetin for all BC.

  • nicolerod
    nicolerod Member Posts: 2,877

    Lila, I did not hear that milk thistle is bad for hormone positive breast cancer where did you see that? Also same thing about resveratrol?

  • lilahope777
    lilahope777 Member Posts: 27

    I would LOVE to find a good integrative MO, but my search hasn't been successful to date.

    I believe the "not recommended" is due to taking Letrozole (not the hormone positive breast cancer) with the exception of the Resveratrol. Letrozole is metabolized by P450 system enzymes: CYP3A4 and CYP2A6.

    Quercetin:

    Milk Thistle:
    • Do not take if .....You are taking cytochrome P450 3A4 substrate drugs: Milk thistle may increase the risk of side effects of these drugs.
    • Herb-Drug Interactions: Cytochrome P450 3A4 substrates: Milk thistle inhibits cytochrome P450 3A4 (4) and can affect the intracellular concentration of drugs metabolized by this enzyme. However, conflicting data indicate no such effects (13) (14) (38). In another study, consumption of milk thistle did not reduce levels of indinavir, an AIDS drug (15). https://www.mskcc.org/cancer-care/integrative-medicine/herbs/milk-thistle
    Turmeric/Curcumin:
    Resveratrol:
    • Contraindications: Patients with hormone-sensitive cancers should use caution, as resveratrol—at concentrations between 3 and 10 μM, similar to those needed for its other biological effects—exhibits estrogen-like properties and activates transcription by both estrogen and androgen receptors that lead to the stimulation of cancer cell proliferation (18). https://www.mskcc.org/cancer-care/integrative-medicine/herbs/resveratrol

    This all said, I would love to be wrong about my understanding of the above! I will continue to research.


  • nicolerod
    nicolerod Member Posts: 2,877

    Lila thanks for that. Someone mentioned (I believe in the ibrance thread) that we need a thread with a list of "no-no's" when on Letrozole and/or Ibrance. I am starting to agree its getting hard to keep track ... Maybe I will re-post your information in a separate thread so we can start doing that, if you wouldn't mind?

    Nicole

  • lilahope777
    lilahope777 Member Posts: 27

    Sure, Nicole! Feel free to share. I'd love a thread like that as well!

  • simone60
    simone60 Member Posts: 952

    Lila,

    You can get an virtual appointment with Dr Block. I was going to do that but found one in my area.

  • simone60
    simone60 Member Posts: 952

    milk thistle can have estrogen like properties. Do a Google search and you'll find some info. I would paste a link but I don't recall how to do that




  • santabarbarian
    santabarbarian Member Posts: 2,311

    DHEA is a precursor to Testosterone and since my TNBC was AR+ I was advised not to use that.

  • santabarbarian
    santabarbarian Member Posts: 2,311

    Makes sense that a given treatment might contraindicate a given supplement but I would still try to consult someone experienced with BOTH cancer treatment AND supplements, like Dr Block or someone similar.


  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 551

    Another thing to keep in mind is any infected dental root or cavity, I have read that Clostridum bacteria is introduced into the body in that way and produces the inflammation that cancer needs to grow. I don't know if it's a coincidence, but I have an infection in a tooth on the left side (the same side where I had the tumor)

  • husband11
    husband11 Member Posts: 1,287

    Here's what I have in my notes on palbo and letrozole and some other supplements I have researched the cytochrome interactions:

    Palbo

    Cyp3a makes it stronger

    Cyp3A4 strong inhibitors are to be avoided.

    Letrozole:

    Cyp3A4 and Cyp2A6 catalyze it to active form.

    It is a potent inhibitor of Cyp2A6, weak inhibitor of Cyp2C19

    Oil of Oregano:

    Potent inhibitor of Cyp2C9, Cyp3A4 (thus should be avoided for the two above drugs)

    Bromelain

    Inhibits Cyp2C9

    Curcumin

    Inhibits Cyp3A and Cyp2C9

    Green Tea

    Inhibits Cyp1A2, Cyp2C9 and Cyp3A4

    Garlic

    No significant influence on Cyp1A2, Cyp2D6 or Cyp3A4

    moderate Cyp2E1 activity

    Xeloda

    Cyp2C9 metabolized

  • JFL
    JFL Member Posts: 1,373

    Simone, I have used frankensense, undiluted, by applying 4 drops over my liver and 2 drops on my feet in specific areas indicated for liver mets. I haven't taken it for a while and need a new bottle.

  • snooky1954
    snooky1954 Member Posts: 850

    From Joe's page!!

    ------------------

    Wanted to share a success story.

    My uncle was diagnosed with stage 4 prostate cancer with Mets to his bones. He was diagnosed in March 2019 and started taking the protocol from Joe's blog towards the end of May. I shared the story from the news interview in April.

    I don't have all the details but his cancer count dropped from 6100 to 1.5, and he went from having months to live to what we believe is cancer free. He followed the protocol exactly as it was followed by Joe in his blog. He was taking a chemo pill and then taking a chemo shot. I do not know what it was. He did not have insurance so was not able to receive much treatment.

    His oncologist is in shock and wanted to know what he was doing. He told her about the blog. He will continue to take the protocol and chemo shots another 3 months then they are doing scans.

    My uncle believes he has beat the cancer. He was bed ridden and in pain. After the first month, he started eating again, gaining weight, mowing the yard, and going fishing. Now he is living a normal life again. He has been on protocol approximately 4 months.

    I wanted to share so others would know this protocol has saved my uncles life. Thank you for sharing your story Joe Tippens

    ------------------

    Praise God! Very happy for this man.

  • Frisky
    Frisky Member Posts: 1,686

    great story Snooky, so encouraging! Were you able to find other MBC success stories? I went to the blog but he didn’t post much other than he has found the medical teams to lead the research and statistics, which it’s wonderful

  • goldie0827
    goldie0827 Member Posts: 6,835

    Hi to everyone! I'm home from Reno, had a very nice time. Went to Lake Tahoe, so so beautiful! Went to the place of the Donner Family, and also Donner Lake. Family that tried to migrate west, was talked into taking a short cut, and most died dued to the frigid winter. We had watched the movie about that just before going and Darby Hinton is it. The actor I posted my picture with. Lots of driving while there, and 2 days there and 2 days back. On the way back we stayed in Laughlin and DH won $300 on a .35 bet!

    Thank you to all that were asking about me. Hopefully we will be leaving in about 10-14 days for a 10 day camping trip in Moab UT.

    I've glanced over most of the posts, I hope the Milk Thistle isn't what caused my markers to take a 150 point jump. I am now in the 500's. Gets scary for sure. Still taking my FZ with no issues. If my markers jump again like that, MO said he is switching my meds.

    Good to see so much activity and I'm all in for the free cruise!


  • simone60
    simone60 Member Posts: 952

    Goldie, glad to hear you had a great time and all is well. Nicole started a thread which people can post info on what not to take. There are a few items I thought were good for me but turns out they are not.

    I'm not sure if anyone is interested but I found a FB group called Starve Breast Cancer that is specifically for breast cancer. I was just looking around and it looks like there is quite a bit of information.


  • goldie0827
    goldie0827 Member Posts: 6,835

    Looked at Nicole's thread. Scary to think that perhaps the Milk Thistle and Gamma E might be the cause of my TM's rising so much, as they have never gone up that much in the past, usually 30-50.....not 150!

  • nicolerod
    nicolerod Member Posts: 2,877

    Goldie that is a big jump. I know that when I spoke to Jeff (the one you messaged for me) the one thing he specifically mentioned to me about the protocol was to watch my liver enzymes. I started the Vitamin E 3 times a week..about 2 weeks ago..yesterday I had labs and my bilirubin and WBC and RBC were all high...and I have been having periodic pain in my liver...I am now wondering if it is from the Vitamin E.....

  • simone60
    simone60 Member Posts: 952


    Yes, I saw that. I started taking milk thistle (only one week) and quickly stopped when I read that.. I did a search on milk thistle and several articles popped up say it had estrogen like properties.

    I wanted to give everyone an update on what COC said. They told me I should go back to the lower dose and then add the increased dose for each pill one day at a time. That way they can tell which drug is causing the pro blem. I'm traveling next week so I'll wait until I get back.

  • nicolerod
    nicolerod Member Posts: 2,877

    Sorry Simone I don't follow...they told you to go back on the lower dose of which drug??

  • husband11
    husband11 Member Posts: 1,287

    Help me if I have forgotten, but what is the concern with Vitamin E?

  • goldie0827
    goldie0827 Member Posts: 6,835

    I'm so confused! Am I making cancer worse? Do I stop the Milk Thistle and Gamma E, even tho that is what is the protocol. Damned if I do, and damned if I don't!

  • nicolerod
    nicolerod Member Posts: 2,877

    This is what I have been saying Goldie and one of the reasons I started the Do not take thread..and for others like me who get "lost in translation" so -to-speak with all medical stuff I figured the list would make it easy.

    I cannot speak about the Milk Thistle because I have never taken it. I know BEVJEN and I have spoken and she saw some literature on Vitamin E not being great to take. I am taking it the past 2 weeks 3 times a week but yesterday I got labs and my WBC and RBC and Bilirubin were high :( I don't know if its from the Vitamin E or not.

    I started seeing a new MO yesterday who is or says she is integrative. I spoke to her about the COC protocol. (and I am going to cross post this part in the Jane McLelland thread.)She knew about all those drugs and wasn't necessarily against me taking them..but is concerned about my liver having to metabolize all of those in addition to my Faslodex, Ibrance and Letrozole. Her other concern for me was that my blood sugar is NOT high at all and to add in Metformin could make me very low but she was willing to research on my behalf and wanted to look further into the current Mebedazole studies going on. So for that...I am grateful. I would rather do all that through her than through the COC. EDITED to add in: Ref: Doxy she worries about becoming immune to that..and with ibrance making my WBC low if I was to develop an infection it could be bad to have resistance to antibiotics. I agreed but told her it would be every other month. She agreed to look into that. She also wanted to look at dosage...which I don't know what they would be.

    I got off track there but my point is..if the supplements are making your levels high...the only way for you to know is to stop them. Which stinks ...I know. Its just so hard to decide what to do and what is good and what is bad. I do agree with my doctor though that our liver should not be over stressed right now especially for those of us that have tumors in there and from what I am starting to see..taking too many supplements and treatment can do exactly that.

    Sorry if I wasn't any help Goldie just giving you my thoughts. I agree with you though about its hard to know what is good and what is bad.

  • husband11
    husband11 Member Posts: 1,287

    About all you can do is stop taking a particular supplement, wait for the next blood test, see if levels improve, re-start using that supplement and see if they rise again. I wouldn't just quit, as the improvement or worsening could be random or unrelated. My wife used to get her tumor markers and blood work done monthly, but for some reason they are only doing it every three months now. Makes it harder to experiment when the time period required is 9 months instead of 3.

    Here are a whole pile of articles on vitamin e and cancer.

    https://foodforbreastcancer.com/tags/vitaminE

  • nicolerod
    nicolerod Member Posts: 2,877

    Yes that would be hard Husband. My new MO wants blood every 2 weeks... this way she says she can see in the middle of the ibrance cycle and then week off... I have been off the Ibrance for 13 days now and well my 1 fever sore on my lip is STILL THERE!!! Its not hurting but its not gone....I am afraid to re-start and even after 12 days off my ANC was 1600...which I am told is still considered low....(to the normal person not on cancer meds)

  • Frisky
    Frisky Member Posts: 1,686

    Simone what problems were you having? I tried to go back on the thread but couldn't find your complaint.

    I am currently taking 100mg doxycycline and 2 Metformin tablets with breakfast, 2gm FZ with vitamin E and Curcumin with lunch, and 2 Metformin and 40gm of lovastatin at dinner time. Various minerals and spices throughout the day. Pro-biotics at night with melatonin...

    How is your protocol different?

    When reading the various reports on the effects of natural supplements, it's important to know who sponsored the study. Studies financed by coffee companies, for example, will inevitably prove that coffee is very good for us. The same for the junk food industry...sugar, they say, it's good for us, and can prove it, since all universities, researchers and doctors only care about their jobs and the money these companies will pay for their results...for every study that proves one thing, there will be 10 others that prove the opposite....

    Who do you think would have interest and money to spend in spreading doubts about the value of complementary medicine?On one hand doctors repeatedly state that vitamins are useless, but when convenient, attribute to them amazing powers, such as undermining chemotherapy drugs....whaooo...can't make this stuff up. They need to make up their minds...and till they do, we need to start using ours

    All this doesn't mean you should or shouldn't take milk thistle it just means we have to look past the appearances of things.

  • BevJen
    BevJen Member Posts: 2,341

    Nicole,

    I just looked at my blood tests from yesterday. They say that the range of normal for ANC is 1.50-7.80 (I think yours is multiplied out by 100?). At least for the lab tests at Hopkins, that would be in the normal (though low normal) range. But it would still be in the normal range. Mine yesterday was 2.13. I was at 1.39 on 8/12, right after my first cycle ended (that blood was pulled the day after I took my last pill.) They still said that my numbers were good enough to stay on the 125 mg.

    I think for you, it's good that you're doing blood every two weeks, because maybe they can figure out where the issue is and work with you that way. If I read it correctly, the nadir (low point) on the bloods is supposed to be right at day 14 or 15, so if you're doing every two weeks, that would show the worst case in your cycle, presumably?

  • santabarbarian
    santabarbarian Member Posts: 2,311

    I posted in the "do not take" thread... I think there are some very poor sources and among them are people passing on "My MO said..." when the MO is ignorant. I believe most MOs are woefully ignorant of complimentary therapies due to the "must have double blind study" bias. I see MOs saying "antioxidants fuel cancer, don't take them." (HMMMM.... they also fuel the immune system! And the 99.9% of my cells that have no cancer in them, right?!) Thats why I saw Dr Block who has been ding the complimentary stuff AND the chemo for 30 years. He has real knowledge. It's very easy to say no to everything an have no real knowledge.

    I think everyone is responsible for getting themselves to a source of REAL knowledge and then also verifying there are not contraindications specific to Dx or Tx.

  • nicolerod
    nicolerod Member Posts: 2,877

    Yes Bev...she said she wants to see it when it's at it worst and best. It says this:

    NEU

    1.6 10e9/L (Low) Reference Range : 1.9 10e9L - 7.9 10e9L


    I believe that is my ANC...because she said it was 1600......it seems like there are so many ways to call it ...16, 1600, 1.6....etc...