Ringworm drug for dogs (Fenbendazole) might also cure cancer
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On the subject of medicinal mushrooms, and in particular maitake D extract, there were some case studies published in 2002 where a number of patients achieved long term stability or cure with a combination of maitake D extract and whole maitake.
https://pdfs.semanticscholar.org/5796/b53fa21d843a...
Note that the amounts of maitake D fraction the patients took, were significantly lower than the levels determined optimal by the Memorial Sloan Kettering trials of MD extract. The patients above typically took 100-150 mg daily of MD extract plus 4-6 grams of whole maitake. Whole maitake is relatively cheap. The dosages suggested by the Memorial Sloan Kettering trials, of 5mg/kg/day would result in a typical patient taking double the amount of MD extract.
So, it would appear that lower levels combined with whole mushroom can be effective, and would appear to be the Japanese way of treating cancer patients. It would also be much cheaper than using the amount of MD fraction suggested by the MSK trial. Oregon Mushrooms is a great source for whole, dried maitake. It is the whole mushroom, intended for your dining pleasure, so you know just by looking at it that it is maitake and not some corn starch in a capsule.
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Anotherone, You are very very kind and I appreciate it very much, but shipping is not necessary. If it is a late effect of the rays I will recover, it's only a matter of time. I am taking ashwaganda and today I will start with creatine. I think it will be as effective as ribose. Once again, thank you for your kind intentions.
Husband: I thought the same about creatinine, there is a risk that doctors will be confused with our laboratory tests. I wonder how long it takes for the creatinine to clear up, maybe we shouldn't take it for a couple of days before the blood tests.
It seems a good supplement for a person with cancer
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Yndorian,
I just read your post above relating to breast cancer and creatine kinase. Creatine kinase (CK) is not the same thing as creatine. CK is an enzyme, ie a catalyst of some biologic process, and is different than creatine. I can't comment on the interrelation between the two, ie whether enhancing creatine levels is good or bad in the context of immune response discussed in the article.
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Husband: Yes, I understood it after publishing the article, creatin kinase is an enzyme, it cannot be increased by creatine intake. Anyway, creatine intake seems like a good option to not lose muscle mass, especially when we lack appetite ... I don't know if it will work, I will try
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Simone80. My wife's MO hasn't called in 2 weeks. He has basically given up on her for cancer treatment and turned her over to Palliative then Hospice care. Wither she gets chemo or not depends on her condition. Right now she is still very frail and hardly gets about in her walker. Yet, I see some, just a bit of improvement. Also, she does eat and keeps her weight up though I have to nag her about eating.
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Olma, as for the turkey tail doses (g v. mg), I intended to write “g” in all cases, not “mg”. Typos.
Wildplaces, other than the COC MO stating that CoQ10 blocks the action of atorvastatin, she did not elaborate and I did not research it further.
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JFL 🙂
this is sketchy but not correct - the pathway has a few more steps
I dont know enough about this - my question bats to which atorvastation mech of action on cancer cell she is reffering to - multiple postulated - assuming its cholesterol related ? or ROS so free radical/chemo like? we do know statins cause CoQ10 depletion and that may lead to some of the statins side effects.
My best guess would the anti oxidant effects of CoQ10 but if that is true are all antioxidants off the table ?
I will go and read more - thank you for posting on it.
Husband 🙂
there would have been an eGFR measurement for a diagnosis renal impairment - urea/creatinine still done but vary with age, muscle mas, hydration to name a few.
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Re: CoQ10. I had the same question to COC when I first started the protocol. The reply was
"CoQ-10 aids mitochondrial respiration - which is specifically why we are using the statin - to decrease mitochondrial respiration in the cancer stem cell so that it cannot thrive. Therefore, the CoQ-10 is contraindicated to the purpose of the Protocol medications. Here is an article about the CoQ-10 aiding the cell mitochondria:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3096178/"0 -
I read this thread, learn a lot, but usually dont post - this is " your thread team with the locals" and has a goodsense of community - its great to see.
The interaction between atorvastatin and CoQ10 was new for me. 🙂 Again thanks:)
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Great Simone - thank you ! its what I was looking for.
Think we cross posted.
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Detailed account of the current state of the arts as far as CART-T therapy is concerned. A must read....
Behind the Scenes of a Radical New Cancer Cure
I've now treated several patients with the new cancer gene therapy called CAR-T, but there's still a lot to learn.
https://undark.org/2019/10/23/cart-t-behind-scenes-cancer-cure/
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Wildplaces, with respect to milk thistle, the COC MO didn't mention anything about taking it with ER+ disease but of course she did know I was ER+. Like you, I have heard that the plant extract may be an issue with ER+ disease but that the seed extract is not an issue. I found some seed extract milk thistle today at the drug store to get me going for now until I have a chance to research best brand/dose in more detail.
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Frisky this was talked about a couple of weeks ago in the Ibrance thread..yea it looks to be good. If you go over there Cure-ious talked about it.
My MO and I discussed it then. She looked it up while I was at the appointment. We decided to wait until after my biopsy to look further..but I think she did mention a reason why it wouldn't work for me....I just can't remember now. I need to start bringing a tape recorder in there ..lol0 -
What I don't understand about statins and cancer stem cells and if fact other repurposed drugs- that reaction of AcetylCoA break down is a core of us as living beings. How one can manage to stop it and be alive? Ok , let's say not stop it but reduce it - but then if cancer stem cells are not quickly reproduced as normal cancer calls and that is why they are not eliminated by chemo how come statin addresses them at a level that does not harms us/kills us ? Obviously it works, otherwise it repurposed drugs and statin in particular would not have gained traction and I remember seeing some studies reports but how? My 3monthly COC review is coming , may ask them .. If anybody has any other questions post them here of PM me and I will ask
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"People handed a devastating diagnosis don't spend most of their time dying. They are living, but with a heightened awareness for a timeline the rest of us take for granted. They sip coffee, enjoy their hobbies, and read the news while also getting their affairs in order and staying on the lookout, constantly, for the next treatment that could save them."
I cried reading this. ( from Frisky's link).
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From what I understand it's the high dose C that's the true "kill" phase in COC protocol. The pathway inhibition weakens and kills some of the cells and reduces their ability to replicate and thrive. Then the C provides a knockout blow.
I did High dose C 2 x per week during chemo. I have dropped back, and now do 2 a month. I will go to 1 per month soon. I feel a little scared to stop altogether if I can do ~24 more and see myself through the prime recurrence window for TNBC...
My chloresterol is a little high (weird, I am practically vegan!) but she said it is probably genetic. I asked about lovostatin, but my NP said she does not advise a statin since I am NED, and it can have other effects... She wants me to try niacin to lower it.
She did order a special test which measures all the nutrients in my cells... SpectraCell... so not just in the bloodstream, but inside the cells. Sometimes you can have a nutrient in your system but it is not penetrating into cells or being utilized by the cells... this lab measures that. It's basically a picture of my whole nutritional status over the last several months-- what the levels of nutrients are functionally. So for example my T3 thyroid is a bit lower in my cells than it is in my system. It's really handy to see what is high, medium, and low in my body. We are adding a B complex because 2 of my B vitamins were a bit low (normally I only take B6). There were a few other slight insufficiencies I can correct with specific foods. But mostly it looked very healthy at the level of the cells. My antioxidants were all very good, and the whole picture was substantially better than during the latter part of chemo when she did the test the first time.
A test like this might be good to provide guidance to people looking to fine-tune their nutrition.
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Santa....there's a correlation between thyroid hormones and cholesterol....I can't remember exactly what the mechanisms are, but you might want to look into it ...
I miss being treated by functional doctors...there aren't many old-timers left in NYC....there’s a complimentary clinic but it would be hard for me to get to, considering how often I would have to go.
Happy you're doing so well!
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there's been a lot of talk on here on taking Ashwagandha for your adrenals/stress/mood lifter. And it does work for that. I've been taking 3 or 4 per day.
Lets back up. If you've been following my posts you've noticed I've complained about Headaches, constipation, confusion, leg weakness, and extreme fatigue, blurry eyes.
I've been trying different things for it, researching if I might be taking a supplement which I should not be. ( YES Frisky, HP. Started taking my meds for that and it helped somewhat)
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So, today I started reading everything I could find on Ashwagandha and sure enough it does cause headaches and all the other systoms that I've been having. And since I'm on anti depressants I should not be taking it at all. I also take Zofran which is a counter diction. All my fault for jumping in before I investigated enough.
But the main point I want to make is Check your dosage. Surfing around the studies have been on 100-600 mg. Well, the brand I've been popping down is 1950mg x 3 to 4 a day.
I'm not saying this is what is causing my issues but , I'll find out.
thanks to all who congratulated me on lower TMs. I wasn't much 5 points, but I'll take it.
Here's one of many sites that I have found
https://www.ehealthme.com/ehm/ds/ashwagandha/frequ...
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Hopefully Snooky you have figured it out and will get rid of those headaches and other symptoms. Some of this stuff is trial and error, removing something observing, adding something, observing.
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Snooky, I hope that lowering ashwaganda dosis is the solution to your headaches. As for me, between ashwaganda and creatine that I started taking yesterday, I feel a slight improvement today ... I read that the true effect of creatine begins to be seen after 4/5 days of taking it, so I have to wait. Thanks to all who offered me help and words of encouragement, I appreciate it very much! ❤
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Snooky, you are taking a very high dose of ashwagandha! I hope an adjustment does the trick.
Santa, the COC protocol does not include Vitamin C . . . perhaps that is the Jane McClelland protocol?
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Yes, McClelland is what I meant.
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Just stopping by to say hi and wishing you all well. Snooky with your headaches, Sonya for just feeling blah! Frisky, I think you had a lowering of TM's, not much, but like you said "I'll take it". Mike or Husband, I forget whose wife was struggling, but hoping you can get some relief. And to everyone that I haven't mentioned!
Love and Huggles...Lori
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very happy to hear you're feeling better Sonia...I hope you can start eating normally again and putting on some weight...
Hi Lori...good to know you're back...
Uplifting BC story due to Nagourney's ability to figure out what medications would work for her cancer...I wonder why Nagourney's ability to discern what works is not standard procedure in every hospital? It would spare patients from undergoing costly, toxic, and useless chemos....and concentrate on what does work...especially considering that fresh biopsy's samples have to be analyzed quickly....less suffering, more human lives saved...
hum....
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I read this article and had questions. I assumed stage iv because of the counselor brought in but now not on any other treatment it seems?
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I have a feeling the testing must have shown her tumor to be "basal like" which responds to carboplatin.
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You all should look up Nagourney's institute in California. It is quite amazing.
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Not sure where to post this, but because it involves some of the issues we've talked about in this thread, I'm going to post it here. For anyone who has an hour to kill, the link below is to an interview posted on the Moss Reports with James P. Allison, Ph.D., from MD Anderson. Allison won the Nobel in 2018 for his discovery of the function of T cells in cancer and their relation to the immune system. The interview is somewhat technical, but it's fascinating since Allison describes his work, starting in the 1960s, in working towards immunotherapy drugs and his success in using them in cancer treatment. His perspective, which is increasingly being adopted from what he says, is that vitalization of the immune system versus using just chemo and the like to "kill off" the cancer cells is the way to "cure" cancer. Within 10 years, Allison says, cancer doctors will be looking first to immunotherapy and only secondarily to chemotherapeutic agents and radiation to "clean up" some pockets of cancer cells possibly remaining after use of immunotherapeutic drugs.
I am NOT a scientist, so please forgive me if I'm mischaracterized what Allison has to say, but I just found this interview fascinating and very informative. Don't skip the end where he talks about the 2000+ trials being done now where drug companies are simply throwing combos of drugs together to see if they can hit the mark.
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THIS Was just posted on Joe's page--author was Joe
ATTENTION: IMPORTANT ANNOUNCEMENT
I have been alluding to this for some time, but it is finally here. The very impressive medical research foundation OMRF (www.omrf.org) has agreed to help all of us with clinical review of the FZ protocol from our participants on the www.mycancerstory.rocksblog, the www.facebook/groups/mycancerstoryrocksFacebook group page as well as from hundreds from my personal email correspondence. I also intend to notify similar groups run by Tamera Fields in case she decides to participate.
WE ARE STARTING WITH SUCCESS STORIES FIRST
Please be aware, however, that in order to have integrity of data and processes, OMRF will not proactively reach out to patients, but rather patients will be required to contact OMRF. To aid in this, all of us need to reach out to our known worthy cases and remind them that if we would like themto be included in the study (and we would greatly appreciate their participation), they need to contact OMRF at:
Matt Slief
405-271-7221 a dedicated line just for this project
Also, it is very important to remind everyone that participation will require:
1. A signed consent to participate
2. Signed releases for medical records from all appropriate providers, including all medical, path, imaging, medications etc. This will be an authorization to use or share protected health information for research purposes.
Matt Slief will get you those forms once you contact them.
Please Note: This is NOT a clinical trial, but a retrospective review and audit of each of our unique cases. You will not be asked to take any medicine or change what you are already doing.
I will personally go through my own notes and remind individual people to contact Matt Slief at OMRF, but I am most certain that I will inadvertently miss some. Please reach out to any known cases you think would be pertinent to this all-important study. You are part of this effort and I believe you will be proud.
About this websiteomrf.orgOklahoma Medical Research FoundationDiscoveries that make a difference. 0 -
Nichole, Hoping that you can get a good nights sleep and that your procedure works fantastic for you. HUGS
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