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Zoom Meet-up for Those With MBC: Place to keep chatting

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Comments

  • moderators
    moderators Posts: 8,741

    @rlschaller We'll miss you on Mondays! Can you make our Wednesday group at 4pm ET? Register here if you haven't already: https://breastcancer-org.zoom.us/meeting/register/tZApdOmqrj0rGdLEsyEhPQzd0i_GAjFUdFuw

    The Mods

  • kbl
    kbl Member Posts: 3,016

    @rlschaller I’ll also miss you on Mondays and wish you the best with radiation. So glad you had a great time with your stepson.

  • rlschaller
    rlschaller Member Posts: 295

    thanks Fay ❤️ hope you are doing well 🙏❤️

  • rlschaller
    rlschaller Member Posts: 295

    thanks @kbl I’ve been thinking of you ❤️❤️ Look forward to catching up soon.

  • kbl
    kbl Member Posts: 3,016

    You guys know how much I hate missing meetings. My MO appointment isn’t until 12:15 today, and even if I get out on time, the Internet is very spotty for the ride home. I will come Wednesday if I don’t make today. Ugh. I will miss you all.

  • going2beatthis
    going2beatthis Member Posts: 210

    @kbl-hope you do get to see the mo today and not the PA. Will be thinking of you while eating lunch onboard the ship. 😎

    I am always not able to make today's (and Wednesday's) meeting this week. Missing everyone. See you next week with lots of updates.

    Hope everyone has a good week.

  • kbl
    kbl Member Posts: 3,016

    @going2beatthis Have a great cruise.

  • moderators
    moderators Posts: 8,741

    @kbl, @going2beatthis, @illimae, @rlschaller you were missed today!

  • illimae
    illimae Member Posts: 5,745

    Had my 1st of 5 brain radiation sessions today but it was quick and easy. See you all next week.

  • moderators
    moderators Posts: 8,741

    Go @illimae !! See you next week.

  • kbl
    kbl Member Posts: 3,016

    @moderators Thank you. I’ll see you Wednesday.

    @illimae Glad it wasn’t too difficult. See you Monday. 💕

  • Rosebessie
    Rosebessie Member Posts: 100

    @kbl , hi Kris, missed you this week. You're such an significant member of the Monday group that for me, when you're not there it doesn't feel complete. I hope you're having fun with grandson and everyone else. Sending love and hugs 🫂 🤗 ❤

  • kbl
    kbl Member Posts: 3,016

    @Rosebessie Aw, thank you so much, Rose. I had a doctor’s appointment at the time of the meeting. My appointment was at 12:30, and she finally walked into the room at 3:15. I missed you too. I hate missing. I will see you Monday.

    I just thought of you because of what happened last year. Our time is changing this Sunday, November 3rd, which means our meeting will be an hour later for you like last year. Ugh.

  • Rosebessie
    Rosebessie Member Posts: 100
    edited October 29

    @kbl Hi Kris, so happy to hear from you. Appointment at 12.30 and doctor walks in past 3pm. Yikes!!! You cannot make up some of the stuff we go through as "patients for life". I hope the Appointment went well.

    Yeah, your Northern hemisphere clock changes mean I'll be half-asleep through some meetings, especially now it's terribly hot out here. Nairobi doesn't get extremely hot but today it hit 82⁰F. The global warming is real.

    Nice to catch up and I look forward to see you Monday. Wishing you a wonderful week ahead with your loved ones.

  • kbl
    kbl Member Posts: 3,016

    @Rosebessie Ooh, I hope it doesn’t get much warmer for you.

    My appointment wasn’t anything special, more so that I wanted to take a look at my tumor markers. I haven’t gotten them back yet.

    You have a great rest of your week as well. I hate that you have to join so late in the evening, but I’m so glad you do.

  • kbl
    kbl Member Posts: 3,016

    @rlschaller Radiation does not sound fun. I’ve never had it. Hoping it does exactly as it’s supposed to for you and doesn’t get much more painful.

    I’m assuming now that I’m off treatment, my doctor visits will slow down.

    I was able to go to the waterfall yesterday and walked up and down rough terrain for almost 2.5 miles. That’s what I see as quality over quantity for me. I’m hoping I get quite a bit more quality and will take it one day at a time.

  • tougholdcrow
    tougholdcrow Member Posts: 204

    @kbl I've always found nature to be the wisdom place, if you know what I mean. This beautiful planet..

    Good wishes to all who are getting through various treatments this week.

  • illimae
    illimae Member Posts: 5,745

    @kbl I saw you on Instagram, that was fun!

    Radiation underway, 3 down and 2 to go. The mask is unpleasant but way better than the metal frame and pins.

    IMG_7248.jpeg

  • going2beatthis
    going2beatthis Member Posts: 210

    @rlschaller - glad you were able to find a visual creative visualization for radiotherapy on an App and that it is helping you get through your sessions.

    @illimae - 60% done 👏 Glad the sessions are going quickly. Plan on wearing the mask for Halloween?

  • illimae
    illimae Member Posts: 5,745

    @going2beatthis. Unfortunately, I won’t be able to get the mask until I’m done on Nov 1st but I will find a use for it.

  • kbl
    kbl Member Posts: 3,016

    @illimae Oh, boy. I didn’t know it had been put up. I don’t think I realized I had the redness around my cheeks and nose. I don’t know what does that. Lol. Something with my sinuses. Thank you 💕

    That mask does not look pleasant, and I’m glad you’re not claustrophobic. I hope the next few go quickly and easily for you.

    @going2beatthis You look great, and I’m glad you’re enjoying yourself.

  • illimae
    illimae Member Posts: 5,745

    @kbl I was claustrophobic prior to my initial diagnosis and those first scans were difficult. And the mask making wasn’t so easy but over time I’ve learned to talk myself down and focus on breathing.

  • going2beatthis
    going2beatthis Member Posts: 210

    @kbl - thank you ❤️. Always nice to be pampered.

    @illimae - I also find focusing on my breathing helps alot when I do any scans.

  • kbl
    kbl Member Posts: 3,016

    @illimae I can definitely see how having that mask on and having it made can be an issue. It’s awesome that you’ve learned to breathe through it.

  • Rosebessie
    Rosebessie Member Posts: 100
    edited October 31

    I'm trying to post here but my Internet keeps dropping. Hope this goes thru

    I just want to wish Rhonda and @illimaellimae all the best during this week's treatment sessions. 🙏👍

    @kbl that walk on the beach sounds like just the thing to do. Love it!!! Enjoy your "me time" ❤🫂

    @goingtobeatthis Fay.…oooh. A cruise..... Hope you're having a great time.

    @tougholdcrow 👍👍

    Love and hugs to all 🫂❤

  • kbl
    kbl Member Posts: 3,016

    @Rosebessie I used to live right by the beach and hardly ever went. I actually was walking in the mountains. So much better than the beach for me. Some of us like water and some of us like mountains. I’ve definitely found my happy place in the mountains. 💕

  • Rosebessie
    Rosebessie Member Posts: 100
    edited November 4

    @kbl Awww, so glad you've found your Happy place. Sending you best wishes for more fulfilling walks around the mountainside. I also prefer mountains to water altho for walking I'm happier in the concrete jungle... aka city. I'm an incorrigible urbanite. Hoping you've all had a great week all-round and looking forward to tonights meeting 🤗🫂🙏

  • tougholdcrow
    tougholdcrow Member Posts: 204

    @Rosebessie @kbl You are my kindred spirits. I'll take the crisp air of the mountains any time to lying on the hot beach. Plus, I am thrilled watching climbers and movies about climbers, even though I could never be one. @illimae You are one tough, brave lady.

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