Metastatic Breast Cancer (MBC or Stage IV)

First Post. Emotional support
Hello. I meet regularly with others in online bc.org zoom meetings. I am currently in treatment with MBC. IDC and ILC HR+ HER2-. I am taking Verzenio 100mg twice a day. Letrozole AM only and Xgeva once a month. I live with my sibling and his family. It is a gift in many ways but also a struggle. I found out this morning…
Vegetarian Diet Offers Physical, Mental Benefits for Women With Metastatic Breast Cancer
Vegetarian Diet Offers Physical, Mental Benefits for Women With Metastatic Breast Cancer Jul 24, 2024 If you have metastatic breast cancer, a whole-food, plant-based diet may help you think and feel better. Read more…
Which Type of Radiation Is Best for Painful Spots of Cancer in Spine?
Which Type of Radiation Is Best for Painful Spots of Cancer in Spine? Jul 11, 2024 Stereotactic body radiation seems best for easing pain caused by spots of metastatic cancer in the spine. Read more…
Exercise Boosts Sexual Health in Women With Metastatic Breast Cancer
Exercise Boosts Sexual Health in Women With Metastatic Breast Cancer Jul 9, 2024 If you have metastatic disease and want better sex, exercise can help. Read more…
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu seems better than chemotherapy for metastatic breast cancers with even the lowest detectable levels of HER2. Read more…
MY MOTHER INLAW HAS STAGE 2 HORMONAL BREAST CANCER
Good evening everyone; I live in Turkiye and my mother inlove has stage 2 hormonal breast cancer. She took chemo, surgical operation then radiotherapy but after all of this, cancer cells again reveal at the same breast (left). By the way she has an implant after surgical operation. Currently she begins to take 2'nd chemo…
Help regarding kisqali medication
I have an aunt suffering from breast cancer, which discovered recently , the doctor prescribed her a medicine called kisqali, the problem is the price of this medicine is very high, about 3000 dollars here in Morocco , and the financial situation of the family is very difficult, my question is Are there associations that…
In search of support after my mom's recent MBC diagnosis.
Hello everyone, Part of this is going to be me venting but also I have some questions if anyone is able to answer them. My mom was diagnosed with breast cancer for a 3rd time at the end of May, this time triple negative metastatic at the age of 57. She experienced a large pleural effusion in one of her lungs and the fluid…
Interactive decision support tool!
Hi All, We're letting you know about a new interactive decision support tool for patients that could be helpful in making treatment decisions for people with a metastatic breast diagnosis. It was developed by Clinical Care Options, LLC, and it can provide you with recommendations from 5 experts regarding treatment. We hope…
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu offers better survival than chemotherapy for pre-treated, metastatic, HER2-low or -ultralow breast cancer. Read more…
Faslodex
Just wondering if anyone has experienced this. I have been on faslodex (and Ibrance) for 3 and a half years. I am so fortunate that his combo is still working and don't want to change it. I have always had a couple of side effect days after shots but bearable. Though recently my side effects seem worse. Anyone experience…
Lobular Stage IV Imaging Issues - I Know I’m Not Alone
Hi, everyone. I was thinking about starting a Facebook group for those of us who have so many issues with imaging. I got some feedback from others that they did not want me to start a separate group, so I am starting a group here. Below is my post on Facebook so that you can get a sense of the imaging issues I've had.…
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis Mar 1, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on embracing what matters after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many changes,…
Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers
Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers Dec 7, 2023 If approved, the medicine may be an alternative to Piqray for treating certain cancers with a PIK3CA mutation. Read more…
MBC and lowered immunity
My white blood cell count is down, neutrophils are down… not that I am sure what that even means, but I do know that my immune system isn't doing so great. Three head colds since December, and they linger and get harder to shake. I now mask up everywhere I go where I'm going to be in crowds. I take public transit to get…
I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
Starting my Fifth Year of Metastatic Breast Cancer, taking Taxol and Sleeping A LOT!
I just finished Taxol #4, this was with a 10% reduced dose. Lots and lots of naps needed. Not used to being so dependent on naps. Slight fever in the 99s, just wondering if this is my new regimine. I was told I will stay on Taxol until it stops working. Estrogen inhibitors like Ibrance, Verzinio, and Faslodex did NOT work…
Her2 2+ Fish test
Hello ladies. I have a question. My mother is almost 76 years old and she has breast cancer with bone metastases almost everywhere, at least this is what the pet ct showed. Her biopsy says Er+ 95%+++ 5%+ Pr+ 60%+++ 10%+ Her2 +2 Her tumor is only 8mm. I read that her2 +2 is "equivocal". This means that the HER2 status needs…
The Benefits of Exercise for People Living With Metastatic Disease
The Benefits of Exercise for People Living With Metastatic Disease Dec 8, 2023 Dr. Anne May explains how exercise helps ease metastatic breast cancer side effects. In 2022, the American Society of Clinical Oncology released guidelines on exercise for people being treated for early-stage cancer. But when those guidelines…
Being in a Metastatic Breast Cancer Clinical Trial
Being in a Metastatic Breast Cancer Clinical Trial Dec 7, 2023 Metastatic breast cancer advocate Dr. Kelly Shanahan shares what it’s like to be part of a clinical trial. Dr. Kelly Shanahan, trained as an OB/GYN, has been living with metastatic breast cancer for 10 years. For many years, she tried to join a clinical trial.…
Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer
Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer Dec 7, 2023 Adding Tukysa to Kadcyla improved outcomes for metastatic HER2-positive disease. Read more…
The Losses We Feel After a Metastatic Breast Cancer Diagnosis
The Losses We Feel After a Metastatic Breast Cancer Diagnosis Dec 1, 2023 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on the losses people feel after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many losses: not being…
Immerman Angels looking for someone with MBC and peripheral nerve sheath tumor
Hello everyone, Immerman Angels is looking for someone with MBC and peripheral nerve sheath tumor. For anyone interested, please reach out to us via private message or by e-mailing us at community@breastcancer.org.
Chemo Sensitivity test
Hi, I’m in NZ - stage 4 lobular snd looking at the tests that tell you what chemo will work. I’ve done Foundation One which my oncologist recommended. I’ve just found out about the Geonostics Exacta Test - snd the Gradient test I’m confused so just wondering if anyone knows what the differences are - or which one is best.…
FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers
FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers Nov 17, 2023 Truqap is a new targeted therapy option for metastatic, hormone receptor-positive breast cancer with specific genetic mutations that has stopped responding to other hormonal therapy medicines. Read more… q
Promising New Treatment for Metastatic Breast Cancer
Promising New Treatment for Metastatic Breast Cancer Nov 2, 2023 Dr. Aditya Bardia discusses encouraging results from a study on a new medicine for hormone receptor-positive, HER2-negative breast cancer. At the European Society for Medical Oncology (ESMO) 2023 Congress Aditya Bardia, MD, MPH, presented results from the…
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers Nov 1, 2023 The experimental medicine Dato-DXd may be a new treatment option for certain metastatic, hormone receptor-positive breast cancers. Read more…
I am so mad
I hate being here but here I am. Diagnosed stage IV to liver (20+ lesions), lung, spine, pelvis, skull (so I am not long for this world). I have no symptoms. It was caught during a routine MRI for my ongoing bulging disk issues. I have had other radiology over the past 7 months and there was nothing in these places. I had…
Awaiting MRI for Bone Mets
Hi! Probably a common situation… finished BC treatment a year ago this week. Two months ago hip started aching on and off. Now a little more consistent especially at night. Went to GP thinking he would send me with referral to PT. Instead X-ray ordered and result is “patchy areas of sclerosis with two largest 3.1 cm on…
Stage IV ER+, PR- and HER2+
Hello, I was wondering if there are others who are also dealing with Stage IV breast cancer that is ER+ (2%), PR-, and HER2+ and has spread to their bones. Recently diagnosed earlier this year and completed six cycles of PACL(W)+PERT+TRAS and am currently receiving PERT+TRAS every three weeks. I'm interested in learning…

Metastatic Breast Cancer (MBC or Stage IV)

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