-
It's OK - No Surgery, No Chemo
Hi Community I haven't found this topic yet, so here's a start (if it's too long, I apologise in advance): I'm in Stg IV with the HER2 cancer growing from the right breast, and first discovered a grape-size lump in Aug 2018. I couldn't get a biopsy until June 2019 (SSA had cut SSI funds), directly before which my PCN said…
-
Can Hormonal Therapy Help Treat Triple-Negative Breast Cancer?
Can Hormonal Therapy Help Treat Triple-Negative Breast Cancer? Dec 6, 2024 Dr. Donald McDonnell discusses his research on estrogen, eosinophils, and triple-negative breast cancer. New research suggests that estrogen plays a role in allowing hormone receptor-negative breast cancer to grow. This is because estrogen limits…
-
Black Women and Hormonal Therapy Sexual Side Effects
Black Women and Hormonal Therapy Sexual Side Effects November 22, 2024 Hormonal therapy is more likely to affect physical quality of life for Black women than white women. Dr. Janeane Anderson discusses her research on the topic. In the THRIVE trial, sexual side effects caused by hormonal therapy led to lower mental…
-
Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
-
Tamoxifen Side Effects
How long were you on Tamoxifen before you started to notice any side effects? Also, what was your age when you started Tamoxifen
-
Hormonal Therapy for Breast Cancer May Lower Dementia Risk in Older Women
Hormonal Therapy for Breast Cancer May Lower Dementia Risk in Older Women Sep 9, 2024 Protection varied by race and decreased with age. Read more…
-
Osteoporosis and Tamoxifen
I am wondering if there is anyone out there who has been taking Tamoxifen and has been diagnosed with Osteoporosis. I am 48 and just had a DEXA scan, and it confirms Osteoporosis. :( My oncologist said that typically it shouldn't cause issues in pre-menopausal women, but there are some paradoxical instances where it does!…
-
Are medicinal mushrooms safe for ER/PR + survivors?
I’m a seven year stage III hormone positive survivor and will be completing 7 years of hormone therapy (currently on Exemestane, but been on Tamox and Letrozole also) in Nov 2024. My Onc recommends I stay on the max length of 10 years. But I’m struggling so much from the side effects and/or what seems like irreversible…
-
Tamoxifen vs. Ovarian Suppression & AI
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
-
Did anybody get tinnitus from taking Tamoxifen?
I have been on Tamoxifen for 1 month and start to get tinnitus which occurs all the time (not occasionally), when it's night it's worse 'cause it's much more quiet; and at day time when it's not very noisy I can feel it as well. Tinnitus is not mentioned on the material about SEs from Tamoxifen I got from the clinic....but…
-
Women on Ovarian Suppression + Hormonal Therapy Unite!
Hi all! I'm starting this thread for those of us premenopausal women who are receiving ovarian suppression treatment (Lupron, Zoladex, oopherectomy, etc.) plus hormonal therapy (tamoxifen, exemestane, or another AI). For me, there's a lot of fear and worry over how this will impact my overall well-being... how it will age…
-
Switching from AI to Tamoxifen - Bone loss
Hi, I just met with a new oncologist after the retirement of my previous one. I have been on an Aromatase Inhibitor for six years with worsening bone loss. Taking Fosamax. The new oncologist suggests switching to Tamoxifen. Total treatment time would be 8 years vs. target of 7 if I stay on AI. Has anyone had or considered…
-
Tamoxifen is making me feel awful AND I'm at the angry stage
It took me a while to get here, I was diagnosed on 2/11 - and BMX on 3/13. Low Onco Type, so taking Tamoxifen for 5 years. I am 30 days into Tamoxifen, and it's making me feel awful. Tired, moody, LOTS of nausea and brain fog. The Tomaxifen is harder than the mastectomy recovery. In the mornings I sometimes feel like I…
-
Tamoxifen and Ovary Pain
Hi all, I am 52 next month, premenopausal, and on Tamoxifen. I have been on it for about 2 months. For the last 2 weeks, I've had off-and-on ovarian pain. Last week, it coincided with my cycle. Yesterday it started up again. It's. Sharp pain in left ovary. I used to get cysts a lot. I think this is also a cyst and may be…
-
Anyone take Tamoxifen after Uterine Cancer
just wondering if anyone out there has taken Tamoxifen after a hysterectomy for uterine cancer.
-
Stay on Tamoxifen after Hysterectomy?
My docs cannot give me a straight answer on this. Doctor said as long as I'm tolerating it I could stay on it. Then again, she said otherwise they could switch me to anastrozole. My thoughts are that if I don't have the main body parts that produce estrogen/progesterone then why keep taking anything? (I had a bilateral…
-
Allergy due to Tamoxifen?
I have developed a few allergies symptoms since last year. I really believe it's due to taking tamoxifen (for 3 years) that changed my body (gut health maybe). I want to see if anyone experiences something similar…. In the beginning of few months when i started to take the tamoxifen, i had night sweats but that was gone…
-
Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
-
Tamoxifen and incontinence
Hello, I am on Tamoxifen for almost 2 years now and now starting to experience incontinence. I made an appointment with the urologist but was wondering if anybody had the same experience.
-
Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…
-
How many of you are taking Tamoxifen indefinitely?
I'm going into year 8 of my BC diagnosis. I've always handled Tamoxifen well, it's like a sugar pill to me… minus the fact I have zero sex drive now. :) In any case, I'm still in my 40s and my oncologist wants me to just stay on Tamoxifen indefinitely. I plan to readdress at the 10 year mark, which would make me 50. I'm…
-
I'm considering a unilateral mastectomy following DCIS diagnosis
Hi. I'm newly diagnosed with DCIS following a biopsy to my left breast. Two areas of DCIS found (located near each other), 8 mm each, 1- ER+ graded intermediate, 1 - ER Neg. graded Advanced. I'm trying to decide between a mastectomy of my left breast or radiation followed by tamoxifen. I'd like to connect with women who…
-
Oophorectomy & hysterectomy experiences
Hello! I'm due to have a hysterectomy and oophorectomy due to the damage 7 years on Tamoxifen has done. I'm 48 so not quite hit menopause yet although the Tamoxifen has given some sort of menopause. My question is has anyone else had the procedure and how did they get on? I made the mistake of googling ...I'll never learn!…
-
Tamoxifen - encouragment to keep going?
I know there are a lot of posts around tamoxifen. I've been on it for a year and I feel like I should feel lucky because I don't have a lot of the long list of side effects. However, I do have severe depression that started after maybe a month of being on it. I went off after 3 months to see if it really was the tamoxifen…
-
Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen
Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen Nov 21, 2023 Ovarian suppression plus tamoxifen lowers recurrence risk. Read more…
-
Endo thickening and heavy bleeding 2 years after Tamoxifen
I'm 56. Had bilat mast, chemo in 2011, then tamoxifen for 10 yrs ending 11/2021. Hadn't had a period since chemo at age 43. Had routine screening pelvic/tva in Feb. not because of symptoms, but mom died of ovarian ca, and because I was concerned about years of Tamox. It should 12 mm abnormal thickening. Uterine bx in Mar.…
-
Starting Tamoxifen: What are the Side Effects
Hello, I will be starting Tamoxifen in about a month's time. My doctor advised to take aspirin everyday as there is a risk of developing blood clots. Have you been taking aspirin with Tamoxifen? What are the usual side effects that you've experienced?
-
What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery?
What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery? August 25, 2023 Lowering medicine prices seems to be one of the best ways to help women stick to their hormonal therapy treatment plans after breast cancer surgery. Read more…
-
Tamoxifen Users
Hello, Have any of you experienced polyps in your colon or precancer/cancer in the colon related to tamoxifen use??
-
Liver damage with Tamoxifen?
Hey, peeps. Context: A little over a year ago, shortly before my BC diagnosis, I had skyrocketing ALT and AST levels and was sent for a liver biopsy. I was diagnosed with liver damage of unknown origin (they theorized I'd been exposed to something chemical somehow), NASH and NAFLD. I had mild scarring on my liver and lots…