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Oophorectomy & hysterectomy experiences
Hello! I'm due to have a hysterectomy and oophorectomy due to the damage 7 years on Tamoxifen has done. I'm 48 so not quite hit menopause yet although the Tamoxifen has given some sort of menopause. My question is has anyone else had the procedure and how did they get on? I made the mistake of googling ...I'll never learn!…
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Tamoxifen - encouragment to keep going?
I know there are a lot of posts around tamoxifen. I've been on it for a year and I feel like I should feel lucky because I don't have a lot of the long list of side effects. However, I do have severe depression that started after maybe a month of being on it. I went off after 3 months to see if it really was the tamoxifen…
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Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen
Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen Nov 21, 2023 Ovarian suppression plus tamoxifen lowers recurrence risk. Read more…
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Endo thickening and heavy bleeding 2 years after Tamoxifen
I'm 56. Had bilat mast, chemo in 2011, then tamoxifen for 10 yrs ending 11/2021. Hadn't had a period since chemo at age 43. Had routine screening pelvic/tva in Feb. not because of symptoms, but mom died of ovarian ca, and because I was concerned about years of Tamox. It should 12 mm abnormal thickening. Uterine bx in Mar.…
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Starting Tamoxifen: What are the Side Effects
Hello, I will be starting Tamoxifen in about a month's time. My doctor advised to take aspirin everyday as there is a risk of developing blood clots. Have you been taking aspirin with Tamoxifen? What are the usual side effects that you've experienced?
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What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery?
What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery? August 25, 2023 Lowering medicine prices seems to be one of the best ways to help women stick to their hormonal therapy treatment plans after breast cancer surgery. Read more…
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Tamoxifen Users
Hello, Have any of you experienced polyps in your colon or precancer/cancer in the colon related to tamoxifen use??
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Liver damage with Tamoxifen?
Hey, peeps. Context: A little over a year ago, shortly before my BC diagnosis, I had skyrocketing ALT and AST levels and was sent for a liver biopsy. I was diagnosed with liver damage of unknown origin (they theorized I'd been exposed to something chemical somehow), NASH and NAFLD. I had mild scarring on my liver and lots…
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Tamoxifen after 5 years?
Hi :) I am 54 years old and was on Arimidex for 1.5 years (side effects were too much for me) and Tamoxifen for 3.5 years. I was not menopausal when I started, but I am now. I assumed after five years that I would be done, but my oncologist has now said I should stay on for at least two more years. I'm seriously…
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Beginning 5th Year on Tamoxifen
Hi All, I'm 2 1/2 months into my 5th year on Tamoxifen and my patience is wearing thin for dealing with the side effects. The worst one is stomach upset/pain. I'm taking a ton of PPI medication and have been since day 1, but apparently it's not enough on some days. I've only skipped one pill in March and one in May as I…
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Any POSITIVE stories about AIs or Tamoxifen?
I am seeing a lot of posts seem to indicate that AIs are frequently stopped due to side effects that are not bearable. I am on Tamoxifen and expect my onco to recommend me changing to an AI. I have gained at least 10 lbs since starting T just shy of 2 years ago. I do have joint pain (specific to the hip area) but am sure…
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Older Woman HRT
I am looking to connect with similar patients. I was on HRT for 30 years. Oh God bless Estrogen. Stopped when diagnosed. I suffered, Three weeks radiation and on Tamoxifen for 2 months. Ive been miserable more and more depressed and sick feeling. just quit. I'll be searching this forum for older posts. One of my questions:…
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After stopping tamoxifen, how long before night sweats stop?
My last dose of tamoxifen 5 mg was May 26, 2023. I am getting better sleep most nights, but still waking up with night sweats several times each night. How long does it take before it’s finally out of your system?
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Tamoxifen and bleeding
I am 44 years old and premenopausal. I have been taking Tamoxifen for 8 months. I stopped getting my period in December right after starting the Tamoxifen and have not had a period for 8 months, not even spotting. This week I was at work and started what I thought was my period but after a couple hours turned into…
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Please give me any advice - Paying for Lupron no insurance
Hello. I am writing this from abroad. I am 44 and stage 1 Luminal B (HER2-negative) breast cancer and was diagnosed so 2 years ago. I went through a surgery, chemo for 12 weeks, and radiation therapy for 30 times. Now I am undergoing treatment with Lupron depot - 3 month 11.25mg) and Tamoxifen (10mg). I am an American but…
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Life after finishing Tamoxifen
I was diagnosed with stage 1a breast cancer in 2018. Having lost my sister to the same disease at a young age, I chose to have a double mastectomy and went on a 5 year Tamoxifen regimen. I just came off tamoxifen in October after taking it for 4 1/2 years. Last gyno appointment showed endometrial thickening (benign,…
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Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
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ASCO 2023 BCO Coverage
Check out our continuing coverage of the 2023 American Society of Clinical Oncology Annual Meeting here:
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VIrtual Menopause Talk on managing the sexual, physical and emotional effects of BC
Hi All, Let's Talk Menopause, a national nonprofit organization, is hosting this free virtual event this Friday 6/9 at 12:00pm EST. There will be a Q and A period as well as information on how to treat the sexual side effects (vaginal dryness, painful sex, etc.). Please join if you can and spread to your networks! Thanks,…
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Virtual Free Menopause Talk this Friday 6/9 at 12:00EST
Let's Talk Menopause, a national nonprofit organization, is hosting this event with Dr. Laila Agrawal and Dr. Deepa Halaharvi. Registration is free. Please share! Thanks, Donna
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Tamoxifen side effects; when do they start?
I have been on Tamoxifen for almost 8 weeks now and have yet to really have any side affects. My oncologist told me it takes about 4 weeks for them to start showing up. I've had some cramping but I had my IUD out the day before I started taking it. So that could be the culprit of the cramps. No hot flashes, maybe some…
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Tamoxifen after ALH diagnosis
Just joined the group. Recently diagnosed with ALH (Atypical Lobular Hyperplasia). Met with an oncologist and discussed about going on 5mg Tamoxifen for 5 years. I am 52 and perimenopausal…had some heavy bleeding issues in the last few years and did a endometrial biopsy which came back negative. I have to decide whether to…
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Cycling through side effects, worse when I miss a dose
Just marked my 4-year anniversary of starting Tamoxifen and hoping to be done in a year. Side effects have been generally tolerable, although I'm starting to feel like I've cycled through all of them. At various times I've had muscle and/or joint pain, gyno issues, fatigue, mood issues, and a general unwell feeling. But…
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Extreme fatigue and tamoxifen
I started tamoxifen last May after IDC/ILC/DCIS surgery and a month of radiation. I was 47. The first three weeks were brutal, but then things settled down. Aside from hot flashes, not so bad! Except now, I'm having a bunch of new side effects, including extreme fatigue. I am capable of sleeping 9-10 hours a night and…
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Will stop taking Tamoxifen after 10 yrs
I have taken Tamoxifen for 3 yrs (after my surgery, chemo & radiations), followed by 5 yrs of Aromasin and then back to Tamoxifen for 2 more yrs. My oncologist told me that I can now stop taking Tamoxifen bec latest studies suggest that after 10yrs there are no advantages. Has anyone stopped taking Tamoxifen cold turkey?…
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Ovasitol to relieve hormone-blocking side effects?
Has anyone ever heard of a supplement called Ovasitol? The hormone therapy from Tamoxifen and Raloxifene has made my body go crazy. I have tried exercise, diet and even met with my internist, GYN and a RD, all to no avail. I has also now formed weird cycle issues for the cycles I have that mimic PCOS though my TSH is…