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In Treatment for Early Stage Disease (I-III)? Join us on Zoom, Tues & Thurs weekly!
Join our weekly virtual support group for all who are planning or going through active treatment for early stage disease (I-III). If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
Connect with others by creating your profile! Here's how.
We know this community is so important, so we’ve made it even easier for you to connect with others. With this update, you can: ✅ Share more about yourself so others can get to know you ✅ Find members with similar experiences using profile searches ✅ Get personalized support and resources from our community team How to…
How to use member profile search to find others like you
Using the information you and others share, you can find others based on: 📍Location (ex: lives in Philadelphia, Pennsylvania) 🌍Demographic (ex. is Black or African-American) 🧬Diagnosis (ex: diagnosed in the last year with stage II, ER+, PR+, HER2- breast cancer) 💊Treatment (ex: has been treated with a unilateral…
Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
How has a nurse helped you through breast cancer?
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
Your Voice Can Shape Clinical Trials | Participate for $100 gift card!
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…

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Active topics

November 2025 Chemo thread - let's support one another!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
Capecitabine - Side Effects
I went threw 6 rounds of chemotherapy and 2 rounds of Keytruda. The Keytruda was damaging my lungs so I was not allowed to take it anymore. After having several rounds of the same chemo I developed a allergy to it which caused me to end up in the hospital. I will be finishing radiation on July 3rd and starting Capecitabine…
Xeloda (Capecitabine)
Has anyone with Triple Negative Breast Cancer taken Xeloda that went through chemotherapy and then had a double mastectomy and lymph nodes removed? I am going to have radiation but, my oncologist wants me to take Xeloda but, I want to hear some feed back.
Getting ready to start chemo? Join the December 2025 chemo support thread!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
All about Xeloda
I will complete my first cycle of Xeloda today (2 weeks on; one week off). I have already noticed some signs of HFS on my feet. Sometimes they are red and feel hot. I've had some minor skin peeling, but not any blistering. The heels are the worst (the most sensitive) and it is uncomfortable to walk. I hope I get to see the…
Capecitabine
Hello , My name is Jill and I will be starting Xeloda next week. I was on Ibrance/Letrozole for 16 months and it has stopped working. I am curious about the new meds and wanted to talk to you ladies about a few things. I have not met with the Onc Pharmacy yet to discuss the drug and ask various questions so I figured I…
Starting Chemo August 2025 support thread
Join together to share experiences. Discuss your chemo regimen, how to prep, what to expect, how you're feeling, side effects you're having and tips to alleviate them. We're all here to support you - you've got this!
Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our free Virtual Support Groups for MBC! All with Metastatic Breast Cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST…
Starting Chemo June 2025? Let's support each other here!
Join together to share experiences. Discuss your chemo regimen, how to prep, what to expect, how you're feeling, side effects you're having and tips to alleviate them. We're all here to support you - you've got this!
Wife is starting Xeloda soon
Hi all, My wife was diagnosed with mBC in 2023. She has been through 4-ish lines of treatment, the latest Enhertu. She has felt great with no side effects but it has stopped working after a year. This is next and I’m terrified of the side effects and what living with them will be like for us and our relationship. Can…
Wife starting Xeloda
Hi. Hope it’s okay to post as a family member/caregiver. We found out yesterday that there has been new tumor growth in my wife’s bones. Very lucky that mets are confined there. Have been reading about Xeloda side effects and now I’m scared. She’s been on Enhertu for a year and had no side effects so this feels like a…
Winter 2025 Breast Cancer Research Round Up
Winter 2025 Breast Cancer Research Round Up Have you been diagnosed with metastatic hormone receptor-positive breast cancer or DCIS? Dr. Kevin Fox discusses the latest research. Apr 18, 2025 Can people diagnosed with metastatic hormone receptor-positive breast cancer avoid chemotherapy and take a CDK4/6 inhibitor instead?…
TNBC reoccurrence in treatment (Xeloda & Proton Therapy)
Hi 😊I am dealing with my 2nd reoccurrence of TNBC and currently in treatment. Starting my 4th week of Xeloda M-F (1000mg twice a day) also doing Proton Therapy. Have 20 more treatments. My oncologist said I will continue with the Xeloda after my Proton Therapy is completed. Has anyone gone thru the same treatment as me?…
Battling triple-negative, non-hormone-sensitive metastatic breast cancer
Hello dear community, My name is Yvonne, I am 56 years old and from the Netherlands, and I am currently battling metastatic, triple-negative, non-hormone-sensitive metastatic breast cancer. After undergoing treatments with capecitabine and paclitaxel, my oncologists have identified Trodelvy (sacituzumab govitecan) as a…
Starting new medication (Xeloda ) today I live alone and worry what to expect.
Hi everyone I am starting on Xeloda today 7 days test run. I live alone and pretty nervous on what to expect. Can you share plese what I really need to pay attention to and what would be the signs if any to rush seek medical attention. Thank you .
I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
Xeloda response time?
I have been on Xeloda now for about 5 months. Recent PET scan shows a "partial" response to a liver lesion, but still not great. I see my onc next week. Very worried about what he will say. How long does it take for this drug to achieve maximum effect?
Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to delay Xeloda for 10 days! I don't feel that bad enough to take antibiotics and delay capecitabina... I'm so afraid of…
Weight gain on xeloda
I'm taking xeloda and I read it can make gain a lot of weight, did anybody experienced that? Also I read that hand foot syndrome is relater with better outcome...did somebody lasted long time on xeloda without too many adverse effect? Thank you! I'm so scared and so hope it will work on me!
Diclofenac Gel Helps Prevent Hand-Foot Syndrome Caused by Xeloda
https://www.breastcancer.org/research-news/diclofenac-prevents-hand-foot-syndrome

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